Welcome to Diabetes Forums!
You are currently viewing our boards as a guest which gives you limited access to view most discussions and access our other features. By joining our free community you will have access to post topics, communicate privately with other members (PM), respond to polls, upload content and access many other special features.
Registration is fast, simple and absolutely free so please, join our community today!
If you have any problems with the registration process or your account login, please contact contact us.
|  | 
07-03-2009, 09:39 AM
|  | Member
I am a: Type 1 | | Join Date: Jun 2009 Location: Boston, MA
Posts: 227
| | OMG I Can't believe my PCP has told me to leave over Joslin! From a note I received:
"...As far as the Joslin consult, I spoke to several of my Diabetic Consultants here and they concur that if your priority is to go to Joslin no matter what, you should change your primary care to a non HVMA provider. (We have many wonderful endocrinologists some of whom came to us from Joslin) I'd be happy to refer you within HVMA if you'd like.
xxxxx xxxxxxxxx NP"
OMG WHAT??
My PCP does not support me going to the best care  WHAT???
If I had cancer, I would not expect them to treat me as they are not specialist. They are not diabetic specialists so I would not expect them to give me the ultimate care either.
Wow, I am utterly dumfounded. | 
07-03-2009, 09:51 AM
| | Senior Member
I am a: Type 1.5 | | Join Date: Feb 2009 Location: KCMO
Posts: 5,100
| | | I would ask her for a clarification.
It might be because the practice feels that they could coordinate and communicate about your care more closely, within their institution ...
but she needs to explain that in that case.
I don't think you are just being turfed.
__________________
Linda Initial A1c Feb 6 09: 12% Aug 24 A1c (MD office) 5.5%
Jul ... C-pep 1.3, GAD-65 > 30 metformin 1000 mg BID
Simvastatin 80 mg
Ramipril 5 mg
T4 125 mcg
baby aspirin
Vitamin D3, 2000 IU (blood values normal, advised to continue this dose by endo)
CoQ10 100 mg
Eating 70 - 90 g carb per day
Interval training on recumbent cycle
BMI is down to ca. 25.8 According to Joslin's Diabetes, 2005 ed., 5 - 30% of those diagnosed as Type 2 actually have LADA. | 
07-03-2009, 09:59 AM
|  | Member
I am a: Type 1 | | Join Date: Jun 2009 Location: Boston, MA
Posts: 227
| | | I never discussed this with my PCP directly. I wanted to go Joslin initially to start with a dietitian. I did not like the one I have at this practice.
Joslin sent the form requesting a referral for the nutritionist only . When DH was at their office the other day (I went with), the PCP's nurse became confrontational over Joslin stating the same thing. They refused to help my dentist figure out what meds to prescribe over this.
My concern is they should have found out more information, not go on the immediate attack as they did. They also should not threaten me as they did. The way the email reads as if there was a big brew ha over this. There was one confrontation made by PCPs nurse, there was no communication on my end about this until I was confronted. | 
07-03-2009, 10:01 AM
|  | Senior Member
I am a: Type 1.5 | | Join Date: Dec 2008 Location: Virginia
Posts: 563
| | FORGET THAT!
Russell
__________________ | 
07-03-2009, 07:45 PM
|  | Member
I am a: Type 1 | | Join Date: Jul 2007 Location: Kingston, NY
Posts: 458
| | | My diabetes doc (internal med specialist) aske me to go to Joslin about 20 yrs ago for a workup. I wish I had but i didn't. I have several online friends who are so glad they went there! It is a GREAT place, provided your insurance covers it!
__________________
Age 70. Type 1 for 64 years. Using a Minimed 522 pump. No complications. A1c = 5.8.
| 
07-03-2009, 08:07 PM
|  | Senior Member
I am a: Pre-Diabetic | | Join Date: Oct 2008 Location: Blue Springs, MO
Posts: 1,200
| | | What do they mean by HVMA provider? The way I read it they were encouraging you to change your insurance to one that would cover Joslin, but obviously that's not what that meant.
__________________ Jessi 24
Pre-D Sept. 2008 BS Range (45-280)
Diet and Exercise One Touch Ultra Smart named Alice (Thanks PaleFaceGirl!)
A1C: 5.7 | 
07-03-2009, 09:28 PM
|  | Member
I am a: Type 1 | | Join Date: Jun 2009 Location: Boston, MA
Posts: 227
| | | HVMA is the name of the medical group. I wish this was the issue with the PCP Eeyore. The visit was quite clear; they are angry to the point they would not assist my dentist.
I'm making some phone calls next week. One is to our insurance company to inform them of what occurred. | 
07-03-2009, 09:59 PM
|  | Senior Member
I am a: Pre-Diabetic | | Join Date: Oct 2008 Location: Blue Springs, MO
Posts: 1,200
| | | That is seriously out of line. You might also want to file a grievance with the State Medical Board.
__________________ Jessi 24
Pre-D Sept. 2008 BS Range (45-280)
Diet and Exercise One Touch Ultra Smart named Alice (Thanks PaleFaceGirl!)
