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07-18-2006, 06:33 AM
|  | Member
I am a: Type 1 | | Join Date: Jun 2006 Location: Dallas, Texas
Posts: 108
| | | Neuropathy Do any of y'all have complications from neuropathy? I've started having the intense shooting pains, tingling, numbness, burning and the feeling of spikes in my feet over the last year or so. My doctor just put me on Lyrica and it helps a lot. Just wondering if anyone else is having 'fun' with neuropathy like me. 
__________________ Kimberley
DX 1977
Age 37 www.setlovefree.com I've lost my mind and need to get a new one. | 
07-18-2006, 08:56 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Sep 2003 Location: The city on the edge of forever.
Posts: 4,841
| | | I have some. In 1996 I got a numb spot on my right big toe that was about the size of the circumference of a pencil. Since then, it has grown to be slight numbness in the "outer" edges of several fingers and toes. One thing that really bothers me is if I eat too fast, I will throw up. Doctors have told me they think this is because of nerve damage done around the intestines and stomach. Oh, what a joy! Never knew that could happen.
__________________
Brandy
My Little Princess
August 18, 1990 - May 3, 2006
Say you'll share with
me one
love, one lifetime . . .
Lead me, save me
from my solitude . . .
Say you want me
with you ,
here beside you . . .
Anywhere you go
let me go to . . .
Christine,
that's all I ask of . . .
(you) | 
07-18-2006, 10:45 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Sep 2004 Location: Savannah, GA USA
Posts: 1,519
| | | I've actually been taking Benfotiamine; a lipid soluble form of Thiamine(b1). It has allowed me to regain a slightly noticeable amount of reflex in my left foot. Supposedly, benfo, will help slow down the onset of neurapthy so I'm hoping it does.
__________________ The only way to manage diabetes is to CURE it... Diabetes since December, 1983 Meds: Humalog/Pump since 1998, Synthroid 88mcg, Zetia 10mg, Altace 10mg, Prevacid 30mg, Benfotiamine 600mg, 1-a-day multivitamin, Aspirin 325 mg, Garlic-geltab 4,000mg, methylcel. fiber therapy 2,000mg(for cholesterol) So, what's in your lunchbox? | 
07-18-2006, 11:43 AM
|  | Member
I am a: Type 1 | | Join Date: Jun 2006 Location: Dallas, Texas
Posts: 108
| | | Brandy..I have experienced the stomach issues too. It too is nerve damage as you mentioned..called gastroparesis. I haven't suffered from it in a while, but for a bit there, I was puking after every meal. Nexium actually helped me out.
Archimeech..wow...that's interesting. Is it a prescription? I just hate this stuff, especially at night. The pain can be unbearable at times.
__________________ Kimberley
DX 1977
Age 37 www.setlovefree.com I've lost my mind and need to get a new one. | 
07-18-2006, 01:46 PM
|  | Senior Member
I am a: Type 1 | | Join Date: Sep 2003 Location: The city on the edge of forever.
Posts: 4,841
| | Quote: |
Originally Posted by TxTechKimmy Brandy..I have experienced the stomach issues too. It too is nerve damage as you mentioned..called gastroparesis. I haven't suffered from it in a while, but for a bit there, I was puking after every meal. Nexium actually helped me out. | Hey! My name isn't Brandy. She was my best buddy until I killed her a few weeks ago.
__________________
Brandy
My Little Princess
August 18, 1990 - May 3, 2006
Say you'll share with
me one
love, one lifetime . . .
Lead me, save me
from my solitude . . .
Say you want me
with you ,
here beside you . . .
Anywhere you go
let me go to . . .
Christine,
that's all I ask of . . .
(you) | 
07-18-2006, 04:00 PM
|  | Senior Member
I am a: Type 1 | | Join Date: Aug 2003 Location: CT
Posts: 4,588
| | Quote: |
Originally Posted by lgvincent Hey! My name isn't Brandy. She was my best buddy until I killed her a few weeks ago. |
Ig- I wish you would stop being so hard on yourself~ you did NOT kill her!  I know how much you miss her, but you are not responsible for her becoming ill. You did the right thing and I think that you should find peace in the fact that she isn't suffering anymore. I'm sure she's watching over you from a better place
Back to subject...
