View Full Version : Dont flame me on this, but I've expiremented and heres the results
Designer
08-11-2005, 11:49 AM
Like I said DONT flame me, or tell me what I should or shouldnt do.
I'm posting my PERSONAL results from wghat started out as a complete accident.
Started a new job, and to make an impression stayed late, worked extremly hard, etc etc
Now I'm suppossed to inject before every meal, And because I was working hard & long hours I never ate when I should have done…consequently, I started to NOT inject. NOT on porpuse you understand
Oh I’m on humalog (32) during the day and Humilin (50) at night. (UK figures)
However I always inject at nite.
NOW here’s the point.
BEFORE when I was regularly injecting, I felt tired, couldn’t sleep properly, pains in my legs were getting worse, and I had NO energy. Oh & I looked ****.
Now I’m into my job of 4 months and have NOT injected (properly) for the last 7/8/ weeks, and I feel FINE!!!
I have lots of energy, go to sleep straight away, feel fine, (someone said the other day I looked younger???)
Oh and the pain in my legs, which I’ve always had since being diabetic, well I hardly notice it.
And I'm no longer as thristy as I used to be.
I feel Good & I look Good
AND I have loads of energy
But here’s the problem….My blood sugars are obliviously HIGH
I normally run at 7/8 now I’m running at 13/18 (UK figures people)
Back in 2000 I lived in Goa for 2 years, and I know people are not going to believe this BUT I did the same in Goa….BUT I didn’t work hard, just lazed around and ate and drunk.
I kept a precise log on every day events while living there and the only difference between now and then was my blood sugars…In Goa I was always normal…..Now go figure?
I showed this to my Doctor after coming home and she was so surprised, after talking we put it down to…..SUNSHINE?????
OK here’s some answers to Q’s you might ask.
No its NOT my first job, I’ve always been employed, and the last job was running my own restaurant so the work was harder and the hours longer.
I injected the other day and after about 1 hour felt ****.
notme
08-11-2005, 12:34 PM
Nobody is going to flame, but I do think you will hear a few horror stories.
Bodies get used to what you do to them. If you are running high (and you are) your body will adjust. When you do inject insulin, you are not going to feel well for awhile. Your body is used to running high. I know this because I ignored my diabetes for years. I ran in the 22 range (400's) many days. When I took insulin and tried to gain control, I gained weight as my blood sugar dropped. I felt hideous. So, I ran high for years. One day, I started noticing some signs of complications of diabetes. Feet tingling, hands numb and high blood pressure. The smarter side of me decided it was time to take care of my body. I started watching my diet (carbs) injecting when I should (eventually got a pump) and got exercising. I always slept well when my blood sugar was high....my poor body was struggling. I didn't sleep well for awhile when I was in control because I felt low at 150! Finally, my body adjusted to the lower sugar. I started sleeping fine and I felt healthy. It took time.
You are damaging your body Designer, as I suspect you know. You will one day wake up and find you have done enough damage to your body that it won't be able to adjust anymore.
My suggestion is don't re-invent the wheel. You really are no different than any other diabetic and you will eventually pay for your experimentation. Get control and you will find that you will feel even better. Don't expect immediate results, but know that in the future you will be much healthier.
Good Luck
LauRa Lu
08-11-2005, 12:47 PM
Like I said DONT flame me, or tell me what I should or shouldnt do.
I'm not gonna do that and I think it's great that you feel so much better doing this, but you've got to remember that levels of 13+ over long periods of time is sure to do alot of long term damage. Feeling well and full of energy is all any of us want, but I can't imagine any of us want complications in the future.
Sometimes i feel way better when my bg is 9+ (by accident) and I sometimes think I won't bother bringing it down because I feel better if I don't.
I think it's so hard to stay within the 4 to 7 mmol/l range constantly that when I end up with a bg of 10+ by accident and feel fine, it's because it's so less stressfull I may as well leave it that way.
A normal persons bg naturally stays between 4 and 7, mine seems to wanna stay between 8 and 13 without any effort... so of course its gonna be easier to leave it that way. But it's a problem like you say. And my opinion is that eventually I think you will start to feel groggy from it. You have twice as much suagr running through your blood than you should have, so I don't think you'll stay feeling great for long. But that's just what I think.
