SusieQ

[SusieQ]

Hey everyone-thought I would sign up for this forum to get some info from the "experienced"- i.e.-not just the doctors. My 18 yr old daughter has been diagnosed with Type 1 for 7 yrs, uses a pump and has been taking Symlin for the the last 9 months. She has lost about 10 lbs. but is now beginning to suffer from hair loss. Has anyone else experience hair loss as a side effect? Her doctor claims it isn't a side effect, but has tested her thyroid (since she also takes Synthroid) and the results have come back within range. Any thoughts from those in the "Symlin trenches"?

[Subby]

Hi SusieQ, my impression is that it's not a very common drug for type 1s, at least, not common enough to be a point of much discussion here. I think it's a pretty common drug for pre-diabetes or type II so you may have a lot more response in those forums.

Best of luck getting some answers... and good on you for taking the effort to gather some info from the ones who live with it.

[princesslinda]

Hi SusieQ: Can't give answers to your questions, but did want to welcome you to the forums. I'm sure someone with the anwers will chime in soon. There's lots of good information to be found here.

[lisa821]

Has anyone else experience hair loss as a side effect?


Hi SusieQ,
I did experience hair loss when I started taking insulin at age 13; however, it was in 1977 and I was injecting Lente insulin, so it was a while ago! My doctor said he didn't know why my hair was falling out, but thought it might be my body's way of dealing with the stresses of diagnosis. I didn't lose all of my hair, but it thinned out quite a bit. After a few months it grew back.

~Lisa

[davef]

Hi SusieQ,

I can't help with your question, but I do want to welcome you to the forums, it's a great source of information and support, full of really wonderful people.

[JediSkipdogg]

Hi SusieQ, my impression is that it's not a very common drug for type 1s, at least, not common enough to be a point of much discussion here. I think it's a pretty common drug for pre-diabetes or type II so you may have a lot more response in those forums.

Symlin is VERY common and geared towards type 1s.

With that said has your daughter had any other problems recently? Illnesses? I have not heard of hair loss as any sort of side effect of insulin or symlin. I'm just wondering if she may have something else going on.

Good luck and welcome to the site.