I agree with you. You have a very weird diabetes.
The thought I wish to discuss has to do with your c- peptide level. Most people believe that the c-peptide just continues to go down in diabetics but many papers that I've been reading document the opposite.
There are people who initially present with high A1c's and don't respond to oral meds. They were given insulin and after they were stabilized showed significant rises in C-peptide function. At this point, they were treated as t2's.
What made these people really weird is that they could go back to out of control and then go back to near normal bg's. Their beta cells would apparently quit then still come back. My cousin, when he found out about my diabetes, told me about this. He is now on his third go round and fully expects to get back to normal bg's again.
This was once thought to be rare but it turns out to be very common among people of Asian and African descent. Now they've found it every where. Their are varying theories why this occurs. My point is that for some internal reason beta cells can come and go.
You might want to check your c-peptides again and maybe think about trying oral meds again.
Mike
Here's some more citations on this.
Accuracy and Predictive Value of Classification Schemes for Ketosis-Prone Diabetes ? Diabetes Care
Accuracy and Predictive Value of Classification Schemes for Ketosis-Prone Diabetes
HLA Class II Alleles Specify Phenotypes of Ketosis-Prone Diabetes ? Diabetes Care
HLA Class II Alleles Specify Phenotypes of Ketosis-Prone Diabetes
