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Osiris: Prochymal LinkBack Thread Tools Display Modes
  #1 (permalink)  
Old 10-14-2009, 04:21 PM
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I am a: Type 1
 
Join Date: Jul 2009
Location: Sherman, TX
Posts: 59
Talking Osiris: Prochymal

Hey everyone! I got exciting news today. After extensive testing I have been accepted for a study at the University of Texas Southwestern for the new infusion Prochymal. Basically I will be getting 3 infusions of adult stem cells. I am part of a pretty exclusive club of 60 nationwide type 1's! I am so excited to be a part of the CURE! Is anyone else here taking part in this study?
Cynthia Zinn
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One Touch Ping insulin pump
C-peptide=0.9
Honeymooning!
A1C=7.0
Last Fasting Blood Glucose=153
GAD=123 U/mL
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  #2 (permalink)  
Old 10-14-2009, 04:31 PM
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I am a: Type 2
 
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This is really exciting news Cynthia.

Congratulations!
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Dx Dec 07 Control...nutrition & exercise
Latest A1c 6.1
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Old 10-14-2009, 04:33 PM
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Congratulations! Hopefully you are placed in the treatment arm of the study, not the placebo group.
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Old 10-14-2009, 04:37 PM
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I am a: Type 1
 
Join Date: Jul 2009
Location: Sherman, TX
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Placebo

My attitude about the placebo is that either way I will be helping to advance science. I just think of all the others that could benefit from this study!
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Cynthia Zinn
One Touch Ping insulin pump
C-peptide=0.9
Honeymooning!
A1C=7.0
Last Fasting Blood Glucose=153
GAD=123 U/mL
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  #5 (permalink)  
Old 10-15-2009, 06:57 AM
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I am a: Type 1.5
 
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Location: KCMO
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Quote:
Originally Posted by cynthiazinn View Post
My attitude about the placebo is that either way I will be helping to advance science. I just think of all the others that could benefit from this study!

Yes, exactly. Years ago I participated in a few non-clinical human studies and it was quite interesting. I was working in research at the time and felt it was a good thing to do, so did it. It did give me a different perspective on clinical trials and I would be quite willing to do it again for about anything I qualify for.
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Linda

Initial A1c Feb 6 09: 12%
Aug 24 A1c (MD office) 5.5%
Jul ... C-pep 1.3, GAD-65 > 30

metformin 1000 mg BID
Simvastatin 80 mg
Ramipril 5 mg
T4 125 mcg
baby aspirin
Vitamin D3, 2000 IU (blood values normal, advised to continue this dose by endo)
CoQ10 100 mg
Eating 70 - 90 g carb per day
Interval training on recumbent cycle
BMI is down to ca. 25.8



According to Joslin's Diabetes, 2005 ed., 5 - 30% of those diagnosed as Type 2 actually have LADA.
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  #6 (permalink)  
Old 10-15-2009, 08:07 AM
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Location: Greater San Diego area
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Quote:
Originally Posted by foxl View Post
Yes, exactly. Years ago I participated in a few non-clinical human studies and it was quite interesting. I was working in research at the time and felt it was a good thing to do, so did it. It did give me a different perspective on clinical trials and I would be quite willing to do it again for about anything I qualify for.
You should move to San Diego. The local weekly, "The Reader," is full of ads seeking people to participate in tests of treatments for diabetes (at least, the ones that aren't for lasik or plastic surgery).
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A1c 02/08: 6.5; A1c 05/08: 6.0
A1c 11/08: 5.5; A1c 03/09: 5.3
A1c 09/09: 5.4
No meds
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  #7 (permalink)  
Old 10-21-2009, 04:56 PM
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I am a: Type 1
 
Join Date: Jul 2009
Location: Sherman, TX
Posts: 59
Red face First Infusion

Well, I had my first infusion of Prochymal, adult stem cells today! It was great, everyone at the clinic was so nice! The only thing that bothers me is the taste. It has DMSO in it and if anyone has ever smelled the topical, just imagine that taste in your mouth. So we shall see what happens, maybe I will start to need less insulin, maybe not? Only time will tell.
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Cynthia Zinn
One Touch Ping insulin pump
C-peptide=0.9
Honeymooning!
A1C=7.0
Last Fasting Blood Glucose=153
GAD=123 U/mL
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  #8 (permalink)  
Old 10-21-2009, 05:17 PM
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I am a: Type 2
 
Join Date: Jun 2009
Location: Missouri Ozarks
Posts: 1,886
Keep us posted!

(and how's that lumbar disc?)
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  #9 (permalink)  
Old 10-21-2009, 05:24 PM
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I am a: Type 1
 
Join Date: Jul 2009
Location: Sherman, TX
Posts: 59
Having my MRI Friday, Doc gave me Lortab, Motrin, and Robaxin, plus a lifting profile. It's killing me! I will keep everyone posted on the study.
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Cynthia Zinn
One Touch Ping insulin pump
C-peptide=0.9
Honeymooning!
A1C=7.0
Last Fasting Blood Glucose=153
GAD=123 U/mL
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