I'm confused as to whats giving you any energy at all.... I try to live on as little insulin as possible or as little as I need, but I can't understand how your body functions with none.... but I am easily confused :hmmmm:
I agree with Nancy about your body adjusting too. When I was fisrt diagnosed I felt pretty crappy for quite a few months because my body was so used to having a high bg that it must have felt normal that way. I think I'm right in saying also, that when you are running high for a long time and then bring your blood sugar down, you will feel hypo even if you're not, because again your body isn't used to lower levels. Maybe that's what is happening when you're bg is lower?
I think you are in the uk?... There was a documentary on channel 4 not so long ago about a girl who is now nearly completely blind because she refused to take her inslulin as a teenager. She is only about 20 now, so I asume she took little or no insulin for about 6 years. That's alot of damge for such a little space of time. I think running high is just too serious, even if you feel better.
It's a pain coz it's so easy to have a bg of 9 to 13... why can't that be what's normal :motz:
Cinnabon
08-11-2005, 01:27 PM
Designer,
I don't think that anyone gets "FLAMED", as you say, on this forum. It is obvious to me that you know what your doing and exactly what it will result in, in a few months. You might be thinking out loud. If this would serve for any purpose, this forum is for SUPPORT, HELP, and advice. A lot of these members have been where you are now.
Designer
08-11-2005, 01:29 PM
Hi again
Thought I would add a few more pointers.
I've been diabetic for almost 7 years now, was on the pill (LOL) at first but soon went onto injections.
I really dont know where the energy is coming from, I'm a Kitchen & Bathroom designer but the other day some elderly friends asked me if I would install a new bathroom suite for them...at first I was knackered but as the week wore on...wow I was alive........WHY?
Over the last 7 years (apart from a spell in Goa and now) I've always injected sooo I'm NOT abusing my body.
I've JUST had a check up from my hospital (6 month one) they said I looked and tested OK.....
Oh Cholestrol up a wee bit to 6 (should be 4/5)
Oh and one more thing eye sight is brilliant (was fading)
Now I'm a beliver in the paranormal/fate/the other side etc etc sooooo?????
Anyways........just to let you know, I worship my body, I take vitamins, I excersise, I dont smoke, eat very healthy food (salad meat etc) even tried Atkins..(spelt right?) OK I have 1/2 beers most nights Oh and I love red wine.
BUT all in moderation.
Just thought you might like to know thats all
Dewey
08-11-2005, 01:44 PM
It does sound like you lead an overall healthy lifestyle. Is it possible that the insulins you are on may be having some kind of adverse affect on your body? What I mean is, could your body have some kind of chemical or physical reaction to the insulin you are taking? The reason I ask, is cause I tried Apidra (a new insulin) for about a month or so, and in that time, I started having all sorts of issues that I normally never experience(d) (i.e. pimples, feeling like I always had to urinate - even when I didn't, feeling like I was having bladder pain - and, all these symptoms/feelings went away when I stopped taking that brand and went back to my old one). Just curious if that could be another possibility?
am1977
08-11-2005, 04:47 PM
Your blood sugar is running too high, as you already know :dong: . Despite the fact that you are feeling better, you are ultimately hurting yourself in the long run . You need insulin :nurse: or something that can get those numbers back in range, it's very important that you take control of things before things progressively get worse. I'd highly recommend you talk to your doctor and be completely honest about what's going on :top:. Perhaps you could try something else...a different insulin or a different med, but I think that this needs to be addressed. . When one thing doesn't work as it should or it has more negatives than positives, then it's time to try something else. But to completely neglect taking your insulin will only cause problems, and I'm sure you know it's not the smartest thing to do :thumpdown .
So please get in touch with your doctor and get some help with these issues :call:. You will be doing the best thing for your health now and inthe future. :wink:
Take care of yourself!
