Do Type 1's Really Feel This Way?

[EeyoreButterfly]

Okay, I realize the thread the comment was made on was posted by a troll, but the comment really got to me.

The comment basically said that Type 2's are stealing all the research from Type 1's and need to go away so that research can focus on and cure Type 1. I also got the impression from the post (there was a comment that they don't uderstand why there even is a Type 2) that they believe that Type 2 is the fault of the person who has it. Do most people with Type 1 truly feel this way?

I don't know why it bothered me so much since I don't even really know what type I am (but am being treated like Type 2) but it did for some reason.

[hodgsonsurvivor]

I'm a T1 and I don't feel that way...

[howdysf]

Haven't we had this discussion numerous times in the thread about changing the name of one of the diseases?.. why bring it up again? we've had this discussion.

[mazea]

I'm a Type 1. I don't blame type 2's for having diabetes. My line of thinking is that diabetes can be reversed/ postponed for many years so unlike type 1's, type 2's can control when they actually get the diabetes.

My husband is 30 and a pre-diabetic (type 2.).My husband was obese and now having lost weight he has normal numbers again. He can't avoid type 2 forever but it is a fact that he can postpone it for a while maybe 20 years if he goes into a normal weight range and doesn't eat over 100g carbs in the one sitting(like we use to when we ordered and ate a whole pizza each 3 years ago when we were 28). High weight in his case did bring on the diabetes faster than it normally would. But I'sa love him and tell him he just has unlucky genetics and can do something to put the genes off for a while.

His parents are both type 2 and 50% of children of 2 parents with type 2 will get type 2 diabetes. Genes are going to eventually mean he will get the condition.

[EeyoreButterfly]

Howdy, I didn't think this was quite the same discussion as that. Sorry.

[Scrabblechick]

IMHO, whether we are T1, T2 or somewhere in between, we're all battling a condition that, if left untreated, takes no prisoners. Any support we can offer each other, regardless of which side of the fence we sit on, is valid and generally, most welcome.

[mazea]

Here is a question for type 2's. How best can a Type 1/ ordinary person support a type 2? Is there anything I can do to help/ not do in order to help my husband? I'm a bit worried I'm not doing the right things.

[EeyoreButterfly]

I haven't been at this long (not even sure I am Type 2) so you'll have to take this with a grain of salt. For me, I don't like it when my parents harp on me about what I am eating. I know what I need to do. I just prefer that they be there to listen when I need somebody to talk to.

From reading these boards it seems like in many ways the treatments are similar (low carb diets, some Type 2's are on insulin, etc.) so maybe modeling some of those behaviors for him might help? That way you are showing him how to help manage his diabetes, but are not harping on him.

[Psycho Penguin]

I have no problem with T2 diabetics and anyone who does is just being a stupid grump. We're all in this together.

[xMenace]

There's a mis-direction of concern here. All disease is bad and all disease needs to be cured. Period. That's like saying cancer victims or MS victims or MD victims or those infested by monkey warts should go away all so I can be cured.

[lorilei]

IMHO, whether we are T1, T2 or somewhere in between, we're all battling a condition that, if left untreated, takes no prisoners. Any support we can offer each other, regardless of which side of the fence we sit on, is valid and generally, most welcome.

amen!! EB, it is very sad that this sort of sentiment bubbles up from time to time, although i do understand from where you feelings come. It is most annoying that today's rehash has stemmed from a new, and now banned member, who pitched a fit rather quickly...sorry to be negative, but i come here for the positive...and benefit from the input of all rational people on this site...regardless of type/status... there, i have had my vent!!

[Jan B]

E-Butterfly,

Don't let that (insert your favorite nasty name) bother you. That's what he wanted to do. That person didn't help a soul.

Accept a hug & remember you have lots of decent friends here.

[hodgsonsurvivor]

E-Butterfly,

Don't let that (insert your favorite nasty name) bother you. That's what he wanted to do. That person didn't help a soul.

Accept a hug & remember you have lots of decent friends here.

Everything happened rather quickly, huh? I didn't have a problem with nopump... until things went sour. I hope he or she finds a place where they can vent peacefully where it won't be so ugly as it was here.

