type 1 off insulin!!!!!!?????? HELP

[grdella]

I was diagnosed 10 months ago with type 1(assumed do to age being 25 and 5'10" and 140 pounds). I never had antibodies tests. I have been on low doses of insulin. .15 basal and 1 unit to 80 grams. I noticed a few times that even disconnecting from pump when I did a little excercising and eating a bunch of carbs I would tend to go low if I did not watch it carefully. Well I used to be an avid mountain biker a few years back and wanted to get into cycling again so I bought a road bike. The first day I dissconnected, ate a lot and rode five miles, and did not recconnect until 9PM while eating carefully through the day. I continued this for a few days and then it rained for about a week so I was back on pump at a lower basal and a ratio of 1 unit to about 180grams(yes 180). After rain ended I started cycling again, doing about 11 miles a day. Well tomorrow will be day 14 of absolutely NO insulin. And I can eat whatever. Yesterday I ate 100 grams at lunch and was 98 3 hours later. I eat before I go cycling but I am also having issues going low. Two days ago I went 20 miles, when I finished I was 95. An hour later I was 47, so I ate about 50 grams and another hour later I was 42, so I ate 70 grams and was 95 after an hour.
My question is what is going on???? My endo is sending me for GAD antibody tests to check for 1.5, but he seemed to really notice when I said I was going low, after 12 days off insulin! I am on no other meds and again the only change was the cycling. Other excercise in that past had affected me the same but I just never sustained it to see these results.
Anyone have some insight into what may be going on?
I did some research and am nervous I may have a hormone producing tumor in my pancreas, that is messing me up!!!

[corwin]

The way you started your post made me think this is probably how a non diabetic will react to taking insulin. So either you are in one serious honeymoon or you aren't diabetic at all. However going low after 12 days with no insulin sound like a whole different problem. My uncle has this condition where his body produces more insulin then he needs, he is the only non diabetic who knew what I'm talking about when I described a low, he just carry around some candy and take it when he feels low. I'm curious what was your bg level and a1c when you were diagnosed? You should get more tests done asap, 42 with no insulin is not normal and pretty scary.

[Lex4153]

I would wait for the test results.

You may just be honeymooning, which can happen up to 2 years after being diagnosed as Type 1, where your pancreas is still cranking out some of its own insulin, but I would definitely talk to your doctor and ask for testing to see what type you are.

I was actually misdiagnosed as Type 1 when I was 13 and just found out in April, nine years later, that I was really Type 2. It made a world of difference to me! After starting type 2 meds, I've lost weight and felt better and my sugars aren't so crazy up and down. :trytofly:

Don't get freaked out too much. It probably isn't a tumor but you can ask your doctor about that to reassure you as well if you'd like. I'd bet on you honeymooning but perhaps you were misdiagnosed like me as a lot of what you said, I could very well have said years ago.

[Simon]

Hypoglycaemia is a related condition to type 1 diabetes. Often it precedes the onset of diabetes. In your case it's possible that catching the onset early has caused a honeymoon when has reverted you to hypoglycaemia. Only more tests will confirm.

[Cyborg]

I'm guessing type 1.5 or LADA...

[grdella]

The way you started your post made me think this is probably how a non diabetic will react to taking insulin. So either you are in one serious honeymoon or you aren't diabetic at all. However going low after 12 days with no insulin sound like a whole different problem. My uncle has this condition where his body produces more insulin then he needs, he is the only non diabetic who knew what I'm talking about when I described a low, he just carry around some candy and take it when he feels low. I'm curious what was your bg level and a1c when you were diagnosed? You should get more tests done asap, 42 with no insulin is not normal and pretty scary.

Blood sugar when diagnosed was 414 and a1c was 9.5. I don't know if this is relevant but I had severe burns on my lower left leg about 3 weeks before being diagnosed. I keep thinking they are related but probably just coincidence. Going for bloodwork today and my appointment is not until the 31st. I will keep you guys posted.
One more question. Is it possible to be type2 at 25 and thin?
Thanks

[JediSkipdogg]

One more question. Is it possible to be type2 at 25 and thin?
Thanks

One can be type 2 at any age and any weight. Type 2 is caused by mainly 2 reasons, either the pancreas not producing enough insulin because the insulin producing cells are dying off (for a number of reasons) or high insulin resistance. There are other factors as well, but those seem to be the main two.

[corwin]

You were indeed diagnosed very early. Just for comparison my a1c was 13.1 when diagnosed and my bg above 500. Many others mentioned they were much higher in both a1c and bg. This validates what Simon suggested, but you sure need more tests to figure out what's going on. I also agree with Jedi about the possibility of type 2 though type 1 is more likely. I would try to get some more tests asap.

