View Full Version : When to train teenagers to do their own night-time checks?
Type1Mum
02-04-2007, 09:47 PM
Hi, my 12 year old (dx May 2006) is currently away on camp for 5 days. The teachers will be waking him at 11pm and 3am to get him to check his own BGLs. When do you think is a good age to start getting teenagers to start waking-up with an alarm clock and checking their own BGLs:questionm In two years' time he will be on a camp for 4 weeks (!!!!!), so I'd appreciate if anyone has had any experience with these sort of issues. Thanks!
notme
02-04-2007, 10:03 PM
Hi Type1Mum, I think any time you can get a child to take some responsibility it is good. However, my teenagers (none of them with diabetes) could wake up in the middle of the night if they tried. Alarms, cowbells and fire trucks in their room would not wake them up. If you can get your son to wake up to an alarm, it might be a good thing to get started. Do some trial runs and see how it goes.
sweetcheeks
02-04-2007, 10:13 PM
i dont have a diabetic kid, but from my personal experiences
i was getting up all by myself at the age of 9 with an alarm clock to get up and take my bath and to dress myself before school...
i think they should be able to handle getting up and checking there levels at that age as well... at least i would think so, i also think it would depend on the child and how well they are with other things
Funnygrl
02-04-2007, 10:40 PM
Do you expect your child to test twice a night every night?
Type1Mum
02-04-2007, 11:51 PM
Thanks for all your advice.
In response to Funnygrl, no - we generally only test him at 3am when he's been active during the day. He is really sporty, so especially during winter, when he plays two types of football every weekend, and trains for athletics and swims during the week, I'd feel more comfortable if an over-night check is done (he can drop a little low after all the activity). When he's on camp they are out and about all day hiking and kayaking etc. hence the necessity to test at 3am.
right2fight
02-05-2007, 03:57 AM
I rely completely on my 12 year old to treat nighttime lows. He has been responsible in this area now for some time. After all, only he knows what he feels and does a bang up job. If he has problems, he wakes me. The sooner our children learn, the better it will be when they leave the nest.
HollyB
02-05-2007, 09:33 AM
I'm in the same boat as notme. Aaron is really responsible with his diabetes but he sleeps like a dead man. Therefore isn't likely to wake up if he's low in the night, and isn't likely to wake up for an alarm clock either. I have had to really manhandle him to get him to wake up enough to eat, and this when he was in low-normal range (around 4.0) and just needed a safety cushion, not so low his brain was affected. I'm willing to check him when neeed for couple of years until he gets out of that "teenage sleep" thing but I do worry about school trips etc.
Stuboy
02-05-2007, 09:37 AM
im 23 and i dont wake up with an alarm to test during the night... i've tried.... it just doesn't happen lol.
But I think 12 is a very reasonable age to start taking responsibility for it all... but then was dxd at 22 so maybe I just dont know anything! :D
slipperyelm
02-05-2007, 10:30 AM
I really think it depends on the kid. Some kids can be super responsible and truly want to wake up, but ~biologically~ not be able to wake. If your kid can wake, good, have him do it. But as a parent, I think it is quite okay for you to make the sacrifice for him to get the uninterrupted sleep he needs as often as he needs it. You don't need to think of him as immature for his age or selfish or lazy if he cannot do his middle of the night checks just yet. Other kids, maybe they can. I really think this is a very individual thing.
Going to camp may be different. If he can't wake up and there are couselors who can and are willing to do his checks, fine. Even at 14 (two years from now), I think that would be okay. But I would keep letting him know that someday he should take the task on himself. I'm sure it would be really hard for him at first and you will probably also want to wake to make sure he really has woken. But eventually, I think that even the deep-sleeping pre-teen and teen body can learn to build into the sleep schedule a minute of wakefulness.
I think waking in the middle of the night is totally different than waking at the beginning of the school day and taking care of one's self. It could be very hard for him, so have compassion. And in those first weeks of waking middle-of-night, he make not be thinking clearly at all, he might make mistakes, so you might want to be up with him anyway.
Eri's mom
02-05-2007, 10:45 AM
Eri doesn't wake herself up during the night to check, unless she wakes up feeling low(amazing how THAT's changed since she was younger!)...