[matingara]

I think the whole Pre-D/Type 1/Type 1.5/Type 2 "classification" scheme is a huge crock.

it was invented by administrators to attempt to pigeon-hole people. administrators have been trying to sort/classify/pigeon-hole things since the dawn of man.

i refuse to let myself be classified. i told my Doctor this. he laughed at me and told me to "behave" (he was joking).

based on the standard "classifications" i do not fit into any of them.

therefore, job 1 for me is to keep my BGLs under control using any means that i deem satisfactory. when i make this decision i expect the doctors to accede to my requests or argue their case if they do not agree.

currently, i have chosen to use small amounts of exogenous insulin. if i had not chosen this course - i am fairly sure it would not have been recommended - and my BGLs and general health would have suffered.

That was mainly due to the fact that i was "classified" as Type 2. This classification is not applicable to me and far too generic to ever be of much use, IMHO.

-- Joel.

[owlyn]

I'm a T1 and it never occurred to me. Hmmmm..... Maybe..... Nahhh. But seriously, the only thing I have found is that I should not attempt to give advice to a T2 based on my T1 experience- so I don't. I pretty much ignore the T2 forum posts, unless they're about something general.

We are two peoples separated by a common disease. The English/American analogy holds, I think.

[Gary_W]

I don't feel that way.

I don't think the research folks do either; from a nuts and bolts point of view, the way T1 and T2 work have a lot of differences. It is the long-term effects that manifest themselves in a similar way. Research in the two areas will have SOME overlaps, but I'm guessing a lot of differences.

Whichever type the science folks get around to curing first will be good for us all. Both types are a huge drain on world health resourses. If a large number of us no longer needed to take those healthcare resourses then there is more to share around everyone else so everyone ends up getting better care. Talking from a social healthcare perspective here....

[ErikaA]

I think the whole Pre-D/Type 1/Type 1.5/Type 2 "classification" scheme is a huge crock.

based on the standard "classifications" i do not fit into any of them

I think they just pop you in the type 2 box as a 'we don't know what to do with you so it will have to do'. I wasn't allowed to see a diabetes educator until they typed me. Even though I don't fit the profile at all. So it says type two on my records, but they've since decided it's (very likely) early type 1.

Classic Type 2 is probably as unusual as classic Type 1 and all the rest are just mis-typed.

And I think it is perfectly natural to not want the public to misunderstand your situation. I just think that if you don't appreciate it when people make mistakes about your condition, you should be veeeeery careful to avoid encouraging those same mistakes/oopses about someone else's while trying to explain your own.

[Funnygrl]

I don't feel that way. I feel there are risk factors one can modify, but that it really comes down to genetics and luck in the end.

I'm also pretty sure more research focuses on curing type 1 than 2 also. At least that's what you hear more about.

[sprzepiora]

I don't feel that way either, and as for the research lets face there is way more T2's then T1's so that is were the money will go. It doesn't bother me at all, to be honest what bothers me the most is the misunderstanding of diabetes, especially T2's, I have to constantly defend myself, but this has paid off in the past.

Last week my bosses wife called and I happened to mention that we havn't seen any cookies in a while, she is a most excellent baker. She said that I couldn't have cookies because I am a diabetic, I promptly corrected her and she felt bad enough to bring in a fresh, WARM, batch of chocolate chip cookies. mmmmmmmm

Anyway, there will always be some ******* talking behind your back, don't sweat it, most people are nice.

[TenderVittleS]

I don't understand this thread at all, sorry.

[A_Darling]

Yes, I do feel that type 2's made/make choices in their lives that contribute to the onset/progression of their disease process.

No I don't think they're taking research away from type 1 (both types are extremely profitable for drug companies so it doesn't matter).

Yes, it bothers me that the "commercialization" of diabetes does not make a clear distinction between type 1 and type 2.

No, I don't think a type 2 has the same disease as I do.



ps - these are my opinions (for now), not trolling.

[pandeia]

Yes, I do feel that type 2's made/make choices in their lives that contribute to the onset/progression of their disease process.

No I don't think they're taking research away from type 1 (both types are extremely profitable for drug companies so it doesn't matter).

