Quote:
Originally Posted by lottadata  Did they make you do the whole 6 test suite? When I contacted them last year they wouldn't let me just test the two genes I was interested in. And my insurer won't pay so it would have been $3,000+ to do it.
Orpy,
Korff was the guy who told me not to come back until my A1c was 8%. He has the local reputation of being the best doctor for thyroid issues. But he made it clear he thought an A1c in the low 6% range was wonderful even if I got it eating no more than 60 grams of carb a day, and that was that.
So where are you located? I'm near Greenfield. |
I think they only tested for 5 of the genes - based on symptoms I'm most likely Mody 3.
My insurance covered it with nary a complaint otherwise I probably wouldn't have bothered. I'm hoping it comes back positive in which case that researcher you referred me to will include myself and probably my children in his study so they might get tested for free. I can't imagine insurance would pay to test them when they are symptom free.
So I was mostly joking about putting a support group together but I wouldn't be opposed to meeting in the "real" world to compare notes, etc. I also think it is a crime how many endocrinologists I had to go through before I got good treatment - and I hear nightmare stories all the time. There should be a referral network where people can share their experiences and help people hook up with good doctors *as reviewed by patients*.