Eri doesn't wake up to alarm clocks, the kid can sleep through them w/o budging.
BriOnH
02-05-2007, 11:17 AM
...I'd feel more comfortable if an over-night check is done (he can drop a little low after all the activity). When he's on camp they are out and about all day hiking and kayaking etc. hence the necessity to test at 3am.
At the diabetic camp I worked at, for many summers, we would not test all the children in the middle of the night. At diabetic camp we were active ALL day. Especially on backpacking trips. The only kids that needed to be tested during the night were ones that were having problems with multiple hypoglycemic reactions.
Funnygrl
02-05-2007, 11:22 AM
Yeah, every night seems a bit exceesive. Kids need their sleep, especially at camp!
HollyB
02-05-2007, 12:07 PM
Aaron will actually come to me if he's feeling he'll need a check. Often it's when he's had a huge bedtime snack late and has a big wad of insulin on board -- its action can be a little unpredictable at night so it's a check to make sure he hasn't overbolused -- or if he's running way high we'll check to make sure it's coming down.
I do feel that this is a very big load for a kid to carry already. He deals with this from the minute he wakes up until he crashes out for the night. An occasional night check seems a small enough way to help out.
right2fight
02-09-2007, 03:51 AM
Hi HollyB, You're absolutely right on when you say, "he deals with this from the minute he wakes up until he crashes out for the night." That's something that will not change, so my feeling is, the sooner our kids learn how to manage without us, the easier it may be for them to cope with this later on. Please don't get me wrong, I love my son very much and there is nothing I won't help with. I guess I feel by allowing him to manage by himself he will be so much more self sufficient. I always think, what if?, unfortunately we don't know what life has in store for us, so I aim to get him all the diabetic knowledge I can, just in case, I cannot be there for him.
Margaret
xMenace
02-09-2007, 04:29 AM
I'd do it before 13. In my experience their brains turn to mush on their 13th birthday. They don't start returning to the land of the living until 16-18.
archimeech
02-09-2007, 05:00 AM
Is this something new or was I just not trained properly when I was a child diabetic? I've never gotten up in the middle of the night to check my sugar unless I was feeling bad. Are we keeping kids under such tught control that we are causing them to have too many hypos? I wonder if all the problems that diabetic children are having with seizures these days could be attributed to the tighter control during their hormonaly imbalanced growing years? I played sports all through my childhood and never really had a problem with going too low.
However, to answer the question. A child that is able to undertand instructions and the consequences of not doing something, is never too young to begin to take control of their own health and the decisions that come with it.
right2fight
02-09-2007, 05:20 AM
Oh great, that means I have at least 5 years of mushy brains. lol
right2fight
02-09-2007, 05:29 AM
Me thinks some parents are way to over protective. You know the expression, "let sleeping dogs lie", well why wake a child up unnecessarily. I have a hard time believing that the child cannot feel the hypos and yes I am aware of hypo unawareness, it's just so many parents are losing sleep in an attempt to prevent a low. My son was dx'd at 7, is now 13, has never been hospitalized for diabetic episodes and wakes himself if necessary. I trained him well, so archimeech I think your parents did a stupendous job!
samsmom
02-09-2007, 06:39 AM
Me thinks some parents are way to over protective. You know the expression, "let sleeping dogs lie", well why wake a child up unnecessarily. I have a hard time believing that the child cannot feel the hypos and yes I am aware of hypo unawareness, it's just so many parents are losing sleep in an attempt to prevent a low. My son was dx'd at 7, is now 13, has never been hospitalized for diabetic episodes and wakes himself if necessary. I trained him well, so archimeech I think your parents did a stupendous job!
I sure hope you are not saying that since your son can feel his lows that everyone else should too. As you know, diabetes is not a one size fits all disease. My son can not feel his lows at night and You can believe that or not. My son has been dealing with diabetes since he was a baby so higs and lows are not new to him. There has been many times when I caught a low under 40 during the night, he never woke up. I will sacrifice my sleep for the safety of my son. I am not going to wait until he goes into a seizure and then say "well next time you should feel your lows and this wouldnt happen"!!
