MRI's results are in....

[Cinnabon]

I just got home from my P-Doc and he had my MRI results. Looks like everything points to MS. I had to exit my doctors office and go into the bathrom because I was crying so hard. The MRIs show White matter changes and plaque.

Right now, I have NO feelings whatsoever I am SO overwhelmed, SO lost, and SOOOO scared!!!

I know very little about this disease and all that I will suffer. All I can think of is my little girl.

[Rhino]

My friend's wife has MS and she seems pretty ok with it most of the time. I am in no way an expert, but I don't think it's an end of the road type situation. My hat's off to you for being able to manage both of these at once.

[condensr]

Oh gosh, I'm sorry you had to get such news! That must have been so hard.

Perhaps it won't be so bad? You've experience at managing a disease, I'm sure you can manage this one too!

[lelggren]

I just got home from my P-Doc and he had my MRI results. Looks like everything points to MS. I had to exit my doctors office and go into the bathrom because I was crying so hard. The MRIs show White matter changes and plaque.

Right now, I have NO feelings whatsoever I am SO overwhelmed, SO lost, and SOOOO scared!!!

I know very little about this disease and all that I will suffer. All I can think of is my little girl.
Oh Cinnabon! I'm so sorry!! I know that you had hoped for such better news than that. But, please, know that you are such a strong person. I know that from reading what you write on the forum. You're very smart and I know that you can take this. My mom has MS too, and so I know some things about it. If you want to talk about it or ask anything, just go right ahead. I'll do my best to answer! Also, if you want to ask my mom anything, I'm positive that she wouldn't mind me giving you her email address. It might be good to talk with someone in the same situation and who's been there. Please, let me know if there is anything I can do for you! We love you!!

[Lynne1]

Sorry to hear about your diagnosis. I found a link to the Johns Hopkins center for Multiple Sclerosis. I don't know if you would consider traveling to Johns Hopkins for medical care, but I was there for my Mother's surgery and there were patients there from all over the place. They always said the care they got at Johns Hopkins was the best. Here's the link:

http://webtest.nts.jhu.edu/hopkinsneuro/ms/disease_and_condition_detail.cfm?condition_id=24

I hope you feel better soon!

[kgm0612]

(((((HUGS))))) My thoughts and prayers are with you!

Karen

[am1977]

OH hon...

Think you could use a HUGE hug! I know it's not quite the same as the real thing, but I'm sending you the biggest {{{HUG}}} I can.

I'm SO sorry to hear this...
Do these tests really confirm that you have MS or are they just suggestive of it? I know it's hard even dealing with the possibility, but I think you need to be 100% certain of what's going on. You need to know what the situation is and then you will be able to take things from there.

I wish there was something more I could do or say to help you... I wish that you didn't even have to deal with this possibility. All I know, is that things have a way of working out and you will manage. . Trust me on that.

And, again, we'll always be here for you.

[lgvincent]

I was hoping the diagnosis would be different. Hopefully there will soon be some medical breakthroughs that will help you. Wish I could give you my brain. It's never been used, but it's a little dirty . . . dusty . . . it's a little dusty.

[Cinnabon]

When I inquired about the films of my MRIs, to take to my neurologist, I noticed everyone was in a rush to get them to me. I got such a scary chill run threw my bones.
My MRI reads that I present lesions/ white matter disease, such as MS.

[Erin]

Oh Cinnabon! I'm so sorry. I was really hoping you'd get different news. But, like everyone else has already said, you're such a strong person, you'll get through this.

[amylo]

Im sorry that was the result. I dont really know what to say that will make things any better, except that my thoughts are with you. Im sure you will find ways of coping for yourself and your daughter.

[liz32]

I'm so sorry! We're all here for you.
Liz

[valc3]

I'm so sorry. We're all here for you.

[camjen1]

I'm truly at a loss for words! :(

I wish I can say something to make it all go away but unfortunately I can't.
I'm here for you if your EVER need anything. :bawling:

[Eri's mom]

I am so sorry Cinnabon!!!
My dh's cousin was just dx'd w/ MS a few months ago, and he's doing great...

I, too, wish there was something I could do for you...

Please know my thoughts and prayers are with you!!!

