PDA

View Full Version : how high were you when dxd


christie
11-05-2004, 10:12 PM
i was just trying to see how high everyone's sugars were when they were first dxd.i had said in another post my actual number was 1350,that was in 1983 when i was 10 years old,the first 24 hrs i was given a small dose of insulin every hour.that was before humalin and humalog.it is surprising that i was'nt in a coma from those sugars,i did blackout shortly after being admitted.the first thing i asked was could i still drink milk,at that time i did'nt know much about diabetes.

lgvincent
11-05-2004, 10:17 PM
Only 680 for me (according to my medical records). I sure was sick though and was in a semi-coma. I hate to think how you must have felt. They didn't start giving me insulin for several days after I went into the hospital. Sure felt better when they did. Started getting hungry, too. Not only did I eat the hospital food, I ate the utensils, the tray, the bed sheets, my pajamas, the syringes, . . . .

christie
11-05-2004, 10:22 PM
gees did i suffer,i could'nt see very much at the point of being admitted,i could'nt keep anything down,i had lost quite alot of weight.i saw my lab reports which showed my sugar results 1,350.i was just glad to hear that i was actually sick not going crazy ,no one belived i was ill not even my dr.

TvBabe
11-05-2004, 11:43 PM
I was 608 and boy did I feel horrid, they didn't put me on insulin (I'm type 2) because my doctor thought I'd do a good job getting my numbers down quickly and I didn't disappoint him :)

Dewey
11-06-2004, 12:09 AM
In 1982 (right before my 10th birthday), I was diagnosed, & at the time, my sugar was 400. I was put in the hospital for two weeks, and while there, got the flu...ugggg. However, my doctor was cool and brought me a carob chocolate (not as sweet) bar for my birthday! :D

(By the way - LOL, lg! Did the bed sheets, utensils, etc...make your sugar go up? LOL :D)

LauRa Lu
11-06-2004, 03:40 AM
Mine was 786mgdl 39mmol/l.

Took my self to hospital coz i didnt have a doctor at the time, Glad I went when I did. I couldn't see past my nose that day :p

nantomsuethom
11-06-2004, 04:24 AM
Thomas' was 465 when I finally tested him after thinking maybe he has diabetes for a few days.

Brent44a
11-06-2004, 04:43 AM
788 here. When I couldn't tell if the traffic signal was green or red I decided it was time to see my doc. My constant reminder of diabetes even today is my eyesight, which is ok for the most part but the variability is irritating. My doc did a blood test, sent me back to my office when it was taking a while to get the results, then called me screaming into the phone because it took him an hour to find me later in the day. I stayed overnight in the hospital on some type of insulin drip and it brought the BG down about 500 points. It took me months after that to get the BG lower. I also ate everything in the house and drank gallons of whatever fluid I could find (thank God I'm not a mechanic - not sure how motor oil tastes) while losing weight. When I starting making a beehive dart from the bathroom to the refrigerator I knew it was time to see the doc. Christie, I'm not sure I would have survived 1350 - I can't imagine how bad you must have felt.

Eri's mom
11-06-2004, 06:01 AM
They didn't give us the exact number, but Erica was over 1000.
We were happy as heck when we actually saw a "low" reading of like 350 after quite a while.

gettingby
11-06-2004, 06:48 AM
Can't remember the exact number but it was in the 800's, I believe. Would have to ask my mom, she remembers everything. LOL
Cin:)

buzzborne
11-06-2004, 08:43 AM
I was 32mmol/l... dunno what tht is for US numbers... (above 700?) had 2 weeks of feeling grotty at school before dad recognised symptoms and took me to the Dr, then spent a long wkend in the hospital.. (when I put it like that it sounds like a holiday lol)

HeatherP
11-06-2004, 08:58 AM
I can't remember the exact number, but it was in the upper 400's.

bel4_20
11-06-2004, 10:09 AM
I belive I maxed out meter at the doctors office to the tune of 39mmol\L (sorry guys don't know the conversion).