No I am not an overprotective mom, in fact I rarely jump right in when my son needs to do some problem solving. But when it comes to his health, I am responsible and will continue to get up in the middle of the night (not every night, just when numbers are off before bed) to make sure he is ok..thats my job, I'm his mom.
Please remember that just because your son can self manage lows, does not mean that all kids can. That doesnt mean the parents are doing a better or worse job, just that diabetes vaires from child to child...
right2fight
02-09-2007, 11:46 AM
As I said in my last post, there is such a thing as hypo unawareness, so I am aware that diabetes is not a one size fits all disease. I'm blessed because my child is so responsible at 13 and hope you experience the same when your child reaches that age. All opinions are welcome here!
type1tenorlady
02-09-2007, 08:53 PM
im 23 and i dont wake up with an alarm to test during the night... i've tried.... it just doesn't happen lol.
When my BG is good, I'm a very heavy sleeper. When it's low I am wide awake in about 2 minutes and it takes another 15-20 before my adrenaline stops pumping enough for me to get back to sleep. It's been this way since I was diagnosed at 11 (I'm 24 now) and didn't change during puberty, not even a little.
I first got my pump a few months ago and was worried I wouldn't wake up for night testing so I didn't sleep very well and I had no problem getting up, but as soon as I became comfortable with it any and all alarms just got turned off and I would go back to sleep.
I've been the only one in charge of my care since coming out of the hospital; my mother loves me but could never bring herself to prick my finger or give me a shot unless it were a dire emergency. That doesn't mean to say I was responsible all the time, but fortunately I am usually quite lucid when I go low, even when it's very low (I hit 29 at school once), and I always had glucose tabs or a good substitute within reach. You're right about how much the disease varies (my brother is type 1 also, doesn't test, has excellent A1C numbers and gets completely incoherent and giggles like a schoolgirl if he goes low) but if your son has a lot of trips and camp stays in his future I'd say this is a good time to have him take some more control and start to try to recognize any patterns, eg whether a certain activity makes him go low more often than another, so that he can learn to deal with them on his own.
Type1Mum
02-10-2007, 11:48 PM
Thanks Type1TenorLady and all the other replies. My son arrived back from camp where the teachers woke him during the night as they were v active during the day and he tends to go a little low after activitiy. On the last night, after setting 75% basal rate for 24 hrs, and half bolusing for dinner, the 3am check showed him at 2.5mmol (about 45 I think). After treating twice, as he only moved up to 5.0 (90) half hour later, he then woke at 7am at 3mmol/l (54)! The previous day he had hiked for 4 hours, and kayaked for 3 upstream. I am glad I had the teachers check him.
He has quite good control and last HbA1c was 6.8%.
Think I'll buy an alarm clock and see how he goes. In 2 years he'll be away for 4 weeks on a camp - so he'll need to have it all sorted by then.
Cheers!
right2fight
02-11-2007, 07:00 AM
Hi type I Mum, Sounds like a great time was had by all, how fortunate you have such willing, caring people to help your son. With such strenuous activities it looks like it was necessary, is your son always active? By the way, A1C is great and it looks like he's on the road to independence.
Last night I took my son to the County Fair and I didn't see him for 6 hours. Self-sufficient and happy and sad all at once. He's growing up!
Margaret
Type1Mum
02-11-2007, 03:24 PM
Thanks Right2fight. Yes - always active! However, I am very lucky with the school - still, it is a private school, so I really expect them to go that extra mile. They were amazed at how much he has to do, and all the extra stuff he has to think about compared with all the other 12 and 13 year olds there.
He plays about 4 different sports, summer and winter. Plays in the school band (Oboe), sings in the choir etc. He is very sensible - but still has the odd slip up (friends b'day party on weekend - drank non-diet fizzy drink and at way too much really fatty pizza). Still, his activity level tends to counter that.
Still, I can't imagine letting him leave home. When he was first diagnosed, I said to my husband that I won't let him leave until he has a nice girlfriend lying in the bed next to him!
right2fight
02-11-2007, 07:37 PM
Hey Mum, Sounds like what I told my son after the headmaster made him lie down to act out a glucagon demonstration. I told my son, "don't ever lay down for anybody, unless it's a woman."
