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  #1 (permalink)  
Old 07-12-2008, 04:04 AM
Junior Member
 
Join Date: Feb 2006
Posts: 37
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Ok, I am recalcitrant diabetic. I've been a diabetic since 2005; however, I suspect the symptons creeped up on me in 2004 ( sores that took weeks to heal instead of days, bad case of gum disease where I had this problem before. )

I'm kind of venting here, so take it for what it is worth.

You see my problems are my providers and the drugs involved in treating this disease.

First, I'm overweight, I struggle with my diet. Quite a number of items that diabetics should eat actually physically make me sick. Two examples are cauliflower and any kind of fish. I digest fish, I will throw it up within 30 seconds. Sorry for the graphic.

My story is around the medications.

I started with Metformin and Starlick for a short while to get my diabetes under control for knee surgery.

I lost a lot of weight. I went from 300 to 245 in about 6 weeks.

The the problems with Metformin started. The doctors kept telling me the pain would go away. It never did. In fact, I almost passed out.

So the doctor moved me to Advandia, then I lost my job and know health insurance. I was also taking Byetta and I got some samples of that.

Then I got a job ( early 2006 ) and got a new endo.

Endo puts me on Actos. After 2 almost 3 months, intense pain in my abdoment started. The pain felt like a fist in the lower right part of my aboment. Well I called the endo, got the nurse and she strongly suggested the Actos could not cause these problems, I must have something else wrong.

So, off I tredge to my GP, what's wrong with me? She wants to send me to get a $2000 out of my pocket MRI. I'm actually sitting in the MRI waiting room in May 2006, when I had an epiphany, stop the ACTOS even though I had been on the drug for almost 3months.

I excused myself from the MRI. Went home and stopped taking the ACTOS. After 4-5 days, my pain had decreased to 10% of what it was. I still have residual pain in that area by the way.

So I go to the endo, and lo and behold he doesn't believe. So he puts me on glimperide which when I found it works by pushing your pancreas harder, I wasn't happy about.

Sure enough, too, after 3 months, I had a terrible pain that was constant. This was more like a pencil was being pushed into my abdomen.

So I go back to the doctor and we change me to Januvia. My AC have been creeping up.

During this stin where my AC was between 6.5 and 7.00, I started to get a rash on my face and joint pain. Extreme joint pain. I spent the better part of 2007 going to foot doctors, GPs, specialists, dermatologists. I think I went to the doctor the same amount of times I had gone totally in the past years of my life. And for the first time in my life, I was getting tired at 8:00-9:00 p.m. at night. I had always been a night owl before.

About 3 months ago, I went to see my endo and my blood pressure all of a sudden is getting out of whack. I've never had nor do I have family members who have had blood pressure problems.


In this interim, I'm having these terrible joint pains. We're talking severe joint pains in every joint of my body. The doctors can't figure out the problem. At this point I'm popping aspirins, napersyn, and other anti-inflammatories. . .

OVer the last 6 months, I just got into a funk about eating. Didn't care. Captain Crunch in the panty, fookit....Between the diabetes and the joint pain, I was a wreck. I've gained back 15 lbs over the past year.

What is depressing, my endo moved his practise. New endo within the same organization and I meet.

What does she tell me? I don't believe the symptons your having are the result of the diabetic medications.

I'm floored, then I'm livid. I immediately bottle my emotions and desire to pick up my lagress rear end and walk out and never return. After a little chit-chat, I excused myself.

I did some research today and it seems, though very hard to find, that Januvia might cause increase in blood pressure as a side affect.

I'm angry that my new endo would make a comment like this.
If I didn't know better, we've got a severe case of protect our backside

Now here comes the real curve and it is a mobious fobious.

Remember the joint pain. Remember I had over the last 3 months let my diet go to squat. My AC jumped to 7.3.

Guess what, my rash is not 15% of what it was in April. My joint pain is probably less than 5% of the time. Furthermore I have fewer episodes of the infamous 'diabetic tired funk.'

I don't know the correleation between the diabetes and the joint pain. So I started to take into account, what was different:

This was my list:

- moved into summertime, outside more taking care of pool ( my only true exercise ). So could sunshine have had an effect.

- My diet had gone to squat pushing me to 7.3. Was the increased sugar masking or removing the joint symptons some how?

- I had a virus/bug that my system finally killed of or put on the sidelines as a spectator only.


Anyways, I'm going to rework my diet, drop the Januvia for several weeks and then go to a doctor to see how my blood pressure is.

If my blood pressue is down, then it's possible the Januvia is the culprit since it's the only variable being studied right now.


With the problems that have been reported with various drugs and my own pysio-druginteraction experience, I'm just **** leery of enod's pushing medication on me. I hate to sound like a 5 year old and ask why all the time, but I do.

This road is long and weary...

That's my story.
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  #2 (permalink)  
Old 07-12-2008, 04:37 AM
Senior Member
I am a: Type 2
 
Join Date: Jan 2008
Location: Sydney Australia
Posts: 682
I just dont do meds without nasty side effects so I avoid them & take the simple approach .
This is logging on to Df which gives me inspiration as well as education.
Exercise is slipping at the moment as it's Winter here, so I'll be getting sore joints & high bg's.
All I can do is send you hugs & recomend you log on daily & keep posting
__________________
It's just an opinion of mine
& maybe not one to adopt.


Lee



Dx Dec 07

Control :
nutrition & exercise
Vitamin B ...July 08
Fish Oil Capsules... June 08
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  #3 (permalink)  
Old 07-12-2008, 11:06 AM
Member
I am a: Type 2
 
Join Date: May 2008
Location: Oregon, USA
Posts: 226
Sounds to me like what your gut is telling you is right. your body does not like the medications.

Do you drink diet soda? take Aspartame (equal)? artificial sweetners can exaserbate joint issues like 1000 x in someone how is sensitive to chemicals. Just a thought.

don't let the docs tell you there is no way the meds could cause your symptoms. If they go away when you stop taking the drugs - I say the proof is in the pudding.

I took Januvia and had kidney, bladder, yeast infections and heart issues for 3 straight months. I finally got in to see the endo and she said - couldn't possibly be that - just coincidence. I walked out and never whent back. I stopped the januvia and ta da - I haven't had an infection since, and my heart has stopped racing to 140.

With a body as sensitive as yours - have you thought about going the natural route? You may have underlying food allergies or vitamin defenciencies (I can't spell today sorry). I was amazed at how much better I did overall when I got my potassium and Vitamin D out of the gutter.

Best wishes, keep dialoging on DF and perhaps something will leap out and be a help for you. This is the most frustrating disease I can think of - there are no constants and there are no 'norms' - just a moving target.
__________________
Ellie

"It's not what we have in our life, but who we have in our life that counts." J.M. Laurence

Jan 08 6.0
April 08 6.2
July 08 6.5
Oct 08 5.8

No meds (right now)
No grain
No chemicals

Vitamins, lots of exercise
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  #4 (permalink)  
Old 09-29-2008, 07:15 PM
Junior Member
 
Join Date: Sep 2008
Posts: 3
Check again on the Januvia. When it was first released, joint pain was a mentioned side effect. Oddly, it has disappeared from the prescribing information. Many other consumers are reporting sudden onset of severe joint pain after starting Januvia.

Tell your doctor that it was a listed side effect in 2006.

And remember, Merck is under criminal investigaton in New Jersey for hiding information on the cardiac effects of Vioxx...
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  #5 (permalink)  
Old 09-29-2008, 07:45 PM
Member
I am a: Type 2
 
Join Date: Oct 2007
Location: NE USA
Posts: 263
Why don't you try insulin?
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