[JediSurfer]

I have had serious nausea and fatigue for the last few months. been really unwell and had several hospital visits.
At last the consultant thinks he may have found the cause. Coaliac desease is a condition which causes the auto-immune system to attack the body when I eat food containing gluten or wheat. I am waiting on blood test results and will be having an endeoscopy shortly which should show wether or not this is the problem.

Has anyone else suffered with Coaliac Desease?

[JediSurfer]

Saw the Professor this morning and discussed the nausea problem. He got his friend the head of gastromed whom specializes in coaliac( pronounced siliac) in type one diabetics. He made me an appointment there and then for an endoscopy next Friday morning at 08:45.
He also went on to tell me that coaliac decease is present in 20% of types ones even if now symtoms are present.
I will be so relieved when its all done and dusted. They will administer a sedative. Haven't been been drugged in this way before in hospital does anyone have any advice?

But I have been sedated by pints of beer before now.

Rich

[shockme]

i've had an endoscopy before.they gave me demerol and versed[a narcotic pain killer and a tranquilizer]it knocked me out-then i woke up after it was done.you'll be very sleepy,drowsy and buzzed .the procedure's no big deal at all .good luck-hope they can find what's going on with you.take care,trish

[Funnygrl]

My GI doctor said the same thing about type 1s and Celiac. I'm in the lucky 80% though.

Endoscopies are easy, but most people have the blood test first and only get the scope if the blood test is positive. I had the scope cause I needed one anyway.

I've had 2 endoscopies. The first was under general anesthetic when I was 16. That was really easy.

The 2nd was under "twilight" (demerol and verced) when I was 20. That one was easy too for the actual procedure. I don't remember any of it and slept through it. However, when I started waking up I was having nasty hullicinations and couldn't stop crying and vomiting. Gah. They drugged me up more, I slept for a loooonnnnggg time and life was good.

[JediSurfer]

Celiac Disease is the correct spelling. I think. duh

[JediSurfer]

Celiac Disease is the correct spelling. I think. duh Latin is my weakest language.

Thanks for the info

[poper77]

My endo thought I had celiac disease and told me just stop eating all gluten
As it turns out I am only lactos intolerant. My gastro suggested bloodwork before the endosocpy and it turned out fine. I have had family members get endoscopies and they said it was no big deal - just make sure you have someone there to drive you home. Good Luck

[Funnygrl]

Originally Posted by JediSurfer

Celiac Disease is the correct spelling. I think. duh

It's different depending on if you use British/Canadian/Australian/Etc English or American.

[Gary_W]

Originally Posted by JediSurfer

I have had serious nausea and fatigue for the last few months. been really unwell and had several hospital visits.
At last the consultant thinks he may have found the cause. Coaliac desease is a condition which causes the auto-immune system to attack the body when I eat food containing gluten or wheat. I am waiting on blood test results and will be having an endeoscopy shortly which should show wether or not this is the problem.

Has anyone else suffered with Coaliac Desease?

A good friend of mine has it. Bit of a pain for the diet as, for him, the slightest hint of gluten makes him poorly for several days. It's pretty tough to eat out, as you have to avoid gravy (thickened with flour), batters, fries cooked in the same oil as the batter, beer etc.

A work colleague was also diagnosed with it, though it seems wrongly. He avoided large quantities of gluten for a year or so, though he'd be fine with the gravy etc. He is now fine. As celiacs disease is incurable (so far as I know) he was obviously diagnosed incorrectly. Just as well he decided to test the waters with the diet, as otherwise he would be on a fairly restrictive diet for life.

Loads of people apparantly have gluten intollerance. In fact if you listen to certain health food practiotioners they will tell you that wheat is really toxic to the body and everyone should stop eating it. Being an avid bread muncher, I'll cheerfully ignore that advice unless my body forces my hand.

Personally, I think that saying 1 in 5 type ones have celiacs disease is incorrect otherwise it'd get a lot more coverage on here. It is apparantly a fact that we are more likely to get it than joe public and perhaps we are more likely to be gluten intollerant as well. But what I want to point out is that there is a world of difference between being a full blown celiac and being gluten intollerant.

Good luck with the endoscopy. You'll be fine

Gary

[JediSurfer]

I beleive that the celiac doesn't get much coverage because people are unaware that the condition exits in them. From the results of the study program which started 2 years ago it is already showing 1 in 20 are suffers. I think we will all be tested for this in the next few years. Makes me sort of a rare breed. Infantile diabetes account for one in every thousand of us and my father was also type 1 from being an infant.
I'll be happy with this diagnoisis, beats autonomic nerve damage anyday.

[HelenM]

Originally Posted by JediSurfer
Celiac Disease is the correct spelling. I think. duh
Funny Girl
It's different depending on if you use British/Canadian/Australian/Etc English or American

In UK Coeliac
You might want to look at Coeliac UK:About us

[sofaraway]

for the endoscopy you will most likely be awake and talking through the procedure but won't remember anything about it afterwards as the drugs have an amnesic effect.
Are you having the bowel prep the day before? if so then take the day off work, it can be tough.


the gluten free products can be quite expensive, but you can get them on prescription, and as you don't have to pay for them it's worth doing.

good luck

[JediSurfer]

I have to fast for 7 hours before the procedure. As I work four nights a week I have got the three days off.
You say that gluten free product can be prescribed. Will my GP sort this out? The practice I am at now is appailing and I don't like visiting. Over the last few years I have visited around 15 times with these symtoms and got nothing in the way of diagnosis. They all just look at me like I am barmy. It that old God complex syndrome some of em seem to have.

Thank you kindly for all the info guys and gals. greatly appriciated

Rich

Originally Posted by sofaraway

for the endoscopy you will most likely be awake and talking through the procedure but won't remember anything about it afterwards as the drugs have an amnesic effect.
Are you having the bowel prep the day before? if so then take the day off work, it can be tough.


the gluten free products can be quite expensive, but you can get them on prescription, and as you don't have to pay for them it's worth doing.

good luck

[Funnygrl]

Did they do a blood test or are they jumping right to the scope?

[JediSurfer]

had the bloods done when I had my review on monday. they will do the endoscopy anyway because it will show any other problem that maybe present.