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Second Opinion Confirms T 1.5 Diagnosis LinkBack Thread Tools Display Modes
  #1 (permalink)  
Old 04-08-2009, 12:11 PM
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I am a: Type 1.5
 
Join Date: Oct 2008
Location: Montreal ,Quebec
Posts: 133
Second Opinion Confirms T 1.5 Diagnosis

With all the debating which has gone on here abt T1.5 ,I am afraid to admit my second opinion endo confirmed dx of T1.5. It was based on a C-peptide test and I am awaiting a copy of those results so that I can share it with you wiser D's because I will NOT know what the #'s will mean. I am feeling a bit scared at the prospect of taking insulin but the meds make me feel like ****. I am tired of NOT losing weight despite all my best efforts and I am tired of the meds side effects. Maybe with insulin I will feel better. Who knows? Maybe I will lose weight if on insulin and not on all this toxic stuff !!!!
Today is the first day that I AM MIXED BETWEEN RELIEF OF KNOWING i HAVE DONE EVERYTHING I CAN TO improve my health and resigned that insulin is my only choice in order to feel better. Sorry for the rant!!!
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Old 04-08-2009, 12:15 PM
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I am a: Type 1.5
 
Join Date: Feb 2009
Location: KCMO
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Aw, I am sorry.

In the position of not knowing, myself ... I totally understand how you feel. I think I would absolutely the smae way -- like getting a Type 2 dx was not enough, now you grieve all over again.

Hang in there and I hope you feel better about it soon.
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Feb 18 A1c 6.1
Nov 30 A1c (MD office) 5.6%
Jul 09 ... C-pep 1.3, GAD-65 > 30
Mar 10 C-pep 2.8 (20 g carb); GAD 3.2

metformin 1000 mg BID
Simvastatin 80 mg
Ramipril 5 mg
T4 125 mcg
baby aspirin
Vitamin D3, 2000 IU
CoQ10 100 mg
Eating 70 - 90 g carb per day
Interval training on recumbent cycle
BMI is down to ca. 25.2


coming soon ... : Levemir


We DID NOT eat our way here.
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Old 04-08-2009, 12:19 PM
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I am a: Type 2
 
Join Date: Sep 2007
Location: Alabama
Posts: 555
I hope you are feeling better soon. I am t2 and I am so tired of the stomac issues with metformin. I never know when problems will flare up. It is so hard to make plans or even stay at work some day. I am thinking about asking the doctor to change my meds.
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Old 04-08-2009, 12:26 PM
Jan B's Avatar
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I am a: Type 1
 
Join Date: Aug 2007
Location: Southlake, TX
Posts: 3,042
As a T1, I'm very, very happy I don't have to take meds that make me sick at my stomach. I love insulin! It's sad that people are worried about injections, and often delay getting on insulin when it would make them feel so much better!

I really feel bad for all the people who can't get a correct diagnosis. When you finally know exactly what you are dealing with, I would think that you could get a little more settled.

I wish you good progress and some mental relief before too long.
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Last A1c was 5.9
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Old 04-08-2009, 12:43 PM
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I am a: Type 1.5
 
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Location: KCMO
Posts: 8,670
Quote:
Originally Posted by Jan B View Post
As a T1, I'm very, very happy I don't have to take meds that make me sick at my stomach. I love insulin! It's sad that people are worried about injections, and often delay getting on insulin when it would make them feel so much better!

I really feel bad for all the people who can't get a correct diagnosis. When you finally know exactly what you are dealing with, I would think that you could get a little more settled.

I wish you good progress and some mental relief before too long.
You make a good point, and Inow am concerned that I sounded too negative! It was not so hard being on insulin while I was in the hospital ... and FEELING BETTER would be worth it ... less anxiety about control, too!
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Linda


Feb 18 A1c 6.1
Nov 30 A1c (MD office) 5.6%
Jul 09 ... C-pep 1.3, GAD-65 > 30
Mar 10 C-pep 2.8 (20 g carb); GAD 3.2

metformin 1000 mg BID
Simvastatin 80 mg
Ramipril 5 mg
T4 125 mcg
baby aspirin
Vitamin D3, 2000 IU
CoQ10 100 mg
Eating 70 - 90 g carb per day
Interval training on recumbent cycle
BMI is down to ca. 25.2


coming soon ... : Levemir


We DID NOT eat our way here.
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Old 04-08-2009, 01:09 PM
mortis505's Avatar
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I am a: Type 1.5
 
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Location: Federal Way, Wa
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Well pands welcome to the 1.5 club, where the cool kids hang out.

While going on injectables may seem daunting, the increased level of control after your struggle will make you feel so much better.
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05/08 = 5.9
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Old 04-08-2009, 01:20 PM
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I am a: Type 1.5
 
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Location: NJ
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welcome to 1.5, pands!!...what position do you want to play on the team? Seriously, i am glad your dx is settled and now you can begin to get an action plan together...we will need you for spring training...
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Type 1.5 or whatever u want to call it!