Margaret
Type1Mum
02-11-2007, 08:02 PM
Good advice Margaret, lol.
Cheers, Anna (Type1mum)
right2fight
02-11-2007, 08:21 PM
Hey Anna, It's hard to leave them alone at first, but you gotta trust them, after all it's their body and they know what to do. I expect your son does real well, with all his activities and I guess he keeps you going all the time.
Margaret
fnz2thrght
03-05-2007, 09:53 AM
wanted to chime in here, this recent study would indicate that people with type 1 do not always wake from their lows - in fact most do not.
PLoS Medicine - Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus (http://medicine.plosjournals.org/perlserv/?request=get-document&doi=10.1371/journal.pmed.0040099)
DeusXM
03-07-2007, 05:42 AM
And yet nighttime hypoglycaemia hardly ever kills anyone with T1. Let's not forget that whilst your body might not be so good at lowering BG, it's got no problems at all at raising it. Even if your son has a hypo in the night and doesn't wake up during it, he'll almost certainly be absolutely fine and wake up the next morning with a sore head and that's about it.
If anything, cutting the strings a bit would help all kids start taking better care of themselves. I was lucky in that I was dxed at 14 and I was in a position to point blank tell my parents to back off and let me get on with it. If you're always fretting about your kid and their diabetes, they're never going to take responsibility because they'll always think a parent is going to sail in and do it for them. Give them the responsibility and they'll rise to the occasion.
right2fight
03-07-2007, 09:52 AM
Kudos Deus, I couldn't agree more!!
Margaret
type1tenorlady
03-07-2007, 09:58 AM
wanted to chime in here, this recent study would indicate that people with type 1 do not always wake from their lows - in fact most do not.
PLoS Medicine - Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus (http://medicine.plosjournals.org/perlserv/?request=get-document&doi=10.1371/journal.pmed.0040099)
I think someone mentioned this study in another thread... and the fact that they only tested 16 people. I also agree with Deus; I would be more interested in a study that investigates the percentage of time that we go low and our bodies respond well enough that we don't need to wake up.
samsmom
03-07-2007, 12:30 PM
I dont think that testing your kids during the night is "fretting" over them. If there is reason to test them in the night, such as high activity day, being off, heavy correction before bed, or whatever, I think that is called being a parent. I would rather test my kid and treat the problem, then have him wake up feeling like **** and going to school like that. I think that by doing this, you can also show them how to take care of lows in the middle of the night. If they dont wake up, they dont wake up, by me not testing, thats not going to change it. By the way, my son is # 8 in the family with type 1 diabetes and my entire family does things this way. The teenagers with diabetes are perfectly fine and adjusted. Some of them wake up with the lows and some dont.
Whatever my son needs, he will know that his parents will be there to help him and as he grows he will do more on his own. Just remember that just because people have different views on this does not make either side right or wrong.....
Parenting is a hard job, to say the least, but I can tell you that handing over all control to a teenager re diabetes just might burn them out....I will not risk that and I will not ever tell my kid "sorry, your on your own during the night".....if my kid wants more control on his own, we will give it to him but if his actions warrant intervention from his parents, we will intervene.... I sure hope that if you find that your teenager is not waking from his lows (finding our either by a rebound high in the A.M or seizure or feeling like **** every morning) that a parent would intervene..at least I hope a parent would.
DeusXM
03-07-2007, 01:17 PM
I'm certainly not going to give out parenting advice since I'm not qualified in the slightest to do that. However I think you've either misinterpreted what I was saying. I never said 'abandon them'. By all means, let them know that you're there for them. But there's a difference between being a good supporting foundation and doing it all for them.
If there is reason to test them in the night, such as high activity day, being off, heavy correction before bed, or whatever, I think that is called being a parent.
And doing those things for yourself is part of having diabetes. If I was doing any of those things, I'd make sure myself that I got up to do a late night test instead of having my mother have to put herself through all the rigmarole. Again, this is purely my perspective as a teen growing up with diabetes, not being a parent, but I think it's essential when you're coming to terms with growing up that you feel in control. Having someone else manage what is ultimately my problem is the opposite of that. The sad fact is that having diabetes means you need to be a **** of a lot more resilient, organised and solemn that everyone else your age. And the most valuable lesson I ever learnt as a teen was learning how to balance the responsibility of having diabetes always hanging over my shoulder with 'fitting in' with everybody else and enjoying life.
