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View Full Version : 'Yeah, that's normal'


DeusXM
01-17-2006, 06:11 AM
This morning I went to my clinic to speak to my diabetic nurse about changing basal insulins. I'm starting to come to a similar conclusion that most of you here already have about Insulatard. I appear to have hit a wall whereby if I take any more I'm going to be having hypos far too often, but it's simply not covering my basal needs. I'm also getting very pronounced DP and then hypoing a couple of hours later.

Basically I'm looking to either giving Levemir or Lantus another shot. Given my experience of Levemir I'll probably end up on Lantus again and run the risk of the attendent problems I had before. Given the choice between either being depressed, or blind at 30 and depressed, I'll take the former.

I could already tell I was off to a bad start with my nurse the moment I said the words 'Dawn Phenomenon'. Her reaction made it perfectly clear that I wasn't supposed to know about things like that, and I told her I'd already ruled out the Somogyi Effect from blood tests. So that put her on the back foot.

Next up was my A1c. My last was a frankly terrible 7.6, which she tried to tell me was 'very good'. I somewhat disputed this and said I would rather have my A1c under 7, and preferably under 6.5. She then tried to tell me that this was impossible for people with T1 to acheive without having lots of hypos. I then suggested to here that I knew plenty of people with T1 who were perfectly capable of having A1cs below 6 without any major problems. She then suggested that I would lose some quality of life with that sort of control. Again, I'm fairly sure 'not going blind' might be an important part in maintaining quality of life.

Indeed I was so particularly concerned about going blind that I raised the point that clearly my A1c couldn't be that great given that my optician claims to have spotted a micro-aneuryism in my left eye. I am being screened next week to to check this out. She then said it was about par for the course for someone who's had diabetes for seven years or so, and it was nothing to worry about because if it was problem then it would probably be treatable.

As you can probably understand, this didn't exactly reassure me, and I believe I may have been quite strident on this lack of reassurance.

Bascially though, because I've just started a new job and now I'm no longer working stupid shift hours, she's decided to go on a 'wait and see' approach - namely that if things hadn't improved in three weeks, we'd reconsider.

Given that today I had a hypo at 11, lunch at 12 and am now running at 10.6 a good two hours later, I think it's fairly obvious that waiting isn't really going to make any difference.

What annoyed me most though, even more than her callous 'it happens' approach to diabetic blindness, is that she seems to think that changing to a shorter needle length was apparently the solution to my problems, which is why I now have 30-odd 6mm needles in my jacket pocket like a druggie.

Dewey
01-17-2006, 06:49 AM
When I read your post, I got livid. It's time to lose that nurse. She apparently Doesn't have Diabetes, does she? Hence her nonchallant approach to it & its potential complications (i.e. blindness) down the road. While retinopathy (in its earlier stages) can be reversed, why even go there, when you can correct any problems before they even start?

I also don't like how (it appeared as though) she acted like you knew "too much." It is Your disease, therefore you should be equipped with as much info. about it as possible. Rather, she should be glad that you're taking a proactive approach to your personal care, and that you've done your homework. It sounds like you've really thought about everything & know exactly what avenues you want to try. Since you've done your research, my attitude is that she should only be allowed to make what you want a reality (i.e. write/fill the script - Period.).

If it is possible to get another nurse, I strongly suggest you do so. Your health & concerns should be taken seriously by the health care folks, or it's time to find new ones. I play NO games when it comes to my health, and if my doctor/nurse wouldn't listen to what I need, want, or feel is best for myself, I'd go to one who would. :mad:

Eri's mom
01-17-2006, 08:05 AM
Dewey's right...

I have similar problems w/ Eri's previous (first) endo and now I'm running into similar things w/ her current ones.

They treat you like you don't have a clue, and it gets quite annoying....and that, "oh, it happens" attitude...UGH....

I hope you find a new nurse and get everything all worked out...
And good luck on your eyes being screened next week.

DeusXM
01-18-2006, 04:39 AM
One thing that is bugging me is that it's very much a self-fufilling prophecy with what they've got going on. Having micro-aneurysms after 7 years of having diabetes is apparently 'normal', and also, apparently my last A1c of 7.6 is 'very good for most of our patients'.

Anyone else spotting a possible connection here?

