| Yeah, unfortunately i am not surprised either. I spent 7 years in and out of the hospital with various degrees of pain and other instestinal symptoms and they just kept telling me it was in my head. I had one gastroenterologist and one GP tell me that i couldn't possibly have CD since i didn't have the symptoms for it. But when i looked at risk factor and symptom lists, it was essentially a check list for me. I had just about all the classic ones. Unfortunately, doctors are way undereducated about CD, which is why only 3% of people living with it are actually diagnosed. Current estimates in north america is that one in 133 people have CD, but 97% of them are undiagnosed!
Heather, just one note - it is really important that you keep eating gluten until you have all tests done. If you do have cd and you stop eating gluten, your intestinal lining can heal fast and you don't want a biopsy to be falsely negative.
Andrea |