A1C: 5.7 | 
07-03-2009, 10:40 PM
|  | Member
I am a: Type 1 | | Join Date: Jun 2009 Location: Boston, MA
Posts: 227
| | Quote:
Originally Posted by EeyoreButterfly That is seriously out of line. You might also want to file a grievance with the State Medical Board. | Well, this borderlines the ADA. I am being discriminated against because I am diabetic.
A stretch maybe but there is truth too.
I need to call their parent company, the insurance, the state, etc. | 
07-03-2009, 11:00 PM
|  | Member
I am a: Type 1 | | Join Date: Jun 2009 Location: Boston, MA
Posts: 227
| | | I just reviewed the state license. The PCP paid out a very large amount in a medical malpractice case. Hmmm...... | 
07-04-2009, 06:59 AM
| | Senior Member
I am a: Type 1.5 | | Join Date: Feb 2009 Location: KCMO
Posts: 5,100
| | Quote:
Originally Posted by Mothernature I just reviewed the state license. The PCP paid out a very large amount in a medical malpractice case. Hmmm...... |
They might think you are going to Joslin because you found about that, and have no faith in them anymore. Probably as a group are feeling demoralized and defensive.
I found out something similar about one of our docs ... by asking a wrong question. Felt terrible for the guy -- had nothing but sympathy. Sometimes the suits are strategic and have more to do with patients needing money (like to pay off medical debts) than actual incompetence on anyone's part.
Sorry if I sound like I am defending them, I really do not know their individual situation, but I work in a medical library, have friendships with medical professionals, and I hear both sides of some complicated political stories ... and yes, things ARE that complicated in medical practice.
__________________
Linda Initial A1c Feb 6 09: 12% Aug 24 A1c (MD office) 5.5%
Jul ... C-pep 1.3, GAD-65 > 30 metformin 1000 mg BID
Simvastatin 80 mg
Ramipril 5 mg
T4 125 mcg
baby aspirin
Vitamin D3, 2000 IU (blood values normal, advised to continue this dose by endo)
CoQ10 100 mg
Eating 70 - 90 g carb per day
Interval training on recumbent cycle
BMI is down to ca. 25.8 According to Joslin's Diabetes, 2005 ed., 5 - 30% of those diagnosed as Type 2 actually have LADA. | 
07-04-2009, 09:34 AM
|  | Member
I am a: Type 1 | | Join Date: Jun 2009 Location: Boston, MA
Posts: 227
| | | I do not feel you are taking sides. You are presenting both sides of the coin.
It is possible this situation occurred. They may feel demoralized; typical to the profession (I witnessed this during my tenure in my pharmacy days too), no one really listened to me. Had anyone spoke and listened to me, they'd understand my decision had nothing to do with their practice (except the nutritionist) | 
07-04-2009, 09:46 AM
| | Senior Member
I am a: Type 1.5 | | Join Date: Feb 2009 Location: KCMO
Posts: 5,100
| | Quote:
Originally Posted by Mothernature I do not feel you are taking sides. You are presenting both sides of the coin.
It is possible this situation occurred. They may feel demoralized; typical to the profession (I witnessed this during my tenure in my pharmacy days too), no one really listened to me. Had anyone spoke and listened to me, they'd understand my decision had nothing to do with their practice (except the nutritionist) | Oho! Well if they are that defensive about your decision, perhaps they would have continued difficulty in listening to you about your treatment decisions, and you would indeed be well shut of them. Keep it cordial ... but find another PCP.
__________________
Linda Initial A1c Feb 6 09: 12% Aug 24 A1c (MD office) 5.5%
Jul ... C-pep 1.3, GAD-65 > 30 metformin 1000 mg BID
Simvastatin 80 mg
Ramipril 5 mg
T4 125 mcg
baby aspirin
Vitamin D3, 2000 IU (blood values normal, advised to continue this dose by endo)
CoQ10 100 mg
Eating 70 - 90 g carb per day
Interval training on recumbent cycle
BMI is down to ca. 25.8 According to Joslin's Diabetes, 2005 ed., 5 - 30% of those diagnosed as Type 2 actually have LADA. | 
07-05-2009, 07:04 PM
|  | Member
I am a: Type 1 | | Join Date: Sep 2008 Location: st-paul, quebec, canada
Posts: 471
| | | that's just weird... i would think a good doctor would agree with the best treatment for you... but i remember a case of a woman who had cancer and her insurance didn't deny her or accept the diagnosis... she had been covered before she got cancer so there shouldn't have been a problem... she died because her health was in "limbo" waiting for her health insurance company to decide on which course of treatment would be better "for her" (actually, which one would be cheaper)... she couldn't do anything about it, because she wasn't denied treatment, the company was just waiting... probably hoping she was going to die before they had to pay anything...
not everyone out there that "should" be helping us is actually helping us... i think that person who wrote you should be clearer about what the meaning in the letter was... since you've had a decision written to you, you have some kind of recourse...
__________________ sable, type 1 diabetes since march 25th, 1992 www.spca.com |  | | Thread Tools | | | | Display Modes | Linear Mode |
Posting Rules
| You may not post new threads You may not post replies You may not post attachments You may not edit your posts HTML code is Off | | | |  | | » Site Navigation | | Diabetesforums.com | | | !-- gallery --> Resource Directory | | | !-- soon --> Contact Zone | | | |