I don't experience Neuropathy (not yet)... I hope that the medication helps you with any uncomfortable sensation. Keep us posted 
__________________ I’ve faced myself
To cross out what I’ve become
Erase myself
And let go of what I’ve done
Put to rest
What you thought of me
Well I cleaned this slate
With the hands
Of uncertainty
So let mercy come
And wash away
What I’ve done
I’ve faced myself
To cross out what I’ve become
Erase myself
And let go of what I’ve done
Linkin Park~ "What I've Done" | 
07-19-2006, 12:04 AM
| | Junior Member
I am a: Type 1.5 | | Join Date: Jul 2006 Location: Colchester
Posts: 49
| | | I haven't had it confirmed, but my GP thinks I have diabetic related pain...
Flank pain for 6 months since severe kidney infection; ultrasound clear, bloodwork good except low sodium.
So on Tramacet 4 times daily... its helping a bit...
__________________  Dxd Diabetic 2002; started on Metformin till 2003;
Lantus and Humalog
06/06 15.9%
09/06 8.8 % woo hoo!!
| 
07-19-2006, 12:16 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Jul 2006 Location: Kent, WA USA
Posts: 2,599
| | Quote: |
Originally Posted by Catareta Flank pain for 6 months since severe kidney infection; ultrasound clear, bloodwork good except low sodium.
So on Tramacet 4 times daily... its helping a bit... | I was in the ER yesterday (uh, Monday...) for what I thought was a kidney stone that wasn't passing. Turns out that it was my left ovary! Apparently I have extra blood vessels that were squeezing it  and that was causing the pain in my kidney area. Really weird. I got shot up with 3mg of dilaudid  and sent home with a referral to an OB/Gyn and a script for percocet.
So, since you're having an aching kidney, you might have them look into your ovaries as well...
Rikki | 
07-19-2006, 01:14 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Jul 2004 Location: Ontario Canada
Posts: 3,213
| | Quote: |
Originally Posted by TxTechKimmy Do any of y'all have complications from neuropathy? I've started having the intense shooting pains, tingling, numbness, burning and the feeling of spikes in my feet over the last year or so. My doctor just put me on Lyrica and it helps a lot. Just wondering if anyone else is having 'fun' with neuropathy like me.  | Hi Tx: Geez, that sounds awful. I've not had pain or burning but I
did have a numb middle toe of my left foot many yrs. ago. I had been
neglecting my sugars and testing(cuz I didn't have time.  crazy
yr.)
My Doc confirmed my suspicions(neuropathy). So back to looking
after "myself" much better and I got the feeling back in about 6
mths. I still have no numbness or pain, etc. from Diabetes thankfully,
(kow). For worse neuropathy, it would take longer, of course, and may
not all go away. But it's certainly worth the time and effort. I hope that
you get it looked after so you will be feeling much better.  I'm
glad the Lyrica is helping. I don't know about that drug but I hope it's
not just a bandaid.
__________________
Type 1 for 46 yrs. %%%%%%%%%%
Dxd. Dec./1961 %%%%%%%%%%
MDI ~ %%%%%%%%%% ***CARLIE*** ~*~*~*~*~*~ *Good Luck 07-08 Sens* ~*~*~*~*~*~ ~~ ~~ %%%%%%%%%% | 
07-19-2006, 03:57 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Sep 2004 Location: Savannah, GA USA
Posts: 1,519
| | Quote: |
Originally Posted by TxTechKimmy Brandy..I have experienced the stomach issues too. It too is nerve damage as you mentioned..called gastroparesis. I haven't suffered from it in a while, but for a bit there, I was puking after every meal. Nexium actually helped me out.
Archimeech..wow...that's interesting. Is it a prescription? I just hate this stuff, especially at night. The pain can be unbearable at times. |
No, it's not a prescription. It's a vitamin supplement. PM me if you'd like the address of the place that I've found to order it from. They seem to be the cheapest and are very responsive, however, I suggest you look into it and determine wether or not it is. I've been wrong in the past and if there is a less expensive supplier out there, I'd love to hear about it myself.
The doctors thought I had gastroparesis, and I may still have a mild form of it, but most likely you have GERD, unless you've had diabetes for a long time. I've been taking one form of Prilosec, Prevacid, Nexium, et al, for about 10 years now.
