Cbar425

Dr won't listen to me!! Please help any advice

17 posts in this topic

Hello, I am new to this site and I would like to ask for some insight. Over the last few months I've been experiencing many symptoms of diabetes. I'm 21 and type 1 runs in my family.

 

So I've had several blood tests done and my fasting blood glucose was 126. My dr never called me and never set up a follow up to do a second test. So I took matters in my own hands and requested a follow up blood test. My Dr basically rolled her eyes at me and told me I shouldn't be worried since I'm "thin" and "look healthy". 

 

That day i had my urine tested for something unrelated and the next day I receive my test result by email and i see on there that I have 80mg of Ketones in my urine. To my understanding ketones in urine isn't good and 80mg is a high number. Once again my Dr never mentioned the ketones.

 

I feel so frustrated I know something is wrong I don't feel right and I haven't for a while now. What do you guys think about all of this? I appreciate any input 

Share this post


Link to post
Share on other sites

I would start with getting your A1c number.  That is the key number for telling where your numbers are.  

 

There's a significant difference between type 1 and type 2 though.  Type 1 your body stops making insulin.  Type 2, your body is resistant to the affects of insulin, and may also have some production issues.  

 

An A1c below 6.0 is not diabetic.

Share this post


Link to post
Share on other sites

Buy a cheap meter.  Do a couple of fasting tests in the morning and do some testing two to three hours after a big meal.   It will give you a fairly good idea.   Find a new doctor if you don’t like the results.   

Dave_KC and funkynassau like this

Share this post


Link to post
Share on other sites
12 minutes ago, notme said:

Buy a cheap meter.  Do a couple of fasting tests in the morning and do some testing two to three hours after a big meal.   It will give you a fairly good idea.   Find a new doctor if you don’t like the results.   

 

Cheap meter is a great choice.  ReliOn at Walmart is quite inexpensive.  

 

If a Doctor won't listen, and won't work with you, get a different doctor, couldn't agree more. 

Share this post


Link to post
Share on other sites

I show fairly high ketones daily with normal BGs. Your BG was nothing to be concerned with, so the ketones aren't either. What is your diet like? If you low-carb, then ketones is a non-issue. If you high-carb, it might be. Get an A1C test.

TX_Clint likes this

Share this post


Link to post
Share on other sites

It's not bad no.  Non-diabetics can hit that after meals or eating lots of carbs.  If you were in danger it would be 200+  Likely 300+.  I'm perfectly happy at 126.

If you are still concerned get a relion meter from Walmart and a one box of strips.  Just test yourself after meals, before bed, when you get up.  probably the easiest method.

After that would be an A1C test like has been said.

Share this post


Link to post
Share on other sites

For someone who isn't diabetic I thought fasting blood sugar of 126 is high my blood test indicated I should have another test done? 

Share this post


Link to post
Share on other sites

I personally would never consider 126 as acceptable as fasting level as a diabetic.

Normal fasting blood glucose levels for non diabetics is under 100 and more usually somewhere in the 80s.  Anyone who is running consistently higher is having a problem of one sort or another.

 

I agree with what a few others said.  Grab a cheap meter.  Check your fastings, before meals and 2 hours after.  Keep records.  This way you have more information to present to your doctor.  Or perhaps another doctor.  Any doctor who refuses to listen to your concerns isn't a doctor who is willing to work with you until you hit emergency levels.

NoraWI, meyery2k and Cbar425 like this

Share this post


Link to post
Share on other sites

Thanks for the advice Kit, thank you everyone for all your help! I asked my Dr to refer me to an Endo and she did I'm just waiting to hear from them. Im also gonna get a cheap meter. 

 

This may sound silly but I've never tested myself before with a meter so I'm pretty lost on the process, is there multiple supplies I need? Or just the meter and strips?

 

thanks again everyone

Share this post


Link to post
Share on other sites

I'm glad to hear that you're getting to see a specialist.  With the mix of your family history and your age, it should be enough with elevated fasting and ketones to raise some warning flags that something is going on.

 

Yes, in order to test your BG levels, there are a few different things you will need.

1)  The meter itself

2)  A lancing device and lancets to go with it

3)  Strips

 

Now if you are diagnosed as diabetic, your insurance company will pay for these supplies.  However, they will usually only pay for one specific type and with a limited number of strips depending on your needs (and they can be stingy at times).  However that will mean you have to wait until your endo appointment.

 

Now when we talk about cheap meters, we're actually talking about cheap strips.  Many companies almost give the meters away if it means you're stuck using their strips which can often cost an arm and a leg.

 

I personally use the ReliOn Prime from Walmart.

The meter itself is normally $17 (currently on same online for $9

A pack of test strips is $9 for 50 or $17.88 for 100.

Note:  ReliOn Prime strips can be utterly inconsistent in price at Amazon.  Anywhere from $16 for 100 to $50+.  I usually buy straight from Walmart.

 

I believe CVS also has a meter with strips of a comparable price point.

 

There are a very large number of lancing devices out there.  The one I prefer is the One Touch Delica.

I also prefer the 30 gauge lancets which go with this device.  Some prefer the 33, which are finer, but I have problems with them.  Lancets come in boxes of 100.  I change mine out about once a month.  A box of lancets will last for a very long time.

 

Basically you can kit up for about $50 depending on where you buy and how much.

 

If/when you get diagnosed you may end up changing, but most diabetics tend to have an extra meter/lancing device just in case of an emergency (lost, broken, etc).

 

Once you have everything you need, Youtube is usually a pretty good source for video tutorials on how to use it all.  You can also feel free to come back here and ask any questions you may have.

 

NoraWI likes this

Share this post


Link to post
Share on other sites

And if you buy your meter and supplies at a Wal-Mart or in a drugstore rather than online, a pharmacist is usually happy to show you how to use it.

Dave_KC and Kit like this

Share this post


Link to post
Share on other sites

Just thought I would update you guys, I called the endo and the earliest they can see me isn't til January 10!! They have me on the waiting list in case anything opens up :/

Share this post


Link to post
Share on other sites

Surely there is more than one endo in your area. If you don't want to wait that long, start to Google endos in your area and start calling them all. You'll have an appointment in no time and if you don't like them you can always switch but at least you'll get initial diagnosis and results. Good Luck. 

TX_Clint likes this

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now