I would rather test my kid and treat the problem, then have him wake up feeling like **** and going to school like that. I think that by doing this, you can also show them how to take care of lows in the middle of the night.
See I'd argue the opposite. If you don't suffer every now and then you don't learn how to prevent it. First time I had a night hypo I didn't wake up from, yeah, I had a splitting headache and felt like ****. Couple of paracetamol later I felt a bit better and got on with my day. Guess how many times since then I've failed to make sure my BG is secure just before going to bed?
Of course all this depends on whether your son really is mentally mature enough yet to be able to think like that. If you think he isn't, then fine. But even if he isn't, I think you'd be amazed at how quick he'd grow up if he had to. Knowing what I was like as a teen as well, I wouldn't expect him to 'ask' to be given more control. It's a bit like doing the washing; it's something I needed to learn how to do in order to cope but I'd never ask my parents if I could do it as long as I thought I could palm off all the responsibility on them.
Obviously you know your son better than me, but I still think if you give him a chance to shine, he'll amaze you more than you could imagine, and that's got to be a great achievement as a parent.
When I was a kid I remember running late night checks every so often after an insulin change... I think before High School Mom and Dad alternated nights checking me, and when I was in High School we did a 3 day rotation, with me getting up one night out of three. This way each of us only had to wake up 4 or so times, and my blood sugar got checked every night.
I think that was a great way to ease me into dealing with it all on my own... I was taking partial responsibility, and it really felt like my parents helping me with a bothersome chore, rather than them doing something because I couldn't.
If I thought there would be a problem on a given night, I'd just set an alarm, or ask dad to check my level first thing in the morning (he got up ridiculously early back then... close to 4 am).
I guess what I am suggesting is start turning your son's diabetes management into a team sport, with your son in the lead position, and you as support. (and you should really be warming the bench most of the time)
HollyB
03-07-2007, 06:36 PM
That sounds like a really great way to do things Erin. It's always a difficult balance between giving enough independence or loading on too much; I really like the way this solution reinforces a teen's own competence while remaining there as a support.
Though that said, I still think Aaron would sleep through most alarms at certain points in his sleep cycle, and I plan to enlist his roommate in his upcoming school trip to Boston to pummel him with pillows till he wakes up if he has to set his alarm for a night check and sleeps through it.
Deus, maybe I'm just a softie mom here but I'm not sure that just because you did and could manage things on your own as a teen it's necessarily best to make kids handle everything. Yes, of course they will have to eventually. They'll also have to cook for themselves, drive a car, travel on their own, manage their own sex lives and money, etc. Doesn't mean they have to do all of it by 12 or 16.
Though that said, I still think Aaron would sleep through most alarms at certain points in his sleep cycle, and I plan to enlist his roommate in his upcoming school trip to Boston to pummel him with pillows till he wakes up if he has to set his alarm for a night check and sleeps through it.
.
I don't think you'll have a problem getting a teenage boy to wake Aaron up... as Aaron's alarm will be annoying the &#%$ out of the roommate at the time.
HollyB
03-08-2007, 09:25 AM
For sure. Either that, or they'll all be awake still anyway.
blue_eyed_devil
03-12-2007, 01:20 AM
well i was 10 when i was diagnosed and i pretty much did it all. mum and dad were there, and i'm sure they were watching me, but they always maintained my indipendance.
i remember i was high once on a camp at like 3am in the morning and the teachers called my parents in a panic. my parents simply said to the teachers, 'what does lauren want to do? she's the one with diabetes, not us'. when they got back to my room i had corrected and gone back to sleep. they woke me up and i was unimpressed.
i feel that diabetics need to look after themselves from an age basically when they are able too. if you don't let them look after themselves, who will?
that's my little bit, but i'm not a parent, so can't really comment - only talk about my experience... :)
spring
03-15-2007, 01:25 AM
I was diagnosed when I turned 11, and I don't think my parents ever tested me while I slept, and only ever woke me to test when I was sick. I recall being rather disgruntled by the diabetes camp policy of waking everyone each night. ;)
That said, I wake fairly easily to alarms, and if I had been exercising in the evening or something of the sort, Mum would ask if I'd remembered to set my alarm.