Yes, it bothers me that the "commercialization" of diabetes does not make a clear distinction between type 1 and type 2.

No, I don't think a type 2 has the same disease as I do.



ps - these are my opinions (for now), not trolling.

I feel the same. I'd just like to add for others on this post, I definitely don't hate on type 2's... I actually loved it when my sister got gestational and loved it when I went to family bbq's with aunties and uncles who are type 2s because I didn't feel like such a loner with the disease... it may be a bit selfish of me to feel that way, but I can't help it. It's nice to have someone going through similar life obstacles, yes? ...imo :o

[matingara]

I think they just pop you in the type 2 box as a 'we don't know what to do with you so it will have to do'. I wasn't allowed to see a diabetes educator until they typed me. Even though I don't fit the profile at all. So it says type two on my records, but they've since decided it's (very likely) early type 1.

Actually the Doc popped me into the box NIDDM last year. Since i asked him to prescribe insulin he has changed me to IDDM.

I argued that i am not actually IDDM. He asked me to elucidate.

I said, "I am an Insulin augmented DM". he smiled at that.

then he said the actual term is "insulin requiring DM (IRDM)". i am sorta OK with that.

he has never used the terms Type 1 and Type 2. He had never heard the terms Type 1.5 or Pre-diabetes. (This may be an australian thing). He does not care about these labels. it does not provide any value in his estimation.

:)

-- Joel.

[Caravaggio]

Okay, I realize the thread the comment was made on was posted by a troll, but the comment really got to me.

The comment basically said that Type 2's are stealing all the research from Type 1's and need to go away so that research can focus on and cure Type 1. I also got the impression from the post (there was a comment that they don't uderstand why there even is a Type 2) that they believe that Type 2 is the fault of the person who has it. Do most people with Type 1 truly feel this way?

I don't know why it bothered me so much since I don't even really know what type I am (but am being treated like Type 2) but it did for some reason.


What is it that you hope to achieve?

As you said, your question was prompted by the previous controversial post. Are you then looking for a "No we don't feel this way" response to feel better? If a number of T-1s say "Yes we feel this way", what then?

It seems to me that it is not what T-1s think that bothers you, but rather the stereotyping of a T-2 diabetic and the connotation of T-2 diabetes. As you said, you don't know what type you are and yet you are lumped together with T-2. The previous post obviously raised these negative emotions that for whatever reason you are not openly dealing with. Regardless of T-2s who do not fall within the stereotype, the negative connotation of T-2 is there. For example, one of the first and most common statements I read (and still read) in various literature on T-2 diabetes is "It's not your fault."

It's not about what T-1s or what other people think, it's your view of diabetes, and most importantly of YOU, that you need to work on.

[mazea]

we haven't seen any cookies in a while, she is a most excellent baker.
mm cookies.

back to the topic. I was thinking, which is usually a pretty earth shattering thing. :T And I think diabetes is just as critical for both type 1 and type 2. Type 1 have the real stress of dying from taking too much insulin every time they inject. Type 2 have to deal with insulin resistance and there have been stories on here about insulin resistance( novorapid not working ect) that have really scared me. While the two vary, there are things individually about people that vary too like whether a person can eat carrots without their carbs going up.

[nicole]

I can honestly say I don't feel like that at all..

I know that I hope one day soon there will be a cure for all diabetes, not just type 1, because I'm sure type 2's have just as many problems as we do.

I see diabetes as diabetes.

[xMenace]

It's not about what T-1s or what other people think, it's your view of diabetes, and most importantly of YOU, that you need to work on.

Very poignant. I think coming to terms with your disease and yourself is critical to controlling your affliction, no matter what disease you are fighting.

[matingara]

Very poignant. I think coming to terms with your disease and yourself is critical to controlling your affliction, no matter what disease you are fighting.

also very poignant. it might have to do with structure. i think structure is a prosthesis for maturity in any cycle of development. when the subject reaches a certain stage the prosthesis of structure is less necessary.

:)

-- joel.

[Tattoo azz]

I HAVE MONKEY WART DISEASE!!
I also have t1 and have no probs with t2's. I do wish there was a touch more research into t1 tho, but that's no fault of t2's.

