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04-14-2008, 08:48 PM
| | Junior Member | | Join Date: Apr 2008
Posts: 1
| |  SusieQ
Hey everyone-thought I would sign up for this forum to get some info from the "experienced"- i.e.-not just the doctors. My 18 yr old daughter has been diagnosed with Type 1 for 7 yrs, uses a pump and has been taking Symlin for the the last 9 months. She has lost about 10 lbs. but is now beginning to suffer from hair loss. Has anyone else experience hair loss as a side effect? Her doctor claims it isn't a side effect, but has tested her thyroid (since she also takes Synthroid) and the results have come back within range. Any thoughts from those in the "Symlin trenches"? |
04-15-2008, 01:34 AM
| | Senior Member
I am a: Type 1 | | Join Date: Feb 2008 Location: Melbourne Australia
Posts: 542
| | | Hi SusieQ, my impression is that it's not a very common drug for type 1s, at least, not common enough to be a point of much discussion here. I think it's a pretty common drug for pre-diabetes or type II so you may have a lot more response in those forums.
Best of luck getting some answers... and good on you for taking the effort to gather some info from the ones who live with it.
__________________
Some boring but vital statistics:
31 year old male. Type 1 since age of 15. On Minimed Paradigm 722/Novorapid since Dec 07.
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04-15-2008, 05:11 AM
|  | Super Moderator
I am a: Type 2 | | Join Date: Dec 2006 Location: Knoxville, TN
Posts: 5,908
| | | Hi SusieQ: Can't give answers to your questions, but did want to welcome you to the forums. I'm sure someone with the anwers will chime in soon. There's lots of good information to be found here.
__________________ T2, diagnosed 8/31/06.
Byetta 5 mcg
HCTZ 12.5 mg every other day for BP
Enalapril 20 mg 1 daily (ace-inhibitor)
Lower carb dieter (approx. 75 total carbs/day, more on weekends), taking chromium, multivitamin and fish oil tablets Initial A1C 8/06: 9.6
11/06: 6.2.
03/07: 5.3
06/07: 5.4
10/07: 5.3
05/08: 6.2 (right after dealing with shingles and bronchitis)  |
04-15-2008, 08:09 AM
|  | Member
I am a: Type 1 | | Join Date: Mar 2007 Location: Knox Vegas
Posts: 238
| | Quote:
Originally Posted by SusieQ  Has anyone else experience hair loss as a side effect? |
Hi SusieQ,
I did experience hair loss when I started taking insulin at age 13; however, it was in 1977 and I was injecting Lente insulin, so it was a while ago! My doctor said he didn't know why my hair was falling out, but thought it might be my body's way of dealing with the stresses of diagnosis. I didn't lose all of my hair, but it thinned out quite a bit. After a few months it grew back.
~Lisa
__________________
*************
Type 1, diagnosed 1977 at age 13.
Pumper since 1999.
Currently use Animas 2020 pump/Novolog
Be kind, for everyone you meet is fighting a harder battle. ~Plato
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04-15-2008, 09:27 AM
|  | Senior Member
I am a: Type 2 | | Join Date: Nov 2007 Location: Dublin, Ireland
Posts: 1,707
| | | Hi SusieQ,
I can't help with your question, but I do want to welcome you to the forums, it's a great source of information and support, full of really wonderful people.
__________________ 
" The only true wisdom is in knowing you know nothing." - Socrates
Diagnosed Type II on 26th November 2007
Metformin 500mg twice daily
Enap 5mg
Initial A1c (14th Dec07): 11.6%
15th Jan'08: 9% 
3rd March'08 6.8% 
6th June'08 6.1% |
04-15-2008, 09:35 AM
|  | Senior Member
I am a: Type 1 | | Join Date: Sep 2005 Location: Cincinnati, OH
Posts: 8,164
| | Quote:
Originally Posted by Subby Hi SusieQ, my impression is that it's not a very common drug for type 1s, at least, not common enough to be a point of much discussion here. I think it's a pretty common drug for pre-diabetes or type II so you may have a lot more response in those forums. | Symlin is VERY common and geared towards type 1s.
With that said has your daughter had any other problems recently? Illnesses? I have not heard of hair loss as any sort of side effect of insulin or symlin. I'm just wondering if she may have something else going on.
Good luck and welcome to the site.
__________________
●Blue Ash, Ohio Police Dispatcher
●Type 1 diabetic for 25 years (11 months old)
●Animas pumper since December of 2002
~IR 1000 (Dec. 2002-Jan. 2005)
~IR 1200 (Jan. 2005 - ?)
●LifeScan OneTouch UltraSmart Diabetes is an Art, NOT a Science. You must master the control by skills and not by knowledge alone. |
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