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Bountyman
10-23-2009, 10:39 PM
Diagnosed with type 1 diabetes 3 months ago. Been searching the web for information about it every day. Here's my story/intro...

For the months of April, May and June my strength had been waning. I thought maybe drinking 3 gallons of whiskey a month was finally getting to me; nope, wasn't that. I thought maybe my diet was a little too much on the pleasing side and started eating healthier; nope, wasn't that. Then it came to the point that everything started tasting funny; milk tasted like pancake batter; water tasted like it had copper or iron it; nothing tasted the same...or even worth eating. A few things I tried to eat came back up when they felt like it. No nausea or anything...more like a fart when you squat sometimes. I had a waste paper basket handy at all times.

The two weeks before the 4th of July I was down to a diet of ice-cold green grapes and Michelob Ultra long necks. I'd eat a hand full of grapes, drink a beer then lay down and sleep for 90 minutes; wake up and take a leak...then start all over again. Never sick a day in my life! Never been to the hospital other than to get gravel dug out of me from mototrcycle accidents - and the last time for the wreck that retired me from riding. Yeah, I know, "Why didn't you go to the hospital, dude?" My only defense...I thought it would pass. My body's pretty good about healing itself. I was waiting for it to turn the corner...it didn't.

On the afternoon of Independence Day I barely got up from bed and decided to grab the phone instead of a beer and called 911. They trucked me to the ER and the pit crew there set about plugging all kinds of hoses that drained me from one side and filled me from the other. After 5 hours in the ER they'd had enough of me and wheeled me to the Maximum Care unit. Upon which they started sticking leads to me and hooking me to a machine that gave all my vital signs...that they rarely came and looked at.

They hung a bag of saline solution; a bag of potassium; hooked me up to oxygen and an insulin drip; brought me a cup of ice cubes, "....and then merrily skipped off down the corridor. From then on it was the Vampire Team at me 24/7,. stabbing my fingers on the hour taking a blood glucose count and poking for a vein every 3 hours. "You're gonna feel a little pinch here now...", then they'd say, "My! You're veins are flat, sorry I have to try this so many times!" One guy was taking my blood and I told him not to stand so close to the window or he'd burst into flames! He didn't find that funny at all and I think he took a quart too much just to screw with me. That Monday was also chest x-ray day; abdominal ultrasound and heart ultra sound. The tech asked me if that huge bump in the middle of my abdomen was a hernia. I asked him if he'd seen the movie "Alien"...he hadn't, and didn't appreciate me dodging the question. So serious these guys!

By that Tuesday they'd had enough of my sordid humor and wheeled my upstairs to Unit 1, a bustling community of bed-ridden old people in the throws of dying. Life monitors constantly going off in beeps of code. Constantly, day and night, "beep-beep-boop" "beep-boop-beep" "boop-de-boop-de-boop"! I asked one of the nurses what the codes meant, the curious person I am, and she said the machines were a bad batch and they all did that; 99% of the time nothing was wrong...they'd just reset the meter.

Then the food game started. They'd bring me a meal, I'd eat it all, they'd come back two hours later test my blood glucose (which was like still 400+) then give me an insulin shot, then come back two hours later and check my blood glucose again. This went on for two more days. Then a doctor came in early that Thursday morning with the results of all the tests. First off she said I no longer produced insulin and will have to inject it from now on...and then two big gay nurses promptly dressed me and tossed me out. I was diagnosed with:

Diabetic Ketoacidosis
New-onset Diabetes
Hypertension
Hyperlipidemia

Since leaving the hospital on July 9th I've changed from syringes and the vial to the Lantus® SoloSTAR (nice little device, with BD 5mm 31G needles), titrated up from 15 units to 20, to 22, and leveled off at 25 units at bedtime. My FBG in the morning is usually between 95 and 115, depending (I think) on how my Breeze2 meter is feeling* that morning. With breakfast I take a Centrum Silver vitamin, Lipitor 20MG, Lisinopril 10MG, and an aspirin (81 MG EC, yellow with a little heart on it). I have an appointment the 29th of this month with a nutritionist (wonder what they wanted me to eat for the last 4 months) to teach me about diabetic nutrition.

*I'm on my third Bayer BG meter. I told my caregiver the Contour meter the pharmacy gave me was too "fumbly" with the test strips and all and he changed me to the Breeze2. Nice, with the 10-disc cartridge, but erratic in tests, in my opinion. In fact I tested one morning two hours after breakfast and it came back 182 mg/dL. No way was I 182 mg/dL so I pricked the next finger and tested it. 136 mg/dL; next finger, 168 mg/dL; next finger, 157 mg/dL. I did all 10 fingers and got a different reading on each finger. Got another Breeze2 test meter. I got my suspicions this "test meter" thing ain't all that accurate - no matter who makes it.