[nantomsuethom]

Wow (((((Cinnabon))))), I am so sorry to hear of this news!
Has the doctor discussed any type of treatment for you yet? I have a neighbor that has MS, 11, years now. Her doctor started her on Rebif about 6 months ago. She actually was to take something else (can't remember the name) to stop it in its tract but refused due to the side affects. The Rebif is supposed to do the same thing. I started giving her her shots around October and she has never really had any side affects from this medication. She has a friend that comes in everyday to help with cores and errands and she now gives the shots.

[am1977]

I guess what I am asking (and hoping) is, is it possible that it is NOT MS? It said it could be a disease such as MS, but maybe that's not really what is going on. Maybe it's something much more easy to deal with and milder... I'm praying that for you.

Keep us posted.

[KickStart101]

I'm truly sorry to hear the news Mars. We were all hoping it would be the opposite news. I was thinking the same as Andrea, perhaps it is a different
disease with manageable symptoms.

I don't know anyone that has MS but I did notice on one website that it said no 2 cases are the same. Symptoms can range from very mild, moderate to bad. Some Patients go into remission for many, many yrs. and many do
okay with it. Drugs also help out of course.

Don't forget that you have Montel Williams on your side. He is a Powerhouse in himself(plus Friends and Family). ((He also smokes pot for the pain so he's doing okay). He has sat on Researchers to make sure they are doing their most to find a cure and Drug Companies to come out with better drugs and to help patients pay for them. I believe he also started another Foundation for MS for Donations for a Cure, etc. You should write him a note
later, I'm sure his address is not hard to find. Maybe you could be one of his Spokespeople. Could lead to Good places. You'd be in the first line for sure when a Cure happens. I wonder if MS is a disease involved with stem cell
research? Also I'm sure there are Clinical Trial Studies for this disease also, if you wanted to try that. There are also MS sites that have Forums so you can talk to others about this and see how other people are coping. It may take some time, but I hope you will see light at the end of this tunnel as most of us usually get to with our Diseases/Conditions. Take Care, Always Hope. :)

[Cinnabon]

Thank you everyone...
I have been very depressed about this, but I think its only normal. Like a lot here have said, If I was able to deal w/ this diabetes, this shouldn't be too bad. Im just on one of those "its not fair" trips. I think there should just be a law of nature, where only 1 disease to someone that already has 1.

I have an appointment with the neurologist on Tues. and I wish so bad she happens to find its something else. Since the chances are slim, I will at least be educated. After that I do want to see another Neuro, just in case.

I am very interested in finding out if these treatments, like injections, cause any side effects that can affect my diabetes....

[Erin]

Cinnabon,

Maybe check out some of the advocacy groups (like the ADA and JDRF, but for MS) I am familiar with the National MS Society. Their web site is http://www.nationalmssociety.org that might be a good place to start getting informed.

My thoughts are with you.

[kimbo]

sorry to hear that news.You have given a lot of people good support on here ,i am sure everyone will pay you back and help you through it.
xx

[am1977]

Thank you everyone...
I have been very depressed about this, but I think its only normal. Like a lot here have said, If I was able to deal w/ this diabetes, this shouldn't be too bad. Im just on one of those "its not fair" trips. I think there should just be a law of nature, where only 1 disease to someone that already has 1.

I have an appointment with the neurologist on Tues. and I wish so bad she happens to find its something else. Since the chances are slim, I will at least be educated. After that I do want to see another Neuro, just in case.

I am very interested in finding out if these treatments, like injections, cause any side effects that can affect my diabetes....

No, sweetie, it isn't fair :frown:... Life can be sh!tty at times and it's fine to feel sorry for yourself, or what have you, we all have pity parties now and then (some may say I have too many for myself :bawling: ), but I think that's ok. What we go through each day isn't easy and then to possibly have to worry about another condition is even more stressful. We all can understand that.

I think whether you know it or not, you are doing exceptionally well :top:. You should be proud of yourself... So try to go easy on yourself. You are more than entitled to how you feel. This is possibly a life changing thing and it would be emotional for anyone.

This may sound like a contradiction, but I think being faced with this will make you even stronger. I think tough circumstances do that... they build you stronger in character. I have no doubt that this will be the case for you. You are already an incredibly strong, intelligent, and good person, and I think this is only going to reinforce that. Some people who don't know that much about Diabetes, may assume that it's a death sentence or assume that a diabetic is going to lose their sight/limb, etc, but as we all know, that's not usually the case. So with MS, what I'm trying to say is, don't assume anything. Educate yourself, like you did with Diabetes, and you'll find ways to manage... I think learning all you can is key- you'll be able to deal with things (should it be confirmed) better.

