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09-22-2009, 02:28 PM
| | Member
I am a: Type 1.5 | | Join Date: May 2009 Location: Lansing, Mi
Posts: 108
| | | My endo is pretty convinced that IR isn't an issue here. He considers me to be an athlete. My BMI points away from that as well. Like I've said before, all my tests show that I'm in the peak of health except for that little blood sugar problem. They don't call this "Atypical Diabetes" for nothing!
I went at the carbs with a vengeance. If it spiked my bg - it was gone. I quickly got down below 40 carbs a day and sometimes wouldn't go passed 20. At this time, the meds had yet to work so exercise and diet was all I had.
I was hungry then but not overly tired even though I had dropped close to ten pounds. It was after the meds kicked in and my bgs began to drop that I started running out of gas. I figured this was due to false hypos but it didn't stop. One minute -fine, the next - exhausted. I started adding back in carbs about a week ago and it has started to let up. Slowly, I'm getting my energy back and it correlated with me increasing my carbs. I'm not spiking either so I'm seeing that I have to have at least 60 carbs a day or I feel lousy.
So we are going to see how it goes.
Mike | 
09-22-2009, 02:46 PM
| | Senior Member
I am a: Type 1.5 | | Join Date: Feb 2009 Location: KCMO
Posts: 5,429
| | | Mike, what about Actos ... ? Could it be causing the fatigue?
__________________
Linda Initial A1c Feb 6 09: 12% Aug 24 A1c (MD office) 5.5%
Jul ... C-pep 1.3, GAD-65 > 30 metformin 1000 mg BID
Simvastatin 80 mg
Ramipril 5 mg
T4 125 mcg
baby aspirin
Vitamin D3, 2000 IU (blood values normal, advised to continue this dose by endo)
CoQ10 100 mg
Eating 70 - 90 g carb per day
Interval training on recumbent cycle
BMI is down to ca. 25.8 According to Joslin's Diabetes, 2005 ed., 5 - 30% of those diagnosed as Type 2 actually have LADA. | 
09-23-2009, 12:42 PM
| | Member
I am a: Type 1.5 | | Join Date: May 2009 Location: Lansing, Mi
Posts: 108
| | | No doubt Actos plays a part Linda
The fatigue didn't start until the Actos kicked in so it certainly is playing a part. But you have to figure that anything that lowers blood glucose has to be something of a drain. I really wonder about how this drug works. I know what the literature says but frankly a shot of whiskey seems to lower my bg faster and with less side effects then this stuff.
Right now I'm in the situation of taking in more carbs to offset the fatigue. I am more ready than ever to go on insulin and drop this drug.
Mike | 
09-23-2009, 12:53 PM
|  | Senior Member
I am a: Type 2 | | Join Date: Nov 2008 Location: Portland, OR
Posts: 620
| | | Mike,
I know Linda touched on it earlier but has your endo checked your T levels? There is a couple threads on DF about low testosterone and D.
__________________ Humulin U-500 Pumping Pink Ping
Metformin 850mg 3x a day
Cpap 18 Cm H2o with Ultra Mirage Full Face Mask
Aspirin 162 mg a day
Zetia 10mg a day
Tricor 145mg a day
Benazepril 20mg a day
Dyazide 27.5-25mg a day
Metoprolol 50mg a day
Lyrica 50mg 2x day
Vicadin 325 x 5 2x a day
Fish Oil - Glucostimine - Vit D | 
09-23-2009, 01:48 PM
| | Senior Member
I am a: Type 1.5 | | Join Date: Feb 2009 Location: KCMO
Posts: 5,429
| | Quote:
Originally Posted by Rekarb Linda
The fatigue didn't start until the Actos kicked in so it certainly is playing a part. But you have to figure that anything that lowers blood glucose has to be something of a drain. I really wonder about how this drug works. I know what the literature says but frankly a shot of whiskey seems to lower my bg faster and with less side effects then this stuff.
