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12-03-2006, 09:17 AM
| | Senior Member
I am a: Type 1 | | Join Date: Sep 2004
Posts: 5,810
| | | My doctor has me labelled as type 1.5. For prescribing and testing purposes, he seems to alternate between the icd-9 code for type 1 and type 2. I really and truly don't fit in to either category nicely, and I think a lot of this has to do with a complicated medical history. I was diagnosed fairly young (19), had a slow onset with intermittent extremely high blood sugars, couldn't control it with just diet and exercise, never tried oral meds, and responded well to insulin. I take around 30-40 units a day, and seem to be pretty insulin sensitive. Blood work shows I still make some insulin, though not much. So where does this put me? Honeymooning seems to be a common guess, but type 1.5 is a pretty accurate label for me it seems. | 
12-03-2006, 10:55 PM
|  | Senior Member
I am a: Type 2 | | Join Date: Sep 2006 Location: Douglasville, GA
Posts: 2,574
| | Quote:
Originally Posted by Funnygrl My doctor has me labelled as type 1.5. For prescribing and testing purposes, he seems to alternate between the icd-9 code for type 1 and type 2. I really and truly don't fit in to either category nicely, and I think a lot of this has to do with a complicated medical history. I was diagnosed fairly young (19), had a slow onset with intermittent extremely high blood sugars, couldn't control it with just diet and exercise, never tried oral meds, and responded well to insulin. I take around 30-40 units a day, and seem to be pretty insulin sensitive. Blood work shows I still make some insulin, though not much. So where does this put me? Honeymooning seems to be a common guess, but type 1.5 is a pretty accurate label for me it seems. | Personally, in my UNeducated opinion  That's how I'd see it. That if your pancreas is still producing some insulin, but not enough, I would call that 1.5, since well, it's kinda in between Type 1 who doesn't produce any insulin, and Type 2 who does produce insulin, but the body doesn't properly use it.
Then if and when a pancreas stops producing any insulin at all, THEN at that time Type should be changed to Type 1? Does that happen with 1.5's? Do ya know? That eventually the pancreas stops producing insulin all together?? Is that what "slow onset" means?
I wish they did have definitive tests to determine what type a person is. Sure seems it would make it a whole heck of a lot easier!
__________________ Age: 43
Type 2 - Dx'd 08.16.05 ••• [ A1c ]
6.9 - 01/07
6.0 - 05/07
5.9 - 09/07
6.4 - 3/08 [ Meter ]
UltraSmart/Ultra2/Contour [ Meds ]
Metformin 1000mg 2x, Novolin N 20u 2x, Novolin R 1:10
Lisinopril 20mg 1x, Lovastatin 40mg 1x, Aspirin 81mg 1x, Albuterol as needed [ Other Conditions ]
Coccidioidomycosis aka Valley Fever Dx'd 1.17.94
- Asthma
- Chronic Bronchitis
Hypertention
Hyperlipidemia | 
12-04-2006, 02:52 AM
| | Senior Member
I am a: Type 2 | | Join Date: Feb 2006 Location: Virginia
Posts: 1,351
| | | You can diagnosis a disease in terms of its symptoms or in terms of its cause. The same symptoms can be caused by different diseases or a single disease can have different symptoms.
Ladytaz is looking at diabetes in terms of its symptoms; the amount of insulin produced. It is absolutely true that a type 2, a MODY (1.5), and a type 1 "on honeymoon" may seem the same and require the same or almost the same treatment. And as the disease progresses, if it does, the treatment for all three moves in the same direction.
However, the causes of each condition is separate. That may not effect the treatment, but is of vital importance in terms of preventing the disease and or curing it. | 
12-04-2006, 09:25 AM
| | Senior Member
I am a: Type 1 | | Join Date: Sep 2004
Posts: 5,810
| | Quote:
Originally Posted by seacomp You can diagnosis a disease in terms of its symptoms or in terms of its cause. The same symptoms can be caused by different diseases or a single disease can have different symptoms.
