Jump to content
Diabetes forums
  • Welcome To Diabetes Forums!

    Registration is fast, simple and absolutely free so please, join our community today to contribute and support the site.

Archived

This topic is now archived and is closed to further replies.

DeusXM

All Lantus Users Please Read Immediately

Recommended Posts

sydneya

Thanks for sharing, Deus. I am on Lantus and have been about 9 months. I'm having no side effects that I am aware of, but it is good to know what's happening. Depression is a hard one, because it is easy to blame on lots of different things.

It's great that you caught it and even though there is always a challenge to change, that the change is slowly pulling together. Good luck with the challenge.

Share this post


Link to post
Share on other sites
ghostrider

I noticed after starting to take lantus that i am completely uncontrolable i can not sleep at night or be around alot of people which I am told are anxiety attacks but im not sure because its not like im nervous about anything? DO you think this is something I should look into with my doctor? Could i be feeling like this from the insulin when i was on Novolin I was fine my bg was under control and my a1c's are fine. Could i be having reactions to my lantus?

Share this post


Link to post
Share on other sites
ghostrider
Hi Joe,

You will never know what it means to me to have found your thread and also this site. I have been searching the net for days, trying to figure out how my daughter has went from being sensible and very level headed to a nervous wreck. When this all started happening to her we thought of all the possibilities for it and we kept coming back to the same thing, Around the time the depression and anxiety hit her she was put on a new insulin (LANTUS) After reading what everyone has to say i am now starting to believe it could be the insulin that has caused it. I want to say that although she has been put on medication we are going to check this out with her clinic.

Regards to you all,

Sylvia from Scotland.

 

I am experiencing the same problems, how old is your daughter?

Share this post


Link to post
Share on other sites
BriOnH
I am experiencing the same problems, how old is your daughter?

ditto, and for me i am certain it was when I was switched from pork to humanlin insulin at 14. I am thinking of just trying pork (if they even make it anymore) to see if i feel normal again. I could very well just be grasping at straws.

 

A word of caution for those that take anti-depressants or are considering them - especially SSRI's, they are EXTREMELY hard to come off of, can have terrible teribble side effects, and cause HUGE alterations in the brain and mess with testosterone/estrogen levels a lot(hence the sexual side effects). I am going through paxhell right now, and expect 18 months to recover coming off it. I highly recommend you look at this site about SSRI's and the heck they can cause @ http://www.paxilprogress.com. Paxil worked for me for about 6 years til eventually the side effects overcame the benefit. AD's are literally miracles for a lot of people, but just wanted to share the other side of them if ya didnt already know.

 

With all the different types of insulins that are available, and the new ones coming out in the next two years, I honestly believe that some need a modified regimine rather then what the doctors and drug companies tell us which are best for us. I wish there was some test they could take that matched you to the insulins that would make you feel best, rather than trial and error.

Share this post


Link to post
Share on other sites
Sylv

Hi there, I am so sorry to hear that your going through this with your daughter. I have to go out now but wanted to write to you first. My daughter is 22 and i siad in previous mail has always been verry level headed. I dont know if i am allowed to do this but i am putting my e-mail address with this if you wish to get on touch. Sillysilv@hotmail.com

kindest regards

Sylvia.

Share this post


Link to post
Share on other sites
DeusXM

As an update, there is now a new insulin called Levemir which has a similar action profile to Lantus (ie. it's peakless). However, unlike Lantus it is the same pH as the human body - it is this pH discrepancy in Lantus which causes the stinging and may also be responsible for other effects.

 

If you're having problems which you think are associated with Lantus then you may wish to switch to Levemir. However, Levemir is also not perfect - I found it just didn't seem to do anything to my BG whatsoever, but apparently I'm in the minority again!