I did have three fun episodes of not waking up when low overnight. It was actually pretty incapacitating and meant no school for the following day. I suppose everyone's brain reacts differently to a deprivation of glucose. Lucky me experiences temporary aphasia, and not only can't speak properly but also can't write, interpret what I read or remember how to use my glucometer. XP It never needed treating by that point when that happend; all three times it was 5-7mmol/l thanks to good 'ol liver, and after all mental functioning returned two or three hours later, the puking would begin. :vollkomme: though I guess I can't complain since they didn't involve seizure or the like.
right2fight
03-15-2007, 02:05 AM
Hi Spring, Thanks so much for your response to this thread. I am sorry to hear of the aphasia episodes but very curious as to how many children with diabetes may experience this sort of thing.
My son is 13 and was diagnosed at 7. We never woke him to test unless we had reason to, ie... illness, blood sugars being consistently off, ketones, etc. Since he was about 11, he too, wakes if he has a low.
Like you he too has been using NPH since dx., and it works pretty good for him. We will be looking into Levemir at the next appointment. Have your experiences been better or worse with it and how hard was the insulin change.
Sounds to me like you are on top of things and I can't help but think it's probably because you have always been a smart kid or you took on your own diabetic care early on or perhaps, both.
Cheers,
Margaret
spring
03-15-2007, 02:44 AM
Margaret - in regards to the NPH to Levemir switch, I found it wasn't all that difficult. The difference between the two actually wasn't as dramatic as I'd anticipated, especially with all of the NPH-hate out there, but the Levemir is more stable in that the number I go to sleep with is the number I wake up with (be it 4.5 or 12.5 XP), and unless I over-bolus my breakfast, don't need to worry about going low an hour and a half later.
I had only been taking one shot of NPH/day upon waking, and actually had fairly good fasting sugars (though they would vary and occaisionally got into the 8-12 range). Upon switching, I started with one shot of levemir in the morning just to see, and found it ran out almost exactly at the 20 hour mark. I then swapped to taking 2/3rd in the morning and 1/3rd at night, and aside from adjustments in the total dose, found that to work well for me. I'm now taking 16 units in the morning and 8 units at night, so 26 total. (I had been taking 28 units of NPH)
In terms of my own approach to things as a pre-teen and later teenager, I was always a pretty positive/optimistic kid anyway and never really given to being rebellious, and of course that isn't the case with every teenager.
That said, while I was never depressed about it/didn't consider myself to be in denial, I did go through a couple of years at the end of highschool where I adjusted my personal notion of what a good and bad number was (under 5 was low, under 10 was great, 10-15 was middling and 15+ was a legitimate high). The doctors always seemed to be wrong so I stopped bothering to consult them, save for an annual trip to the endocrinologist, and figured I knew all there was to know. I would feel guilty about the highs and lie to my parents if they asked what the number was, as the truth only resulted in more nagging for something that had already happened. I knew another diabetic teen who was skipping her shots to 'lose weight' and experimenting with various drugs, so I felt like I was doing okay in comparison.
I still tested 6+ times a day but stopped keeping a record book, over treated lows and put off treating highs for a couple hours, ending up with numbers boardering 20 every other day. It wasn't until the end of first year university that I realized I'd 'let things slide', and that merely testing often, always injecting and never drinking/getting high does not make one a model diabetic.
Boy am I long winded tonight. More than you ever wanted to know. :T At any rate, I appreciated my parents giving me responsibility when I was younger as it helped me feel like it wasn't a big deal and at the same time, was something that 'belonged' to me and needed my attention. Likewise, even when I found it annoying if they would confirm that I'd not forgotten an alarm or asked what my sugars were, it was nice to know they took an interest/cared. I think the balance of responsibility and support, as Deus noted, is good.
right2fight
03-15-2007, 04:08 AM
Spring, please don't get me wrong, I have treated the whole deal as if it were my own, and only wish it were me and not my child. However, after growing up with brother that has severe asthma, I saw the ramifications of my mother over compensating and babying him. Not a pretty picture. And exactly what you said. We have pretty much dealt with the dx as managable and not "death sentence." I for one think attitude has all to do with how well you manage it.