__________________ The only way to manage diabetes is to CURE it... Diabetes since December, 1983 Meds: Humalog/Pump since 1998, Synthroid 88mcg, Zetia 10mg, Altace 10mg, Prevacid 30mg, Benfotiamine 600mg, 1-a-day multivitamin, Aspirin 325 mg, Garlic-geltab 4,000mg, methylcel. fiber therapy 2,000mg(for cholesterol) So, what's in your lunchbox? | 
08-18-2006, 10:08 AM
| | Member
I am a: Type 1 | | Join Date: Jul 2006 Location: Raleigh, NC
Posts: 102
| | | What type of doctor diagnosed your neuropathy? Just curious because my endo- has checked my feet and toes with a """""vibrating""""" device and said that my feet were very good. I would tell her when I would stop feeling the sensation, but I wonder if she didn't check thoroughly, because I have had tingling, sharp pains, and when I get a blister on my toes, sometimes I can't even feel it. Now I'm having annoying pressure and pinpoint burning pains in my hands and down the bottom of my legs to my feet. It's not so much the tingling sensations I'm having, and it is painful and sometimes paralyzing.
Just wondering if going to separate specialists would be more worthwhile than letting the endo- check everything.
How were your suspicions confirmed? What kind of tests?
~Lisa | 
08-18-2006, 10:31 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Oct 2005 Location: Sacramento California
Posts: 2,500
| | | Neuropathy is the only one of the big three (Retinopathy, neuropathy, and nephropathy) that I show no signs of yet (knock on wood, thank god, and pray that continues). | 
08-18-2006, 11:25 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Sep 2004 Location: Savannah, GA USA
Posts: 1,519
| | Quote: |
Originally Posted by Lisa971 What type of doctor diagnosed your neuropathy? Just curious because my endo- has checked my feet and toes with a """""vibrating""""" device and said that my feet were very good. I would tell her when I would stop feeling the sensation, but I wonder if she didn't check thoroughly, because I have had tingling, sharp pains, and when I get a blister on my toes, sometimes I can't even feel it. Now I'm having annoying pressure and pinpoint burning pains in my hands and down the bottom of my legs to my feet. It's not so much the tingling sensations I'm having, and it is painful and sometimes paralyzing.
Just wondering if going to separate specialists would be more worthwhile than letting the endo- check everything.
How were your suspicions confirmed? What kind of tests?
~Lisa |
Lisa, you need to be refered to a Neurologist. The same test that they use for Carpal Tunnel (sp?) is used to test your level of neurapathy.
__________________ The only way to manage diabetes is to CURE it... Diabetes since December, 1983 Meds: Humalog/Pump since 1998, Synthroid 88mcg, Zetia 10mg, Altace 10mg, Prevacid 30mg, Benfotiamine 600mg, 1-a-day multivitamin, Aspirin 325 mg, Garlic-geltab 4,000mg, methylcel. fiber therapy 2,000mg(for cholesterol) So, what's in your lunchbox? | 
08-18-2006, 11:42 AM
|  | Member
I am a: Type 1 | | Join Date: Jun 2006 Location: Dallas, Texas
Posts: 108
| | | Hi Lisa...I agree with Meech. My endo originally said she thinks it is a sign of neuropathy, however, she's sending me to a neurologist just to ensure it is neuropathy caused by the diabetes. My appointment is in a few weeks, so I am unsure as to what tests they will run. She did prescribe Lyrica to me in the interim, and it has helped A LOT.
You're right Brian...Retinopathy, Neuropathy and Nephropathy...I'm just the opposite of you and have all three...sigh. Luckily, there are ways to slow the damage down.
__________________ Kimberley
DX 1977
Age 37 www.setlovefree.com I've lost my mind and need to get a new one. | 
08-18-2006, 01:10 PM
|  | Super Moderator
I am a: Type 1 | | Join Date: Aug 2003 Location: Northern California
Posts: 6,338
| | | I went in for several tests to find out why I had elbow and hand pain. It was determined that I had neuropathy. Now I have Trigger thumb in that same hand. I am taking neurontin, but trying to keep it at a low dose. |  | | | Thread Tools | | | | Display Modes | Linear Mode |
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