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62 Years Of Type 1 Diabetes, Chapters 1--20 (The End Of My Story) LinkBack (4) Thread Tools Display Modes
  #46 (permalink)  
Old 05-23-2009, 02:32 PM
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I am a: Type 1
 
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Location: Kingston, NY
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Hello ccryder! I used to live on Cove Rd. not far north of the Roanoke city limits. Now I live in Kingston, NY. about 90 miles NW of NY City.

I don't feel proud, just very lucky. I apparently have good genes that have kept me from having serious complications. I wish all of us had those genes.
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Age 70. Type 1 for 64 years. Using a Minimed 522 pump. No complications. A1c = 5.8.
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  #47 (permalink)  
Old 05-26-2009, 01:55 PM
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Wow, Cove Rd is just down the road from me. Small world! Anyway, I'm glad you haven't had serious complications and I thank you for taking the time to write your story. I'm pregnant with twins and hope to deliver healthy babies in a few weeks. You're story gave me a big morale boost and I much appreciate that in this great time of worry!
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  #48 (permalink)  
Old 05-26-2009, 02:44 PM
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Thank you for your life experiences, good and bad. I wish you well in the future.
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Age: 32
Diagnosis: Feb. 09'
Initial A1C: 9
Medication: diet and exercise
Meter: Bayer Contour
Pounds lost since Dec. 08': 87
May triglycerides: 134
May cholesterol: 125
May A1C: 5.3

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  #49 (permalink)  
Old 07-16-2009, 11:08 AM
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I am a: Type 1
 
Join Date: Jan 2009
Location: Wisconsin
Posts: 239
Dear Richard,

Thank you much for sharing your story. I remember a diabetes educator I had for just one appointment several years ago who has type 1 herself. She told me that her goal is to live to 100 without any major complications. I believe she was in her late 50s at the time and had been successful so far. I've been trying to make that my credo as well. I know for a while when I graduated college I had a much more pessimistic point of view and really avoided much contact with dr.'s because I was afraid there would be bad news and I just rather preferred to try to eat, drink, and be merry.

Of course none of us can count on living to 100 without major complications, in fact none of us (diabetics or non) is guaranteed tomorrow, but I think living with a positive attitude and working towards the goal (diet, excercise, using technology well, being willing to take those extra BG tests, etc.) makes a HUGE difference. It's a lot better than focusing on page 56 (if that wasthe page number) of the book you were given and just accepting the plan to die in your 40s! I love your positive attitude.
Thanks again for sharing and all the best to you and your family,
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Lark
Type 1 Diabetic for 18 years
Minimed Paradigm 722 with CGMS
Meds: Humalog, Benicar, Running
A1Cs: Most recent 8/15/09: 6.6
Over the last several years (roughly): 6.6, 6.3, 6.0, 5.9, 6.6, 7.0, 7.2
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  #50 (permalink)  
Old 07-18-2009, 12:09 PM
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Smile Richard

Such a facinating read, Richard. I spent the entire morning reading your blog. I have so many things I want to comment on, but I will only choose a few to spare you a novel!!

I am not a diabetic, but am the wife to a type 1 for 20 years. My husband was diagnosed at age 3 and has lived with this for 35 years now. I think I can give you some insight on your wife not wanting you to travel and with her being so nervous about you. I so know what you are talking about when you said evertime you move in bed, she pops up and asks you if you are ok. I can tell you it is frightening to be asleep and wake up to your husband having a low blood sugar reaction. I have been woken up to my husband screaming, convulsing, crying...you know all the types of reactions one can have, I am sure. I do the same thing with my husband.....I cannot help but wake up with his every move or sound while we are sleeping. He did remedy this, though....he now sleeps in a separate room and we both get a much better nights sleep this way. Not the greatest solution, I know.

You asked what one would do in the situation with Anita not wanting you to travel alone. Boy, I feel for you....and for her. I used to constantly worry over my husband. I still worry, but it doesn't control me like it used to. One day it just hit me that I cannot control what happens to my husband. I had to give it over to God and let go. I felt kind of foolish for thinking I was so almighty that I had that much power to control my husband's health and what happens to him. I sincerely hope that one day you can explain to your wife and that she will be receptive to your desire to travel alone.