Starlight
08-12-2005, 01:45 AM
I hope you realise that you most likely will soon develop ketoacidosis. You'll be starving yourself of insulin, leading to very risky business. Diabetic ketoacidosis can develop from anywhere in 12-48 hours and can be come progressively worse, leading to a coma and even death. Sometimes, i take an afternoon shot and an hour later im as drowsy as can be. Doesnt happen in the mornings or night but sometimes in the afternoon. It may be an insulin effect, so ill adress it to my dcotor, but maybe you can try figure out with your doctor a different injection time? May help you. Just dont let yourself develop something horrible and end up in hospital.
klpants
08-12-2005, 03:18 AM
Designer
I don't know what to say really, you know the consequences of high blood sugars, I can understand if you felt awful at a blood sugar of 4 and lower but a bs of 5-8 you should feel okay (the rest of the world does). Now if I was at 13 all of the time I would notice my eyes felt different, peeing more, of course all of the symptoms of high blood sugar, and I hate that feeling (can't understand why you don't feel this way??)
Please don't be another diabetic who dosne't care about the complications, help your self out, noone else will........... :thumbsup:
LonghornLady
08-17-2005, 02:38 AM
[QUOTE=Designer]Like I said DONT flame me, or tell me what I should or shouldnt do.
If you don't want opinions, I'm not sure why you started this thread. I can tell you that you truly do not want to experience DKA....(diabetic ketoacidosis), I've been there and done that more than once...thanks to stomach bugs!
You truly don't want to bring that on yourself!
LonghornLady
08-17-2005, 02:59 AM
Dewey, have they done any tests on that insulin and its effect on the prostate? Just curious....got guys in my family at risk.
Dewey
08-17-2005, 12:21 PM
Dewey, have they done any tests on that insulin and its effect on the prostate? Just curious....got guys in my family at risk.
Hi There,
I haven't heard if they've been working on specific testing, but in the package inserts, it makes reference that mutagenesis can occur. The insert says:
"Standard 2-year carcinogenicity studies in animals have not been performed. In Sprague Dawley rats, a 12 month repeat dose toxicity study was conducted with insulin glulisene at subcutaneous doses of 2.5, 5, 20 or 50 IU/kg twice daily (doses resulting in exposure 1, 2, 8 and 20 times the average human dose based on body surface comparison).
There was a non-dose dependent higher incidence of mammary gland tumors in female rats administered insulin glulisene compared to untreated controls. The incident of mammary tumors for insulin glulisene and regular human insulin was similar. The relevance of these findings to humans is not known."
Hope this helps.
Sparkle
08-18-2005, 05:55 AM
You must be imagining that you feel great at 13-18 as it generally will make you feel more tired. Don't understand it. If it makes you happy to do this then that's great but, like everyone else has said, the consequences will be complications later on. Takes away the fear of a hypo in the meantime I guess!
Also, without insulin your sugars will keep going up if you exercise or run about. Are you still taking your night time insulin? Guess that's what is keeping it a bit lower than 30mmol + !!
Whatever rocks your boat I guess! Most of us are battling to keep under 10mmol ! I hate injecting as much as anyone. Sometimes skip insulin with breakfast but that's about it really.
Good luck with the hba1c test ! My Dr's go nuts if it's above 7.5mmol average.
DeusXM
08-20-2005, 03:09 PM
Of course you feel like **** if you inject insulin. Your body's got used to being at a high bg level, and so whenever you approach a bg that looks vaguely normal, your body thinks it's having a hypo. So in other words, you've got the worst of both worlds. All that sugar in your blood is basically sandpapering away your body (and will put you in a coma and kill you within 6 months), and now you also feel terrible when you're actually doing something proactive.
Now, this isn't going to be a flame. I'm just going to be firm with you because you really need someone to be firm with you.
You're in denial. Plain and simple. You don't want to have diabetes and you can't cope with the fact you've got diabetes, so you've chosen to ignore the fact you've got a potentially fatal, life-threatening condition. Now, that's fine. Pretty much everyone who has diabetes has done exactly the same as you and decided to ignore their condition for a bit.
The trick is learning how to get back on track and snap yourself out of this situation. Some people simply don't 'get it' until they've lost a leg and their sight, and you'd better pray that you're mentally strong enough to get it before that happens - and here's how you do it.
