Endo appointment is today ...

[Eri's mom]

Hi again,
Today Eri goes to the endo...Lord only knows what her A1c will be w/ the past few months of being so sick.

She did come home again from school yesterday and I took her to her other doc, and she's been put on home instruction until everything is taken care of. (now I get Eri ALL day EVERY day...uhhh...yea!!!???!lol..j/k...)Let's see how my sanity goes with that...lol. Adolesence, GOTTA love it:eek:
I made her go in today, just to take her ELA's(state test)...so we will be leaving her shortly to head out to CHOB's. DEFINITELY going to go for the pump now, especially since she will be home instructed for a while and I can watch her like a hawk.
Will update on how it all goes when we get back later today...

[Cinnabon]

We r here for you!.. Let us know.....

[Eri's mom]

Thanks:)

Well, after I posted that, I rec'd a call from the school saying they needed a more detailed doctors note. Figures.
Anyway, went to her appointment, they just raised her dinner time dose of novolog to 11u from 10u. She had all her bloodwork, but we will receive the results in the mail in around 10 days. We have to have her eyes checked, they want her to see the GI docs and I have to remember to have her ECHO and u/s sent to them next week. Her bg while there was 389...UGH...and all she has been drinking is water...she did have a bagel earlier...a small one. Her tummy is still bloated and her chest is still sore...but that's to be expected w/ all that's going on.
While there, it was the first time they met my other daughter, Elle. He asked her how old she was and everything, and we talked of how they check kids in the family every so often. Well, I did take Elle's bg (fasting) this morning b/c she's lost about 5lbs the past week(yes, she is growing) but I have never seen her eat or drink so much...and use the restroom. I'm thinking maybe she is getting the mono Eri is getting over. He asked me if she has ever been tested for diabetes(she has) and I took her fasting reading this morning and it was 148. He said to keep an eye on her, but honestly, I think it is because she is sick now as well(strep or mono...seems to be going around).
Sooo, I won't have the A1c for about 10 days and her cholesterol as well.
I heard back from the ped a little while ago(it has taken me a few hours to get this typed out b/c I had to go out and pick up all her new scripts)...and the ped is re-writting a note, explaining something similar to gastroparesis...and she is being referred to a GI doc.
That's about it for now...just took her bg and it was 579mg/dL...and that was w/ just vegetable minestrone soup and a propel. Something is still brewing in her.
OK, I've rambled long enough...

[Cinnabon]

Wow.. Schools sometimes amaze me. I know they are trying to keep her record in good shape, regardless of everything they know thats going on w/ her, but it seems to be a lil inconsiderate.
I hope these days go by quickly to get Eri's test back. When I was her age, I found some records the other day of the blood sugars I would write down when I was Eri's age and I was the same way. MY blood sugars were all over the place.. Growing up what a JOY!! lol
Keep us posted and BIG hug for you and Eri...

[Eri's mom]

Yes, I'm starting to get just a LITTLE upset w/ the whole thing. It's like they think I am keeping my child home for no reason...like I don't need to work(yeah, right!!!)...or I want her around for her pleasant little ADOLESCENT company(lol, I love the kid, but, I DO need a break once in a while!!!)...I can't go anywhere w/ her being in this condition, has to be around a bathroom at all times, plus, she just falls asleep whenever...and I have a LOT to do since this has been going on, for what seems like, forever. Plus, all the running to all the docs AND specialists?(and the one trip to the ER?)
Sorry, I'm just getting really annoyed...I feel like I am under a microscope. Honestly, why would I want my daughter to FAIL???
And now to be told to watch my other daughter for diabetes. Yesterday was just one FUN day...
(Sorry, just a little rant there since I have been up most of the night going over it all...)

Onto a brighter note: Thanks for the support :) That's always a big help, and I really do appreciate it!!! This is an awesome group in here :)

[Funnygrl]

I'm glad to hear Eri is finally being sent to a GI doctor. The peds GI doctors here are excellent, and will want to get to the bottom of this. Good luck!

[Eri's mom]

Thanks!!! Yeah, I hear there are some great GI docs here, I just have to get that referral tomorrow since I didn't get it on Friday. Honestly, I feel as though I sorta live at her doctors office....lol.

[Funnygrl]

I private messaged you.

[am1977]

Yes, I'm starting to get just a LITTLE upset w/ the whole thing. It's like they think I am keeping my child home for no reason...like I don't need to work(yeah, right!!!)...or I want her around for her pleasant little ADOLESCENT company(lol, I love the kid, but, I DO need a break once in a while!!!)...I can't go anywhere w/ her being in this condition, has to be around a bathroom at all times, plus, she just falls asleep whenever...and I have a LOT to do since this has been going on, for what seems like, forever. Plus, all the running to all the docs AND specialists?(and the one trip to the ER?)
Sorry, I'm just getting really annoyed...I feel like I am under a microscope. Honestly, why would I want my daughter to FAIL???
And now to be told to watch my other daughter for diabetes. Yesterday was just one FUN day...
(Sorry, just a little rant there since I have been up most of the night going over it all...)