Your story is so facinating. One thing I noticed as I was reading was the consistancy with you working so hard to control your diabetes. Everything I read shows how obedient you were/are, to what the dr's told you to do....even though some of them were so ignorant. I can't help but think your good health has to have something to do with your drive to live as healthy as you can. I am a firm believer that we have to be proactive when it comes to our health. You are certainly a great example of this.

Thanks for sharing your story....can't wait for the book!

Keri


Quote:
Originally Posted by Richard157 View Post
CHAPTER 20

Many people who know me are of the opinion that I have broken a record and they have not heard of anyone having diabetes so long and having no serious complications. There are many diabetics who have had diabetes much longer than me. See their stories below.

Bob and Gerald Cleveland (combined) look back on 154 years of Type 1 diabetes. See the story below:
Brothers’ Diabetes Spans History of Insulin - Diabetes Health

Gladys C. Lester Dull was diagnosed with Type 1 in 1924 , just three years after the discovery of insulin. She is believed to be the longest living person with diabetes. Here is her story:
After All These Years: 83 Years of Living Well With Diabetes: Gladys C. Lester Dull - Diabetes Health

The Joslin Diabetes Center is located in Boston. They offer a medalist program for diabetcs who have been diabetic for 25, 50 and 75 years. See below:
Joslin Diabetes Center | Giving to Joslin

I have never been interested in a medal even though I have had diabetes for 62 years and thus qualify for the 50 year award. My reward is my good health and my great life, with only a few very minor complications. That is the only reward I will ever need.

I have not let any of my diabetes problems slow me down very much. I enjoy life to the fullest and never get depressed or stressed about my diabetes. I am a very humble, laid back easy going fellow and the lack of stress in my life has aided me very much in getting good control of my diabetes.

In my earlier years I was not very good about looking for information about diabetes. I depended on my doctors to tell me what I needed to know. I assumed they always told me everything I needed to know. Of course there was very little knowledge and information about diabetes in the 1940's when I was diagnosed. This was still true in the 1950's, and to a large degree, in the 1960's. I coasted along and did no research in the libraries in the colleges where I taught. I never asked my doctors if there were books involving diabetes that I could read. If I had read available material in the early years I would have known that I should have followed a low carb diet. That could have given me much better control and I might have avoided so many years of terribly high blood sugar that led to the several complications I developed in later years. Those complications have all been minor but they have caused me some handicaps and much concern.

I acquired the habit of putting things off. I could have used a glucose meter a few years sooner than I did. Dr. B. suggested that I use one but I was comfortable with my urine testing and I resisted change. I had good health, I had no serious complications and I tested my urine and I did not see the need for finger sticks and testing my blood. After I started using a meter I felt like a fool for not starting sooner. Soon after insulin pumps became available Dr. B. suggested that I pump insulin. I was running a lot of highs and lows back then and a pump would really have helped me. But I was too stubborn and I refused. My body was so accustomed to running high blood sugar that I felt good and I did not feel the need for pumping. Since I had so many highs I rarely had hypos. If I had a lot of hypos and felt sick with highs I would have agreed to pumping. When computers and the internet became available I started researching diabetes and I joined diabetic support groups. I became convinced that I should pump even though I had good control with my injections at that time. Because of my good control Dr. B. would not support my pumping. I had to consult another doctor and I started pumping in June, 2007. If I had not been so stubborn I could have started to pump insulin at least 15 years earlier. Why did I put off making these changes that would have greatly improved my life and my health? I was very stubborn, content with my life as it was and I did not realize how much better it could be.

I hope that those of you who read my story do not make the mistakes that I did. If you are having reasonably good control of your diabetes don't assume that you should ignore newly developed technology, new medicines, pumping and the like. Research these things, ask your doctor(s) about them and ask the experienced diabetics online about them. Take advantage of new developments and don't put things off when they can give you better control and a better life without serious complications that might otherwise occur. I have only minor complications with my diabetes but any one of them could mushroom and give me major problems in the years to come.

Research has suggested that my having had Type 1 diabetes for 62 years without serious complications may be due to my having good genes. My doctors have stated that they have no idea why I have been so fortunate. I have my own theory. In my first chapter I mentioned that I had measles, chickenpox and mumps within a short span of time and the symptoms of my diabetes appeared shortly after those illnesses. I am convinced that these diseases attacked my 5 year old body and caused my pancreas to stop producing insulin. I feel that was the cause of my diabetes. Perhaps diabetes developed in some way other than through the genes from a relative with Type 1 is less likely to be associated with the complications that so many diabetics experience. This is just my own theory and I have no foundation for it. It is just my gut feeling. I used to have a doctor who said I had "something like diabetes" but not like conventional diabetes. I think that might be true. My Type 1 diabetes has been very different, in many ways, from the Type 1 diabetes that I have read about and heard about from so many other diabetics.