Dewey
11-06-2004, 10:16 AM
Originally posted by bel4_20
I belive I maxed out meter at the doctors office to the tune of 39mmol\L (sorry guys don't know the conversion). Hi Bel,
WOW - That was a high one - 702! :eek: To convert, take the result number (i.e. 39, 5.6, etc...) and multiply by 18. (5.6 = 100.8). :)

bel4_20
11-06-2004, 10:34 AM
Thanks Dewey! I'll copy and paste that and keep it handy

LauRa Lu
11-06-2004, 11:17 AM
Originally posted by Dewey
Hi Bel,
WOW - That was a high one - 702! :eek: To convert, take the result number (i.e. 39, 5.6, etc...) and multiply by 18. (5.6 = 100.8). :)

I use this to convert - http://diabetes.about.com/cs/glucosemonitoring/l/blconversioncal.htm

I was 39mmol/l this convertor tells me thats 786 :confused: dont know if it's right or wrong then.

bel4_20
11-06-2004, 11:34 AM
You have to click "plasma" under each value then you get 702

LauRa Lu
11-06-2004, 12:32 PM
Thanks! :) I never even checked that before. :)

bel4_20
11-06-2004, 01:57 PM
Anytime!;)

debaroo
11-07-2004, 06:57 PM
i was 12 and it was right after christmas my mom took me to the doc did a blood sugar and if i recall correctly was around 40 something (thanks dewy i did the math) so that was around 720 something...in the hospital for 2 weeks and like dewy again i got the flu as well...all i can remember that day was feeling like **** and it was snowing like heck and i still remember the date and time jan 21 at 4pm!!!! 1981

mg_2204
11-08-2004, 05:31 AM
... I don't know! A year after my last pregnancy, I was told BG was still in the grey area. What's the grey area??! Back to my family doc, he prescribed Diamicron, which made me faint all the time. Following his advice, I'd lower the dose again and again to a point where my doc told me he didn't know what to do with me anymore. That's when I've stopped going at the doc for a long while. It's only after moving to England, in 1998, that I had a REAL follow-up, worthy of that name. I wanted to have my medical file back in Canada sent over to me but... it has disappeared!!! They've lost it. I have no data, no test results. Nothing! Wonderful.

Marie
:)

Mick
11-08-2004, 05:36 AM
I had been getting sicker and sicker for most of a year by the time I went into the hospital in February of 1965 at the age of 12 1/2. I had, by then, lost almost half of my body weight (from a high of 125 lbs. to an emaciated 70 at admission), was severly dehydrated and malnourished. Nobody seemed to notice much... I went in, however, not for any of that, but for sharp lower-right abdominal pains that the school nurse suspected was appendicitis. It was, but by then, I was in a coma, and the appendix had ruptured, sending me into septic shock in addition to the DKA. My glucose was in the range of 975-1000. I was in a coma for 3 days, and was not stable for a week. They didn't feel I could be operated on for the appendix due to how sick I was, but were forced to when it burst. I was pretty touch-and-go critical for a while. I was in the hospital for almost a month, but recovered fully--it took me a lot longer to make up most of the year of school I had missed by then!

Michael

buzzborne
11-08-2004, 06:31 AM
ahhh.. that makes mine 576... not the 700.. :rolleyes: not good on the maths... :p

LauRa Lu
11-08-2004, 07:12 AM
Originally posted by Mick
I had been getting sicker and sicker for most of a year by the time I went into the hospital in February of 1965 at the age of 12 1/2. I had, by then, lost almost half of my body weight (from a high of 125 lbs. to an emaciated 70 at admission), was severly dehydrated and malnourished. Nobody seemed to notice much... I went in, however, not for any of that, but for sharp lower-right abdominal pains that the school nurse suspected was appendicitis. It was, but by then, I was in a coma, and the appendix had ruptured, sending me into septic shock in addition to the DKA. My glucose was in the range of 975-1000. I was in a coma for 3 days, and was not stable for a week. They didn't feel I could be operated on for the appendix due to how sick I was, but were forced to when it burst. I was pretty touch-and-go critical for a while. I was in the hospital for almost a month, but recovered fully--it took me a lot longer to make up most of the year of school I had missed by then!

Michael

Sounds like you were a fighter to pull through with all that! You must have felt 'really' rough just before they knew what was wrong :eek:

:) Lor x

archimeech
11-08-2004, 07:30 AM
I was diagnosed in January of 1985, I was 13 1/2. I don't remember what my sugar was, but I was in and out of the Dr's offices about 8 times before they figured it out. I have been 6'-2" since I was 12 and at the time I weighed 140 lbs. When they finally figured it out, I weighed 117 lbs and that was only 3 days after the first weigh in. I don't think I could have survived losing 1/2 my body weight!

p.s. isn't it just morbidly funny that we have a post going with the phrase,"how high were you....." If it were on some other kind of board, it would have a TOTALLY different meaning! Not as much fun for us though, is it? lol-(attempts to laugh, but only weakly chuckles):(

rzrbks
11-08-2004, 09:15 AM
Fasting Reading was 590/32.7

Insulin and meds right away--Meds went away as was determined that I was "Late Blooming T1"