Get yourself down to a diabetic clinic. Today, tomorrow. Doesn't matter. Just make sure it's ASAP. Don't bother making an appointment. Just sit in the waiting room. Sit there for a couple of hours. Have a look at the people walking in.
See the guy who can barely walk? That's you next year.
See the person missing a leg? That's you in two years.
See the blind person? That's you in three years.
See the person in a wheelchair who needs to be permenantly attached to an oxygen tank? That's you, buddy, that's your future.
Then walk past a funeral home and have a good look at the caskets. Go and enquire about the costs of them. ****,get yourself measured up for one, buy one while you're there. It stands to reason that the prices of coffins will probably go up within the next four years, and you're going to need one pretty soon - why not save some money?
Do I sound harsh? Good, because someone really needs to put you in your place. But that person shouldn't be me, or anyone else on this forum. That person should be you.
If you don't want to listen, that's fine. Just don't turn round in a year's time and claim you 'didn't know'.
am1977
08-20-2005, 04:52 PM
Really, Deus, don't hold back...tell us how you really feel :argh: ! J/K :biggrin: .
Honestly, Deus, I give you credit for being painfully honest and straight with Designer :top: . Sometimes that is the only way to get people to listen, is to be brutally honest. Hopefully, your message will be heard loud and clear and things will turn around for him or her (sorry, I don't know which :o )
klpants
08-21-2005, 02:22 AM
Great reply, DeusXM!
Yes, harsh but true diabetes isn't nothing to mess about with and you've exaplined why.
Everyone is responsible for themselves, diabetics shouldn't need a babysitter.
The other day I decided to meet with someone who asked for my help who also was a diabetic for 16 years. The person didn't know wht type she is (I have decided from what she told me type2), is severley overweight, has not a clue what diabtes is and even asked me if diet coke was "ok" (after 16 years!!). She also seems to like the "diabetic babysitting". I had to be harsh with her like DeusXM but I don't think she really intends on sorting herself out. Argh, I give up!
Of course you feel like **** if you inject insulin. Your body's got used to being at a high bg level, and so whenever you approach a bg that looks vaguely normal, your body thinks it's having a hypo. So in other words, you've got the worst of both worlds. All that sugar in your blood is basically sandpapering away your body (and will put you in a coma and kill you within 6 months), and now you also feel terrible when you're actually doing something proactive.
Now, this isn't going to be a flame. I'm just going to be firm with you because you really need someone to be firm with you.
You're in denial. Plain and simple. You don't want to have diabetes and you can't cope with the fact you've got diabetes, so you've chosen to ignore the fact you've got a potentially fatal, life-threatening condition. Now, that's fine. Pretty much everyone who has diabetes has done exactly the same as you and decided to ignore their condition for a bit.
The trick is learning how to get back on track and snap yourself out of this situation. Some people simply don't 'get it' until they've lost a leg and their sight, and you'd better pray that you're mentally strong enough to get it before that happens - and here's how you do it.
Get yourself down to a diabetic clinic. Today, tomorrow. Doesn't matter. Just make sure it's ASAP. Don't bother making an appointment. Just sit in the waiting room. Sit there for a couple of hours. Have a look at the people walking in.
See the guy who can barely walk? That's you next year.
See the person missing a leg? That's you in two years.
See the blind person? That's you in three years.
See the person in a wheelchair who needs to be permenantly attached to an oxygen tank? That's you, buddy, that's your future.
Then walk past a funeral home and have a good look at the caskets. Go and enquire about the costs of them. ****,get yourself measured up for one, buy one while you're there. It stands to reason that the prices of coffins will probably go up within the next four years, and you're going to need one pretty soon - why not save some money?
Do I sound harsh? Good, because someone really needs to put you in your place. But that person shouldn't be me, or anyone else on this forum. That person should be you.
If you don't want to listen, that's fine. Just don't turn round in a year's time and claim you 'didn't know'.