Ladytaz is looking at diabetes in terms of its symptoms; the amount of insulin produced. It is absolutely true that a type 2, a MODY (1.5), and a type 1 "on honeymoon" may seem the same and require the same or almost the same treatment. And as the disease progresses, if it does, the treatment for all three moves in the same direction.
However, the causes of each condition is separate. That may not effect the treatment, but is of vital importance in terms of preventing the disease and or curing it. | I look at diabetes in terms of cause. Type 1 is usually autoimmune (though there is type 1 B), and type 2 is caused by insulin resistance. 1.5 is also autoimmune, but a slow onset. I have no insulin resistance, I'm totally insulin sensitive. Therefore, type 2 doesn't make sense. I don't have immune markers either though, however, studies show only 60-80% of type 1s have these. | 
12-04-2006, 10:46 AM
| | Member
I am a: Parent | | Join Date: Feb 2006 Location: Arizona
Posts: 239
| | Quote:
Originally Posted by Funnygrl I don't have immune markers either though, however, studies show only 60-80% of type 1s have these. |
What are immune markers??? 
__________________ Alisha
Mommy to Taylor, 5yrs old
dx'd 13 Nov 03
last AIC -7.0 in Oct 06
:****mate: Quote:
"A word to the wise ain't necessary -- it's the stupid ones that need the advice."
Bill Cosby
| | 
12-04-2006, 08:26 PM
| | Senior Member
I am a: Type 1 | | Join Date: Sep 2004
Posts: 5,810
| | Quote:
Originally Posted by Tatermom What are immune markers???  | GAD65 is the big one- antibodies | 
12-04-2006, 10:14 PM
| | Senior Member
I am a: Type 2 | | Join Date: Feb 2006 Location: Virginia
Posts: 1,351
| | Quote:
Originally Posted by Tatermom What are immune markers???  | Most type 1 diabetes is an autoimmune disease; the body's own defenses destroy the pancreas' ability to produce insulin. When this is the case, certain specific antibodies to insulin and insulin producing cells can be found in the blood. These are the "immune markers".
Surprisingly often, however, these markers can not be found. It is not clear whether or not, the same or a different disease process is involved here comparing to the straightforward autoimmune situation.
As of now, there does not seem to be any meaningful difference in treatment for type 1 between the case where the markers are found, and where they are not. The difference between the two may be very important in terms of prevention and/or a cure. | 
12-05-2006, 01:16 PM
| | Junior Member | | Join Date: Nov 2006 Location: Maryland
Posts: 36
| | Quote:
Originally Posted by DazedSheep Ladytaz, it was 7.5 so they took me off insulin. I'm starting to think they made a mistake. I resd about a man with a reading of 1337 who now says he's cured. |
Maybe you can contact DeWayne McCulley and ask him to show you the results of his blood sugar levels and his GTT tests. Death to Diabetes -- Reverse & Cure Type 2 Diabetes | 
12-05-2006, 03:46 PM
|  | Senior Member
I am a: Type 1.5 | | Join Date: Sep 2003 Location: Hogwarts, Hobbiton, the Galactic Milieu &Ks when I have to be here
Posts: 4,318
| | Quote: | So, how do you go from type 1 to type 2 or vice versa? | Take Edgeware Rd to the M1 then just past Aldenham pick up the M25 til you get to M40 follow that until that turns into the M42 then use M42 until the M5, M5 to M6, M6 to A74(M), A74(M) to A71, A71 to A738, A738 to A737, A737 to M898, M898 to A898, A898 to A82, A82 to A9, A9 until you come to Thurso, park your car at the corner of Paterson's Ln and Barrock's St. Voila Vous êtes là, Version premier.
If you reverse this route, you get Type 2.
__________________
"I am wounded," he said, "wounded, and it will never heal."
Frodo to Samwise
| 
12-05-2006, 06:44 PM
| | Member
I am a: Type 2 | | Join Date: Nov 2006 Location: Ottawa, ON
Posts: 205
| | Quote:
Originally Posted by rzrbks Take Edgeware Rd to the M1 then just past Aldenham pick up the M25 til you get to M40 follow that until that turns into the M42 then use M42 until the M5, M5 to M6, M6 to A74(M), A74(M) to A71, A71 to A738, A738 to A737, A737 to M898, M898 to A898, A898 to A82, A82 to A9, A9 until you come to Thurso, park your car at the corner of Paterson's Ln and Barrock's St. Voila Vous êtes là, Version premier.
