My Diabetes and my MS

[Cinnabon]

Hello fam...

Just got home from the Neuro and she read off to my results from my Spinal Tap. Everything is negative which is good, because it rules out A LOT of other disease like; Lupus, tumors, and many others.
She does not want to start me on meds yet, because its sooo early, I was kinda happy, but I guess im eager to start. She confirmed it to me that yes, it was MS and that it is at a VERY early stage. She sent me to the MS center of Miami (http://www.msmiami.org/). There the doctor can pin point a few things for me, such as what I can take for mental alertness, the fatigue, and all that. ALL the ground work is all ready done (ouch!) lol.

I have to thank you all, because I wouldn't have this attitude towards all this if it weren't for all of you.

************* THANK YOU *****************

[Tatermom]

Good for you Cinn for taking such an awesome attitude. I wanna be just like you when I grow up!!:elefant: :elefant:

[gettingby]

Cinnabon, you are truly an inspiration to us all !!!!!!!!!!!!!!!

[Georgia]

You have a fantastic attitude Cinnabon & your message is inspirational to us all :)

[Penny]

It sounds like you are handling this well. They are making all kinds of headway with this disease, so maybe before your progresses much, they will have a cure. :flowers: How are you feeling, anyway?

[Lynne1]

I'm glad you're getting the help you need from qualified people. That must be a relief! I hope you're starting to feel better!:flowers:

[Cyborg]

Glad to hear the good news. Nice to see you back... :)

[valc3]

Glad to hear you got some good news today. Cin, keep that attitude, it will take you far. Hang in there.

[Mister Q]

My Grandad always used to say "I cried because I had no shoes, till I met a man who had no legs" you embody that philosophy Cinnabon, good luck with it all and keep us posted (no pun inteded)

[Tokyo Cate]

That's great, Cinn. I hope the MS center is a big help and helps you manage this well. You have had so much to deal with and you are taking it like a champ. As others have said, you truly are inspiring and your little girl really has a hero to look up to.

Take good care of yourself and have some fun--laughter does really help.

[Cinnabon]

Thanks again everyone... I will post you as I go along. Its funny how u say about my daughter because I recently found this.. Snooping around on her My space..... lol


Heroes: My Mother<;3

[jenet]

I'm thinking that has got to be good news that it was caught very early. Presumably this gives you a head start on managing it?

You are so amazing! Be especially good to yourself for a while - you deserve it.

cheers,
j

[sydneya]

You are my inspiration!! You are bound to have a few discouraging moments, but am glad your personality pushes it to the back and thinks good thoughts.

[notme]

You are amazing Cinn. Your attitude is inspirational to me. Thank you for all you give us here!!!

[am1977]

Well, this isn't the news I wanted for you :frown:....but I think you are handling things exceptionally well :top: and I'm so impressed. Keep this great attitude about things, I think it will definitely help you along the way...

Also, try not to let this overwhelm you too much... Do what you can to learn about what you are dealing with one step at a time :creep:- soon this too will be second nature to manage. ANd please know we're here for you for support whenever you need it :).

[Aftiel]

Cinnabon is my Hero.

/wild applause

- Aftiel

[sydneya]

Cinnabon is my Hero.

/wild applause

- Aftiel
Heh, I'll join in the applause. I actually think your experiences, Cinnabon, could be good book material. How about starting a new venture?

[Erin]

Mars,

I'm glad to see your spirits high... and you really are an inspiration. You're great :flowers: Keep us updated.

[Cinnabon]

Nancy Davis, the author of the book, Lean On Me, was there to promote her book. Nancy has lived with MS for over 14 years and decided to take control of her care rather than putting it solely in the hands of a few doctors. Her book details 10 steps that will help anyone who has been diagnosed with a terminal illness. She was told when Dx that she should go home and rest and lay for as much as she could. This lady has 3 kids, that almost impossible, lol. She stated she went to see about 4-5 doctors that gave her the same DX, unfortunately, but not the same solution. She encourage, 3,4,5, as many opinion that one can get when dx w/ something strong, like MS. Only thing I noticed was, her speech/her mouth was a bit weird or slow. She did walk in very well. Montel enforced this fact & stating that doctors tend to like to play GOD and he encourages everyone that receives any Dx of any disease, to get as many opinions as possible.
Kinda made me look forward to my 2nd opinion Chiro coming up..

I hate the term "terminal".. I know it refers to a disease that is incurable and irreversible, but come on!! that would make Diabetes that too... I HATE that word!!

[Cyborg]

Hey, Life if terminal... It's what we do with it while we are living it that counts!

But I agree. I also hate the term morbid, which they also tag to diabetes.

[klpants]

My applause to you Cinnabon! "What doesn't kill you only makes you stronger"!!!!

Is MS also another Auto Immune disease? as a result of the type 1?

[lgvincent]

Well, darn! I just saw that show and sent you an e-mail about it. Sorry for my ignorance (I have the I. Q. of a small soap dish . . . a REALLY dumb one at that).

[Cinnabon]

Hello everyone,,,,
I have been missing, but I am here. I will tell you that I have had quite a run for a worthy diagnosis of this whole MS deal. It looks like it is MS after all my search. I received another medical opinion, from a neurologist in another country that I had emailed him all my MRI images and Spine Tap results. I was SO wanting it to be Neuropathy, but it looks like its not. I will start Avonex, the injection (medication) on Tuesday. Just when I thought shots were over...:willy: . It will only be once a week. I really hope I do not get any of the side effects. I will keep u all updated.

[Brouts]

Sorry to hear that Cinn. I know its easy for me to say but hang in there, keep up the great attitude

[lgvincent]

I feel very badly for you but keep hoping that you'll soon get some really good news regarding this disease.

