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06-01-2007, 02:46 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Jun 2006 Location: Belgrade, Serbia
Posts: 611
| | | I would trust your judgment over any medical advice, FG and am sure you did the right thing. I hope your problems are already gone. |
06-02-2007, 12:35 AM
|  | Senior Member
I am a: Type 1.5 | | Join Date: Jun 2006 Location: Bellevue, WA
Posts: 649
| | | Hope you feel better soon!
__________________
Dx T2 3/2005
Correctly dx T1 (LADA) 11/2006
MM 522 w/NovoLog since 1/07
Previously on Actos, Starlix, Metformin ER, Lantus
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06-02-2007, 11:10 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Sep 2005 Location: Cincinnati, OH
Posts: 8,367
| | Oh Christine...where are you? Come home darlin. The forum misses you and wants an update. Or maybe just me 
__________________
●Blue Ash, Ohio Police Dispatcher
●Type 1 diabetic for 25 years (11 months old)
●Animas pumper since December of 2002
~IR 1000 (Dec. 2002-Jan. 2005)
~IR 1200 (Jan. 2005 - ?)
●LifeScan OneTouch UltraSmart Diabetes is an Art, NOT a Science. You must master the control by skills and not by knowledge alone. |
06-02-2007, 12:37 PM
|  | Senior Member
I am a: Type 1 | | Join Date: Oct 2005 Location: Sacramento California
Posts: 2,515
| | Quote:
Originally Posted by JediSkipdogg  The forum misses you and wants an update. | Totally. I hope you are ok fg. Please let us know. |
06-02-2007, 01:42 PM
|  | Senior Member
I am a: Type 1.5 | | Join Date: Feb 2006 Location: Orlando, FL
Posts: 7,846
| | It's awhile since she's posted... Hope your ok fg. 
__________________
You may call me Locutus  |
06-02-2007, 05:43 PM
| | Senior Member
I am a: Type 1 | | Join Date: Sep 2004
Posts: 5,810
| | | I ended up going back to the hospital. Things didn't go so hot with being home. They admitted me (again) thursday afternoon, and I just got home. It sucked, but it was really the best thing that I went back. Ihad a private room, and my nurses were nice, so that was all good.
It appears I have gastroparesis quite badly. I don't tolerate Reglan well, and that's basically the only real choice for treatment. Propulsid is available limitedly and Zelnorm was taken off the market. Soo....it's Reglan, a gastric pacemaker, or getting Domperidone from Canada. We're going with the last choice for now. I'm really not happy about having to get Domperidone, and pay out of pocket for it because Reglan is the only choice in the US, but it seems like the best option, and my parents are totally supporting me (financially and emotionally) in that choice. If Domperidone doesn't work, they're referring me to the Cleveland Clinic for a gastric pacemaker.
I'm taking the Reglan for now though, and am finally keeping down food and water.  |
06-02-2007, 05:49 PM
| | Senior Member
I am a: Type 1 | | Join Date: Sep 2005 Location: Cincinnati, OH
Posts: 8,367
| | | Glad to hear you are OK....well, alive and back home. I guess my question is do they know if gastroparesis was caused by your diabetes or not? I know there is a huge link between the two, but I always took it you had good control, so that shouldn't have caused it and so newly diagnosed (well, not like 10 years.)
__________________
●Blue Ash, Ohio Police Dispatcher
●Type 1 diabetic for 25 years (11 months old)
●Animas pumper since December of 2002
~IR 1000 (Dec. 2002-Jan. 2005)
~IR 1200 (Jan. 2005 - ?)
●LifeScan OneTouch UltraSmart Diabetes is an Art, NOT a Science. You must master the control by skills and not by knowledge alone. |
06-02-2007, 05:59 PM
|  | Senior Member
I am a: Type 1 | | Join Date: Jan 2005 Location: North-Central Indiana
Posts: 3,732
| | | Jedi the first line to treating gastroparesis is getting the blood sugars controlled. Controlling blood sugars helps some but doesn't completely cure it for others and they could still need further treatment.
