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  #31 (permalink)  
Old 01-03-2008, 02:31 PM
6angels's Avatar
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I am a: Type 1
 
Join Date: Jan 2008
Location: Tornado Alley!
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Quote:
Originally Posted by Alice View Post
We are here to help you. Is there any way you can see an endocrinologist asap? I fear you have been lumped into a Type 2 category for meds and misdiagnosed. You really need a fast-acting insulin asap...but only a doctor can make that determination, unfortunately for all the moral support we can provide...we can't know what is actually going on with your body. Sounds like you are worn out.

If you were diagnosed as a Type 1 years ago and not given the correct medications...then a lot of damage could/can occur. You really can't go on much further like this. Not to frighten you (you've already been through a lot) but I do want to stress the need to get to a doctor asap. I think a different doctor than the one you've been seeing.

Let us know how you are doing. Hugs.
HI Alice me and my husband has called all day for endo's but noone can get me in before next week Everyone is full and since they have not seen me before they say noway to get me in this week even after explaining everything. I go back to my Dr monday and will be having her set me up with a Endo asap!!!

my Bs was 280 or so this am when I woke up.

I had plain pork skins and boiled eggs for lunch with boiled veggies and my Bs went to 480 again. It does not seem to matter WHAT I eat it spikes sooo high.


I do have a question. My left side of my belly hurts when my BS is high.( middle left side of body ) is this common?

It's going to be a long long day Dh went to work at 6 am came home at 2 is napping and goes back from 6 to 6 . Which means I wont beable to sleep well!

ty for hugs!
hugs back to you
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  #32 (permalink)  
Old 01-03-2008, 03:59 PM
notme's Avatar
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I am a: Type 1
 
Join Date: Aug 2003
Location: Northern California
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I think the ER is your best bet at this point Trinasangels. You need to get care before it is more than your body can take. Personally, I would head out and get some insulin and medical attention.
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Despite the high cost of living, it remains popular.

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  #33 (permalink)  
Old 01-03-2008, 04:03 PM
UpNorth's Avatar
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I am a: Type 1
 
Join Date: Mar 2005
Location: Universe, Planet Earth :P
Posts: 1,038
Hello and welcome to the forums

Sorry to hear you're not being checked properly and getting the treatment you need! It sucks being high, but when being high for a long time it's even worse :s
Seems like you really need some rapid acting insulin, and that is now! I can't believe your doctors hasn't prescribed any rapid acting! Maybe you should just show up in the ER again and say, "I need rapid acting insulin, and i need it now"
Lantus can keep you alive for now, but it can't get your sugars down to normal levels if your pancreas has kicked the bucket.

I really hope you'll be on a working treatment soon! And hope you feel better real soon too!
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22 years old, diagnosed T1D on october 14th 2004.

On MDI, Novorapid and Levemir, using the NP4

Currently back to pumping with my IR1200, April 2008.


Been using D-tron and Animas IR1200 but prefer the pen
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  #34 (permalink)  
Old 01-03-2008, 05:13 PM
ant hill's Avatar
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Location: Hastings Melbourne Australia
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Quote:
Originally Posted by trinasangels View Post
it's not rude
I weigh 180 and I am 5 foot 8
Hello Trina, How are you today , Just going on my calculations your dose should be 180 times 0.4U = 72U so I would try 60U and see how you go and test test test.
Now presuming that you are 180Kg / 397Lb.


Quote:
Originally Posted by silverfrost View Post
That calculation works pretty well for me. It's only 1 unit off or so, but its about there.
Yes Jenny, I have had a look in the Prescribing Notes and had done a lot of reading and have come across this calculation but then it is a rough guise on the amount of dose as the calculation works for me. But for god sakes TEST!!!!

Quote:
Originally Posted by Alice View Post
Welcome! The Lantus is working on only half the problem...that is your basal (baseline) insulin requirement for before food.
Yes Alice, you would need some fast acting insulin too so that you can eat and also get to understand what carbs are and match that with fast acting insulin.
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  #35 (permalink)  
Old 01-03-2008, 05:18 PM
6angels's Avatar
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Quote:
Originally Posted by ant hill View Post
Hello Trina, How are you today , Just going on my calculations your dose should be 180 times 0.4U = 72U so I would try 60U and see how you go and test test test.
Now presuming that you are 180Kg / 397Lb.




Yes Jenny, I have had a look in the Prescribing Notes and had done a lot of reading and have come across this calculation but then it is a rough guise on the amount of dose as the calculation works for me. But for god sakes TEST!!!!


Yes Alice, you would need some fast acting insulin too so that you can eat and also get to understand what carbs are and match that with fast acting insulin.


Hi I am 180 pounds not 379 pounds


I am going to check my BS in 2 hours and if its still really high I think I am going to go to the Er.

thanks everyone
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  #36 (permalink)  
Old 01-03-2008, 05:34 PM
ant hill's Avatar
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Quote:
Originally Posted by trinasangels View Post
Hi I am 180 pounds not 379 pounds
Ho sorry Trina. well then it's 82Kg * 0.4 = 32.8 or 33U
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  #37 (permalink)  
Old 01-03-2008, 09:28 PM
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I could just yell. I got excited because after dinner my bs was 250.( hey its low for me!) so told dh to just go to work i'd be fine. ive not eatten anything for a snack and its at 390 now. i just did my night time shot at 18 units

I also noticed i have a huge bruise where i did my morning shot!


so now DH is gone I am here with the kids with no way to go to Er if i wanted. hope it comes down soon.

