View Full Version : I guess this is my real home?
DCaplinger
01-31-2008, 07:41 PM
Hey all. I've been reading around the net, and think this may be my actual place here. I was diagnosed with LADA, so I guess that technically makes me a Type 1.5, not a Type 1.
I haven't seen my labs yet, so I don't know if the main anti-bodies are the GAD65 or not. Regardless, after reading the stuff here, I believe this is the place I belong. If anyone disagrees, please let me know.
Regards,
Jan B
01-31-2008, 07:53 PM
Gee Darian, I wanted you in the Type 1 club!! You probably are 1.5 though from what I understand.
DCaplinger
01-31-2008, 08:03 PM
Technically, 1.5 is a special form of 1, so I still am. My doc said 1, not 1.5 (and he does recognize the 1.5). I can only assume that means there were more anti-bodies than just the GAD65. I will ask him more when I see him again in March. 'til then, I'll stick around here. Hehehe.
I'll be reading both, and stay active in both, since we have the same treatment needs anyway. Your onset was at 18, mine was at 33 (I'm 34, but we know I've had problems for at least a year). That's pretty much the only difference between us. Truth be known, I don't understand the reason for the labels to begin with. Type 1, insulin needed. Type 2, insulin optional. That's about all we really need to know, isn't it?
Jan, I don't think it matters. We're going to get along famously one way or another. There are only 2 subjects that you should probably avoid, unless you want me to get on my soap box... they are politics and the health/drug conspiracy.
Regards,
Jan B
01-31-2008, 08:12 PM
Politics? I love that stuff. I'm a junkie. Want to stir things up and post a new thread about it? It's obviously missing from the chit chat topics. I think I'll leave it alone . . .:D I like your other topic too . . . I know what you think and I've read some of your soapbox stuff . . . love it! Sorry, I got off the original topic ;)
notme
01-31-2008, 08:37 PM
Don't make me hurt you Jan! :secruity:
I am type one, diagnosed at 31. No warning, just slapped down by Diabetes.
This is where you belong.....:)
grace girl
01-31-2008, 09:06 PM
I was dx'd at age 32. For reasons totally unknown to me a new endo I saw last year redid all of the orginal tests and told me that I was type 1, not 1.5...which I had been told by the previous endo. Personally, I don't think it makes a difference. I don't think the medical community has made up their minds and come to an agreement as to what 1.5 actually is...I've heard numerous theories. Mostly I think they are just confusing people.
Most of us 1.5/LADA types end up spending more time on the T1 forum than here anyway. There are way more similarities than differences in the treatment/management of T1/T1.5 diabetes.
Personally, I think that if the medical people had not labelled T1 as "juvenile" diabetes way back when, there would be no need for the somewhat artificial T1.5 classification now. T1 diabetes would simply be seen as a disease that has different progression rates dependant on the age of onset.
my 2cents
ant hill
02-01-2008, 02:35 AM
Personally, I don't think it makes a difference. I don't think the medical community has made up their minds and come to an agreement as to what 1.5 actually is...
Personally, I think that if the medical people had not labelled T1 as "juvenile" diabetes way back when, there would be no need for the somewhat artificial T1.5 classification now. T1 diabetes would simply be seen as a disease that has different progression rates dependant on the age of onset.
my 2cents
Yes I can agree on that as Type 1.5's are treated the same as Type 1's as I see there is no difference. What I dislike is the acronyms that the medical community come up with which confuses the heck outa me. :( :confused:
DCaplinger
02-01-2008, 04:32 AM
I totally agree. There are some minor differences between Type 1 and Type 1.5, specifically the anti-bodies usually found in Type 1.5 are almost completely GAD65... and of couse, onset over the age of 30. As I said, if your labs come back with other anti-bodies besides the GAD65, then you would actually be a Type 1, regardless of the age of onset. Another key difference is that Type 1.5s usually are still producing insulin (just not enough) and are NOT insulin resistant. I could go either way on that one, as I am completely insulin dependent now (I am producing none).
