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02-25-2006, 10:53 AM
| | Senior Member
I am a: Parent | | Join Date: May 2004 Location: FL
Posts: 1,918
| | | Eri saw another specialist yesterday...
Hi again...
OK, Eri was back at the ped's on Wednesday, due to vomitting and massive headaches and side aches...we got a call for a cancellation w/ the allergist and she saw them yesterday 
Well, she is NOT allergic to anything, thank God, but they are sending her for a CT scan of her head to see why the headaches on Tuesday at CHOB's, so, then her GI doc got in touch w/ me, I explained that Eri would be at the hospital already on Tuesday morning, so they faxed over the form to get an abdominal xray right after the CT. They will then decide if she will be admitted or not, b/c, nothing is really moving. She fell asleep in tears from pain the other night, aspirin wasn't helping. Breaks my heart.(and her BG's aren't bad now at all...her reading last night was 126, this morning was 70 and now she is up to 132...so she's doing better...not super high readings, thank God.
Oh, one of the other doctors suggested she see's a neurologist next...because of how her hands have been. They get all red,swell and burn really bad(from out of nowhere), and she said it feels as if her nerves are on end. She runs them under cold water to try to ease it up. So, one of the doc's mentioned neuropathy...I was like, in her hands?(OK, so my mind is just boggled w/ a TON Of other things going on, not just regarding Eri, although she takes up a LOT of my mind)...
So...we will see on Tuesday what will be going on.
If I would let her, she'd sleep 20 hours a day. This lethargacy concerns the doctors as well. You can see in her eyes that she is hurting(headaches and sides/stomach) constantly and she just wants to relax. I made her walk w/ me ...I got her a case for the iPod nano my mom sent to her at the iPod store in the mall last night, even though she wanted to just go home and sleep. I try to keep her moving as much as possible to get her system moving.(she raced me up the 3 flights of stairs in the parking ramp yesterday, so that was good...but she had a bit of energy from a diet pepsi of all things).
OK, that's about it for now...
I have to call my son and wish him a happy 15th(AHHH!!!) birthday ...again. He had to cut it short when I called earlier b/c his friends were calling and coming over(and so it begins even more...lol)
Can't believe I have a 15 yo...lol.
Have a great day all
__________________
Praying for a speedy and perfect road to health for Carwy...and that he beats this FOREVER...with a long and healthy and happy life!!!
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02-25-2006, 11:00 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Sep 2005 Location: Cincinnati, OH
Posts: 8,356
| | | Wow, keep us updated and stay strong. Also make sure Eri stays as strong as she can. We are all here for her and a speedy diagnosis and recovery.
__________________
●Blue Ash, Ohio Police Dispatcher
●Type 1 diabetic for 25 years (11 months old)
●Animas pumper since December of 2002
~IR 1000 (Dec. 2002-Jan. 2005)
~IR 1200 (Jan. 2005 - ?)
●LifeScan OneTouch UltraSmart Diabetes is an Art, NOT a Science. You must master the control by skills and not by knowledge alone. |
02-25-2006, 03:37 PM
|  | Senior Member
I am a: Type 1 | | Join Date: Aug 2003 Location: CT
Posts: 4,588
| | Robin,
That's truly something... Eri has been through so much already with this disease and to hear that there are still other issues going on, must be so hard  . I can't imagine how hard that must be on you both.
As much as I wish that she wasn't dealing with all this, I think you are doing the right thing by getting her seen by these specialists. Obviously, something is going on with her health, and I truly hope that these doctors can figure out what the problem is and how to make her feel better.
Thanks for keeping us posted on this all and please continue to do so- we're thinking of you both
__________________ I’ve faced myself
To cross out what I’ve become
Erase myself
And let go of what I’ve done
Put to rest
What you thought of me
Well I cleaned this slate
With the hands
Of uncertainty
So let mercy come
And wash away
What I’ve done
I’ve faced myself
To cross out what I’ve become
Erase myself
And let go of what I’ve done
Linkin Park~ "What I've Done"  |
02-25-2006, 05:34 PM
| | Senior Member
I am a: Type 1 | | Join Date: Sep 2004
Posts: 5,770
| | | I really hope things get better soon! |
02-25-2006, 05:58 PM
|  | Senior Member | | Join Date: Sep 2004 Location: Ohio
Posts: 4,635
| | Robin, I just can't imagine being Eri's age and dealing with all that. I wish there was something we could do besides send good wishes. I glad Eri has you to take care of her. Happy Birthday to your son. 