__________________
~Sandi~
Pumping for almost 6 years
MM Purple 722 with Humalog
Symlin
Just because I've been on df for a whole day doesn't mean I'm ADDICTED... my chair is just COMFY... |
06-02-2007, 06:04 PM
| | Senior Member
I am a: Type 1 | | Join Date: Sep 2005 Location: Cincinnati, OH
Posts: 8,367
| | Quote:
Originally Posted by camjen1 Jedi the first line to treating gastroparesis is getting the blood sugars controlled. Controlling blood sugars helps some but doesn't completely cure it for others and they could still need further treatment. | I was referring to what caused it though. High blood sugar levels can damage the vagus nerve and disrupt it's function, however, heck, I didn't think FG had BGs that high.
And now control will be harder because it affects stomach absortion and emptying. Therefore I would suspect more erratic readings. Poor FG 
__________________
●Blue Ash, Ohio Police Dispatcher
●Type 1 diabetic for 25 years (11 months old)
●Animas pumper since December of 2002
~IR 1000 (Dec. 2002-Jan. 2005)
~IR 1200 (Jan. 2005 - ?)
●LifeScan OneTouch UltraSmart Diabetes is an Art, NOT a Science. You must master the control by skills and not by knowledge alone. |
06-02-2007, 06:09 PM
| | Senior Member
I am a: Type 1 | | Join Date: Sep 2004
Posts: 5,810
| | | I was diagnosed with gastroparesis 2 years before I was diagnosed with diabetes, so they think I would have gotten it anyways. Robin (Eri's Mom) has gastroparesis and doesn't have diabetes. They don't think my diabetes caused it, but they do think it caused it to progress quicker, and it does further force me to be more diligent. Even though my blood sugars are typically excellent, they are far from perfect or normal. |
06-02-2007, 06:39 PM
|  | Senior Member | | Join Date: Jul 2004 Location: MIdwest, USA
Posts: 1,067
| | | Doesn't sound like good times. I'd hate to go through this in your situation... especially when you aren't sure what it could be. I hope your insurance is helping to cover the ER and admit.
It had to really be frustrating during your glucose drop, despite the pump suspension. |
06-02-2007, 08:34 PM
| | Senior Member
I am a: Type 1.5 | | Join Date: Feb 2006 Location: Orlando, FL
Posts: 7,846
| | | Is there a way to handle the gastroparesis with the pump alone, without medications?
__________________
You may call me Locutus |
06-02-2007, 09:38 PM
| | Senior Member
I am a: Type 1 | | Join Date: Sep 2004
Posts: 5,810
| | Quote:
Originally Posted by Cyborg Is there a way to handle the gastroparesis with the pump alone, without medications? | The insulin pump? No, the pump let's me match boluses to meals and my funky emptying, and is pretty much indespensible at this point, but does nothing for the stomach pain and vomiting. |
06-02-2007, 09:44 PM
| | Senior Member
I am a: Type 1 | | Join Date: Oct 2005 Location: Sacramento California
Posts: 2,515
| | | I've never heard of a gastric pacemaker, but it sounds like surgery is involved and having somthing implanted in you. I certainly hope that you do not have to go there. What does a gastric pacemaker do exactly? |
06-02-2007, 10:14 PM
| | Senior Member
I am a: Type 1 | | Join Date: Sep 2004
Posts: 5,810
| | Quote:
Originally Posted by BriOnH I've never heard of a gastric pacemaker, but it sounds like surgery is involved and having somthing implanted in you. I certainly hope that you do not have to go there. What does a gastric pacemaker do exactly? | No snide remarks about my opinions of minimed, ok?
This explains it best, honestly: Stomach spasm and Gastroparesis treatment options at Medtronic
It's basically like a cardiac pacemaker, except it causes your stomach to contract. It's implanted laproscopically. The battery gets changed ever 5-10 years. That stinks, cause it means a minimum of 5 surgeries for me if I live to 70. Ah well, if it helps, I'd be thrilled. I doubt I would be qualified though. |
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