LauRa Lu
08-21-2005, 02:05 PM
""Quote""
:congrats:
Wise words!
kitty
08-21-2005, 04:21 PM
I have battled for a long time to get my blood sugars down and I have been running in the recent past all day at anywhere between 13 and 17 and I felt fine, and when my blood sugars ran lower because I injected more I did feel horribly sick like I was having a hypo and I wasn't, and I was very determined to pull my sugar back up by eating the odd biscuit which of course would make me feel 'better'...
HOWEVER.
Recently, and this is quite recently, I have managed to keep my daytime blood sugar levels at the normal numbers of 4-7(or officially 4.5-7.7) before meals. The first couple of days this happened I felt shaky and sick, I felt like I needed to eat something to feel better but I decided against it, gritted my teeth and went throught the annoying shaky feeling. Now that my sugars are at their normal levels during the day I feel ALIVE! I really do! I actually feel proper hunger when I haven't eaten for a long time, and feel like I can do more physically and emotionally than I ever could when my blood sugars ran at 13-17.
I still have a problem with high sugar levels at night, unfortunately I haven't managed to sort this problem out yet which means they creep up to about 16 before bed, and in turn make me feel horrible, give me cramps occasionally and sometimes I get traces to moderate ketones-which have a horrible affect on my body. But I am working on it and am determined to keep at it until I have good control over my night time blood sugar levels too.
Even though this was me telling you about my experience I think you might benefit from reading it. I don't think you truely feel that good with blood sugar levels running that high. The only thing I could say in your favour is that perhaps you were doing too much insulin for your body, and in turn eating too much carbohydrate? I've personally found that I feel a little dizzy when I do a lot of insulin(eg when I 've had a heavy meal of carbs, for example lots of potato). Recently I've had a lower intake of carbohydrates in my diet, nothing near atkins just a lower intake, and I haven't had to inject so much novorapid with meals. As a result I don't feel so dizzy or sick. It's probably not of much help but I thought I should mention it :confused: :cool:
Designer,
I've been reading this thread, and trying desperately not to respond, because I felt like you really didn't need another person telling you what to do, in fact you asked us not to flame you or tell you what to do. But I'm finding it harder and harder not to put my $.02 in. That is mostly because it almost feels like you are telling us what you are doing not to ask for help / advice but almost to advertise your treatment plan. What I have to say is partly to you and partly to any newly diagnosed or questioning diabetics out there who might follow your lead.
Seems to me you are confusing what "feels good" with what is "good for you". Having a consistent blood sugar (even if that consistent level is rather high) feels better than fluctuating. Full stop. That is a fact for most people. The difference is having a consistent blood sugar within a low target range requires a bit more work and planning than having a high consistent blood sugar. However, having high blood sugars like those you describe put you at risk for all of the complications and icky feelings that other posters have described well.
As for your good numbers while in Goa, I'd chalk it up more to the blood sugar lowering properties of alcohol than to sunshine (that is if you were drinking). And weren't you out partying / dancing at least some of the time? (if you weren't I think you missed out) That'd lower your bg as well.
Eating chocolate in excess feels good, taking drugs feels good, having casual sex feels good, smoking feels good, drinking in excess feels good, having consistent, yet quite high, blood sugar levels feels good, but none of those things is "good for you" in the long term (or even really in the short term).
You've found an insulin regime that is relatively simple, and feels good, but as your numbers are pretty high I think this is not a case where it is wise to follow the old advice "if it feels good, do it." This is a time when it is more appropriate to remember "if it feels good, it's probably bad for you."
dreamfrog
08-24-2005, 07:31 PM
Bitterly honest we must be.
No matter how good you feel, you are KILLING yourself.
Have you stuck your finger when your blood is high & noticed how THICK it is?! Bad, bad, bad. Deadly.
Yes, you are in denial. Yes, you feel good because your body is used to your blood glucose levels being high. Big deal. Today. One day is not bad, but days & days, weeks, weeks, months, years. It will KILL you. And, even if you do take everyone's advice & mend your ways, you have already done damage. How much is up to when you stop.
SO STOP NOW.
Your family, friends, loved ones, us.
We all want you here & healthy.
You know what you need to do. Buck up & do it. Stop making excuses.
Mark C
08-27-2005, 01:07 PM
Get Help... NOW!
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