Share this post


Link to post
Share on other sites
Sylv

Hi there,

Sylvia here, I am very new to this site and the reason i joined it was my daughter who throughout her life and illnesses has never suffered from depression. My daughter who has cystic fibrosis developed diabetes around the age of 18, this is something that can happen to cystic fibrosis sufferers. I am not totally in the know about diabetes but i know that nov last year her nurse was not happy with her overall sugar levels. I believe she was on two different insulins at the time... Think they were novorapid and act rapid... I may be wrong. They decided that she should go on Lantus, which she takes at night and i am sure she takes one of the other insulins as well. I would say that her state of mind has not been right for around six weeks now. The anxiety she is feeling and the despair (her words) have turned her into a nervous wreck. She obsesses and fixates on the smallest thing and worries about everything that comes to mind. I know this is not my daughter and if she was a depressive it would have come to light years ago. I just find it so strange that this has started happening around the same time she changed her insulin. I would gladly accept any advice anyone has to offer. I am also in the UK (Scotland) if anybody would like to keep in touch concerning this matter.

Thanks for listening,

Sylvia.

Share this post


Link to post
Share on other sites
Linn

I was on Lantus for around a year before I was put on the pump. Looking back, the only oddity I can recall is I suffered from a few *at the most 5* anxiety attacks in the middle of the night that woke me from sleep..

I naturally checked my glucose each time but numbers were fine. No more anxiety attacks though after they put me on the pump.

Share this post


Link to post
Share on other sites
Aftiel

My Doctor just switched me over to Lantus (which I will start on tomorrow.) I will keep my eyes open for any side effects - however after being Type 1 for almost 30 years, I look forward to an insulin that is more consistent.

 

Humilin insulins have resulted in me having highs and lows every day essentially.

Share this post


Link to post
Share on other sites
cfrench180@tamp

Hi,

 

I am on Lantus and have been since it came out. I've had a lot of problems with it and done a great deal of research on it. I had severe hypoglycemia from day one on it, and eventually had to go on two injections per day, which is where I am right now. So many of the older insulins have been removed from the marketplace, and I believe Humulin U is going by the wayside now, too. When I first started on Lantus and reported the problems to my MD and to Aventis, they said I was crazy, that NO ONE getting Lantus had the problems I was describing. Eventually it's come out that there are a lot of problems including increased hypoglycemia unawareness at night during the switchover, some problems with retinopathy advancing in type two diabetics (trial results not completed yet, but this was known before it was put to market) and the need for split dose of Lantus in a great number of people. All of the new insulins (analogs) are synthetics and we really just don't know at this point what the future will hold in terms of dangers. I advocate for the availability of alternative insulins, as many people can't get along on these new and fast acting insulins. Thanks for the alert on the depression and the tv group that's looking into Lantus. We are really all guinea pigs, and personally I don't like it. Hard enough to keep up with our regimes, isn't it? If I were in the UK, I would be asking for the old beef/pork lente insulin...it's available there, but extremely hard to import to the US.

 

I don't know who here is type one or type two. I'm type one, for over 30 years now. I've been working with the International Medical Veritas Associatiion and looking at some of the "chemical poisons" that seem to have such an influence on our blood sugars and on the complications . If anyone is interested in the arsenic in chickens we eat these days, the Alloxen in white bread flour, the dangers of medications used for "mental illness" and so many other things out there like fluoride, mercury, lead etc. is affecting us, please email me for a copy of "Chemical Poisoning in Diabetes".

 

I've also been really impressed with a couple of natural adjuncts to use. One being Magnesium and the other Spirulina. Research is showing that over 80% of diabetics of both types are deficient in magnesium and this is influential on mood and behaviors, as well as possibly preventive of type 2, reducing insulin resistance, and helpful in "double diabetes" where a person has both types (showing up more and more these days) and may also be influential in preventing complications. Also helpful in keeping blood pressures down, but not to be used if renal insufficiency is present. : : http://www.magnesiumforlife.com/

 

We're going to be expanding the site of the IMVA (International Medical Veritas Association ) to include an entire section on diabetes very soon.