I did rather enjoy when the Endo called me to tell me that I am Type 1.x, though. He had to eat a little crow. I told him before the blood was drawn 2 weeks ago that I thought I had been misdiagnosed as a Type 2. He disagreed. When he called, he said that there was no doubt I am a Type 1 and that my anti-bodies were very high, and very quickly (almost subliminally), he apologized. I am now starting to understand what he meant by that (I had given a hint to the fact I needed some clarification on what he meant by anti-bodies in my To Inject thread on the Type 2 forum, but no one picked up on it. Silly T1's. Tsk, tsk. Hehehe.).
I actually wish they would drop the 1.5 revolution. There is zero difference in the treatment protocols, and there are such few differences between the two, I think it's more confusing than helpful. Isn't it enough to day, I'm a Type 1 (LADA)? As long as people don't think you are from some ultra left-wing conspiracy group because of the acronym, you should be fine (sorry to any lib's here, but we will root you out. Bwahahahahahahaha.)
[That is of course, a joke. I made a funny ha ha. I meant no offense to anyone. Just be sure to exercise your right to vote, regardless of where you live in this world!]
Regards,
morrisma
02-01-2008, 05:43 AM
I like dbc's idea that they needed to call us late onset folks something besides juvenile! That must be some advanced political correctness though because when I was dx'd at 35, 18 years ago, there wasn't a 1.5 in the wind. :cool:
Mike
Alice
02-01-2008, 08:06 AM
With the exception of JDRF, I think the word "juvenile" has been dropped by most "in the know" medical professionals...due to the confusion it was causing in diagnosing adults...or at least that was the attempt and major reason for using "type 1" or "type 2".
There are many, many children being diagnosed as Type 2's...so that helps alleviate the reverse of the adult problem...
JDRF retains the "juvenile" since they have many years of "branding"...
gettingby
02-01-2008, 08:21 AM
Doesn't matter what type you are, you are a part of this family here and that's what is important. :)
if people ask, I just say T1 now, as I see their eyes glaze over if I extend my answer over 5 words...lol.....
It's very hard to get others to care about my problems.......tee hee
mortis505
02-01-2008, 09:45 AM
1/1.5 are relatively the same. Both insulin dependent. etc, etc, and if they want to call it juvenile, thats fine by me, cause i may be 35, but I dont wanna grow up!!!! :)
ant hill
02-01-2008, 07:54 PM
Doesn't matter what type you are, you are a part of this family here and that's what is important. :)
This is why we love you Cindy. (((HUGS))) :T
if people ask, I just say T1 now, as I see their eyes glaze over if I extend my answer over 5 words...lol.....
It's very hard to get others to care about my problems.......tee hee
Soso, Our desiese is so complex it would take someone to uni to figure out. In your case collage. :)
1/1.5 are relatively the same. Both insulin dependent. etc, etc, and if they want to call it juvenile, thats fine by me, cause i may be 35, but I dont wanna grow up!!!! :)
Heh yeah, I would go with that too. :D
Cyborg
02-01-2008, 08:13 PM
I was misdiagnosed myself. Lived as a type 2 for a long time while in my honeymoon period. To be honest, it's much easier to control my diabetes now that I am no longer producing insulin. There is no longer any variability in insulin output and I no longer have to take all those nasty pills.
ant hill
02-01-2008, 09:53 PM
I guess that DF is my place to visit as I log on just about every day. :) I also get my kicks of other peoples ideas and experiences and I learn allot too. :D
owlyn
02-02-2008, 06:33 AM
Truth be known, I don't understand the reason for the labels to begin with. Type 1, insulin needed. Type 2, insulin optional. That's about all we really need to know, isn't it?
Regards,
There's more to it than that. IMO, they should really be considered different diseases completely.
To oversimplify...
In a T1, the body makes no insulin. In a T2, the body makes insulin but for some reason isn't using it, or only using some of it. Sometimes, a person can be a little of both- they're not making the proper amount of insulin, and their body isn't using all of what it's making anyway.
So, the only common things between T1 and T2 is that the body has some kind of insulin problem, and that complications can be the same. Sometimes, a T2 needs some of the same treatment as a T1, but usually the treatment is vastly different.
But, I am a T1- the T2s will be able to explain it better. I have a hard enough time working with T1 stuff. I'd go crazy (okay, crazier) if I were a T2.
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