{{Also know as LADA, 5th TeleTubbie:D }}



Type 1.5 Diabetes

aka Slow Onset Type 1 and LADA

Type 1.5 is one of several names now applied to those who are diagnosed with diabetes as adults, but who do not immediately require insulin for treatment, are often not overweight, and have little or no resistance to insulin. When special lab tests are done, they are found to have antibodies, especially GAD65 antibodies, that attack their beta cells. This sort of diabetes is sometimes called Slow Onset Type 1 or Latent Autoimmune Diabetes in Adults or LADA.




http://www.diabetesnet.com/diabetes_types/diabetes_type_15.php

archimeech
11-08-2004, 09:45 AM
LADA, the sweetest of the Tubbies!

Dewey
11-08-2004, 09:27 PM
Originally posted by rzrbks
{{Also know as LADA, 5th TeleTubbie:D }}

Originally posted by Archimeech
http://www.diabetesforums.com/attachment.php?s=&postid=35945LADA, the sweetest of the Tubbies! :D LMAO, you guys! :D

gettingby
11-09-2004, 05:00 AM
Now that is just too cute !!!!!!!!!!!!!

Booger
11-09-2004, 12:50 PM
Around 600. That'll do it. That was about 6 weeks ago. Physically, I feel much better now.

koblenz
11-09-2004, 01:28 PM
Wow, do I feel like a wimp... I was only 450 when Dx and I felt like death warmed over. I can't imagine what 1000 felt like!

rzrbks
11-09-2004, 04:20 PM
:topic:

how high were you when dxd


I really, really want to do something with this but I WILL refrain.:whistling :eek: :smartass:

Dewey
11-09-2004, 09:50 PM
Originally posted by koblenz
Wow, do I feel like a wimp... I was only 450 when Dx and I felt like death warmed over. I can't imagine what 1000 felt like! Hey, don't feel bad, Koblenz! ;) I was 400 (beginning to wonder if we are somehow related, since we got soo much in common...LOL :D)

Had a friend who was diagnosed at 1100! :eek: I couldn't imagine being that high! (lol, Rzr...)

archimeech
11-10-2004, 03:51 AM
It wasn't when I my sugar when I was diagnosed, but once after being sick and not having eaten for probably 1-1/2 days, my sugar when I got to the ER was 1177. I was so DKA that my body was convusling and trying to breath the keytones out. I never passed out, and remeber the whole ordeal.

gettingby
11-10-2004, 04:29 AM
Whoa Meech !!!!!! I should have said that my numbers weren't from dx. The dr. I had at the time was treating me with pills instead of insulin for over a year. Spent two weeks in the hospital with DKA, almost one week in and out of a coma. Was really touch and go for a while there. But that was 19 years ago. Everything is cool now.
Cin
:)
PS LMAO rzr !!!!!!!!!!!!

am1977
11-10-2004, 07:19 AM
I was also in the 600 range. I felt really sick. I had been feeling exhausted, extremely thirsty, my muscles ached (especially in my legs, and I walked with a slight limp), and I also lost a good bit of weight. I had put off going to the doctor's b/c at that time I had no insurance. Finally, I got to the point where I couldn't wait anymore. When my primary care physician took one look at me, I think she immediately knew what was going on. In a matter of moments, she was on the phone with my soon to be endo. and they were getting me admitted into the hospital. I only was there over night and left the next evening, b/c of my insurance status. I got a real crash course in Diabetes managment. Anyway, what's funny is that when I finally got the diagnosis, I actually was a bit relieved. After feeling crappy for about 2 months or so, I knew I would start feeling better with treatment.

portok
11-13-2004, 10:43 AM
when first diagnosticated i was at 350 but ok. Because i didn`t felt anything was wrong with me I first thought that the doctors were mistaking but unfortunately they were right.

nab486
11-20-2004, 10:01 AM
I was 599, and it was the day after my 35th birthday... nice present.... AND it was just 3 days before Christmas..... double nice present. Because of my age they doc's ASSUMED that I was type 2, gave me some pills and said go on a "soy diet", spent Christmas Eve and New Years eve in the doc's office... couldn't eat ANYTHING without my #'s running WAY up.... They wouldn't send me to an endo.... arrrggg.... 1 year later.... thanks to you guys and other internet sites, I requested the tests, switched doc's, DX type 1.5.... I am so grateful for insulin..... I don't mind the shots at all.... 1 year of not eating much of anything...wasting away... feeling crappy..... shots don't bother me at all.....

bac4uw
11-20-2004, 11:27 PM
755. It was a cold Flagstaff, AZ morning and I went for a run a couple hours before the doctor called me and told me that I needed to see him ASAP. (The day before, he told me "I was crazy" to ask him to test me for diabetes... I thought I had the symptoms.)

