| Mody 2 R36w
My son and I have it and I have run through a variety of treatments.
Since it all stated with my fourth pregnancy I was on insulin for about a year post partum. Then we moved to Metformin, Januvia, Prandin combination. This is when I really did not feel well on the mads even though I had good control. I still feel that Metformin was not right for me even though so many say it is such a good medication.
Januvia did not change anything.
When Byetta came out I started that and we dropped all other meds except I can take Pandin to cover a heavy carb meal. Now that I have been on this for awhile I find I don't need any Prandin anymore and I can tolarate limited carbs too. I have never felt better and I have great even numbers all day long. A1c is between 4.5 and 5.2 typically. It was a ride to get there though.
My son (7) was on 5 shots a day of diuluted H. This was when they originally thought he was type one and then after correct diagnoses just kept it up for awhile. We moved him through two ped. endo's and now he sees my endo who knows allot more abot MODY. We tried diet control for him after weaning him off the shots but he was not growing very much and hungry all of the time so now we are just watching numbers. He is typically 135-200 throughout the day and his
A1c is about 6.0. We has discussed using prandin for him off the label but we have not jumped on a descision quite yet.
We keep hearing from our genetic diabetes specialists who review our case, (Philipson, Hattersley, and Gloyn) that his numbers will not be bad for him. I worry because like many of you many family members with Diabetes have all died in their 40's and 50's from heart attacks. The doctor's repeatedly tell me this is most likely not from our MODY mutation. What do you guys think? I worry more for my son than myself. I would like him to have a long life ahead of him.
Thanks, Maribeth  | 
