Midd

[MyrandaDawn]

I posted not to long ago about my son being diagnosed with type 1. He was diagnosed at the beginning of August. Well since then I've lost almost everything that has been stable in my life. Yes I know I'm young and blah blah blah. I'm 24. Trust me, I know I had kids young. Got married young, and divorced young. But none the less, I still have a 7 year old son with diabetes. And now, not only that, they think he's going deaf. Something called Maternally Inherited Diabetes and Deafness. So, I understand that he couldn't have gotten it from his dad. But how exactly is this possible?? I don't have the genetic mutation to cause this. Anybody know anything about this. Nobody, and I mean NOBODY in my family has diabetes or has gone deaf. It just doesn't run in our family. Cancer, yes, diabetes...no. Ack, I think I'm going to lose it.

[Cyborg]

When the going gets tough, the tough get going. It sounds like you have your hands full, but know it's never too much. You and your son will survive, even if he does lose his hearing. I have a deaf member in my family and we can communicate well, even though I don't speak sign language. Good luck and hang in there...

[gettingby]

Cyborg is right. Just hang in there and know that we are all here to help any way we can.

[Cinnabon]

U will NOT lose it, sweety. Im a single mom, and Im the diabetic one. I know its not the same, but please allow us to help as much as we can. One step at a time. Has ur son seen any doctors for all this?
We R here for U!

[am1977]

oh wow, that is a tough situation. I'm not sure that we can do much, but we are here for support :). I know that's something we are especially good at, so do keep that in mind.

You'll be in our thoughts!

[kidvid]

If you're smart enough to look for help here, you're smart enough to look for more answers on the web, in the library, and with the medical community. Teach yourself everything you can about the condition you described. Learn to recognize the difference between real research and real **** on the web. All this will help you ask your doctors the right questions, and then know what to do with the answers.

You are the primary advocate for your child's health care. Don't assume anyone else gives a rip - while there are those who do care in the medical community, you cannot count on it. Be proactive. Consider it a second job. Embrace it. Show yourself how tough you really are.

Come back and write us...

Joe

[ProudNanaof5]

My heart goes out for you. I know that my grandmother, my Dad's mom, was the only one that had Diabetes for sure. And she didn't get dx until she was in her 70's. So not sure how the big D is inherited along the way. But be strong...and know that we will support you along the unsteady path.

[Sarmar7]

Just try and hang in there! Kids cope with things so well. I work with deaf kids and many of them have lots of other problems too and they go on to have happy lives. As with you, its often the parents who worry more than the kids! I can see where you are coming from though.

[MyrandaDawn]

Vincent has seen more doctors the past two months than he's ever seen in his life. I can't remember one time in his life that he's been sick with even a cold. We've done eye appointments, ear appointments, CDE appointments, Endo appointments (got another one tomorrow), and then an appointment to get his flu shot. Doctors drive me crazy. Some days I just feel like a raving maniac wanting to shout at anybody. Well, I'm going to go play some pool. Get my mind off of things until tomorrow. Thanks for the suport.

[Ailsa]

I can imagine all those appointments are a pain, but it sounds like you must be getting good care & advice from your medics. Not everyone gets that.
It will help get things stabilised more quickly. In a while things will settle down more & it will be easier.

[kgm0612]

((((HUGS)))) I'll repeat what the others said......"Hang in there".