Right now I'm in the situation of taking in more carbs to offset the fatigue. I am more ready than ever to go on insulin and drop this drug.
Mike | Mike, I would get call your MD and get off it, ask for something else, your choice. It did not affect me that way, in fact I had no obvious side effects, but I am just as glad to be rid of it.
I think there is more to it than lower blood sugar -- I actually feel BETTER, lower, and more energetic.
__________________
Linda Initial A1c Feb 6 09: 12% Aug 24 A1c (MD office) 5.5%
Jul ... C-pep 1.3, GAD-65 > 30 metformin 1000 mg BID
Simvastatin 80 mg
Ramipril 5 mg
T4 125 mcg
baby aspirin
Vitamin D3, 2000 IU (blood values normal, advised to continue this dose by endo)
CoQ10 100 mg
Eating 70 - 90 g carb per day
Interval training on recumbent cycle
BMI is down to ca. 25.8 According to Joslin's Diabetes, 2005 ed., 5 - 30% of those diagnosed as Type 2 actually have LADA. | 
09-23-2009, 05:07 PM
|  | Junior Member
I am a: Type 1.5 | | Join Date: Oct 2008 Location: Durham, NC
Posts: 74
| | Quote:
Originally Posted by Rekarb Linda
The fatigue didn't start until the Actos kicked in so it certainly is playing a part. But you have to figure that anything that lowers blood glucose has to be something of a drain. I really wonder about how this drug works. I know what the literature says but frankly a shot of whiskey seems to lower my bg faster and with less side effects then this stuff.
Right now I'm in the situation of taking in more carbs to offset the fatigue. I am more ready than ever to go on insulin and drop this drug.
Mike | Why are you taking Actos if the Endo doesn't think you have IR?
I would bail on Actos and try only Metformin for awhile before you head towards insulin. You seemed to have good experience with Met previously right?
And sorrry when I responded the other day, I wasn't aware you had started medications! Last we were talking you were just doing diet and exercise....
__________________
Parent to 4 yr old MODY3 (not expressing yet)
Diagnosed "borderline" diabetic at age 13 (1976)
Sequenced MODY3 (W267NX/N) by Exeter (2002)
Diet,exercise,herbs & acupuncture until pregnant in 2004
Sliding scale Humalog since Sep04, tried Byetta Dec08
75% raw/Paleolithic diet since Mar09
Now only need Humalog w/cooked carbs 1-5 times/wk
Feb 2009 HbA1c: 6.1
Jun 2009 HbA1c: 5.9 
Aug 2009 HbA1c: 5.8
Viva Green Smoothies!
| 
09-23-2009, 11:42 PM
|  | Junior Member
I am a: Type 1.5 | | Join Date: Oct 2008 Location: Durham, NC
Posts: 74
| | Quote:
Originally Posted by Rekarb Thanks Teala
You know exactly what I'm talking about but do I have to feel like this for months? And why should that be the case for sooo long?
I've been feeling better now that I'm boosting my carbs and I read what you've been writing about the green smoothies but frankly it sounds really terrible. I've changed my diet considerably over the last few months and my taste buds and stomach are in slight rebellion. Where's the Udon noodles, pasta and that delicious syrup they lavish on pancakes up the street? They are not happy campers and a green smoothie might make them storm castle.
Uneasily wearing the crown
Mike | All I can say Mike is that I feel so much better when I drink green smoothies, so much more balanced, and have less cravings that I don't care how green they look or how yucky they "sound". S'ok, you don't need to try the green smoothies... leaves more fresh greens available for me to consume
My first 2 months were the worst, and were before I discovered how to make green smoothies. But when I started them, they really helped even out the low-blood sugar "flu" type & spacey symptoms! And I felt that way just bringing my HbA1c down from 6.1 to 5.8 - and you were up there in the 9's.