Also...know that there's always hope. I'm not really the most optimistic or possitive person, but I know this to be true. Whether chances are slim or not, it's possible that it might be something else. Even if it's 95% certain, who's to say that you are not in that other 5% - you could very well be.

Please continue to let us know how things go with your appointments and everything. I know we are eager to know and help you, if we can.

[Tokyo Cate]

I am really sorry to hear your news. I can't imagine how you must be feeling, really, but use this as your home to vent, Cinnabon. We have all benefited from your ear from time to time and we are here for you, too.

I hope the appointment with Neuro #1 is helpful and that you are given the tools and support you need to manage this next obstacle.

You are strong and once you recover from the initial shock and denial, you will find your stride and will hopefully feel the benefit of the treatment your doc recommends for you.

[Mark C]

My best friend has MS. It is not a death sentence and he lives and works just like other folks. There are a wealth of medications out there that work well, though they can be expensive. Interferon (Rebif) and Lipitor, along with Provigil to help you stay alert when the nerves are slow... You can still live off into old age with this! The key is managing the events and keep from having them.

[Penny]

Cinnabon, I just caught the tailend of Tony Danza's talk show. Don't normally watch, but he was discussing MS with a lady named Nancy Davis. She has MS and has written a book called Lean On Me, which I gather is about her struggle with MS. It sounded like something that might be of some benefit to you and maybe even those of us who had a surprise diagnosis of Diabetes. Going to the library tomorrow, and will check it out if they have it.

[Cinnabon]

Hello EVeryone...
Just wanted to check in and let everyone know I am doing ok. I stumbled a bit today, but I think this is ok till I start my medication. My memory is acting up and I forget things easily, when this wouldnt happen. I came down w/ a slight cold and Im attacking it as we speak (drinks pills).

I am scheduled for the Spine Tap on Tuesda,y but my insurance isnt cooperating this Friday afternoon!! I took care of all the preparation for it, now Im just missing my referral.

Of course, along w/all this, I must prepare for my court date w/ the DBD(deadBeat) blah!!!

I cant Thank everyone enough!!!

[Cyborg]

Glad to hear you are doing ok. Hope you get to start your medication soon. Hopefully after the spinal tap is finished they will start you up. Found the web page that Erin started for the MS walk donations. Tell the insurance company to get their act together or they are going to start getting a bunch of spam... ;)

[Erin]

Hello EVeryone...
Just wanted to check in and let everyone know I am doing ok. I stumbled a bit today, but I think this is ok till I start my medication. My memory is acting up and I forget things easily, when this wouldnt happen. I came down w/ a slight cold and Im attacking it as we speak (drinks pills).

I am scheduled for the Spine Tap on Tuesda,y but my insurance isnt cooperating this Friday afternoon!! I took care of all the preparation for it, now Im just missing my referral.

Of course, along w/all this, I must prepare for my court date w/ the DBD(deadBeat) blah!!!

I cant Thank everyone enough!!!

Dude, on top of all of this you have a cold?!? And insurance being stupid... grr :stupid:

I'll gladly join the "spam Mars' insurance company" campaign if it comes to that... just let us know. I'm good at spamming :proud:

I'm glad to hear that in spite of all that's going on you seem to be doing pretty well. Keep us updated!!

-Erin

[Cinnabon]

HAHAHAHA.. Good one.. very good idea!:congrats:

I tried registering for the walk yesterday and they told me I was a bit late, but I can go over . I will.:secruity:

[Georgia]

Hello EVeryone...
Just wanted to check in and let everyone know I am doing ok. I stumbled a bit today, but I think this is ok till I start my medication. My memory is acting up and I forget things easily, when this wouldnt happen. I came down w/ a slight cold and Im attacking it as we speak (drinks pills).

I am scheduled for the Spine Tap on Tuesda,y but my insurance isnt cooperating this Friday afternoon!! I took care of all the preparation for it, now Im just missing my referral.

Of course, along w/all this, I must prepare for my court date w/ the DBD(deadBeat) blah!!!

I cant Thank everyone enough!!!

Oh no I am so sorry to hear the news you received. I hope the spinal tap goes okay on Tuesday & also that the insurance company are made to squirm big time.

Sending all best wishes to you x