| I pretty much had to figure out my diagnosis myself, as my doctors assumed I was a classic Type 2 and when I started hypoing on what should have been small doses of insulin and tested for normal C-peptide and very high post-prandial blood sugars they had no idea what was happening.
I was lucky to find out about MODY by reading the site provided by Dr. Hattersley and then I corresponded with Dr. Hattersley who confirmed that my history was suggestive of MODY.
When I managed to hypo on 1/8 of 1mg of Amaryl, that seemed to confirm it, though I haven't had the gene testing due to expense. I was in a study that ruled out a form of MODY I knew I didn't have, but though the recruiter for the study told me he'd test for other genes, they didn't.
Whatever the diagnosis, the really important thing is that you get access to whatever tools you need to normalize your blood sugar. It's high blood sugars that cause the complications, not the underlying defect. So if you control the sugars your prospects are good, long term.  | 
