Eri

[Eri's mom]

Hi again...

Well...I had to pick up Eri from school again yesteray...the chest pains and ANOTHER reading of "HI"...those are getting continuous...
Talked to the nutritionist at Children's...they originally set up a Feb. 3 appt...then called back to say March 3...I was like, ummm...no, that will make it 5 months since her last visit and we're having a LOT of problems....she won't go anywhere near normal...all hypers.....and we're watching her like a hawk...reminded them that she was seen in their ER last week for the gastritis and chest pains, and they asked me why she wasn't admitted. I have no clue why she wasn't, considering they got her whole history. Anyhow, they called my husband while I was picking up Eri and said they'd see us Feb. 8. A LOT better, although she may be headed for Children's today if this sugar doesn't drop...last time tested, no ketones...BUT, she had 3 or 4 readings yesterday that were "HI"...and I know it is related to stress, growing, and probably battling something due to such a drasctic climate change.

OK, I'll shut up...just had to let that out to you all that can at least relate and understand. I appreciate it!!!

[Belinda]

IMO I am guessing alot has to do with puberty kicking in. This is where I had lots of problems. Good luck to you and Eri.

[KrisinNM]

I am thinking Belinda is right.
And I haven't told you "Welcome back!" :)

[HeatherP]

Poor Eri, **big hug**



Heather

[Clint]

my friends daughter is going through something very similar... her sugars are all over the place... it will eventually all work out... and Feb 8th is right around the corner...

[am1977]

Oh, Robin,

You and Eri so deserve a break from dealing w/ these health issues. It's got to be rough on you all! I wish there was something I could do to help you and wish that there were words that would help things improve. All I can say is to hang in there. I know it's difficult, but I think most of us understand what you are going through. Please know that you can vent anytime~ We are here for you. Hey, even if Eri wants to email me or PM me, I'd love to talk to her.

I'm glad that you were able to get that appt. in Feb. I'm surprised, sometimes, how doctors underestimate the seriousness of these things ( or maybe it's the office staff really). For someone who's been running high so long, I think it so important that she get seen as soon as possible. I know there's not much you can do about it, but I'm glad you fought for that appointment. I would recommend Eri and yourself make a list of your questions and concerns and bring it to the doctor. Speaking personally, sometimes I will have questions and by the time my appt. comes up, I've forgotten them or sometimes if I'll mean to bring something up and I become distracted by other things going on. I'd really stress to the doctor that you aren't happy the way things are going and really want and need to see some positive changes. I know she's getting the pump, but these issues could still occur with the pump. Hopefully, things will greatly improve, but if they don't it's good to get answers to your questions.

Like I said, Hang in there Robin. Diabetes is a very big burden for a young child to bear, but she sounds like she is tough and will get through it.

Take care ;)

[gettingby]

Oh Robin. ((((hugs)))) to Eri and to you. I can only imagine how hard this is for both of you. If you or Eri need to vent, I'm here. :) Hang in there.

[Eri's mom]

Thanks all :)

I can't wait until February 8...although I feel as though they are just going to tell me what a horrible job I am doing with her.
I believe I mentioned she stayed home today...chest pains again...woke up w/ a reading in the high 200's...took her shots, ate a breakfast lower than her carb allowance...slept for 4 hours and woke up at 330. It's like COME ON!!!
All night she's been complaining of her stomach and chest. I feel so bad for her...I'm trying, her dad is trying, she's trying...it's just...UGH...I know the stress of this whole situation is not helping at all either. Puberty, stress and probably fighting something off(good ol' change of weather from Florida to Buffalo)...
We'll see if she is feeling better tomorrow...if not, I'm just going to DEFINITELY take her into the ER again...see if something can be done.

Sorry I'm being such a sporadic poster...I've been working quite a bit, doing a LOT of errands, taking care of Eri and my other two kids and my husband and the animals...it's been quite ... interesting...lol.

I'll keep up and all...just finding some kind of bearing :)

[Clint]

I know how she feels... there was a time this past summer that I went through something very similar... I couldn't keep my bs down at all... I felt like **** all the time, couldn't sleep which made everything worse... eventually it will sort out... I saw that she will get a pump soon? if thats the case, that should at least help some...

remember that you don't have to go through this alone, we are all hear to lend an ear or a 'virtual' shoulder.... to be honest, if it wasn't for this forum, I would have fallen apart long ago as there is no one here local to me that knows what I go through... hang in there! :thumbsup:

[am1977]

Robin, please don't say that you are doing a horrible job or even thinkt that. You are doing everything you can for that little girl and I think she is very lucky to have a mother who is so caring and concerned. Many aren't that lucky. :o

I'm sure the stress and fatigue of the holidays, the move, and everything else hasn't helped matters. I doubt I would be able to cope as well as you are with everything. You are doing a great job, and I think you need to hear that :thumbsup: .

