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12-30-2007, 08:35 AM
| | Member
I am a: Type 1 | | Join Date: Jan 2003 Location: Montreal baby!!
Posts: 155
| | | HbA1c at diagnosis...quick question, need feedback plz! I see all these people on these boards that had an A1c below 9.0 when they were diagnosed, my A1c was a staggering 15.0 when I was diagnosed, it dropped almost by half after 3 months and went even lower the next time around.
So I'm just wondering, was my A1c at diagnosis this high (15 is undeniably high!!) because my BG around diagnosis was excessively high? I remember clocking in at around 55mmol/L (990mg/dl) when they first tested me. Docs said if I was any higher I'd be in a coma! And I know I was still really high for the 1st couple days after diagnosis because the doctors didn't want to give me too much insulin (I was young at the time and they didn't know how well I would react) and also took a few days to get all my supplies and what not...
What do you guys think? Can having extremely high (or extremely low) blood sugars around the same time you get you HbA1c tested, result in an innacurate, almost biased result??
Thanks in Advance and Have a Happy New Year! | 
12-30-2007, 01:15 PM
|  | Member
I am a: Type 1.5 | | Join Date: Dec 2007 Location: Southwest Missouri, USA
Posts: 370
| | | The answer is an unequivicable no. The A1c doesn't just tell you how much glucose is attached to the hemaglobin at the time of the test, it tells you how much has been attached on average. Remember, blood cells live a finite period of time. New blood cells would inevitibly be carrying less amounts of glucose than older blood cells, hence the "average" term used for the results of the test.
Because of this offset between newer and older blood cells, a "current" reading of extremely high BGL would not immediately effect an A1c, because it takes time for glucose to attach to a blood cell. Having said that, certainly having a high BGL like that over a period of time would raise your A1c results.
My first A1c was 13.6. My BGL at the time of initial contact with my doctor (prediagnosis) was 452. Based on figures I've been able to work out, my average BGL had been around 430 before I was diagnosed.
I hope that answers your question, if not, please let me know, and I'll try to explain it in more detail.
Regards,
Darian
__________________ Darian A. Caplinger, EMT Misdiagnosed as Type 2 on 12-20-2007 Diagnosed Type 1.5 (LADA) on 01-28-2008 Smoke Free since 12-26-2007
--- A1C RESULTS: 12-21-07 - 13.4 03-17-08 - 8.7 06-27-08 - 8.1 10-03-08 - 7.3 
--- MEDICATIONS: MDI using Lantus and NovoLog Too many to list. 
--- TEST KIT: Accu-Chek Aviva | 
12-31-2007, 08:57 PM
|  | Junior Member
I am a: Type 1 | | Join Date: Oct 2007 Location: Big Sky Country
Posts: 13
| | | Hmmm.... My A1c was 5+ at Dx. Now it's 9+ and Ive gained 50 Lbs. I can't seem to get either down.
__________________
Onset 2004 - Diabetes T1 Humalog 1:5 ratio
Breakfast - 36u Humalog
Lunch - 36u Humalog
Dinner - 46u Humalog
Bedtime - 50u Lantus
Nov 07 A1c 9.3
Feb 08 A1c 8.6
Onset 2004 - Guillain Barre' Syndrome 5400Mg Neurontin
200Mg Lamictal
500Mg Vicodin(for breakthrough pain)
81Mg aspirin
80Mg Zocor
40Mg Enderal
10Mg Flexeril
10Mg Prozac
Medical Marijuana
Last edited by LowkonXC : 12-31-2007 at 08:58 PM.
Reason: ineptness
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01-01-2008, 05:50 AM
|  | Member
I am a: Type 1.5 | | Join Date: Dec 2007 Location: Southwest Missouri, USA
Posts: 370
| | | What kind of exercising are you doing? If you aren't doing any, you need to get up and start moving. Walking at least 30 minutes per day is a great form of exercise. It's also a great way to build endurance if you are extremely out of shape.
Start slowly, and as time goes on, increase the pace of your walks. Then, when you reach the max speed you can walk without starting to jog, extend the distances you walk per day.