If you reverse this route, you get Type 2. |
Aha! Now *that* makes sense!  | 
12-07-2006, 11:59 AM
|  | Senior Member
I am a: Type 1.5 | | Join Date: Sep 2003 Location: Hogwarts, Hobbiton, the Galactic Milieu &Ks when I have to be here
Posts: 4,318
| | Start here(near Gladstone Park)>>>>>>>>> http://www.google.com/maps?ie=UTF-8&oe=UTF-8&hl=en&tab=wl&q= Quote:
rzrbks Quote: | So, how do you go from type 1 to type 2 or vice versa?
| Take Edgeware Rd to the M1 then just past Aldenham pick up the M25 til you get to M40 follow that until that turns into the M42 then use M42 until the M5, M5 to M6, M6 to A74(M), A74(M) to A71, A71 to A738, A738 to A737, A737 to M898, M898 to A898, A898 to A82, A82 to A9, A9 until you come to Thurso, park your car at the corner of Paterson's Ln and Barrock's St.
Voila Vous êtes là, Version premier.
|
If you reverse this route, you get Type 2.
__________________
"I am wounded," he said, "wounded, and it will never heal."
Frodo to Samwise
| 
12-07-2006, 12:04 PM
|  | Senior Member
I am a: Type 1 | | Join Date: Oct 2005 Location: Sacramento California
Posts: 2,515
| | | I thought you just subtract or add 1. | 
12-07-2006, 12:39 PM
|  | Senior Member
I am a: Type 1 | | Join Date: Jul 2006 Location: Somerset, Pa
Posts: 702
| | | Since I did make a 4.0 on my C-Peptide Test. I'm making way to much insulin and therefore I'm Extremely Insulin Resistant.
Also a Gad Test said that I had those critters that destroys the b cells. I'm positive.
One Endo looked at me and said I was a Type 2. When I questioned him he got indignant with me and tried to force Extended Release Metformin on me.
I told him this wasn't doing any good and he all but looked at me and shrugged his shoulders and started to walk away in his office. Oh he wanted me to take Byetta. ( Hint I shoot Insulin and had been). I must be a fat lazy twinkie eating couch potatoe that does nothing but watch television all day. If only hadn't eaten all that candy and twinkies.
Only when I agreed to take the Prescript for Metformin XL he then sent me for some tests. The results are a 4.0 C-Peptide and Positive for Gad 65 Antibodies. Oral meds have no effect on me but some bad side effects.
The First Endo that I saw in 2001 said that I was a type 1 because of tests. He said I would need to inject insulin forever. Cigna in Arizona.
I should be able to take my insulin pump off and take a handfull of those oral meds, gets some exercise and eat responsibley, maybe even inject Byetta that should help. By the way I tried this and ended up very sorry and in the hospital. Not The Byetta I have never tried that.
I'm a Type 2. So my next endo I told him I don't need the insulin and he said your positive for GAD Antibodies and would quickley fizzle out the pancreas.
I guess what ever.
__________________
Animas 1250 Pump 7-24-2006
Animas 2020 Pump 9-04-2007
Medtronic Guardian REAL-Time 11-13-2007
| 
12-07-2006, 06:53 PM
| | Senior Member
I am a: Type 1 | | Join Date: Sep 2004
Posts: 5,810
| | | You sound like a prime example of double diabetes. | 
12-07-2006, 07:50 PM
|  | Senior Member
I am a: Type 1 | | Join Date: Jul 2006 Location: Somerset, Pa
Posts: 702
| | | Yes it sounds like I have been blessed with the double D. What an achievement.
When I'm not feeling well it does seem like I'm extremely insulin resistant. But when I feel good not so bad.
I just seems like when your sick the BG's hoover between 180 and 210 and nothing brings them down.
__________________
Animas 1250 Pump 7-24-2006
Animas 2020 Pump 9-04-2007
Medtronic Guardian REAL-Time 11-13-2007
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