The minute they put the IV in me (and insulin), I felt so much better. I didn't realize just how badly I felt until then. That was over five years ago on 'Columbine Day'... as if that day wasn't depressing enough! I will always remember the day I was diagnosed by what I watched on the ER television sets.

bac4uw
11-20-2004, 11:31 PM
P.S. The doctor thought I was crazy because I was 22 (older/younger than typical) and that is just not an age that people get diagnosed with Type I or II diabetes. I guess I proved him wrong!

gettingby
11-21-2004, 08:06 AM
Originally posted by bac4uw
P.S. The doctor thought I was crazy because I was 22 (older/younger than typical) and that is just not an age that people get diagnosed with Type I or II diabetes. I guess I proved him wrong!
That's not crazy. Even though I was diagnosed at 14, I have a friend who wasn't diagnosed as type 1 until he was 32 years old.
To nab486, I was diagnosed at 14 with type 1 but the doc(family dr., no diabetes training), started me out on pills!!!!!!!!! Went for a full year eating almost nothing but lettuce and running out of control. It took going into DKA and almost kidney failure for him to realize I needed someone else. The first year was the worst year of my life but at least I'm ALIVE to talk about it.:)
Cin:)

Dewey
11-21-2004, 02:09 PM
Originally posted by gettingby
That's not crazy. Even though I was diagnosed at 14, I have a friend who wasn't diagnosed as type 1 until he was 32 years old.
To nab486, I was diagnosed at 14 with type 1 but the doc(family dr., no diabetes training), started me out on pills!!!!!!!!! Went for a full year eating almost nothing but lettuce and running out of control. It took going into DKA and almost kidney failure for him to realize I needed someone else. The first year was the worst year of my life but at least I'm ALIVE to talk about it.:)
Cin:) Hey Cin,

I'm :confused: ...Were you 13 or 14 when diagnosed? I didn't know you almost had renal failure! :eek: That's extremely scary, as one usually has to undergo a great deal of therapy (dialysis) or a kidney transplant, neither of which offer any guarantees. :(

smwest8680
12-02-2004, 06:55 PM
My blood sugar was 518 when I was dxd. Thank god my mom was a nurse and the doctor was her friend because I got to go home with my mom instead of to the hospital where the doctor wanted to send me!!

Maddogg
12-05-2004, 10:21 AM
Mine was over 60mmol/L, doctors were surprised i wasn't in a coma!! I had extremely high levels of ketones in my urine and i was always really really thirsty!

Rachey128
12-05-2004, 10:28 AM
:D Mine was like 500 wen I was dx'd :( I felt like ****

Clint
12-11-2004, 01:51 PM
I was 660 when I was dxd. I had lost 30lbs in 3 weeks, my calves would cramp at night and I would drink until I couldn't drink anymore. I would urinate almost twice an hour.. My wife had a glucometer as she is hypoglycemic and the meter said HI. The next day she forced me to the dr and the dr wanted me to go the hospital. I told her unless it was absolutely necessary I wasn't going. This was on a Friday (memorial day weekend) of 1999 and I saw my first endo the following wed.

After a few days on insulin, my close up vision went byby for a couple of weeks... that was the scariest part for me.

Littlebit63_99
12-11-2004, 02:01 PM
I don't know???????????????? It was 35 years ago........I was only 6 and I don't remember. I'm not even sure how they measured blood glucose then. We didn't have blood testers that's for sure. lol Isn't technology great!!!!!!

Littlebit63_99
12-11-2004, 02:56 PM
Ok, talked to mom, she remembered. right around 500.......I do remember this much. The whole family (6 of us) had pneumonia. My sister and I were the last to go in the hospital around the end of Nov.(they used to admit you for stuff like that back then) I had a severe reaction to the pennisillin that I was given. Back home in time for Christmas. By March I was back in the hospital. This time with the diabetes. Oh, and I also remember getting tutored that summer cuz I missed soooo much school.

zookeeper671
12-12-2004, 04:35 AM
My bsl at dx was 484. I passed out in an EMS class in front of my paramedic instructor (how convenient) and was told by one of the responding paramedics that I was "a diabetic." The ER Dr. confirmed it. Type 1 at the age of 32. http://www.planetsmilies.com/smilies/sad/2/sad50.gif