PDA

View Full Version : Newbie in Oregon with questions


Leafbear
02-03-2008, 11:27 PM
Hi, All --

Like many here, it seems, I am new to the site but not new to diabetes, as you can see from my signature. I AM new to the level of care I'm embarking on, and could use some reassurance, words-from-the wise, validation of fears... I guess I just need to talk about it. I've been lurking for a little bit, and you seem like a good group.:)

There's nothing much in my Profile yet, but here my (too-long story): I was dx'd at 15, no hospital stay, probably because my dad is a nurse practitioner. No endo in our small town. I saw a dietitian once to learn the exchange diet. It felt like my family took the dx in stride, but maybe they were sort of ignoring it. As a result, I didn't freak out about it, but probably mostly because I didn't know enough.

I took myself to an endo while in college. For a couple of weeks before the appt I logged all my bGs, food, and activity. And he never looked at it. I remember nothing else from the appt. In my college-age "wisdom" I decided specialists were a waste of time.

Since then I've had my PCP look after my D. I've been pretty okay, too, though I certainly can't attribute it to expert self-care. My A1Cs were 7.1 or less. A trace of proteinuria once, which went away. Two years ago the eye doc saw a spot that she said would probably resorb, and last year it was gone. My cholesterol has been admirable, but I'm sometimes prehypertensive.

This past November I decided to "get serious". My PCP of 10 years had left the practice ,and I found an internist close to my work. I wanted to switch from HumR to Humalog, which she agreed to. She found my A1C at 7.3 and my thyroid and Vitamin D (??) low. She has been wonderful, having me fax my numbers to her every week and calling me and adjusting my insulin dosges. We were SO CLOSE to great when my body decided it didn't want to play anymore. No apparent reasons for the highs, and no patterns. The doc has lots of D background, but said let's refer you to an endo and also a diabetes educator/nutritionist.

So, those appts are coming up, and I'm not sure how I feel about that! On one hand I WANT to know more; on the other hand -- and this sounds haughty and childish to me -- I don't look forward to hearing how "bad" I've been. I must've done a COUPLE of things right!

My questions are: (and please tell me if I should ask the question on another forum) what should I expect at the endo (some of you seem to really dread them!)? And, is anyone else in this "want help/reluctant to get it" struggle? If you've been there, what advice do you have?

Thanks a million for reading this long post. I'm glad to have found you.

Dewey
02-04-2008, 12:12 AM
Hi Leafbear, and welcome to the forums. :)

It sounds like your internist just wants you to go to the endo as he or she can check certain aspects in greater detail to help your body get back on track & help you regain control of sugar levels. I don't think it'll be a bad visit, as long as the endo you meet with listens to you, and understands you & your needs.

My endo told me that the Vitamin D level is checked (& treated if low) because it goes hand-in-hand with kidney functions. He has me on some Vitamin D to help get the levels back where they belong - and so far, it has worked. While I'm not 100% in agreement with some of the ways my endo feels, I'm glad that he usually does listen to me (especially when it comes to new gadgets I want ;)). The biggest thing concern is if your endo doesn't listen to you....if he or she doesn't, it's time to find a new one.

Hope I've helped some & again, welcome to the forums. :shakehand

UpNorth
02-04-2008, 01:44 AM
Welcome to the forums :)

Jill-O
02-04-2008, 02:15 AM
Hi and welcome here from Virginia http://www.getsmile.com/emoticons/smileys-91853/aiw/bye.gif

I've not seen an Endo yet (just my "regular" doctor), so I don't know what you should expect but I think others here can clue you in. And, as to the want help / reluctant to get it thing... I think that is normal. It's about changes and not knowing what to expect (the devil you know kind of thing). I suspect you will feel more at ease once you've had your first meeting with your endo.

mho357
02-04-2008, 04:34 AM
Hello Leafbear and welcome.

Mark

morrisma
02-04-2008, 06:02 AM
Welcome to the club LeafBear.

As for the endo visit, make the most of it. (I like my endo and look forward to what the nurse practitioner has to offer.)

For the nutritionist, ask about carb counting, low-carb recipes, and mention any excesses you might have like 12 cups of coffee a day or that blt you eat before bed so they can factor that into your plan. ;)

For the doc, ask about pump therapy, ask about getting a 3-day cgms so that your underlying patterns can be looked at, ask about exercise and be sure he/she knows what regimen you are currently on. If you are prone to getting lows (or even if not), make sure you get a script for a glucagon kit.

I'm sure others will have more advice to offer. Good luck.
Mike

xMenace
02-04-2008, 06:40 AM
Welcome.

Endos are happy when you are doing what you can to take control. If you have a good attitude and do all the things asked of you, they are happy. They also tend to be happy with good A1C's. Get it below 6.5% and they'll agree with just about anything you want to try, except for the supplimentary meds. They'll push those on you hard.

Your control isn't that bad.

kgm0612
02-04-2008, 06:52 AM
Welcome to the forum.

Karen

Leafbear
02-04-2008, 07:29 AM
Thanks, Everyone!

I didn't know that Vit D is related to kidney function. Also didn't know that it's possible to get a cgms for just a few days. Good to know. (I do have an up-to-date glucagon kit, having had some scary lows as probably many of you have.)

Best,
Leafbear

tanyatype1
02-04-2008, 09:54 AM
Welcome to DF Leafbear!