Regards,
Darian
__________________ Darian A. Caplinger, EMT Misdiagnosed as Type 2 on 12-20-2007 Diagnosed Type 1.5 (LADA) on 01-28-2008 Smoke Free since 12-26-2007
--- A1C RESULTS: 12-21-07 - 13.4 03-17-08 - 8.7 06-27-08 - 8.1 10-03-08 - 7.3 
--- MEDICATIONS: MDI using Lantus and NovoLog Too many to list. 
--- TEST KIT: Accu-Chek Aviva | 
01-01-2008, 06:03 AM
|  | Member
I am a: Type 1 | | Join Date: Oct 2007 Location: north carolina
Posts: 163
| | | i was in a comma when diagnosed 20 years ago! My BG was over 1000....i average 5.7 over the last 20 years. | 
01-01-2008, 07:26 AM
|  | Member
I am a: Type 1 | | Join Date: Jul 2007 Location: Canada, Prince Edward Island
Posts: 464
| | Maddogg,
Those numbers are rather high. As Darian explained the A1Cs show your average BGs for the previouse 3-4 months.
That being said depending on what Chart you go by - the chart at this url - HbA1c and Blood Glucose Equivalents - States that a 15 is an approximate 390 aka 21.66 mmol/L.
__________________ Mark K~ Type 1
Dx June 21st 2007 HbA1c
June 22, 2007 - 12.8
September 27, 2007 - 6.6
January 3, 2008 - 6.0
April 16, 2008 - 6.1
July 21, 2008 - 5.5 NovaRapid With Meals Levemir at Bedtime
Acetylsalicylic Acid (ASA) 81 mg Daily  "Diabetes is for the intelligent and disciplined." | 
01-01-2008, 08:08 AM
|  | Junior Member
I am a: Type 1 | | Join Date: Jun 2007 Location: Syracuse, NY
Posts: 59
| | Quote:
Originally Posted by Maddogg What do you guys think? Can having extremely high (or extremely low) blood sugars around the same time you get you HbA1c tested, result in an innacurate, almost biased result?? | Actually, I was told that the more recent blood sugars (about 2 weeks or so before the test) have a slightly higher effect on your A1C, although, I do not think it would skew it by THAT much. In other words, I don't think you would have gotten, say, a 13 instead of a 15 when not counting the extremes towards the end.
By the way, I was also in the 15s- 15.9 to be exact. Goodness. Haven't met too many others that were in that range.
__________________
-Jenny HbA1c
May 2007 (@ Diagnosis): 15.9
November 2007: 6.3!
March 2008: 5.5 Pumping with Minimed 522 Clear! | 
01-02-2008, 03:52 PM
| | Member
I am a: Type 1 | | Join Date: Jan 2003 Location: Montreal baby!!
Posts: 155
| | | Thank you for the replies, it would help explain why my vision was so poor when i was diagnosed... The last month before diagnosis must have been really really bad for me, I know I was eating and drinking like a horse (and i was still hungry/thirsty) and still lost several pounds a week.
Thanks for the feedback | 
01-02-2008, 04:34 PM
|  | Senior Member
I am a: Type 2 | | Join Date: Nov 2007 Location: Dublin, Ireland
Posts: 2,807
| | Quote:
Originally Posted by Maddogg I see all these people on these boards that had an A1c below 9.0 when they were diagnosed, my A1c was a staggering 15.0 when I was diagnosed, it dropped almost by half after 3 months and went even lower the next time around. | My A1c was 11.6, when first tested a month ago. My BG was 21mmol/L. After about six weeks my two week average is now down to 7 mmol/L. You're obviously on the right track if you managed to half your A1c after 3 months, well done!
