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Originally Posted by chachacha Hi Caroline,
I was diagnosed in 1994 and have been pumping since 1996. If you are questions about pumping maybe your team could tell you more about it if they are familiar with it themselves? Would you be a candidate for a pump before you get a transplant?
I chose my consultant in London because she had lots of patients on a pump. I met a group of lovely people on a DAFNE course and am still seeing them 3 years later. In the DAFNE course a person told me about another forum which I found very useful too. I am new to this one but really enjoy hearing about other people' s experience . |
Hi there,
They spoke to me about a pump before all the talk about transplants etc but I think that idea has gone out the window now! I am also under a hospital in London - the Royal Free, they have been brilliant. Previously I have been under a different hospital where I was only seen once a year from the age of 16 (im 26 now). I would go there once a year, get told off for not looking after myself properly and think 'o well don't have to face that for another year!' I have been referred to the John Radcliffe in Oxford for the transplant itself and they have been really good too. How have you found the pump - this sounds silly but I am really squeamish with needles and tubes and didn't think i would be able to insert the needle myself! I am such a wimp when i go into hospital I ask them to cover up any drip tubes etc with a bandage as it makes me feel sick looking at it!