__________________
17 post cards from round 1
3 postcards from round 1/2
And 1 from Ed
I will remember you
Will you remember me
Don't let your life pass you by
Weep not for the memories.
I'm so tired but I can't sleep
Standing on the edge of something
much too deep
It's funny how we feel so much
but cannot say a word
We are screaming inside
But we cannot be heard
Sarah McLachlan
8/26/08 A1C 6.4
Cholesterol below 100
BP 114/64
Still anemic
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02-25-2006, 07:44 PM
|  | Senior Member
I am a: Type 1 | | Join Date: Sep 2004 Location: Miami, Fl
Posts: 3,120
| | | WE R HERE FOR YOU ERI & ROBIN!!!
You are both in my prayers and Please let us know as soon as you can.
__________________ T1- 25 yrs MM-715 (6/05)
A1C :
6/08- 5.8
3/08- 6.2
11/07 7.3 |
02-26-2006, 05:38 AM
|  | Senior Member | | Join Date: Jun 2005 Location: Vermont, 50 miles from nowhere
Posts: 2,396
| | | Stay tough both of you. You both are in my thoughts and prayers.
__________________
Val
Take care of your body. Where else are you going to live? |
02-26-2006, 05:51 AM
| | Senior Member
I am a: Type 1 | | Join Date: Feb 2006 Location: Victoria, BC
Posts: 706
| | | When it rains, it pours. My thoughts and prayers are heading your way. Poor Eri! I can't imagine going through such a roller coaster at such a difficult time in life. I really hope the docs are able to help you sort things out and understand what is going on.
God bless and good luck. |
02-26-2006, 07:59 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Sep 2003 Location: The city on the edge of forever.
Posts: 4,847
| | | I hate to hear of her problems. I hope they find the cause quickly and correct it.
__________________
Brandy
My Little Princess
August 18, 1990 - May 3, 2006 
Say you'll share with
me one
love, one lifetime . . .
Lead me, save me
from my solitude . . .
Say you want me
with you ,
here beside you . . .
Anywhere you go
let me go to . . .
Christine,
that's all I ask of . . .
(you)  |
02-26-2006, 08:45 AM
|  | Senior Member
I am a: Type 2 | | Join Date: Sep 2005 Location: Columbia River Gorge
Posts: 1,139
| | | Robin, Keep the chin up and good thoughts going. (I know, easy to say) I am amazed when I hear your posting. I don't know how you deal with so much. You are such a good Mom. Then when I realize how hard this must be for your son. It's hard for a child (no matter how old) to realize that Mom's time is really taken with a sick sister. YOU ARE GOOD!! And it sounds like HE IS GOOD, TOO. Good luck to Eri and Happy B-day to the 15 year old.
__________________
" Those who wait for roast duck to fly in mouth must wait a very long time. If you need something, don't wait. Go get it."
"This one makes a net. This one sits and wishes. Can you make a bet, which one catches fishes?"
______________________
Syd--20 years Type II diabetes 18 years insulin dependent.
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02-26-2006, 10:28 AM
| | Senior Member
I am a: Parent | | Join Date: May 2004 Location: FL
Posts: 1,918
| | Thanks so much everyone
Eri's bg this morning was 66...she looked like she did when she was little sleeping early this morning...weird...and I'm sure she'd be irked if she knew I said that...lol.
Yeah, I'm going crazy trying to get answers...I feel as though we are being led in circles...and I AM assertive, it's just those drawn out looks some doctors give, know what I mean?(all, basically, the same group)...
Her home tutoring is up now, and they want her back in school, yet she has all these appointments coming up...I'm trying to get an extension, but who knows? It took them forever just to get the approval the first time.
I get on those kicks where I feel everything is my fault things are like this for her...I can't stand seeing her so unhealthy. She was never this bad in FL, except for breaking her arms each one time(boys broke her arms...a different one each time), and that one time w/ DKA and when she was first dx'd and having all those seizures.
Honestly, I think it all started when she got the flu the day after Thanksgiving, and then again, when she got the flu shot 2 days after Christmas...she hasn't been "well" since those times...I'm not a doctor, though, just going on what I've seen.
Shuttin' up...oh, and thanks for the bday wishes for my son He lives in FL w/ my mom and stepdad to go to school there...both girls are up here w/ me(although they want FL now)...so it was weird not seeing him for his bday yesterday...
__________________
Praying for a speedy and perfect road to health for Carwy...and that he beats this FOREVER...with a long and healthy and happy life!!!
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