So, that's my story --- and I'm stickin' to it!

cheeps
10-23-2009, 10:51 PM
Good thing we were in different hospitals....you have my kind of humor and I don't think those peeps coulda stood two of us. Gotta love the blood suckers club.

soso
10-23-2009, 10:53 PM
Welcome to both of you.. you will find we welcome humour around here....

Meters only have to be + or - 20% of accurate and they seem to manage that...
How are you finding the food side of things?

Bountyman
10-23-2009, 10:57 PM
You know...I respect all these "medical" people and all, but none of 'em have a sense of humor. You'd think THEY were the one with the problem, not me. And I'm a funny sum*****, really!

Granny Shanny
10-23-2009, 11:08 PM
Welcome to you both, Sara & Bountyman. Hope you'll enjoy our forum . . . it's gets a little rowdy sometimes, but sounds to me like you'll fit right in!

Bountyman
10-23-2009, 11:11 PM
Thank you for the welcome. Glad you welcome humour around here...but it's gonna be humor, without the extra "u" so I may have to 'splain it?

"Meters only have to be + or - 20% of accurate and they seem to manage that..."

Really? Then maybe they oughta give me a 20% break on the cost of the freakin' test strips and lancetes. Yeah, like that's gonna happen.

How am I finding the food side of things. I'm winging it! I have an appointment with the "dietician" on the 29th of this month. That was scheduled by my PA. 4 months after they told me I had diabetes and released me from the hospital. Well, they did give me this paper that went on about carbohydrates and portions and when to eat and excercise, blah, blah, blah...but I understand string theory better than I do that paper. This dietician better remove the mystery from this food thing or I'm just gonna eat whatever I want and put 911 on the speed dial!!

Bountyman
10-23-2009, 11:16 PM
Thanks for the welcome, Granny, rowdy I can deal with. I run a motorcycle forum on Delphi Forums and it gets a little dicey in there sometimes.

Harley-Davidson Forum (http://forums.delphiforums.com/aboutharleys/start)

owlyn
10-24-2009, 07:50 AM
Bountyman,

If you are a Type 1, you should be on another insulin in addition to the Lantus. Lantus is a long-acting insulin that is really just a "background" kind of thing. You also need a fast-acting insulin (like Humalog or Novorapid) to use with meals or other times your BG is high.

cheeps
10-24-2009, 08:41 AM
The food thing is weird for me too....I bought a cabbage!!!

BUT...I will never ever buy some Kale...oh, hellll no. ~Barf~

kgm0612
10-26-2009, 10:36 AM
WELCOME to the forum!

Let me be the first to say............In my opinion, you're going to learn a heck of alot more from members on this forum about carbohydrates & meal plans than from any nutritionist. Mark my words.......he/she is going to push a high carbohydrate meal plan on you and your readings are going to continue to run high!

Do yourself a favor.........test often, limit your carboydrate intake by staying away or limiting the amount of white products you consume, such as potatoes, rice, pasta & breads, and if you're able to and not already doing so, get in some form of exercise.

Karen

genie86333
10-26-2009, 08:43 PM
Karen gave some great info above. I just wanted to add: how far you have to cut back carbs depends on your meter - you want a reading of 140 or less after a meal (of course, as you've seen, meters aren't super exact, so don't rule a meal out after one try if you get a 150...)

Soon you'll have a great handle on it!

Sorry to hear you're no longer able to ride your motorcycle - I'm thinking about selling mine, even though I hate the idea, because of a non-diabetes-related health issue. But I'm gonna have to do it soon...longer it sits the more things go wrong- just got blown over in a windstorm & broke a mirror off. :( Already had the shift pedal broken during the move to CA... if I wait too long there won't be anything left of the poor bike to sell.

Bountyman
10-26-2009, 09:37 PM
Bountyman,

If you are a Type 1, you should be on another insulin in addition to the Lantus. Lantus is a long-acting insulin that is really just a "background" kind of thing. You also need a fast-acting insulin (like Humalog or Novorapid) to use with meals or other times your BG is high.

Tell you what, here's a chart from last month with a 5-day reading. A FBG, breakfast, 2 hours after breakfast, lunch, 2 hours after lunch, then my injection time in the evening. You tell me if you think you see any figures that would stand out as HIGH. I been bringin' a month's worth of these printouts to my PA guy since the second week in July. He seems to think I've got a handle on this.