Is it monday yet? cant wait to get back to dr!
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  #38 (permalink)  
Old 01-03-2008, 09:30 PM
6angels's Avatar
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Quote:
Originally Posted by ant hill View Post
Ho sorry Trina. well then it's 82Kg * 0.4 = 32.8 or 33U

it's ok!!! no biggie!
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  #39 (permalink)  
Old 01-03-2008, 09:59 PM
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Thanks Trina, I like new friends especially ones that's in control.
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  #40 (permalink)  
Old 01-03-2008, 10:01 PM
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Quote:
Originally Posted by ant hill View Post
Thanks Trina, I like new friends especially ones that's in control.
new friends rock!!!!
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  #41 (permalink)  
Old 01-05-2008, 12:02 AM
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just wanted to let everyone know my BS has stayed under 300 all day!! highest is 270 today!
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  #42 (permalink)  
Old 01-05-2008, 01:22 PM
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Glad you checked in with us...hard to believe we are celebrating 270's...but better than you were a few days ago. I'm sure the Lantus is helping...but not enough. You are still running very damaging numbers...

You've waited a long time to get into the doctor's office this week. Don't leave...until all your questions are answered and your meal carbs are covered. Try to get her to send you to the endo straight away...no more delays...even if you have to get be vocal.

Take an advocate to the doctor with you. Many times, four ears are better than the two on our heads. Write down questions ahead of time.
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  #43 (permalink)  
Old 01-05-2008, 04:20 PM
6angels's Avatar
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Quote:
Originally Posted by Alice View Post
Glad you checked in with us...hard to believe we are celebrating 270's...but better than you were a few days ago. I'm sure the Lantus is helping...but not enough. You are still running very damaging numbers...

You've waited a long time to get into the doctor's office this week. Don't leave...until all your questions are answered and your meal carbs are covered. Try to get her to send you to the endo straight away...no more delays...even if you have to get be vocal.

Take an advocate to the doctor with you. Many times, four ears are better than the two on our heads. Write down questions ahead of time.
I am taking my DH with me and wont be leaving until I have answers and meds for better control!

I am running high 200's today again and 350 after lunch.

I tested my Ketone today and it is showing small ( there is 6 levels and its showing the 3rd that says small) wish I had tested it earlier so I could see if its better then it was.
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  #44 (permalink)  
Old 01-05-2008, 04:58 PM
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I am a: Type 2
 
Join Date: Dec 2007
Location: Oregon
Posts: 73
Look for the doctor or doctors that look shocked when you tell them what's been going on. Anyone that knows enough to be of help to you is going to immediately grasp the severity of your condition. It's really unfortunate that so many doctors seem completely unaware of how this disease should be treated when it is as common as it is. I have a friend who just had an A1c of 14 - that's averaging in the same ballpark as you, it sounds like - and his doctor bumped up his metformin dose and told him to start taking 10mg of glipizide! Hello!? And if that wasn't bad enough, he added in another oral med two weeks later after another A1c came back between 12 and 13. I've told my friend, who is a type 2, that he needs to fire his doctor and go see an endo, much the same way you've been advised by the others here. Metformin is powerful stuff, but it's not going to bring anyone down from a 14 in a timely manner.

Anyway, it sounds like you've got the right attitude going in to the hospital, which is to say "Not leaving without the right treatment." When you get that treatment (not if, right?), you might actually feel a little cruddy when you first come down. A couple of times in my diabetic life now, I've had to get my averages way down, and some times I get headeaches from it, or just feel a little out of it. You can make it, though - we're all pulling for you here. No matter what it takes, you will feel better when those numbers come down and level out! Keep us updated!
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Currently treat with oral med/insulin combo
Meds: Glipizide, Metformin, Simvastatin
Insulin: Lantus, Novolog.
A1c: 12.9% - Spring '07
6.8% - 2/18/08
7.3% - 5/19/08
7.0% - 8/29/08
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  #45 (permalink)  
Old 01-05-2008, 06:25 PM
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The more I think about this doctor's appointment...I'm thinking you need to call the office and tell the appointment person (receptionist) that you are going to need more time than the standard consultation.

Often, it seems that I get cut off in appointments just when the discussion gets informative...then I leave with hanging questions.

Please make sure they don't rush you. On the flips side, you might get a head start and outline you entire diabetic (and other) medical condition...that may help the doctor see how things have developed/not developed. Could be they are confused from prior details.

Also...what about your A1C level? If you've mentioned it before, I can't seem to locate...do you know a recent number (not to share with us...but for your own knowledge)...I would ask for an in-office test for a quick review of your A1C. This is a number you need to empower yourself to know at all times. (Typically 4x a year...) Ask for a detailed explanation of what your A1C relates to as far as your overall care.
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