I am blessed to have had a very wonderful and, in my opinion, very healthy life for 68 years. I am thankful for my wonderful family and I thank God for the fact that no other member of my family is diabetic.

The lines on ny face clearly show my age,
So take heed and listen to this old sage,
Don't spend your life like a bird in a cage,
Live large, take care of yourselves, that's the rage!

I hope you have learned from this old critter,
I ain't no prize but I never was a quitter!
Diabetic all these years but I'm not bitter,
I love my life and my wife and I couldn't be fitter.

****************************************
I had insulin injections for 61 years. I started pumping insulin on 6/19/07. I have told friends that I intend to pump insulin for 61 years. Since I was 6 when diagnosed that will make me 6 + 61 + 61 = 128 yeras old on Sept. 10, 2067. I plan to have a whale of a birthday party on that date. You are all invited!!! Now, who is going to host the party??? LOL!

****************************************

I want to thank all of you who have read my story, or parts of it. I appreciate the comments that you have made.
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  #51 (permalink)  
Old 07-18-2009, 03:04 PM
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Thankyou

Richard thankyou for taking time out to share your story it was great to read and very insperational, I have had diabetes for 18 years now and always thought that my life would end with diabetes going blind soon or kindneys but since reading your story you have given me so much hope that diabetics can a live long and be happy life. Thankyou thankyou thankyou!!!
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Old 07-18-2009, 03:07 PM
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fantastic thankyou
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  #53 (permalink)  
Old 07-18-2009, 06:46 PM
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Keri, Thanks so much for your comments. The story was written more than a year ago and nothing has changed. I have great control with mu pump now and it is perfectly safe for me to travel. Anita says "Absolutely not!!!" She says it takes only one careless moment on my part to do something that will give me a hypo and i will die in my sleep or else die in a car crash. She will never give in! She hates travel and so I am destined to stay at home except when we fly together to see our family in Atlanta. I have considered running away from home just long enough to take the trip I have dreamed about but she would cry over the phone and never forgive me. I love her too much and cannot leave her.

Sam, I am pleased that you feel better about the life you have ahead of you now. Good luck to you!

Richard
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  #54 (permalink)  
Old 07-27-2009, 08:16 AM
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great read Richard. you are an inspiration
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  #55 (permalink)  
Old 08-25-2009, 01:57 AM
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Wow....I love your story, Im in tears. I'm 34 and have been diabetic for 24 yrs, I remember using the pork insulin and using that big blood sugar meter...I've been on the pump for about 7 years, got it right before trying to get pregnant. I dont have any complications (knock on wood) and my doctor tells me that he's surprised because I've been diabetic for 24 yrs...I try to be good but its very hard at times, it's easier now as an adult but I still have my moments. My pump went bonkers on me tonight and had to order a new one, hopefully I will receive it on Wednesday, had to do the shot thing again tonight...anyway, I hope you keep us posted and you should continue with the chapters...thank you so much for letting us into your life, I know you have helped a lot of us see things in a different way. God bless you.
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Old 11-16-2009, 10:25 PM
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Very impressive story. I wish you the best of luck in the future. Have you looked into a continuous glucose monitoring system? I used to be plagued with lows in the night but I went onto the Navigator (by abbott) and it has solved this. I have it set up to go off when I reach 60 (which in BG is maybe 50) and it wakes me up before I go so low that I can't wake up. A device like this might give your wife the ease of mind to let you leave for a vacation. I know it has made my wife's life much easier.
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  #57 (permalink)  
Old 11-17-2009, 09:06 AM
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Thanks!

Mmora, thanks for your comments!

Archer, yes I used Minimed's CGM for a week. It was a loaner from my doctor's office. I started having more highs & lows for the past couple of months. Now I am trying to get my insurance conmpany to approve of paying for my sensors. I am supposed to fax the last 6 months of my blood glucose numbers from my home testing. If they see substantial fluctuations they may approve of me becoming a CGM user. Minimed and my endo are working on this for me. The Minimed 522 pump I am using will "talk" to my sensors so I do not have to have a separate monitor like you do with the Navigator. I will read read my BG's from my pump display.
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