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Necrobiosis Lipoidica LinkBack Thread Tools Display Modes
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Old 11-27-2008, 01:39 PM
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Join Date: Nov 2008
Location: South West England
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Smile Necrobiosis Lipoidica

Hi Everyone!
I'm new to this forum and am posting my first thread. I was recently diagnosed with Necrobiosis Lipoidica after having a skin biopsy however was told that my blood test for diabetes at this time was clear. I've just been to the chemist to pick up a prescription and while I was there I had one of their quick diabetes tests where they prick your finger and test the blood - the result was 9.9 - should I be worried?
Thanks for any replies as I couldn't find anything about this type of test on the net.
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Old 11-27-2008, 02:37 PM
Rad Warrier's Avatar
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I am a: Pre-Diabetic
 
Join Date: Oct 2008
Location: Kitchener, Canada
Posts: 275
Welcome to the forum!

9.9 mmol/L (179 mg/dL) does not seem normal. For a non-diabetic, a random test does not normally show a reading above 8 mmol/L (144 mg/dL).

Regards,
Rad
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Old 11-27-2008, 05:31 PM
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Join Date: Nov 2008
Location: Toronto, Ontario - CANADA
Posts: 2
Dear rebdavis -
I'm writing to you from Canada, and like yourself was recently diagnosed with Necrobiosis Lipoidica. I do not have diabetes, and have had that confirmed via blood tests, and eye exam. I am absolutely shocked that I've actually found someone with the same diagnosis. I have been searching for weeks for information, and have found nothing. Where I have found information, it has been rather scary, and not very promising. I'm not sure what you know, or how you're handling all of this but I'd love to talk to you further about this all. If you're into sharing more of your story with me perhaps I could give you my email address.
I still can't believe I've found someone who shares in this disease....I was beginning to think I was the only one, and I have in fact, actually written to a doctor in Georgia, USA who has written articles on this disease!
WOW! I'm still in shock that I've come across this post.
Please respond to this, and I will forward you my email address.
Also, I wasn't clear by your post - Do you have diabetes, or are they still testing you for that? I understand these disease is prevalent in diabetic women, however it is and has occurred in women that are diabetes-free.
I can't believe this - I seriously have been searching and looking for weeks for someone who has this, or knows something about it....
I look forward to hearing back from you

Apologies if I sound crazily excited... It's been a frightening and lonely few weeks since my diagnosis....

Warmest regards, KD
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Old 11-27-2008, 06:17 PM
xMenace's Avatar
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I am a: Type 1
 
Join Date: Jun 2006
Location: New Brunswick Canada, eh
Posts: 8,672
Welcome both of you.

Don't get too concerned about a random 9.9 at a chemists:
- meters can have 20% variances
- the chemists' meter is quite possibly a relic
- you likely didn't wash your hands
- you likely used an alcohol swab, we don't recommend that for various reaons
- you may have just eaten or had some other logical BG raising event. Some yo'd have no idea about.

If you are concerned, get your Hemoglobin A1C done at your next bloodwork.
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Old 11-28-2008, 06:58 AM
davef's Avatar
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I am a: Type 2
 
Join Date: Nov 2007
Location: Dublin, Ireland
Posts: 5,908
Welcome to the forums, John has said everything I was going to so I'll stick to a simple Hello and Welcome!
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Cosmo the Duck: is with Gretchen in Cambridge, MA.
Ping the Duck: is with Nancy

Metformin 500mg twice daily, Enap 5mg
Diagnosed T2 on 26th Nov'07, with BG of 21mmol/L (378mg/dL) and A1c of 11.6%.
Most recent A1c 10/09/09: 6.1%
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Old 11-28-2008, 01:00 PM
Senior Member
I am a: Type 2
 
Join Date: Oct 2007
Location: Essex
Posts: 1,226
Hi rebdavis! Fellow poster John has said it all, make sense, can only suggest take heed to his post.
Good evening and welcome to the forum, there's so much you can learn by just logging in, keep posting
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DX 8/2004
Current Meds
Metformin 500 mg
Ramipril 5mg
Aspirin 75mg
Simvastatin 20mg
2005/6 Getting my
Head around this
Condition.
07- HbA1C 5.2 ChOL 3.2
08- HbA1C 5.4 ChOL 4.2
09- HbA1C 5.5 CHOL 3.6 LDL 1.9 HDL 2.5
Triglycerides 0.60
Many people will try to tell you what you can’t eat with diabetes.
Most will be well-meaning.
Rather than compounding the problem by telling you what you should
eat, I’d recommend a simpler method, eat by your meter.


Buddy 7 Essex uk
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