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OMG I Can't believe my PCP has told me to leave over Joslin! LinkBack Thread Tools Display Modes
  #1 (permalink)  
Old 07-03-2009, 09:39 AM
Mothernature's Avatar
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Angry OMG I Can't believe my PCP has told me to leave over Joslin!

From a note I received:

"...As far as the Joslin consult, I spoke to several of my Diabetic Consultants here and they concur that if your priority is to go to Joslin no matter what, you should change your primary care to a non HVMA provider. (We have many wonderful endocrinologists some of whom came to us from Joslin) I'd be happy to refer you within HVMA if you'd like.

xxxxx xxxxxxxxx NP"

OMG WHAT??

My PCP does not support me going to the best care WHAT???

If I had cancer, I would not expect them to treat me as they are not specialist. They are not diabetic specialists so I would not expect them to give me the ultimate care either.

Wow, I am utterly dumfounded.
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Old 07-03-2009, 09:51 AM
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I would ask her for a clarification.

It might be because the practice feels that they could coordinate and communicate about your care more closely, within their institution ...

but she needs to explain that in that case.

I don't think you are just being turfed.
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Linda

Initial A1c Feb 6 09: 12%
Aug 24 A1c (MD office) 5.5%
Jul ... C-pep 1.3, GAD-65 > 30

metformin 1000 mg BID
Simvastatin 80 mg
Ramipril 5 mg
T4 125 mcg
baby aspirin
Vitamin D3, 2000 IU (blood values normal, advised to continue this dose by endo)
CoQ10 100 mg
Eating 70 - 90 g carb per day
Interval training on recumbent cycle
BMI is down to ca. 25.8



According to Joslin's Diabetes, 2005 ed., 5 - 30% of those diagnosed as Type 2 actually have LADA.
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Old 07-03-2009, 09:59 AM
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I never discussed this with my PCP directly. I wanted to go Joslin initially to start with a dietitian. I did not like the one I have at this practice.

Joslin sent the form requesting a referral for the nutritionist only . When DH was at their office the other day (I went with), the PCP's nurse became confrontational over Joslin stating the same thing. They refused to help my dentist figure out what meds to prescribe over this.

My concern is they should have found out more information, not go on the immediate attack as they did. They also should not threaten me as they did. The way the email reads as if there was a big brew ha over this. There was one confrontation made by PCPs nurse, there was no communication on my end about this until I was confronted.
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Old 07-03-2009, 10:01 AM
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FORGET THAT!

Russell
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Old 07-03-2009, 07:45 PM
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My diabetes doc (internal med specialist) aske me to go to Joslin about 20 yrs ago for a workup. I wish I had but i didn't. I have several online friends who are so glad they went there! It is a GREAT place, provided your insurance covers it!
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Old 07-03-2009, 08:07 PM
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What do they mean by HVMA provider? The way I read it they were encouraging you to change your insurance to one that would cover Joslin, but obviously that's not what that meant.
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Old 07-03-2009, 09:28 PM
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HVMA is the name of the medical group. I wish this was the issue with the PCP Eeyore. The visit was quite clear; they are angry to the point they would not assist my dentist.

I'm making some phone calls next week. One is to our insurance company to inform them of what occurred.
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Old 07-03-2009, 09:59 PM
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That is seriously out of line. You might also want to file a grievance with the State Medical Board.
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Pre-D Sept. 2008 BS Range (45-280)
Diet and Exercise

One Touch Ultra Smart named Alice (Thanks PaleFaceGirl!)
A1C: 5.7
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Old 07-03-2009, 10:40 PM
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Quote:
Originally Posted by EeyoreButterfly View Post
That is seriously out of line. You might also want to file a grievance with the State Medical Board.
Well, this borderlines the ADA. I am being discriminated against because I am diabetic.

A stretch maybe but there is truth too.

I need to call their parent company, the insurance, the state, etc.
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Old 07-03-2009, 11:00 PM
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I just reviewed the state license. The PCP paid out a very large amount in a medical malpractice case. Hmmm......
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Old 07-04-2009, 06:59 AM
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Quote:
Originally Posted by Mothernature View Post
I just reviewed the state license. The PCP paid out a very large amount in a medical malpractice case. Hmmm......

They might think you are going to Joslin because you found about that, and have no faith in them anymore. Probably as a group are feeling demoralized and defensive.

I found out something similar about one of our docs ... by asking a wrong question. Felt terrible for the guy -- had nothing but sympathy. Sometimes the suits are strategic and have more to do with patients needing money (like to pay off medical debts) than actual incompetence on anyone's part.

Sorry if I sound like I am defending them, I really do not know their individual situation, but I work in a medical library, have friendships with medical professionals, and I hear both sides of some complicated political stories ... and yes, things ARE that complicated in medical practice.
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Linda

Initial A1c Feb 6 09: 12%
Aug 24 A1c (MD office) 5.5%
Jul ... C-pep 1.3, GAD-65 > 30

metformin 1000 mg BID
Simvastatin 80 mg
Ramipril 5 mg
T4 125 mcg
baby aspirin
Vitamin D3, 2000 IU (blood values normal, advised to continue this dose by endo)
CoQ10 100 mg
Eating 70 - 90 g carb per day
Interval training on recumbent cycle
BMI is down to ca. 25.8



According to Joslin's Diabetes, 2005 ed., 5 - 30% of those diagnosed as Type 2 actually have LADA.
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Old 07-04-2009, 09:34 AM
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I do not feel you are taking sides. You are presenting both sides of the coin.

It is possible this situation occurred. They may feel demoralized; typical to the profession (I witnessed this during my tenure in my pharmacy days too), no one really listened to me. Had anyone spoke and listened to me, they'd understand my decision had nothing to do with their practice (except the nutritionist)
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Old 07-04-2009, 09:46 AM
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Quote:
Originally Posted by Mothernature View Post
I do not feel you are taking sides. You are presenting both sides of the coin.

It is possible this situation occurred. They may feel demoralized; typical to the profession (I witnessed this during my tenure in my pharmacy days too), no one really listened to me. Had anyone spoke and listened to me, they'd understand my decision had nothing to do with their practice (except the nutritionist)
Oho! Well if they are that defensive about your decision, perhaps they would have continued difficulty in listening to you about your treatment decisions, and you would indeed be well shut of them. Keep it cordial ... but find another PCP.
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Linda

Initial A1c Feb 6 09: 12%
Aug 24 A1c (MD office) 5.5%
Jul ... C-pep 1.3, GAD-65 > 30

metformin 1000 mg BID
Simvastatin 80 mg
Ramipril 5 mg
T4 125 mcg
baby aspirin
Vitamin D3, 2000 IU (blood values normal, advised to continue this dose by endo)
CoQ10 100 mg
Eating 70 - 90 g carb per day
Interval training on recumbent cycle
BMI is down to ca. 25.8



According to Joslin's Diabetes, 2005 ed., 5 - 30% of those diagnosed as Type 2 actually have LADA.
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Old 07-05-2009, 07:04 PM
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that's just weird... i would think a good doctor would agree with the best treatment for you... but i remember a case of a woman who had cancer and her insurance didn't deny her or accept the diagnosis... she had been covered before she got cancer so there shouldn't have been a problem... she died because her health was in "limbo" waiting for her health insurance company to decide on which course of treatment would be better "for her" (actually, which one would be cheaper)... she couldn't do anything about it, because she wasn't denied treatment, the company was just waiting... probably hoping she was going to die before they had to pay anything...

not everyone out there that "should" be helping us is actually helping us... i think that person who wrote you should be clearer about what the meaning in the letter was... since you've had a decision written to you, you have some kind of recourse...
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