[gettingby]

Yes, it is possible to be 25 and type 2. I've seen alot of news reports showing children becoming type 2.
One question, before being diagnosed, had you noticed any weight loss?? extreme thirst??
I tend to think like Cyborg that you may indeed be type 1.5 but only the tests will tell.

[sbuff28@charter]

OK here is the jist of what i think. You show all the classic symtoms of an extreme honeymooner. Somedays just like you, i can eat 70g carbs, no insulin, go for a run, and return to 90 3 hours later. More than that...mabye not, you have me well beat, 1:180 is a huge carb ratio.


my point is if i really work at it i need very little insulin though excersise. i would have to do that after every meal.




I'd say look into type 2. Type 1s probally cant last 14 days with no insulin and good bgs.

[grdella]

Yes, it is possible to be 25 and type 2. I've seen alot of news reports showing children becoming type 2.
One question, before being diagnosed, had you noticed any weight loss?? extreme thirst??
I tend to think like Cyborg that you may indeed be type 1.5 but only the tests will tell.

Before being diagnosed i lost 15 pounds in about 3 weeks and had extreme thirst and urination. I have to get blood drawn tomorrow for the first round of tests my endo wants done. And I need not excercise after every meal, I just ride in the morning and eat about 100 grams before. Then have to eat 50 to 80 grams when I get home if I go more than 15 miles in order to prevent a low.. My blood glucose levels are perfect as if I was totally normal. Except for the occasional low! I have even woken up in the morning a few times in the 60's and 70's but it is usally right around 90. Whatever is going on I am going to enjoy it cause it may not last!!!:dong:

[Lex4153]

When I was diagnosed at 13, I had lost a few pounds when I was diagnosed, had extreme thirst, frequent urination, and was a healthy weight, not overweight or obese at all. I was type 2. These symptoms are typical of Type 1, but not always. If you are Type 1, you caught it pretty early because your blood sugar was not all that high. Otherwise, you may be Type 2 or 1.5 as others said.

Can you reschedule an appointment? Or call the doctor and ask for a blood test? You can also get him/her to send the lab work papers to a Quest Diagnositc lab or somewhere without going in for an appointment.

But regardless, talking to your doc is important because hypoglycemia can have scary and dangerous results.

[spike]

I was diagnosed 10 months ago with type 1(assumed do to age being 25 and 5'10" and 140 pounds). I never had antibodies tests. I have been on low doses of insulin. .15 basal and 1 unit to 80 grams. I noticed a few times that even disconnecting from pump when I did a little excercising and eating a bunch of carbs I would tend to go low if I did not watch it carefully. Well I used to be an avid mountain biker a few years back and wanted to get into cycling again so I bought a road bike. The first day I dissconnected, ate a lot and rode five miles, and did not recconnect until 9PM while eating carefully through the day. I continued this for a few days and then it rained for about a week so I was back on pump at a lower basal and a ratio of 1 unit to about 180grams(yes 180). After rain ended I started cycling again, doing about 11 miles a day. Well tomorrow will be day 14 of absolutely NO insulin. And I can eat whatever. Yesterday I ate 100 grams at lunch and was 98 3 hours later. I eat before I go cycling but I am also having issues going low. Two days ago I went 20 miles, when I finished I was 95. An hour later I was 47, so I ate about 50 grams and another hour later I was 42, so I ate 70 grams and was 95 after an hour.
My question is what is going on???? My endo is sending me for GAD antibody tests to check for 1.5, but he seemed to really notice when I said I was going low, after 12 days off insulin! I am on no other meds and again the only change was the cycling. Other excercise in that past had affected me the same but I just never sustained it to see these results.
Anyone have some insight into what may be going on?
I did some research and am nervous I may have a hormone producing tumor in my pancreas, that is messing me up!!!

Go with the odds. The odds being you are in the honeymoon phase, as opposed to having a tumor, unless you know otherwise. :)

[4519]

Just a quick note. Acute stress is one of the 'other reasons' for a high A1c. If your burns on your leg caused acute stress it will lower itself in time. This is just a note to what you said about the burns. There are 2 or 4 other conditions that will raise your A1c, rare I believe.

[spike]

Just a quick note. Acute stress is one of the 'other reasons' for a high A1c. If your burns on your leg caused acute stress it will lower itself in time. This is just a note to what you said about the burns. There are 2 or 4 other conditions that will raise your A1c, rare I believe.

Steroid injections will can do it too.