[Cyborg]

At least you can start treatment now. Hopefully it's good medicine. Keep us updated...

[KickStart101]

Well Mars, although it's not the result you wanted at least
you are satisfied and did all you could to get the proper
diagnosis. Interesting way that you got the last opinion.
Now at least you can get on your way with maybe acceptance
and treatment since aggressive treatment is valuable in most
diseases/conditions. The sooner the better. We all hope that
it is the mild type.
Keep up your Good attitude and keep us updated. ;)

[Brenda A]

Hello everyone,,,,
I have been missing, but I am here. I will tell you that I have had quite a run for a worthy diagnosis of this whole MS deal. It looks like it is MS after all my search. I received another medical opinion, from a neurologist in another country that I had emailed him all my MRI images and Spine Tap results. I was SO wanting it to be Neuropathy, but it looks like its not. I will start Avonex, the injection (medication) on Tuesday. Just when I thought shots were over...:willy: . It will only be once a week. I really hope I do not get any of the side effects. I will keep u all updated.


Please keep us posted. I am going to talk to my endo again about it. I am losing some use in my legs and arms. I just get so tired of the could be's and expense of testing and still don't know after it is done. Today was painful my joints were so bad, very stiff and sore, my skin hurt. I made an 8 hour drive on top of already feeling bad and everything hurts now. I feel like listing what is not wrong when filling out paperwork at the doctors, it might be the shorter way. LOL Brenda

[Cinnabon]

Brenda,
I really hope it turns out well. As long as anything is diagnosed early, you get an answer to help you and treat. I will keep everyone posted and you do the same, please.:)

[Georgia]

Good luck for Tuesday - I hope the treatment goes well.

[Cinnabon]

Its Tuesday!!
I cant hide that I am SO SCARED!
I have called them and tried chatting w/ a few that are on this medication and they tell me it has no affect on blood sugar or on insulin. They advised me to take it at night (even more worried) so the "FLU LIKE" symptoms dont get to me. I am realizing big time ANXIETY and all kinds of worries! Diabetes is now No worries for me, compared to this. What gets me even more, is that there is NO test in today's time that can prove a 100% Dx of MS, whether yes or NO.... Forgive me if I have repeated this way 2 many times.

[valc3]

Cinnabon, you can tell us about this as much as you need. Keeping it all inside you will just give you an ulcer. You don't need that. It's okay to be scared. The unknown can be terrifying. Take a deep breath, exhale. You can do this and we'll be there for you when you need to vent. You are in my thoughts and prayers.

[sydneya]

What an inspiration you are, Cinnabon. I hope I never need your strength, but if I do I'll remember where to find these posts. There are not too many times to say what is preying on your mind. Repeat, repeat, repeat!! Whatever helps. I pray that your first evening on the medication will go well. Remember we all react differently. Maybe you won't feel the nausea, or maybe it will start with some and get better. Just keep that good attitude coming. Laugh if you need to and cry if you need to. We are here to listen. PM me if it helps. You've listen to my gripes of little things, now let us listen. Good luck!!!

[Lynpenny]

Cin just know that life is what you make of it. I remember being totally petrified when they told me I was having a double bypass. I did everything I could do while being tied to the hospital bed by tubes and wires. I didn't feel bad most of the time. All I could do was give it to God to work through my doctors to treat my heart problems. It so helped me when he took over and I could finally stop worrying. Know I will be praying for you.

[Cinnabon]

Hello everyone...
I finally had the courage to take my shot last night, I had every reason to be scared. I really thought I was dying and I'm not being exaggerated. I had every single side effect of the medication;
fever, chills, sweating, muscle aches, and tiredness.
The following morning I couldnt even eat, not good for a diabetic ;(

It was the most horrible experience I have ever had. A real bad Hypo cant even compare, so you guys can have a better idea. No matter how many covers I had on, my teeth would chatter and my body aches were unbearable. My Bsugar was perfect, which I would have preferred high blood sugar than that.

[Georgia]

Well done you on taking the shot, you are a brave woman. I'm sorry to hear the side effects you experienced, they don't sound nice. But please try & stay positive my friend :angel:

[sydneya]

Cinnabon,
I'm so sorry for the miserable reaction to your new meds. I just hope that it'll be easier each time or that there is an alternative treatment. And you still have a reasonable attitude. YOU ARE AMAZING!!

[corwin]

I'm sorry to hear the side effects were so severe. You are such a brave woman indeed. It sounds like you have a great capacity to deal with whatever life throws at you, I admire you for that. You are in my thoughts.

[Brenda A]

Hello everyone...
I finally had the courage to take my shot last night, I had every reason to be scared. I really thought I was dying and I'm not being exaggerated. I had every single side effect of the medication;
fever, chills, sweating, muscle aches, and tiredness.
The following morning I couldnt even eat, not good for a diabetic ;(

It was the most horrible experience I have ever had. A real bad Hypo cant even compare, so you guys can have a better idea. No matter how many covers I had on, my teeth would chatter and my body aches were unbearable. My Bsugar was perfect, which I would have preferred high blood sugar than that.


My cousin I was telling you about, said that is the way the treatment is. She has flu symtoms 3 days a week . I guess there is not a way around it as she has been on treatment for many years. I will be praying for you.

[Cinnabon]

I am happy to announce that I took my 2nd shot last night. As my doctor instructed me, I took 1/2. I had NO side effects. I could not believe it. I kept waking up, worried really, and I could not believe I was feeling good.

[Brenda A]

I am so thrilled for you!! Hope it stays that way, it would be so great to skip the ugly side effects.:thumbsup:

[Eri's mom]

That is awesome :)
Praying you keep being side effect free!!! :)

[Georgia]

OMG that is fantastic news to hear...I am sooooo chuffed for you :) No side effects? Brilliant.