__________________ Postcard Exchange Round 1: 16 of 20 cards received Postcard Exchange Round 2: 10 of 20 cards received Postcard Exchange Round 3: Sign up here Cosmo the Duck: is on his way to the UAE Ping, Cosmo's twin sister: sign up here
Diagnosed T2 on 26th Nov'07
Metformin 500mg twice daily
Enap 5mg
14th Dec'07: 11.6%
15th Jan'08: 9% 
3rd March'08 6.8% 
6th June'08 6.1% 
30th Sept'08: 5.1% | 
01-02-2008, 05:52 PM
|  | Member
I am a: Type 2 | | Join Date: Mar 2006 Location: Mo
Posts: 205
| | I don't know how people walk around with 400 and 500 BS. I was 230 at diagnosis and felt half dead. My vision was blurry and I just felt really bad. I would have never been able function at that high BS plus I would not been able to see. Didn't you guys that were that high feel really bad and have vision trouble? | 
01-02-2008, 07:27 PM
| | Member
I am a: Type 2 | | Join Date: Oct 2003 Location: Toronto
Posts: 107
| | | I'm confused about ya'll's A1C readings.
My reading is .054, which equates to an average BG of ~ 7 (or 126).
When you guys talk about A1Cs of 15, do you really mean 0.15?
__________________
43yo, Dx'd '01, 1000mg Met, bgs4-7, A1C 0.53
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01-02-2008, 07:46 PM
|  | Junior Member
I am a: Type 1 | | Join Date: Dec 2007
Posts: 27
| | | Mine (A1C) was a 15 in the hospital. It was really bad. When they first caught my diabetes I was walking around with a 450 bsugar and feeling fine !
__________________ Dx 2003
2003-2008 pumping humalog with minimed paradigm
As of 9/20/08 pumping humalog with the One Touch "Ping" | 
01-02-2008, 08:08 PM
| | Member
I am a: Type 1 | | Join Date: Jan 2003 Location: Montreal baby!!
Posts: 155
| | Quote:
Originally Posted by davef My A1c was 11.6, when first tested a month ago. My BG was 21mmol/L. After about six weeks my two week average is now down to 7 mmol/L. You're obviously on the right track if you managed to half your A1c after 3 months, well done! |
My A1c would have went down even faster or lower if doctors and pediatricians hadn't been so cautious with my insulin dosage, for the first few weeks they had me taking low doses of insulin (not nearly enough to get my blood sugars down to normal).  Sure I was seeing the doctors once a week or so (making adjustments at each visits) but it took about a month for my BG to stabilize and stay at a more normal level. I know they were doing it just to be safe but they could have been much more aggressive when they knew my first A1c was at 15! ****, if i go too low too fast they can always just feed me some glucose, I don't know why they didn't just give me a very large dose of insulin when they found out my diagnosis BG reading.
Oh well, I still find it hard to believe I was that high at diagnosis, not many people here have breached that 900mg (50+mmol/L) mark, but then again, thats definitely NOT something to brag about lol. | 
01-02-2008, 08:12 PM
| | Member
I am a: Type 2 | | Join Date: Oct 2003 Location: Toronto
Posts: 107
| | | I was pretty lucky. I was 34 (612) at Dx and had tested negative a mere year before.
__________________
43yo, Dx'd '01, 1000mg Met, bgs4-7, A1C 0.53
| 
01-02-2008, 08:50 PM
| | Member
I am a: Type 1 | | Join Date: Jan 2003 Location: Montreal baby!!
Posts: 155
| | Quote:
Originally Posted by Gabby123 I don't know how people walk around with 400 and 500 BS. I was 230 at diagnosis and felt half dead. My vision was blurry and I just felt really bad. I would have never been able function at that high BS plus I would not been able to see. Didn't you guys that were that high feel really bad and have vision trouble? |
230 and you felt half dead?? Wow!! You must have been super ultra sensitive to blood sugars at the time. 230 (13mmol/L) is like a sugar high for regular people. Not very noticeable unless its for extended periods of time or unless your really sensitive to sugar. You must have been at 230 for a few weeks if your vision was blurry... I think you're lucky though, I was nearly 5 times that level and still standing strong. Yet in reality I was in the worst possible shape of my life! I wish i could go back and change that, I was going through puberty at the time so I didn't know wtf was going on or if it was normal until it was too late and nearly ended up in a coma. My ketones were thru the roof...argh! It was bad! |  | | | Thread Tools | | | | Display Modes | Linear Mode |
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