[tealas]

Originally Posted by lilmoe76

I am in MN-and for the record-I totally agree! Especially after the way I was treated today-my Diabetes Educator didn't show up for my appt. I was able to sneak in and see my PCP (after I cried to the receptionist) and she said they would never prescribe meds for my levels, I was a type 2 due to my age (I am 32)and to change my diet! No extra tests or anything. Not the answers I was looking for-so I am very glad I have my appt with the Endo!
I have a feeling I am going to be pretty anal about my levels as well!
I am gathering from these forums that you all have had such a long road trying to advocate for yourselves and get the right diagnosis, looks like I am going to need to be armed with lots of knowledge!
Thank you all for the support, I now have a meter (I bought one on my own and had the nurse show me quick how to use it) so I will be obsessively checking my blood!

Have a good one!

That is shabby!!!
A 6.6 HbA1c definitely can use treatment - especially with a post-prandial reading of 243mg/dl!

You do need better doctor. You might want to ask if this Endo you have an appt with currently treats LADA or MODY patients so they know about the situation you are facing? If they don't know what LADA or MODY are, you may want to keep looking! Because you first need to figure out if you have antibodies (LADA), or if you are more likely some form of MODY.

But either way you do need treatment. A good read is "Blood Sugar 101" by Jenny Ruhl. She documents why post-meal blood sugars over 140 mg/dl can lead to futher beta-cell loss and other diabetic complications. If you are indeed MODY3 - this would be a very common pattern of spikes after meals, but potentially normal fasting blood sugar levels. The spikes add up to increased cardiovascular events over the years. So for MODY3's that can be treated by orals, typically they use sulfs or something like Starlix right with meals to treat the spikes.

If you need research articles to bring to doctors appointments, just ask me and others on this board. You will need to advocate for yourself, but don't take no for an answer. Regular blood sugars of 243 mg/dl should be treated, unless you can get them down with a low carb diet (and you are interested in that sort of approach and can feel well on it). Some folks also find that increasing raw and alkaline foods in their diet lower their blood sugar levels (I am one of those).

If you indeed find out what form of MODY you are, you will potentially be in a position to help your other family members with "brittle" characteristics to better treat their own diabetes. I've been able to do this for my Uncle, because even though he hasn't done the genetic test we can pretty much assume he is MODY3, as he is on that side of the family etc.

I hope this endocrinologist is much better!
Teala

[SB_Krista]

Sometimes I wonder if the PCP's are just conforming to some arbitrary protocol handed down to them by the insurance companies (i.e. patient presents at age definitely NOT juvenile therefore T2 diagonosis, maybe prescribe metformin, the first line of meds thrown at T2s). That is what happened to me, and it was only after I saw no improvement on metformin that I got the referral to see an Endo, and more tests were run.

Lilmoe, my recommendation is to keep a dietary log, and test 2 hrs after a meal, as well as upon waking. After a couple of weeks of this, try to look at the big picture as see where you can make diet modifications. You stated in your first post that you are not overweight, so be careful about cutting carbs and losing too much weight.

Good luck!