Well this is where i belong now

[mzroni]

I got all my test results back today..and i do have type 1.5..but now i know what i have..Is this any difference is controlling this one or is it like type 2??

[Keezheekoni]

Um, you should be on insulin now...? Other than that, not really.

[rzrbks]

I know that this isn't technically correct, but I think of 1.5 as either being very fast 2 or Really, Really slow 1.

[mzroni]

Well when i went to the dr last week she started me on lantis because the actos plus met just wasnt really working so she did all the tests...my a1c went from a 7.1 to an 8.5 in less then a month..so i am on some insulin now..but i go back to the dr on the 6th of sept..and she says everything is going to change..

[painthorse]

I am glad you found out and I may be in the same boat! What tests did they actually run to determine this? I am scheduling my first appt with an endo and have no clue what to ask. I am tired of regular drs not giving good answers! Heck - I'm more confused after joining this forum that ever!!!

[shabbie6247]

I got all my test results back today..and i do have type 1.5..but now i know what i have..Is this any difference is controlling this one or is it like type 2??

type 1.5 is technically type 1.

as it is slow developing, your pancreas will continue to produce its own insulin for a while (the honeymoon), this can last from weeks to months, even a couple of years in some cases. My own honeymoon lasted 9 months from diagnosis.

it sounds like your doctor will adjust your insulin regime to a long acting one and add in a short acting one as well (MDI = multiple daily injections).

welcome to the type 1.5 club lol ;-)

[grace girl]

I've heard that some people who are dx'ed 1.5 have some insulin resistance, but that's something your doctor will be able to help you determine. Other than that, think type 1...it will serve you better.
I'd recomend getting a hold of Think Like a Pancreas by Barry Goldstein or Using Insulin by John Walsh.
Inform yourself. Knowledge is power!

[gettingby]

I am glad you found out and I may be in the same boat! What tests did they actually run to determine this? I am scheduling my first appt with an endo and have no clue what to ask. I am tired of regular drs not giving good answers! Heck - I'm more confused after joining this forum that ever!!!
I've never had these tests before but maybe you should ask the endo about doing a C-peptide and/or GAD antibody test. I may be wrong so if I am, someone else chime in. I don't want to lead you down a wrong path with the wrong tests.
Google these tests. I'm sure you can find what you are looking for.:)

[grace girl]

I've never had these tests before but maybe you should ask the endo about doing a C-peptide and/or GAD antibody test. I may be wrong so if I am, someone else chime in. I don't want to lead you down a wrong path with the wrong tests.
Google these tests. I'm sure you can find what you are looking for.:)


Those are the tests they did on me to get it right.

[mzroni]

those are the blood tests she did on me..she took like 6 things of blood :eek: she tested me for alot of things to check numbers and what not..but those are the two main tests she was looking at

Veronica

[painthorse]

When I go in for bloodwork, I think they are mostly checking for color! I have fired my regular Dr concerning my diabetes and am looking for a good endo.

[Kimber]

mzroni,
That is interesting that your dr told you everything would soon change. I was diagnosed 8 months ago. They thought type 2, metformin, then added actos then decided I was type 1.5 and added lantus. Now they say I could stay with this treatment for years. LADA is slow and with the help of lowering the stress to the pancrease by adding the lantus those last 3 beta cells (Larry, Curly and Mo) could keep going for years this way. 8 months so far and both dr's claim at very least a year, more likely 2 or more years before I will (probably) add MDI (short acting insulin.) I know this is all so different person to person (not to mention dr to dr..) I just thought it is interesting how very different the information we get can be. Please let us know how it goes.
kimber

[ladytaz]

painthorse, I don't know where you are in ATL, but I go to Dr. Vavrik in Carrollton at West Georgia Center for Diabetes & Endocrinology. Even from Lithia Springs, it's a drive for me, but well worth it in my opinion.

Another highly recommended Endo is Dr. Rosenbloom near Kennestone Hospital (I dont know if that's technically Marietta or Kennesaw! LOL) I don't go there, because I hate the traffic there! I'd rather drive to Carrollton myself! Twice the distance but about the same amount of driving time for me! *shrugs*

Me and two of my sis's see Dr. Vavrik. Two of us for Diabetes and one for Grave's Disease (Thyroid).

[ladytaz]

I got all my test results back today..and i do have type 1.5..but now i know what i have..Is this any difference is controlling this one or is it like type 2??

It's more like Type 1, I think. Though it does have a mix of both for some.

I want to have these tests done too. One day, when I can get the money up I will :) Metformin and Glipizide worked for a while (about 18 months) though not as well as I think they should have, and now I'm on insulin and I think I react VERY well to the insulin, hence I don't think I'm all that insulin resistant! But, only the tests can show that. My treatment won't change now, since I'm already on insulin, but I'd just like to know exactly what I have. :wink:

[mzroni]

I guess this has been going with me for a while..I was dx'd in November of 06 with type 2 put on actos plus met..it has totally quit working for me in a months time my a1c went up to an 8.5 from 6.1 she also thinks this is why my newborn died in Nov.04 my blood sugar at that time was 974 when i went into preterm labor with him..I thought it was gestational but it seems it never went away..Type 1 runs in my family my lil sis has it..and my mother had type 2 so i really am not surprised with what i found out..i guess depression from my sons death kept me from looking into my own health..I just did not really care..anymore at that point for almost 2 years..now i realize i also have to live..so now i am getting better about drs..

[ladytaz]

Though I don't know what it's like to lose a child, I do know what it's like to lose a grandchild. It's DEVASTATING!!! It is not something I wish ANYONE to go through! EVER!

This only happened this past January, but I'm still affected by it today! My (step)daughter lost her son at 5 months gestation. Even though I'm not the one who was pregnant with him, I know how it has made me feel! I can't even imagine how it feels for a mother! Me, as Grammie, I'm always thinking .... If only he'd made it, he'd be "this" old now ... etc, etc. So, from MY point of view, I can only minutely comprehend what you've gone through with all of that.

Yes, good realization that YOU have to live!! Hopefully this is what propels you to go on, to "make things right" and "get healthy" so that you can have more children!

*big hugz* and LOTS of good thoughts and prayers are going out to you!!!

[mzroni]

Thank you so much ladytaz...

[Alice]

When I lived in the Atlanta area, I went to the group where Dr. Rosenbloom practices. I couldn't see him as a new patient, but had a pretty good experience with Dr. Mazur. He's very nice, rather quiet...so go armed with your questions and concerns.

It's a pretty big group...always tons on pharm reps there because Rosenbloom is on the hospital pharmaceutical board.

The group is called Medical Specialties. Easy parking in the garage...once you figure it out the first time. There is a Quest lab across the street but they also do a little lab work in the office which is rare these days.

One of the doctors in that group is an osteopath...(Molinary?)