Novalog & Levemir...
a1c..6.1 drats!!

all in good time...
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Old 04-08-2009, 01:23 PM
sugardumplin's Avatar
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I am a: Type 1.5
 
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Location: Louisiana
Posts: 655
Hey! Congrats on getting a second opinion! The sooner you get a good diagnosis, the better the treatment, the better you will feel.
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Old 04-15-2009, 05:35 PM
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I am a: Type 1.5
 
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I know that going on insulin can be daunting, but you'll feel so much better you'll soon see it's really worth it.

My original PCP had me on insulin as soon as I was diagnosed even though he originally thought I was T2.

You couldn't pay me to try handling this disease with just meds and diet. I'm not that tough.
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Old 04-15-2009, 06:13 PM
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I am a: Type 1.5
 
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Location: Maryland
Posts: 305
Welcome to the club!
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Old 04-16-2009, 09:29 AM
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I am a: Type 1
 
Join Date: Nov 2008
Location: Topanga CA
Posts: 1,313
Hi Pands. Yup...the thought of injecting insulin can be scary, BUT within a very short time you'll be an expert! And you'll feel better too.

Two little bits of advice if you start with MDI and not a pump: First, make sure your doctor prescribes the finest needles available (BD make a 31 gauge). Second, when you get your syringes take a look at the needle through a magnifying glass. You'll notice that it has a beveled end. By positioning the needle so that the sharp point enters your skin first you'll find that you almost can't feel the shot and bruising is kept to a minimum. Hmmmm...is this TMI?

Good luck!

Jen
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Old 04-17-2009, 11:26 AM
DCaplinger's Avatar
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I am a: Type 1
 
Join Date: Dec 2007
Location: Southwest Missouri, USA
Posts: 720
Quote:
Originally Posted by Jan B View Post
As a T1, I'm very, very happy I don't have to take meds that make me sick at my stomach. I love insulin! It's sad that people are worried about injections, and often delay getting on insulin when it would make them feel so much better!
I couldn't agree with you more Jan! My diabetes educator called the other day to tell me that my sugars looked good, and there were no changes to my insulins. I told her that I finally had my ranges figured out. She told me that I really needed to restrict my diet. I responded with "I'm a Type 1, I don't need to worry so much about it". She fired back with a "but you have the worst type". I totally disagreed with her.

I have proven time and again to the doctor that I can eat what I want, and still control my numbers (don't get me wrong... by eating what I want... I mean in severe moderation!). If I want cake... I'll have some cake. If I want a cookie... I'll have a cookie. I have to account for every gram of carb and shoot insulin for it, but other than that, I can enjoy it just as much as a non-diabetic would.

I really do feel that Type 2 is worse, because they really have to watch what they eat closer than we do. Sure, I have to count carbs, but I also have insulin that works when I do eat them. I don't have to take medications, or suffer their side effects. I also don't have to face a plethera of marketers trying to sell me their diabetes control cra... err... stuff.

Let's face it, I don't have the money to blow on stuff I don't need. Stuff like Glucerna sounds great, but is waaaaay over priced. I often feel they play on peoples fear to make a buck... and it irks me greatly. Too bad we can't all be on insulin, and leave the rest to the crazies out there.

Don't ever feel sorry for me that I have to take multiple shots everyday. I rarely feel them, and I don't have to take medications. I hope that someday they do find a cure for Type 2, though. There are just too many people suffering from it now and it certainly is no coincidence! I really love hearing the campaign materials from the food industry touting the safety of high fructose corn syrup. And of course, they want us to think it's just a coincidence that since sugar has been replaced with HFCS in most of our beverages and a lot of our foods, that the numbers of patients diagnosed with Type 2 diabetes has swelled a myriad fold? Nah, I must just be a consipiracy theorist.

Food didn't give us diabetes. Poor choice of ancestry did that for us (for most of us). However, the food we eat can play a big role in triggering the initial onset of the disease... and of course... plays a pivitol role in how well we can maintain the treatment of it.

I'll jump off my soap box... but as I said... I agree with Jan... I feel blessed to be a Type 1. When I was originally diagnosed as a Type 2, I felt like my world was collapsing, because I was going to have to make all these diet changes. When I was rediagnosed, that all was lifted from my chest.

Regards,

D
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Diagnosis: Misdx'd T2 on 12-20-07; Dx'd T1 (LADA) on 01-28-08
Treatment Plan: Pumping with the Animas Ping as of 07/2009
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Old 04-18-2009, 02:17 AM
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Join Date: Jun 2008
Posts: 552
I agree with you DC caplinger. I feel type 1 is a lot easier than type 2. If you manage your type 1, you can do really well. Food doesn't give us diabetes (not me anyway) and I still get to enjoy food and cover it with insulin. My husband who has type 2 pre-diabetes can't eat the cake as well as the steak and potato like I can when we go out. I cover it with insulin, the fat slows the metabolism down and I rarely go above 9.

I was very glad when they put me on insulin straight away. I think it is so easy to take shots. If you figure out how much insulin to take and eat meals in the 15g carb increments, and your pancreas is stable it is so easy to make your blood sugar levels stable!

I eat so healthily now and have more energy which is another bonus!
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