Onto a brighter note: Thanks for the support :) That's always a big help, and I really do appreciate it!!! This is an awesome group in here :)


Ugh, Robin...why do things always have to be so difficult :dontknow:. I truly feel for you and Eri, I know it's been rough. However, saying that, I do believe that things will get better. I think you've probably just hit a rough patch here, but things will smooth out with time. So please try to hang in there. Also, please do not feel bad for venting here-that's what we are here for! We'd like to help, if we can. :tee:

~We're here for you~

[Carwy]

All I have to say is that I keep praying for her. Maybe having a dr. look at her will get to the bottom of this. The other dr.'s are now just running around in circles and doing nothing.

[gettingby]

Yes, I'm starting to get just a LITTLE upset w/ the whole thing. It's like they think I am keeping my child home for no reason...like I don't need to work(yeah, right!!!)...or I want her around for her pleasant little ADOLESCENT company(lol, I love the kid, but, I DO need a break once in a while!!!)...I can't go anywhere w/ her being in this condition, has to be around a bathroom at all times, plus, she just falls asleep whenever...and I have a LOT to do since this has been going on, for what seems like, forever. Plus, all the running to all the docs AND specialists?(and the one trip to the ER?)
Sorry, I'm just getting really annoyed...I feel like I am under a microscope. Honestly, why would I want my daughter to FAIL???

Robin,
Don't mean to hijack your thread but reading this leads me to think I should share this with the group. Sorry if it's long and boring.
I was diagnosed with diabetes during my 8th grade year. Things were so so for that year. It all went to Hades in a handbasket during my freshman year in HS.
The doctor I had at the time of diagnosis was a GP who had no business at all dealing with children or diabetes but Mom trusted him as he had been my doctor since I was born. I was started out on an oral medication (Dymelor) and told to come in every Sat morn for bloodwork. All of those Sat morn readings were in the 300-400 range. I felt miserable all of the time. When I started high school, I would get so tired and sick during the day that I would have to go home. NO one at the school wanted to believe that it was related to my health. They just thought I wanted to leave school early (whatever!!).
The last time Mom came to pick me up I was very sick. Throwing up and needing to go to the bathroom but couldn't. Went straight to the doc's where we were told that it was just a virus and to go home and rest. Next day, I was so sick that I could not even move. Had not used the bathroom in more than 24 hours. Mom came home from work at lunchtime to take me back to the doctor. What she found nearly stopped her heart. I was lying on the bathroom floor where I had stopped to rest while trying to get dressed. Got to the doc's and was sent straight to the ER. Upon arrival, I was diagnosed as being in DKA with a bg level of over 800. Kidneys had almost shut completely down from lack of use. In and out of coma for about 3 days, in hospital for 2 weeks.
When I returned to school, alot of school officials had egg on their faces.
My moral here. DON'T let them run all over you. The most important thing now is Eri's health. Get her better and tell them you will battle with them later.
Sorry for rambling. If I can do anything to help, PLEASE let me know. Love and hugs to you and Eri.

[Carwy]

[B]Robin,
Don't mean to hijack your thread but reading this leads me to think I should share this with the group. Sorry if it's long and boring.

Then why did you?? Just Joking :smartass: :rofl:

Sorry about what happened to you. Like I said not all doctors are good and know what is going on.

[gettingby]

Then why did you?? Just Joking :smartass: :rofl:

Sorry about what happened to you. Like I said not all doctors are good and know what is going on.
LOL. Thanks Carwy. You are so right about doctors. I don't care what anyone says, you are an :angel: to me !!!!

[Eri's mom]

Wow...I'm so sorry that happened to you!!!

With Eri, I honestly believe the next step is w/ the GI's. They(the doc's) have already mentioned gp, so who knows? Thing that gets me, as I probably already stated, is that they KNEW she was having issues w/ getting her bg's in control...and they told me that we'd have to wait the 5 yrs to see the effects of all the lows AND HI's. Between more seizures than I can count and all the HI's and DKA's...I mean, come ON, they basically told me to expect some sort of damage to be done to her organs.
Anyhow, now, w/ the dx of gastritis and the heart issues last year, and now w/ the slow digestive system, etc...just gets me so frustrated.
If the school only realized that school is, actually, VERY important to Eri(we're talking about a kid who wants to go to Harvard and wants to be either a laywer or a veternarian, or, on the extreme opposite, a designer...interior, computer, either or)...she KNOWS she needs a scholarship and that she needs great grades and has to be into extracirricular activities, so she really DOES want to be in school.
****, tomorrow I have Elle's dentist, Tuesday is Eri's cardiologist, Wednesday is for her abdominal ultrasound, and, then, hopefully, the GI sometime either this week or next...oh, and I can't forget the eye doc(she's already making sure I KNOW she wants contacts...stubborn thing). I have to fit work into there somewhere...lol. At least that's not til Tuesday!!! Keeping busy keeps ya young, right? :)

And onto Elle...how weird is it that her past few fasting bg's are 99mg/dL...I'm totally grateful about that :) Just to find out what is causing the weight loss and all these other things. Maybe she just has that high metabolism my mom does...my mom literally has zero percent body fat...why'd that gene pass me by?LOL