[dgrilli]

This is my first post and I was Diagnosed in July of 2001.

In 1995 I suspected I was having trouble with this and went to the Hospital and had one of those tests that you drank this Soda Orange they tested every 15min to 30minutes I could recall? At the end of 3 Hours I had BG of about 400 and they said I was ok and needed to just watch my Diet. I went to the Hospital because I so tired and thirsty all the time and felt like every ounce of energy was drained out of me. I was actually blacking out and falling out of unconscious. I would be like a zombie and would frequently go out just like a Narcoleptic, I would drool and past out. This went on til July of 2001. All the While so Thirsty So Tired.

In January of 2000 I had a severe pain on my side abdomen and I thought I was going to die. I went to the Hospital and they gave me pain meds by Injection and sent me home and I was ill for 2 weeks I would sweat gallons of sweat and soke the cushion on the floor and blankets, I could not hardly walk the pain was so great. They found my Gall bladder was full of stones and was so badly damaged they had to remove it.

After this I would continouly go to the Doctor and complain of numerous ear and soar throt infections and sinus infections Would have fevers and would beg for Antibiotics for sinus infections. Many times I was told I had the Flue and Antibiotics would not help me. So Thirsty So Tired.

The Blackouts were becomming worse and I frequently did not have the faculties to even think. At work the Air Condition was set a cool 70 and every one would wear sweaters but I would break out into severe sweats and also felt that I never had even enough energy to even get out of bed to put my clothes on.

A very nice woman at work walked up to my desk and sugested that I go to the Emergency room because I did not look good. Well I went and I told the Doctors Office that I'm here to get help and that I felt like I was dying every day. They took my bg and found I had a very BG that their meter only went to 700 and that I was over that. I remember they put me in a wheel chair and wheeled me to the hospital and gave me insulin and within hours I lost my vision. For approximately 45 days thereafter I could only see colors and shapes. The last couple of days of the 45 I started getting flashes of normal vision very sporatic for seconds then go back. I then I got my vison back.

My Doctor was an Endo and he said that I should take injections and that Meds would not help me but he would try Metformin. I took 2000 Mg twice daily and BG's continued to rise, he then added Avandia and within a couple of days my BG's were in the 140's but he warned me that he thought that this will not last and wanted me on insulin. Stayed on thes meds with Low to moderate success.

I started to swell in my legs and feet and would wake up in the mornings stiff as board and couldn't walk down the stairs in the morning. Gain 30 Pounds. Was having real problem with going the the toilet 10 to 15 times a day for a couple of years It got so bad I wanted to live in my bathroom and go on SSI, I'm only 43 and couldn't keep a real job like this let alone drive a car for any real distance. Jan 2006 getting ready to have an accident in my pants and got into a car accident lukily no one injured. Oh did I mention the serious stomach cramps for a couple of years Afraid to eat for fear of severe pains in stomach then to the bathroom again.

In Jan of 2006 I stopped taking all meds and within a couple of months I had lost about 35 pounds and felt great but then I got what felt like a mild flue and couldn't shake it. Felt real sick again So Thirsty Drinking Gallons of Water a day Urinating profusely. Sugars at 498 BG Went to Emergency room and no help there.

Went to the Doctor in April 2006 and was prescribed 70/30 taking 10 in morning 20 in eve. Started feeling little better but no real drop in sugars. Started taking 25 morn 35 Eve and feeling better not so thirsty any more but no real great drop in sugars. July 2006 Started taking 45 morn and 45 eve. Feel like almost normal and not so tired and thirsty but sugars hoovering the BG's of 250 to 300. Had a couple of stressfull days and sugars shot up to 369 but consumed Twizzlers Licorice at the Movie Theater Friday Night But don't feel lethargic no real increse in thirst and not tired and can think stratight. Increased to 50 morning and 50 eve.

Had one of those c1Ac tests and was 11. Took an Cpeptide test on July 6th and a GAD The Mayo Clinic did the Analyzing.

Gad was : 4.7 and 5.1 Expected values of less than 25.

C-Peptide was 4.0 and the other number was 1320. 0.9 to 4.3 Expected values.


I'm wondering what the heck is wrong with me?? Type ?

[duck]

If I am right, I think with CPeptide readings like that, you are Type 1...But to have lasted so long without the right meds is nothing short of a miracle. Maybe someone else can interpret the results better...


BTW, I probably need to put this in my sig: Pre-mixed insulins SUCK on so many levels. You wonder why you feel like poop? Well, they're not helping.

[dgrilli]

Diabetis ran in my family big time. When I was a kid I could never gain a pound and often had ear Infections and sore throats. My dads Family his sisters were taken Insulin for 40 years. My Dads Mother's side had amputaions.

Right now I think the Novolin 70/30 is not really helping to much it's NPH/R. I need something to bring me down to normal range .

My Insurance Company bought me a Animas 1250 Pump and I trained on it with saline solution for about a week. Everyone who saw my numbers and symptons said I would benifit from a different insulin and a Pump uses that type I would need.

My Endo went schizzo that I got the pump and so far will not order Insulin for it.

So it sits here in my home with no use, but he did say on july 5th before the results of C-Peptide and Gad I got today that I could probably benifit from a pump.

He wants me to take Long acting Metformin Name Brand againSR. But I defininetly do no want to get those symptoms ever again I listed above. I think a couple of years taking that was long enough.

[duck]

Call the pump co...tell them you need a sympathetic endo, and they should have some in your area.

If you could see the look on my face right now...

Get off the mix. Even if you don't end up pumping, get off the mix before it kills you. You can't have precision with it (we complained about the "mixed" insulins earlier today: http://www.diabetesforums.com/type-2...75-25-a.html?).

