Second Opinion

[Type I Tester]

Blood test confirms the following.

Gad 65 autoantibody count : negative

C-Peptide reaction: normal indicating insulin production

Triglycerides high

A1C 10.2

So the doctor kindly explained

I started out insulin resistant

Progressed to type 2

became type 1 after prolonged period of time that I wasn't treated for type 2

Exhibit type 2 symptoms being type 1 as well.

However,

My pancreas is 100% healthy and creating a normal insulin production

Which is awkward considering type 1's are characteristic of:

Gad 65 autoantibodies

No C-peptide reaction or insufficient reaction

Damaged inoperative pancreas


The doctor kindly explained that my pancreas worked too hard and kind of shut itself down

and in the beginning I had no residual insulin production when I was first diagnosed with Type I

But now my pancreas is restarting he says which is an odd occurence.

what is your opinion?

Type I need insulin

with type II traits need pill *taking actose*

[BlueSky]

In my opinion, you need a new doctor :o . There is no evidence that you have T1 (your are GAD negatrive). T2s only get T1 as well if they become GAD positive. And a "normal" c-peptide doesn't mean that your pancreas is ok. It is producing a "normal" amount of insulin, but it can't cope with your high blood sugars because if the insulin resistance. And there has most likely been a lot of beta cell loss. So you are a T2, and it sounds like it has progressed to the point where you need to inject insulin (HBA1c of 10.2%).

[jps]

I'm not type 1, but it sounds like you do need a new doctor. How can he make the definitive diagnosis of type 1 when your GAD is negative?

Sounds like you were T2 all along and the insulin resistance increased alot.

Is this doc a GP or Endo?

[Subby]

I second that you need a real, medical second opinion. The assessment as you put it seems to be more concerned with covering his own (mis) diagnosis of type 1 than with getting to the heart of the matter. You just can't trust someone at all who won't admit they may have been mistaken. Puts all of their judgment in question.

BTW this certainly explains why you could fast with a very different result than if you were actually type 1. It highlights the dangers: what if it was reversed, he'd diagnosed type 2 and you were actually type 1? Your fasting could have led to tragedy.

I'd say the best way would be to book in to a well regarded endocrinologist ASAP.

[ant hill]

Yes get a second opinion and again you will do the tests again and do this as soon a possible!!! Don't delay!! :)

[Type I Tester]

I second that you need a real, medical second opinion. The assessment as you put it seems to be more concerned with covering his own (mis) diagnosis of type 1 than with getting to the heart of the matter. You just can't trust someone at all who won't admit they may have been mistaken. Puts all of their judgment in question.

BTW this certainly explains why you could fast with a very different result than if you were actually type 1. It highlights the dangers: what if it was reversed, he'd diagnosed type 2 and you were actually type 1? Your fasting could have led to tragedy.

I'd say the best way would be to book in to a well regarded endocrinologist ASAP.

I am going to be in touch with an endo in dallas tx here soon. This guy is supposed to be one of the foremost endocrinologists in the nation, ranked 12th in the nation I believe, I am going to be setting up an appointment with him and see if his diagnosis is different than this guys...cuz this is just pathetic.

My endo right now is redoing the tests to make sure what my body is doing is correct he is a confused guy right now.

If it turns out that I am type 2 I am going to be relieved yet at the very same time very pissed off.

That means that I have been treating myself wrongly for two years and that could have adversely affected my health.

I heard that taking too much insulin when its not needed can lead to pancreatic failure. Much like a non diabetic patient taking insulin because of a misdiagnosis and inadvertently becomes diabetic.

If my condition got worse because of this....OOOOooo boy someone is going to have their *** handed to them in medical malpractice court.

[Type I Tester]

Of course the diagnosis of type II *if it truly is type II* would explain why I have become progessively more insulin resistant and had to take more and more insulin over the years.

[Harold]

Have to agree with Blue Sky there is nothing in your first post that indicates type 1. The doctor may be right that your pancreas slowed or stopped insulin production. They do that sometimes when over stressed.

Your doctors explanation though leaves a lot to be desired. First insulin resistant is type 2, and not treating it just leads to more insulin resistance, not type 1. There are a small percentage of people that seem to developed antibodies after having produced very high levels of insulin for a long time. However you do not have any so it's unlikely if not impossible that you ever had type 1.

[genie86333]

Have to agree that you aren't type 1 if those test results are correct...possibly your pancreas is making less insulin than it should, but that doesn't mean you're type 1, just that you need supplemental insulin!

[DeusXM]

Sounds to me that your doctor has made a mistake that's common to people who don't understand diabetes, which is to assume that if you need to inject insulin, you are a T1.

It sounds to me, from what you've posted here and before, that you're extremely insulin resistant i.e. T2 and that so far you haven't been given the right medication to deal with this. Insulin can sorta help but it sounds to me like you'd need a combination of insulin AND oral hypolgycaemics in order to get back under control. A T2 taking insulin is still a T2. Definitely go see another endo to get a second opinion, and I hope they find a treatment mechanism that works for you.

[Funnygrl]

Those results are classic type 2 results. Not all type 1s are GAD positive, but 60-80% are. Being GAD negative combined with insulin resistance, high triglycerides, actos helping, and your other posts (regarding your fasting results and such) make it OBVIOUS that you have type 2 diabetes. There are many members on this board where it's confusing what kind of diabetes they have. For you, it's not. It couldn't be clearer.

Some type 2s do "wear out" their pancreas from insulin resistance. They are insulin dependent type 2s. It does not change what type they have.

[drummingfool]

If youre looking for a really good endo in the area, brian robinson at trinity mother frances in tyler is awesome. they gave me all kinds of discounts when i told them i didnt have insurance. i got 2 vials of lantus, a checkup, a1c and bmp done all for less than 100 bucks. hes really good. just a suggestion. :)