Well Im Screwed

[SatKiwi]

Insulin intake at 110-130 units daily , I have not eaten bread, potatoes, rice, pasta or any avoidable starch and sugers for the last 3 months.

Drs say now I looking at a direct inplant, but they dont hold much hope to long term function. :(

anyone else ????

[Cyborg]

On some days I push a lot of insulin. Near those amounts once in awhile, usually when I have an infection or other ailment. I go through my 200 unit reservoir about every 2 days. I don't eat much of the bad stuff, but I will occasionally eat a subway and I do bolus for the protein that I eat. I figure if I need to push the insulin to have good control, then that's what I will do...

Have you ever considered a pump?

[SatKiwi]

I am pumped, I have the larger 300 units, 48 hours max beween refills.
my basal is at 95 per day. I also find illness and pain push daily amounts up.

[Tattoo azz]

Hiya SatKiwi
I used to be on about 150 units per day.
I am now on 90 and am feeling lots better.I hope things improve for you soon
Take care
Azza

[NoraWI]

Have you tried changing insulins? Some people develop allergy to the insulin they use and it ceases to work for them no matter how much they raise their dose. There are 3 fast insulins to choose from -- Humalog, Novolog and Apidra. Consider trying another one and see what results you get.

[LancetChick]

Are you seeing an endo who specializes in diabetes? Your excessive liver output/insulin resistance can be treated with medication, and if your insulin absorption is delayed, you may have lipohypertrophy issues, which are fairly common. Avoiding carbs altogether while suffering with chronically high blood sugar is no way to live, and your doctors don't sound very creative or knowledgeable.

[SatKiwi]

Have you tried changing insulins? Some people develop allergy to the insulin they use and it ceases to work for them no matter how much they raise their dose. There are 3 fast insulins to choose from -- Humalog, Novolog and Apidra. Consider trying another one and see what results you get.


I do change between Humalog and Novarapid, didnt know about Apidra ( thanks for the info a third choice will help alot ) :D

[SatKiwi]

Are you seeing an endo who specializes in diabetes? Your excessive liver output/insulin resistance can be treated with medication, and if your insulin absorption is delayed, you may have lipohypertrophy issues, which are fairly common. Avoiding carbs altogether while suffering with chronically high blood sugar is no way to live, and your doctors don't sound very creative or knowledgeable.

Are you seeing an endo who specializes in diabetes? YES

excessive liver output, Tried but failed 3.00am - 11.00am without
low.

lipohypertrophy, not got any extra weight and have used 20mm needles on legs, stomach, arm, but no differance.

My Drs are baffled, they are the top in Austria but both admit they are in a new realm with my case. :confused:

[BlueSky]

... I have not eaten bread, potatoes, rice, pasta or any avoidable starch and sugers for the last 3 months .....
Are you getting suitable exercise? I have found exercise, in conjunction with reducing carbo, to be very effective in improving insulin sensitivity. Especially muscle building resistance exercise. The benefits of aerobic cardio exercise are short-term. But increasing your muscle mass should provide a permanent benefit.

[LancetChick]

On the ADA message board a while back, there was a woman who was having terrible problems with morning highs and crazy insulin absorption rates (or so her doctor thought), and no one could figure out what the problem really was. She finally found a doctor who advised her to take less insulin, not more, as all the other docs were advising, and that finally solved the problem. She ended up taking much less insulin.

If you want to check to see if your basal is set correctly, you need to fast, avoiding both food and correction boluses, and test every hour to see what happens to your blood sugars. Assuming your blood sugar will rise dramatically, you need to wait it out until it stops rising, and then see what happens. If it goes down all by itself (a drop that would make you hypo if you started out with normal BG), your basal dose is too high, and the rise in BG is probably caused by a rebound response to a low blood sugar.

Forgive me if you've already ruled this out..... I mention it because the other woman's problems sounded similar, and her doctors were equally stumped.

[SatKiwi]

On the ADA message board a while back, there was a woman who was having terrible problems with morning highs and crazy insulin absorption rates (or so her doctor thought), and no one could figure out what the problem really was. She finally found a doctor who advised her to take less insulin, not more, as all the other docs were advising, and that finally solved the problem. She ended up taking much less insulin.

If you want to check to see if your basal is set correctly, you need to fast, avoiding both food and correction boluses, and test every hour to see what happens to your blood sugars. Assuming your blood sugar will rise dramatically, you need to wait it out until it stops rising, and then see what happens. If it goes down all by itself (a drop that would make you hypo if you started out with normal BG), your basal dose is too high, and the rise in BG is probably caused by a rebound response to a low blood sugar.

Forgive me if you've already ruled this out..... I mention it because the other woman's problems sounded similar, and her doctors were equally stumped.

very intresting , hmm take less , Im goin to give it ago ,

[flash]

You said you take humalog but what do you use for your basal insulin, most people use Lantus with their humalog. I don't understand how you can only use humalog without eating any carbs ? Get a second opinion from another endo !

Flash

[am1977]

Flash, I believe that Sat uses a pump- therefore, would only use short acting insulin... to answer your question.

Sat... it sounds like you are pretty insulin resistant judging by how much insulin you take. I know some have found some help in taking an oral medication like Metformin. Have you ever thought about or talked with your doctor about taking this? It may be something to consider.

Also, how physically active are you? I think staying active and geting your daily exercise in is important. I think if you can lose a little bit of weight it may help you reduce your insulin needs... and resistane.

Oh, and you might want to consider Symlin as well... It helps with post meal readings. Usually, you can safely reduce the amount of insulin you take at each meal and also keeps you fuller longer (due to slowing the digestion process.). Some have been able to lose a bit of weight using this too.

I, personally, cannot imagine having to take that much insulin. I don't think I would be very content having to need that much, but i understand that you probably don't have much of a choice. Hopefully, with more discussion with your doctors you'll find a solution that will help you bring this amount down some.

good luck to you.

[Funnygrl]

First off, 100-130 units a day isn't terribly bad.

Secondly, have you considered adding Symlin or oral medications, or even byetta?

Thirdly, wth is a direct implant?

[am1977]

First off, 100-130 units a day isn't terribly bad.

Secondly, have you considered adding Symlin or oral medications, or even byetta?

Thirdly, wth is a direct implant?

Am I sensing a bit of an attitude? (J/k of course! :T ).

Maybe it isn't a terribly bad amount of insulin, but if just sounds like a lot to me. Just my opinion.

[Funnygrl]

Nope, no attitude.

Normal insulin use is considered up to 1 unit per kilogram, I believe. Therefore, if someone weighs 100 kg (220 pounds), which is overweight for most, though not shockingly overweight if some is tall or muscular, 100 units isn't even considered "resistant."

[am1977]

Nope, no attitude.

Normal insulin use is considered up to 1 unit per kilogram, I believe. Therefore, if someone weighs 100 kg (220 pounds), which is overweight for most, though not shockingly overweight if some is tall or muscular, 100 units isn't even considered "resistant."


hmm, that's interesting. You make a good point- thanks for clearing that up. :)

[Cyborg]

Symlin works great for slowing digestion and reducing the post meal spike in bg, but I've found that I still need the same amount of insulin. I don't take all the insulin up front, but spread it over 2 hours using a 50/50 combo bolus.

[SatKiwi]

Nope, no attitude.

Normal insulin use is considered up to 1 unit per kilogram, I believe. Therefore, if someone weighs 100 kg (220 pounds), which is overweight for most, though not shockingly overweight if some is tall or muscular, 100 units isn't even considered "resistant."

I,m 6.1 = 183 so guess 100 units is ok :D