[blonde kiddo]

I had the endoscopy yesterday, afterwards the dr said my intestines look like coeliac so I should start a gluten-free diet straight away. Not sure how this might affect my blood sugars?? I guess eventually I might need more insulin when the intestines heal and start to absorb more...

Sarah

[JediSurfer]

Hey Sarah

I'm still waiting for the results. eeeeeek.
Doctors are all over the place with this one. When the consultant did the procedure on me he said there was no way to tell until the biopsy had been examined under a microscope. I suppose there could be scarring if your auto immune system has been attacking your stomach for a while. I dunno.???????

Its really tough looking out for everything which may contain or might have come into contact with wheat, barley, rye or gluten and stuff which contains additives source from such food stuff.
I have been doing quite well avoiding this stuff at all costs but then again the day before yesterday I ate gluten free sausages but didnt realise one of the ingrediants was malt vinegar. wondered why I felt really ill again for two days with all the symptoms and only realised what had happened when I dug the sausage wrapper out of the rubbish bin this morning

Hope your well Sarah.

[blonde kiddo]

Hey, well the gastroenterologist said the intestines look smooth which would suggest coeliac. But yeah its strange one dr says one thing and one says another! Anyway went to see him again yesterday (waited nearly 2 hrs to see him for the outpatient appt and was only in about 5 minutes!) and he said the blood tests also show it.

Yeah there seems to be gluten in so much stuff, even things like gravy! But at least there are alternatives for most things, which I understand can be prescribed after a definate diagnosis as there're pretty pricey. The biopsy results will take 3 weeks to show definately I have it so I guess I will have to go and see GP after then to get prescriptions for food sorted.

Anyway post as to your results Rich.

I read as many as 1 in 14 Type 1's have coeliac so its not so unusual!

Take care
Sarah

[JediSurfer]

Hi Sarah,

Are you going wheat free from now on?

[shabbie6247]

i'm still waiting for my blood test results to come back (they actually lost my first ones!)

but while i wait i've bought this book from amazon its new out and the 'for dummies ' range of books are always so useful.
living gluten free for dummies

[JediSurfer]

Thank you Shabbie, I might order me a copy today.

[blonde kiddo]

Yeah, I've now gone gluten-free. I don't think its going to be too bad, in fact it'll probably make me healthier as I can't just snack on any old non gluten free foods like biscuits, choccy bars, etc anymore that happen to be around the house! Suppose I'll have to go for fruit if I wanna snack, which is healthier all round

[JediSurfer]

I should get my results on Monday and I can't wait. Might even have a party. lol
Heres is a post which everyone should read and I think we all get tested for Coeliacs if not already done so.

Heres the Link
Coeliac Help for sufferers of coeliac,celiac,sprue or dermititus herpetiformus

The doctor whom carried out the tests on me is an advisor for this site.

[Funnygrl]

I'm still amazed you had to wait this long. I got mine the next day.

Are you gonna be disappointed if you don't have it?

[JediSurfer]

Have no idea what I will do if result come back negative. If that is the case looks like I'm a gonna. Be 6 feet under by Christmas.

[JediSurfer]

Been tothe hospital diabetes clinic this morning. No news on the endoscopy but will have a few more tests done for automic nerve damage in the next few weeks. It involes been wired up to a heart monitor and performing a few tasks. Not sure what the tasks are but sounds like fun. But it will take an entire morning urrrgh.
Hopefully get some answers from the gastromed on monday morning. fingers crossed.

[JediSurfer]

Excuse the spelling. thats autonomic nerve damage

[shabbie6247]

well i just got the all clear from the docs. i do not apparently have coeliacs. well thats good. but what on earth is giving all the symptoms? i'm still going gluten free anyway.

[JediSurfer]

Originally Posted by Funnygrl

I'm still amazed you had to wait this long. I got mine the next day.

You got biopsy results the next day? As far as I know that is not possible.

Shabbie did you have and endoscopy? The consultant told me even if blood test where negative the biospsy on my stomach would still be done because its the only way to be sure. the blood test have proven to be inadequate.
Have you now been referred to a gastro enterologist?

[JediSurfer]

Well, NO COELIAC DESEASE.
The biopsy came back negative. But the strange lump on my stomach lining is an inflammed vein but not the cause of my symptoms. Nothing to worry about, not cancer, everything else in my stomach structure is normal.
I am having a CT scan on my pancreas in the next few weeks and a autonomic nerve test on Thurday morning. Also have to give a stool sample to test for a certain protein which is excreted from the pancreas apparently the only protein which passes thru the stomach and bowls and is not altered by the digestive process.
Also another 24 hour urine sample. To test for auto immune disorders. Not sure which as that is being undertaken by another consultant at the other diabetes clinic at the other main hospital.

Good and bad news I suppose. No coeliacs is good, no diagnoisis isn't so good and more tests. Starting to feel like a lab rat.
Gastroparyasis is certainly a possibilty or a pancreatic disorder. After all the islet of Langerhans only make up 1% of the pancreas funtion and all the hormone producing cell work with one another to keep us alive. Take one part away and it throws everything into disorder.

Maybe feeling better from not eating gluten was just wishful thinking and and hope of getting some answers.
I am going for a chicken burger and a pint of beer to celebrate.