[davef]

I have good friends on the forums and I would have to stop and think to remember are they T1/T2, all I know is they have diabetes. I'm always happy to see a T1 posting to a T2 (and vice-versa) question. We are all in this together.

[Subby]

Okay, I realize the thread the comment was made on was posted by a troll, but the comment really got to me.

The comment basically said that Type 2's are stealing all the research from Type 1's and need to go away so that research can focus on and cure Type 1. I also got the impression from the post (there was a comment that they don't uderstand why there even is a Type 2) that they believe that Type 2 is the fault of the person who has it. Do most people with Type 1 truly feel this way?


No.

I'm trying to understand why you would suspect or wonder that most type 1s feel this way.

"Type 2s steal the research": I've never seen or heard of another statement to that effect. Ever. Have you?

"Type 2 bring it on themselves": seen about 4 or 5 posts blatantly saying that over the past few months. Seen a handful that give perhaps more emphasis to the common perception (whether true or false) shared by the mainstream medical community that bad lifestyles and bad diets may bring on or accelerate type 2 diabetes, than might be completely diplomatic (ie, without mentioning genetic disposition, etc).

Now, does this for a moment seem like most people with type 1?

No.

The thing that worries me is that if you don't already realise that most type 1s are reasonable, rational human beings already, well, in the way they are just "people" like everybody else, you sure aren't going to be convinced by a few type 1s protesting that they are. As mentioned above, perhaps you need to look into your own perceptions of "type 1 camp" or "type 2 camp" or "non type camp" or camp whatever. I think your idea that "all type ones think this or that" or that such camps exist, beyond wild conspiracy theories, is something you really need to question.

[CountYourselfIn]

I always wondered what T1's thought about T2's :P

It does sorta seem like Diabetes Lite sometimes... most people can get by eating fewer carbs and popping a couple pills, without the surety that one day they'll be shooting up or using a pump.

Probably even more frustrating for someone with no pancreatic function, is seeing someone w/ T2 turn it around, get off the shots/pills/diet and go on leading a "normal" life.

I'm being treated as T2... as in they've giving me metformin... but I really don't know if it's working or doing anything, as I'm also taking huge amounts of insulin cuz either my body's not making it, or it's not using it... and no one knows yet for certain. (should have another option for that branding that goes next to your name.. "unsure")

Does anyone actually know what kind of R&D is being done for T1/T2?

I hear about things from time to time about how they're attempting to cure T1, and it just blows my mind.... and for T2, it's all home-brew type cures... drink this tea, exercise more.

I even heard about one thing where they're testing injecting (insert science word) type cells into a T1's pancreas to stimulate insulin production... and this would only need be done once every 10 years, like a recharge.

As far as T2 goes, I hear they're spending millions on researching the benefits of eating right and going for a walk. (just kidding... :P)

[Lindz8199]

"I'm a T1 and it never occurred to me. Hmmmm..... Maybe..... Nahhh. But seriously, the only thing I have found is that I should not attempt to give advice to a T2 based on my T1 experience- so I don't. I pretty much ignore the T2 forum posts, unless they're about something general."


I agree with this sentiment completely. Often-times I think the non-diabetic views the two types as virtually the same. I've been told that had I watched my sugar intake as a child maybe I wouldn't have developed diabetes. uh..no...it's an autoimmune disease. But, arguing that the two are completely different does no good for anyone. I don't try to give advice to T2s: I just try to offer support when I can. This disease sucks no matter what type you are...

[sable_032592]

well, i'm a type 1 and i don't think like that... while it's true that type 2s seem to get all the attention with the studies and trials, anything they come up wth for type 2s will help the type 1s, in some sense...

my dad's a type 2, as is my grandmother, so i can't say much about anything wrong there... but i will say this, though being type 1 is annoying, life-threatening and down right a hassle, we might have it easier than the type 2s... let me explain...

as a t1, if our bs goes up, we take an extra bolus and that's that... however, if a t2's bs goes up, they have to wait for it to come down... i'm speaking in general terms here, there are some t2s that take insulin as well... just a thought...