You are an inspiration, Spring.
Margaret
type1tenorlady
03-15-2007, 12:16 PM
I was diagnosed at 11 as well, and like others have said it was pretty much my responsibility once I was out of the hospital. I was a very bright child so I guess my family figured I knew better than they did, which in some ways was true. When I started I was only on 2 shots a day (R and NPH), and my mother would always ask if had taken them (which I really annoying, even if I had forgotten) and I was also taught only to test before meals and if I felt low. I never woke up to test unless I woke up low, and that was only to see how low. It occurs to me now that there were probably a lot of times that I woke in the middle of the night with highs (extreme thirst, had to pee a lot, etc) but as I didn't really view highs as immediately life threatening I never thought to test during those times.
My biggest issue was the fact that my brother (6 years older, diagnosed a year or two before me), despite having completely abandoned all that the drs told him to do after a few months (including testing, which he still doesn't do), was able to maintain excellent A1C numbers while I stayed in the 9s and 10s for years. I was basically up and down all the time; once I went on humalog/novolog and had a pen with me I was able to correct highs, but I would often put off testing if I felt that I might be because 1.) I just didn't want to have to deal with seeing the numbers or having to hear what someone else would say about it, 2.) I didn't carry around enough pen needles to allow for more than 3 shots when I was away from home so I would wait until the next meal or snack, 3.) I got so used to feeling bad all the time that I eventually took that to be the norm. There were spans of times (2 or 3 months) when I would be in really good control and I would be able to feel a difference, but inevitably something would trigger the rollercoaster and the vicious cycle of highs and lows would begin anew.
I have to admit now that if busy or preoccupied I still have a tendency to ignore the signs that something has gone awry until I can't anymore (with lows) or until I remember that there's no need for me to have a raging headache or be completely parched and all I have to do is press a few buttons to make it go away.
I never really rebelled so always tested before meals and took my medication, but I really only did the minimum of what was required to keep me on the borderline of good health, and definitely stopped recording everything after a few months. My main motivation for not doing anything really bad was a combination of knowing how crappy it would make me feel if I did (eating junk food, although now I remember almost daily snickers bars/pop tarts during my bio class in 9th grade...) or the fear of not knowing what it would do to me (drinking/drugs). Outside of those things though, I still ended up ignoring a lot of the highs because ignorance is bliss, and if I wasn't constantly seeing 200+ flash on my meter screen then I wouldn't have to think about how I was going to be lectured the next time I went to the dr.
Type1Mum
03-15-2007, 04:56 PM
Thanks again everyone for all your comments.
Jack manages pretty well everything himself and is really on top of his diabetes. I'm not at all concerned about "babying" him. In fact all his teachers can't believe how amazingly well he manages everything. It is just the quantum of sport he does, combined with the fact that he is has really hit puberty and has grown 13.5cm in height since diagnosis last May (5.3inches), that means he does sometimes need night-time testing.
I'll be starting the alarm thing with him and hope that the "Pavlov's Dog" principle will eventually be enough to wake him up. At the moment I think the alarm, plus a bit of vigorous shaking will be required.
Thanks again - it is nice to hear of all your experiences. My fear when Jack was first diagnosed is that he'd go into a coma if having an overnight low - but your experience has taught me that that would be a very rare occurrence. More likely he'd wake up with a headache after having the liver dump glucose into the bloodstream. Anna (mum of Jack - 12 yo)
right2fight
03-16-2007, 08:10 AM
Hi Anna, This Forum is awesome. I have learned so much from the members here, who have lived for many years with diabetes. It's a great place to be!
Margaret
ClaireZk
04-12-2007, 05:49 PM
Do you expect your child to test twice a night every night?
I was thinking the same thing. And ditto that it seems a bit excessive...
Does he have trouble sensing lows? Does he always crash after activity?
I was diagnosed as at age 9. I had a very active, normal childhood. I've never done routine night checks. And, in 16+ years I've had some severe lows, but NEVER one that required assistance from anyone.
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