Date Time Bg Insulin

9/10 7:45am 118
b'fast 10:15am
9/10 12:15pm 115
lunch 1:30pm
9/10 3:30pm 121
9/10 7:00pm 25u

9/11 9:00am 106
b'fast 11:00am
9/11 1:00pm 113
lunch 2:00pm
9/11 4:00pm 130
9/11 7:00pm 25u

9/12 8:00am 98
b'fast 10:20am
9/12 12:20pm 115
lunch 2:00pm
9/12 4:00pm 114
9/12 7:00pm 25u

9/13 8:00am 104
b'fast 10:00am
9/13 12:00pm 120
lunch 1:00pm
9/13 3:00pm 131
9/13 7:00pm 25u

9/14 8:45am 102
b'fast 10:30am
9/14 12:30pm 107
lunch 1:00pm
9/14 3:00pm 118
9/14 7:00PM 25U

Bountyman
10-26-2009, 09:51 PM
"The food thing is weird for me too....I bought a cabbage!!!"

One thing I forgot to mention to owlyn was that when I got out of the hospital they scheduled a Diabetic Nutrition class for me. Part of the Medicare process, I assume. Anyway...this was on July 8th and they couldn't fit me in until October the 29th, this coming Thursday. So, I've literally been eating whatever I thought might be good for me for the last 4 months. Not a "diabetic's diet", but no sugar, low carbohydrates, fresh fruits, lotsa vegetables, no alcohol, smaller portions and more excercise. I've lost 18 lbs in the last 3 months and, well, you see the figures in my previous post. I imagine once the diatitian schools me on what I should be buying and eating, things should be more in line.

justongarl
10-26-2009, 10:32 PM
Blood and needles are the worst part of diabetes. I am very afraid of poking myself once a day for the rest of my life. I hope I never ahve to get an insulin shot once a day. I have trouble getting blood from my fingers to. It is so terrible.

Bountyman
10-26-2009, 11:39 PM
Blood and needles are the worst part of diabetes. I am very afraid of poking myself once a day for the rest of my life. I hope I never have to get an insulin shot once a day. I have trouble getting blood from my fingers too. It is so terrible.

Some lancet devices are a lot friendlier than others. Look into the Accu-Chek Multiclik, it has a thinner needle and is more adjustable for depth. I use a Bayer Microlet2 and it's not much better than stabbing myself with an ice pick! As to sticking yourself once a day and an insulin shot once a day; some people test 4,6,8 times a day taking one or two insulin shots as a background and 3 or 4 shots along with meals. Now that's a lotta "stickin'"!

Chef Barrae
10-26-2009, 11:55 PM
Welcome Bountyman and Cheeps. I haven't been a member here all that long but I can say the folks here are nice. There are never ending opinions on low-carbing vs. ADA (American Diabetes Association) food exchanges and meal plans. But, what it all boils down to is this, you have to do what works for you. Every diabetic is different and metabolizes food differently. So, find what works for you, stick with it, and as soon as you think you have it all figured out your body will tell you otherwise and you'll have to start all over again! My sense of humor here...

So, Harley's, huh? Ahhh, me thinks me's in love! I am a biker chic from long ago...very long ago. I road with Jack and Jose.

I post diabetic recipes here often and have a blog you can visit if you like where I post even more. I have an article on the ADA meal plan and food exchanges and how all that stuff works. Check it out if you like.

You will learn lot's from the people here, for sure. Your numbers look good to me, by the way, and I would kill right now for numbers like those. I lost my health insurance and along with it any meds so I am white lining it right now. It's not as much fun as it used to be in traffic.

Good luck to you both.

Bountyman
10-27-2009, 12:43 AM
"So, Harley's, huh? Ahhh, me thinks me's in love! I am a biker chic from long ago...very long ago."

Hey! Once a biker chick always a biker chick! It's like not havin' sex for a long time, once you get back on...it all comes back!

"I road with Jack and Jose."

So, where's it legal to ride three on a Harley? :)

"I lost my health insurance and along with it any meds so I am white lining it right now."

Dang! That sucks! Have you looked into Medicaid (http://www.cms.hhs.gov/MedicaidEligibility/)?

Thank you for the welcome.

Chef Barrae
10-27-2009, 12:48 AM
"So, Harley's, huh? Ahhh, me thinks me's in love! I am a biker chic from long ago...very long ago."

Hey! Once a biker chick always a biker chick! It's like not havin' sex for a long time, once you get back on...it all comes back!

"I road with Jack and Jose."

So, where's it legal to ride three on a Harley? :)

"I lost my health insurance and along with it any meds so I am white lining it right now."

Dang! That sucks! Have you looked into Medicaid (http://www.cms.hhs.gov/MedicaidEligibility/)?

Thank you for the welcome.

Haha. Daniels and Cuervo. But, you knew that. ;)