[dgrilli]

The Animas Nurse Ladie said that this 70/30 was not a good idea because of my BG's. My BG's are almost always higher when I wake up. She and others thought I would greatly improve on the pump.

Many think I'm a Type 1 But I don't really know. Did you know there was a couple of days in the last 6months that I was in the 100" BG's but only for a day and another day I reading. I'm testing 2 to 5 or 6 times a day.

Right now been high for about 3 days over 300 like 369 and 389. Novolin not bringing me down.

Does anyone know what thatem Readings are:

GAD 4.0 Expected .09 to 4.3 Also this Reading 1320 with an Expected Value of 297-1419.

C-Peptide 4.7 Gliadin IgG; S Expected 25 or Less and 5.1 Expected 25 or Less. This had a Gliadin IgA. s

Just got the results today Jul 17 2006.

Any Body Know?

[Simon]

My understanding is that if you have anti GAD antibodies in your blood at all then you are likely to have type 1. Your not responding well to oral meds would seem to back this up as well. My guess is that you are LADA but I would agree that you need to be on a different regime and probably on higher doses. Have you ever had a hypo? If not you almost certainly need to be on bigger doses. Not that hypo's are a good thing, just that they only happen when you running your sugars close to normal most of the time.

I would also get your thyroid checked out. All that sweating is a bit of a smoking gun.

[Lex4153]

I'm so sorry for all your problems. I know how it feels to be a "medical mystery" and not know what's wrong with you. I suspect you may be Type 2 but you are probably at the point that you need insulin since Metformin didn't work.

I was misdiagnosed almost ten years ago as Type 1 and just found out this past April I'm Type 2. I'm now on type 2 oral meds and have responded very well on the lowest dose of meds possible. I, like you, did not take insulin for a long period of time (5+ years). My doctor told me if I was indeed a Type 1, I should have died. I'm not sure what all your numbers mean, but I know that I had a c-peptide test and it came back inconclusive over and over. I had another test that tested for amounts of insulin in the body and insulin antibodies, which determined that I was Type 2 for sure. I don't know the exact results of the test, only what my doc concluded from them.

[dgrilli]

I'm Thinking the no meds were approximately 2- 4 months no more without meds Jan til about April 2006.

[dgrilli]

I wanted to say this morning my Bg is now 190. This is great. Maybe that increase of insulin to 50 twice a day helped.

Did anyone have small open soars that would never heal? I had those on my forehead and arms for several years the same sores that would never heal.

They miracously disapeared when my BG's came down in 2001 and have never returned.

I will ask today to get off of that 70/30 maybe it is not for me. It has helped to keep me down from the 500 BG mark though.

I wish all of you to get better and keep healthy

[TxTechKimmy]

Definitely get off the mix..and the fact that your endo won't prescribe insulin for your pump..red flag. I'd definitely try to find a different endo.

[grace girl]

Originally Posted by duck

If I am right, I think with CPeptide readings like that, you are Type 1...But to have lasted so long without the right meds is nothing short of a miracle. Maybe someone else can interpret the results better..

I may be able to explain that from my own experience. I went two years with no meds because I was flat out in denial. When I finally got my mind back and went to the the Dr the c-peptide showed that I was producing NO insulin on my own....yet I had never been sick enough to go the hospital and had survived the experience with only the usual miseries...

My current endo says that this is one of the indicators of type 1.5. All the same sypmtoms and test results of type 1...but the later in life diagnosis (which is often misdiagnosed at onset as type 2 due to age) and apparently no problems with ketoacidocis are common markers of 1.5.

[butterflykisses]

Originally Posted by dgrilli

The Animas Nurse Ladie said that this 70/30 was not a good idea because of my BG's. My BG's are almost always higher when I wake up. She and others thought I would greatly improve on the pump.

Many think I'm a Type 1 But I don't really know. Did you know there was a couple of days in the last 6months that I was in the 100" BG's but only for a day and another day I reading. I'm testing 2 to 5 or 6 times a day.

Right now been high for about 3 days over 300 like 369 and 389. Novolin not bringing me down.

Does anyone know what thatem Readings are:

GAD 4.0 Expected .09 to 4.3 Also this Reading 1320 with an Expected Value of 297-1419.

C-Peptide 4.7 Gliadin IgG; S Expected 25 or Less and 5.1 Expected 25 or Less. This had a Gliadin IgA. s

Just got the results today Jul 17 2006.

Any Body Know?

I'm not sure what "expected" means. All my lab results have a "normal" references?

[duck]

Originally Posted by dgrilli

I wanted to say this morning my Bg is now 190. This is great. Maybe that increase of insulin to 50 twice a day helped.

Did anyone have small open soars that would never heal? I had those on my forehead and arms for several years the same sores that would never heal.

They miracously disapeared when my BG's came down in 2001 and have never returned.

I will ask today to get off of that 70/30 maybe it is not for me. It has helped to keep me down from the 500 BG mark though.

I wish all of you to get better and keep healthy

Part of the other problem with the mix is that the long-lasting component is NPH insulin...Very volatile...Some days works hard, some days doesn't bother to show up.

[dgrilli]

Well what do you know my Endo ordered insulin for my Animas Pump and will be filling it up Monday the 24th. Maybe all he needed was to get those test results.

This mornings Bg at 190 then right at 1pm before lunch 220 bg. Yes I believe the pump with the fast acting insulin is going to smooth things out. Maybe benificial for me who cannot always be on a meal time schedule.

Just wanted to say thanks all for listening to gripes wished I could have typed good things instead of all my complaints.


You after typing last night and today and reading all of your comments really made feel good. Thank You.

Talking about this was the right thing to do.

[Keezheekoni]

Glad to hear your doctor isn't going to make your equipment go to waste! Yes, talking things out is usually the very way to go!

Rikki