...and again...

[Eri's mom]

Hi again...
Not sure where to post this, but I went to school to drop off Eri's novolog pen and some lunch money, and when she walked in the office, I noticed she looked different...hair was disheveled and she looked, off. She actually looked at me and said, "Mom, I blacked out again"...in front of an administrator, so I took her home instead of them calling a code white.
I called her ped, they said to take her to the hospital(her arm was/is numb)...so I did. Her bgl had spiked up to 436...so we bolused in for that...and we had more doctors than we've ever had see us. (all neuro). She had a CT scan, to rule out a minor stroke(b/c her right arm is numb, started from wrist to above elbow, tonight it is up to the finger tips in numbness).
They think this relates to the diabetes from all the seizures she had in the beginning, so they have ordered another ECHO, EKG, a tilt table test, MRI and MRA(for the brain). (we also have her GI and hematology appt. coming up).
Basically, it is like she is baffling them. The arm, I think it is a pinched nerve from when she went out(in the bathroom, she found herself on the bathroom floor).
Of course they did all the bloodwork to check her bgl, for ketones, etc...(no ketones), and they asked me to leave the room(2 different docs) to ask her if she is sexually active and if she is taking any drugs aside from her insulin and prevacid(she didn't start the topomax, they don't want her to yet)...
The funny thing(I guess) was when I was waiting outside the room for Eri while she was having the CT, the nutritionist called to schedule her advanced carb class...I told her I would like next Wednesday since her sister will be there for the glucose tolerance test anyway, so it's tentatively set up b/c we got cut off as I had to hurry back to the emergency dept to get Eri's reading. Hopefully I will get in touch w/ her tomorrow, but I did call and leave a message today.

So, that's where we are at now. The difference w/ this blackout was that she did not have heart palps ahead of time and had no warning whatsoever.

OK, I'll shut up...
Thanks for listening...

[JediSkipdogg]

Wow....

Each time I see a post from you I think you are the most patient mother in the world. I thought my mom was because when I was in school she use to get a call once a month about me. Not till high school did it require ambulances, but she use to get calls and have to leave work.

I hope they soon get this all figured out. I'm sure your insurance is hating you by the minute now with all those thousands in tests. Good luck.

[palefacegirl03]

That is just so scary, I hope and pray that they find out what is wrong soon.
Huggs to both of you.

[Cyborg]

So sorry that these issues continue. I do have to ask, how does her bg rise so quickly? How often does she test?

[Eri's mom]

Thanks...I sometimes don't feel so patient...more stressed and hate sitting in the hospital, but I have no other choice, I want her well.

As for her bg rising so quick...she tests every 2-4 hours...yesterday it was a matter of 4 hours b/c she was in school...not even, maybe around 3.5...
I have no clue as to how it rises so quickly...only when she is stressed...
I know for a fact she wasn't cheating and that she had all the right amounts of insulin...

[lgvincent]

I hate that she's having such a hard time. Is it possible to put one of those monitors on her that keeps a constant or almost constant reading of her blood sugar or have you already tried that?

I have numbness in the lower right arm and parts of the right hand because I once fell during an insulin reaction and clipped a nerve just above the elbow. I hope it's nothing worse than that.

[Cinnabon]

WOW.. U guys need a break!!!

Robin U r one STRONG woman.. GOD BLESS U!

Please keep us updated w/ all ur ranting! Keep us up to date w/ Eri, please

[am1977]

ok, enough already! :mad:... Like Cinn and others said, you both really do deserve a break. I can't believe that things are still so erratic for you both- I don't know how you do it either. I think I would be a complete wreck with everything going on. But your strength truly does amaze me... it's awesome.

Hope you continue to keep us updated with everything. I know we can't do much, but we are here to listen and offer you support.

Hang in there!

[nab486]

wow, I'm so sorry you guys are having such a terrible time. I haven't posted a reply to you before but I always read to see how you guys are doing. You will both be in my prayers!

Jamie

[JasonJayhawk]

Wow! What a lot to deal with! It's quite a medical mystery. Ever watch those Medical Mystery shows on TV and hope that they're going to cover the exact same symptoms that Eri is going through?

Have you or the doctors come up with any ideas on what cause the high blood glucose values? Sure wish she could be hooked up to a continuous glucose monitor to at least try to keep something in her life "normal."

[Tsukia]

i have been reading but haven't really had anything to add to your other posts. but i do really hope that everything works out with your daughter. I myself haven't had hardly any complications but then again i am going to my doctor today to find out something that i will post later.

But good luck and my prayers are with you and Eri.

[Eri's mom]

Thank you all so much :)

Eri blacked out again last night in the shower, but she was ok this morning. After she blacked out, her left eye was blurred...they said to wait for the tests. If it happens again, I'll make sure they see her(although we both can't stand the hospital!)

Her bgl's have been somewhat ok this morning and afternoon...232 this morning, 185 at lunch and just now, 138.

I can't wait until all this testing is over...and we get some answers!

I appreciate all the kind things...I don't feel strong...especially now, I'm so tired! At least I am caustiously happy b/c her bg's are ok now and she looks and feels great(so she says!)...

[lgvincent]

It wasn't that long ago that I had blurred vision in an eye for about 14 to 16 hours after an insulin reaction. I had it looked at but it just cleared up on it's own. I hope it will do the same for Eri.

[HollyB]

Wow, you guys have been through so much. I hope they are able to figure out what's going on and how to fix it! Hang in there.

[Cyborg]

Why has your endo not suggested using a CGMS?

[Eri's mom]

Yes, Eri's blurred vision went away after about 10 hours....sorry yours lasted so long lg!

I have no idea why her endo hasn't mentioned that...although now we FINALLY have a regular endo...I did get a nice letter from him regarding her A1c(I posted in another thread)...11.4...he wants her at 7%...

Tonight she hsa been ok, thank God...our weather is HORRID tonight...the snow is unbelievable...power is flickering so I'm on borrowed time here...

I'm going to call and talk to her endo tomorrow(unless everything is closed down...schools are already closed)

[spike]

Why has your endo not suggested using a CGMS?


cough! cough! I'm surprised you'd ask that, having had so much trouble with the Dex! :)

[Cyborg]

There are other CGMS systems available besides the Dexcom. Aside from the false alarms at night, the thing was pretty good for trending. Granted, many numbers were too far off IMO, but overall trending could be useful in Eri's case.

[kiwi]

Wow, this is a major worry for you.
I hope the medical team will get to the bottom of this soon.
It is a puzzle, so please keep posting so we can all learn and be of any assistance.
My thoughts and prayers are with you.
I too have a type 1 daughter so understand some of the worry.

[bilye1981]

So sorry that these issues continue. I do have to ask, how does her bg rise so quickly? How often does she test?

I wanted to say first"How is she doing now".Also from someone who was in high school just a few short yrs ago(9 to be exact) thats a tough time.I was very unstable with my sugars.Mine was self inflicted though. I was a very skinny little thing but got the idea in my head that I was fat.I started working out like crazy.To make matters worse I stopped taking my shot or doing any bloodsugars.My parents never knew about it.I went into DKA for my first time when I was 15 and proceeded to have a DKA episode about 1 to 2 times a month for the next 2 1/2 yrs.They never knew b/c I told them I was doing everything I was supposed to.High school is a hard time for anyone.Add in something like this that makes you constantly awair that you are different and it is pure **** on you.

Now I'm perfectly healthy.I have not been in DKA since 12/98.My last A1C was a 6.8 and perfect would be 6.0 on the charts.Keep your heads up and I'm sure she will get better with time.Stress and emotions can really screw up a bloodsugar.Goodluck!