When I go back in two weeks I think I might raise the possibility that if they encouraged people to get an A1c that was actually under 6, then suddenly eye probs after 7 years might not be quite so normal after all.

am1977
01-18-2006, 05:41 AM
Deus-

Wow, I totally can understand how you would be annoyed by this situation. A good diabetes team should be there to help you prevent those complications, not just sit by and let complications happen. It sounds to me like these medical "professionals" need further education on how to help their patients. In the meantime, I would strongly suggest finding a new doctor/cde/nurse...I know that might be easier said than done, but I think your medical team should be there to help you fight this disease,

Good luck! :)

duck
01-18-2006, 05:58 AM
Deus,

I'm trying to recall but I can't seem to remember: what were your previous issues on Levemir? I thought you once said you tried Lantus with not-so-good results, but I don't recall Levemir.

Micro-anuerysm: I agree it is something to be concerned about, but unless it is something that ONLY happens to us with diabetes, who knows if it would have happened anyway without this affliction...I know it's not much consolation, but I have to wonder...Plus I am still stewing about my initial hospital stay where I complained of having a headache and I was told "yeah, diabetics get headaches..." Really? This is a diabetes-only phenomenon? Puh-leez.

There's a lot of ignorance out there about many things, we are both victims and offenders, LOL. You know what the value of having a better A1c is, so don't let the nurse and her attitude get you down. Change is often slow, at some point the broader medical community will embrace getting A1c's into the 6's is not necessarily dangerous.

Keep us posted about the follow-up eye exam.

rzrbks
01-18-2006, 07:40 AM
Deus,
hurry up and arrange another visit to the US, I'll hook you up with my CDE and she'll have you on the pump (or whatever you want) in no time.

Sounds like your nurse is a bit of a prat.


But I do understand your feelings. I had to switch PCPs (the one I worked with for 3 years joined Dr.s Without Borders) lately, and the new one is a git and a prat. Looking for another one--------like you I DO Not like the pompous.

DeusXM
01-18-2006, 07:55 AM
If anything, it's made me realise just how good my nurse at Exeter was. She was bloody fantastic and was certainly the most helpful person in the medical profession I've ever come across. She actually 'got' the fact that medical textbooks don't always tell the full story and understood that when patients told her stuff, they weren't just making it up. Still, there's a choice of another two nurses at the hospital, and my actual doctor (or endo as you guys call them) is pretty switched on too.

To be honest, I'm rather used to the idea that diabetes is my condition and my responsibility, so the prospect of me having to sort myself out instead of someone else is well in keeping.

Georgia
01-18-2006, 02:18 PM
Let's hope the other 2 nurses take your concerns more seriously.

My last A1c (before Xmas) was 8.6 & my doctor was pretty happy with that!! It's a good job I learnt on here that an 8.6 is way too high.

SueM
01-18-2006, 02:55 PM
If anything, it's made me realise just how good my nurse at Exeter was. She was bloody fantastic and was certainly the most helpful person in the medical profession I've ever come across. She actually 'got' the fact that medical textbooks don't always tell the full story and understood that when patients told her stuff, they weren't just making it up. Still, there's a choice of another two nurses at the hospital, and my actual doctor (or endo as you guys call them) is pretty switched on too.

To be honest, I'm rather used to the idea that diabetes is my condition and my responsibility, so the prospect of me having to sort myself out instead of someone else is well in keeping.

Hi Deus, very small world I go to Exeter too :)
Just a sugestion if you don't get on with the lantus or L why don't you try bovine or pork insulin as a basal?
Plenty do and do very well with it.
One of the posters on an email group has just done this and says it's the healthiest he has felt from day 1 of being diabetic.( I think he's been diabetic for 15 yrs)
If you do consider the idea stick to your guns and insist that you are given the chance to try it.
I use bovine insulin and have done so for 41 yrs now with 1 week on the GM and that 1 week was enough for me.
I have no complications from my diabetes either and still have full hypo warnings.

Funnygrl
01-18-2006, 07:25 PM
If 7.6 is very good for their patients (and I'm not knocking your A1c, 7.6 is good), then maybe their patients have poor control for a reason, THEIR CRAPPY CARE.

DeusXM
01-19-2006, 05:24 AM
I've never really considered animal-derived insulins as an option before because I've always been on synth insulins. It's worth a look but the problem is that they still have peaks and troughs like the Insulatard. Plus I'm not entirely sure how long they're going to stay on the market for.