sofaraway,
Here in the US it is prohibitively expensive to get tested for MODY--$3000 for the six genes already identified and they told me at the Joslin clinic that many people who they believe have it, still have genes that have not been identified. Insurance won't pay for the testing. So I don't have a definitive test.
I was given a questionairre and had a long talk with someone who at the clinic who was recruiting for a study of MODY who said after reviewing my history that I fit the description. So that's all I know. From reading up, I suspect I have the HNF-4a version.
The reason they're moving to sulfs in the UK is that they are oral and many people prefer pills to shots. But in the U.S. cutting edge advice is to avoid the sulfs because of the heart attack risk.
From reading the alt.support.diabetes.uk newsgroup, I've learned that your doctors allow people to live with what are now known to be very damaging levels of high blood sugar, which is a shame.
Here in the U.S. endocrinologists now recommend that at 2 hours people should be under 140 mg/dl (7.8 mmol/l). My doctor says "lower is better."
I have finally gotten my blood sugars into the normal range with a combination of a lowish carb diet and a basal insulin and I feel so much better it is ridiculous, though my numbers before the insulin would have been considered very good by many doctors (A1c of 6.0%). But since that 6.0% was achieved on a very low carb diet, and was rising, my doctor did not think it was good enough, especially since there's research suggesting that when blood sugar control goes for Type 2s it goes extremely fast-- so the rise in my fasting blood sugar while still only borderline bothered him since I was eating so perfectly, maintaining normal weight and still getting to 140 eating a low carb meal.
I have checked out the site you suggested and emailed the woman whose contact info is there, btw.
If you want some ammunition about damage and blood sugars, check out
http://www.phlaunt.com/diabetes and click on the "organ damage" link which will take you to a bunch of research linking specific blood sugar levels to organ damage.