Those highs are rough (i know :( ). When I get up into those high numbers, which happens at times, I also feel like pure ****. It really is exhausting just to function during the day. But try to think of it this way, once she is seen and is taken care of she will experience much, MUCH fewer of these kind of days. I think it's wise to bring Eri back to the ER if she is feeling the same way tomorrow. It's apparent that she is not feeling well and needs to be treated. Or maybe even consider bringing her to her new endo. I know she doesn't have an appt. , but if they are a good doctor's office they'll make sure she gets seen. I actually did this once myself. I didn't have an apt., but I drove myself to my Endo's and met with him. It was a brief visit, but I felt a lot better just talking with him for a while. If they won't see you, I probably then would go to the ER.

I really feel for both you and Eri. I know it seems stressful right now, but I am hopeful that things will improve. And, Robin, please don't worry about posting sporadically, we understand that you have a lot going on. You don't have to apologize for that at all! One more thing...you are so busy with everything and everyone, but don't forget to take care of yourself. Be kind to yourself and give yourself a break too.

I hope things get sorted out tomorrow and hope Eri feels better. Things will look up! We'll be thinking about you both. Please update us on how things go, when you can.

Take care.

[Maria]

Robin! :)
Every mother tries to do everything for her kids. And you are doing it. You are doing it WELL :thumbsup: Try to calm down. Your composure and confidence will help Eri. High blood sugar happens very often in puberty. And I hope your endo will help your daughter.

[Eri's mom]

Thank you so much all :) Those words are very encouraging :)

We're going to take her in now...she has ketones, her sugar is 565...UGH....but, time for her to go in. She did stay home from school again today...her stomach acts up, and her sugar started at 275 this a.m.....and just climbs.

I'll keep you all updated on what they do.

Thanks ....(she's driving me crazy...in the hyper phase...where she becomes compulsive...AHHHH!!!LOL)

[Eri's mom]

Well, we just now got home from the hospital.
They were going to admit her...her sugar was 575 and she had ketones...but not DKA. They took a LOT of blood(finally)...but it blew out her vein(she has little veins like me)...and she had a reaction to the Potassium chloride drip(headache and nausea)...they took her bg...b/f the potassium chloride, and it went down to 383...they gave her insulin and more saline, checked her a while later and she was 385. She still has traces of ketones...so we have to call tomorrow morning at 8 a.m. to the endo's. Praying those ketones go away so not another day in the hospital...she actually broke down when they first mentioned her being admitted(don't know why they changed her mind)...
Anyhow, they upped her insulin(we did that already ourselves)....and now the new endo, CDE and dietician shall begin :)
I've got to get some sleep...my head is POUNDING...actually, haven't eaten, that's probably it...
Night all :)

[Dewey]

OMG, Robin! Please know that you and Eri are in our thoughts and prayers. It's Awful that she's having to endure all this pain and hardship. :( I sure hope that she can get on the pump soon. I truly believe it will do a World of good for her and you. 575 is awful! :( Please know that we're thinking of you both, and we'll send good vibes your way!

(((((((Many Hugs!!!)))))))
Dew

[nantomsuethom]

(((((Robin & Eri)))))

Robin I know you are doing everything you can for Eri (and everyone else). When you give it your all and see no results it is awful and you want to give up. We talked about this in church last night. Pray for strength (I am sure you are). The next week and a half is going to be a challenge (just the waiting part!)

You are in my prayers.

[Eri's mom]

Thank you so much all....and Nancy, thank you for the prayers...VERY much appreciated :)

575 is high...but for her, that is considered "average" as of late. She has "HI" readings at LEAST twice a day, if not more...since we moved...I know, stress...and I just pray everything gets under control....
Amazingly...she was 78 this morning!!! They really flushed out her system...BUT, she still had a trace of ketones in her urine...weird or can that happen normally? (well, I guess it can since ppl I know on the Atkins diet get ketones and aren't diabetic)...ok, sorry, sorta answered my own little question there...me and my "talks" with myself...oh am I weird or what???!!!?

I can't wait until February 8...an ALL day time w/ dieticians, CDE and endocrinologist!!! YEA!!! And then...finding out when we put this pump to use...it was like she was giving up on it w/ not using it and having it, but I'm bringing that w/ us when we go!!!
Only 12 more days!!!