It really isn't unreasonable to expect a few months or even a year of transition when we may have had high blood sugars going on for 5 years, 10 years or longer!? I don't know how I walked around with my blood sugars spiking up around 160-200mg/dl after lunch and dinner for years. Now that I am coming down below 120 most of the time, when it goes back up that high I feel awful!
__________________
Parent to 4 yr old MODY3 (not expressing yet)
Diagnosed "borderline" diabetic at age 13 (1976)
Sequenced MODY3 (W267NX/N) by Exeter (2002)
Diet,exercise,herbs & acupuncture until pregnant in 2004
Sliding scale Humalog since Sep04, tried Byetta Dec08
75% raw/Paleolithic diet since Mar09
Now only need Humalog w/cooked carbs 1-5 times/wk
Feb 2009 HbA1c: 6.1
Jun 2009 HbA1c: 5.9 
Aug 2009 HbA1c: 5.8
Viva Green Smoothies!
| 
09-24-2009, 04:08 PM
| | Member
I am a: Type 1.5 | | Join Date: May 2009 Location: Lansing, Mi
Posts: 108
| | | Green Smoothies Okay, you broke me down and I actually made one. It was very good! I'm a convert. It spiked my bg way up though. I'll have to do some experimentation to get it to work better but I don't see that as a problem.
Met didn't work for me until I was given the Actos with it. My endo believes that, given time, I won't feel tired then the whole question will be how it's working over time. I'm still doing the 120 to 150 thing even with low carbs. Of course, my exercise has fallen off due to the lack of energy. As my energy returns though I'm going back to being my active self. Once again, I'll wait and see.
Mike | 
09-24-2009, 05:23 PM
|  | Junior Member
I am a: Type 1.5 | | Join Date: Oct 2008 Location: Durham, NC
Posts: 74
| | Quote:
Originally Posted by Rekarb Okay, you broke me down and I actually made one. It was very good! I'm a convert. It spiked my bg way up though. I'll have to do some experimentation to get it to work better but I don't see that as a problem.
Met didn't work for me until I was given the Actos with it. My endo believes that, given time, I won't feel tired then the whole question will be how it's working over time. I'm still doing the 120 to 150 thing even with low carbs. Of course, my exercise has fallen off due to the lack of energy. As my energy returns though I'm going back to being my active self. Once again, I'll wait and see.
Mike | Mike,
I'm so glad you gave it a try! And thanks for letting me (us) know. I hope they help you in your efforts, but we all must experiement with what works for our own bodies.
When I first started the green smoothies, if I had a lot of high glycemic index fruit in them, and I ate them later in the day (my personal worst time of day for blood sugar control), I did see a couple of spikes. But after several months now, I really haven't seen anything much over 120. I watch the ratio of fruits to greens and also try different fruits that will hit a little slower. For a long time I just did spinach (2-3 cups packed spinach leaves) with 2 cups water, one medium size apple and about 1/2 banana. The other thing I use frequently in the smoothies is chia seeds. This makes it more of a "pudding", but the soluable fiber in chia is very good for the digestive track and moderating absorption of the fruit sugar. The other factor is that the quality of blender may effect how well the greens get broken up.
I really recommend Victoria Boutenkos book "Green for Life" - there is so much good information in there and it fills in many reasons why green smoothies can help support our health!
Cheers,
Teala
__________________
Parent to 4 yr old MODY3 (not expressing yet)
Diagnosed "borderline" diabetic at age 13 (1976)
Sequenced MODY3 (W267NX/N) by Exeter (2002)
Diet,exercise,herbs & acupuncture until pregnant in 2004
Sliding scale Humalog since Sep04, tried Byetta Dec08
75% raw/Paleolithic diet since Mar09
Now only need Humalog w/cooked carbs 1-5 times/wk
Feb 2009 HbA1c: 6.1
Jun 2009 HbA1c: 5.9 
Aug 2009 HbA1c: 5.8
Viva Green Smoothies!
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