| Very good information. I want to thank everyone for sharing their ideas and experiences. If Guitar Dave doesn't mind I would love to hear if your are a MODY 2, R36W when the tests come in. It does have MODY 3 characteristics. There are not many of this type identified out there so the chances are slim. I just find the geography coincidence pretty crazy.
We just had our Endo appointment last Monday. I am still happy on my Byetta and my numbers are good. I lost 5 pounds. I do take zocor to keep the cholesterol down. My Triglicerides can be very confusing, sometimes they are just great, but if I even have one glass of wine then they skyrocket to the high 400's. I have found that controling certain carb intake is my best bet. No grains, not even whole. Not much fruit either. Watermelon does not make us go high, and we tollerate pineapple,but no carrots, no oranges, no apples for me, obviously no bananas. I live mostly on meat, green veggies and lugumes. Again we tried this for Dylan but because of his size he was not gaining weight and he did not have weight to lose so he has much more carbs than me. We watch what kinds of carbs though.
I was always thin before my third pregnancy which was the first time I became Diabetic. After that I just could not loose all of the pregnancy weight. They cleared me of the Diabetes 6 months post partum when I had lost some of the pounds. The fourth pregnancy was much worse though and the Diabetes stayed on. We did not know it was MODY until Dylan, my third, was diagnosed about a year later. Since he was neg. for gad, and very thin too they did not know what was going on at first. That was when we were Doctor hunting to figure it all out.
Dylan's A1c was 5.9 and his post meal averages for two months were 157 for am, 160 for lunch and 135 for dinners. I have Dawn phenomena so my fastings are about 135-145 in the am. Dylan is never above 112 or so fasting. We decided not to treat for Dylan again. I want to keep looking into it for the next few months. We were happy he gained two pounds because he is very small and thin for his age. The doctor is flexible on starting meds if we say the word. I am just torn on what to do. Again we would be using meds off label. I think it is encouraging to hear that they are using suls on kids in Europe. They seem way ahead of the states on much of the medical stuff.
I heard that the insulin can be tough on your vascular system. Do you think that it is not true? Dylan was doing four shots a day for awhile and an extra for snacks. It was diluted and he still had daily hypos. We would have moved to a pump if he stayed on.
I just saw a new finding on Glukocinase mutation from a Philippe Froguel study that came out today. It leans towords treating postmeal highs as opposed to living with them.
I will keep checking in and reading what you guys think. I wish everyone good energy for the day.
Maribeth  | 