 

Claudia French RN, LPHA

http://imva.info/

http://members.tripod.com/diabetics_world/

Share this post


Link to post
Share on other sites
ashlyn

Hi all:

I will try to explain my experience with Lantus. I am a 35 year old diabetic female and I've had diabetes for about 25 yrs . I've always had pretty good control of it . November of 2004 I went hypo during the night while taking Novolin N. (probably a combination of too much exercise or not enough to eat we assume). Shortly after, my doc switched me to Lantus. This is when life as I knew it had changed.

Almost immediately I developed a chest and back rash (my doc thinks it is acne). I am still, to this day at times, horrible to be near. I have changed into someone even I can't stand. Mood swings are horrible, I have continuous lows with no warning signs of what a high level is or a low level coming on anymore. My A1c's are good as they have always been good. I wake up daily feeling like I have been drugged up. Lethargic, kind of zombie like with usually really low bg. My sex drive has disappeared. I have told my doc I think it may be the Lantus or side effects but he doesn't believe that. I asked to be switched back to try the Novolin again to see if I get any better. He even put me on birth control pills to see if it will help the sex drive issues. He only adjusts my Lantus. There are so many bad things going on with me now. I am depressed, I cry a lot, moody, no sex drive, lethargic feeling, no energy, I am terribly forgetful. I began to wonder if the low glucose levels I had experienced have caused some type of brain damage. I am looking at the Lantus first to at least rule out if that is the culprit.

I should also add that my best friend takes Lantus and she too experiences a good portion of the same side effects. Her doc has her convinced that it's just stress causing all of her symptoms.

I will agree that Lantus can be a lifesaver for some. But it appears it can be a killer for others. I have researced Lantus for quite some time and found only a small handful of others posting about the side effects of it. I am glad I found this forum because now at least I can call my doc and demand to change my insulin with the knowledge that it's not only me feeling this on Lantus. Thanks all!

Share this post


Link to post
Share on other sites
christie

i always wonder when a new medicine comes out as to the complete safety of it.i am on lantus for a little over a year now,it has been ok not great but better than humalin u.i still have some bad hypos,and i too was very depressed i never thought the lantus could be a factor.the drs always say stress. and my son is a difficult adhd 6 year old. so i was given cymbalta for depression/pain but the side effects made me ill,so i called the dr and was changed to zoloft.i see a change in myself at least now i don't feel so stressed that i want to pull my hair out. i notice that my life attitude did change when starting on lantus.

Share this post


Link to post
Share on other sites
Colin_G

Any chance these effects could also occur as a result of using Levemir?

 

I was on Lantus for a few years before changing to Levemir about six months ago. I have been a little depressed at times over the last few years - I'm pretty sure it's my circumstances that were mostly the cause of the depression, but I'd like to eliminate the insulin as a possible cause.

Share this post


Link to post
Share on other sites
Mark C

I've been on lantus and it has changed my life for the better with no side effects caused by the hormone. I have a ringing in my ears now, which the doc says the nerves are waking up again and sensitive.

 

I walk five plus miles per day and I believe that brightens up my mood and it has helped me lose over 55 pounds last year alone and get more fit. BGL is way better and my A1c is now 6.6.

Share this post


Link to post
Share on other sites
woody57

I can sypathise with Deus XM ,THE SYPMTOMS he describes are exactly what i have experienced on and of for some time depressive swings,low libido,,aches and pains,im sure this a sympton of taking the Lantus,these symtoms are not continous,but in my case have lasted for many years.Ihave spoken to my health team but they allways seem to go on to the next subject without really listening to what your telling them,i have been on Human insulins for some 12 years,and lantus for about 3 years ,it seems they cant wait to get you on to the next wonder drug -hence the combined LEVIMIR they also have put me on.I am shortly to be assessed for a pump,as funding is available in my POST CODE AREA?,DO THEY USE LANTUS AND LEVIMIR WITH PUMP TREATMENT?-------I am sure however that LANTUS is not suitable to all .jim

Share this post


Link to post
Share on other sites
ashlyn

Hello Deusxm:

 

I was just wondering how you are feeling these days? I, too, am still considering getting off of the Lantus wagon. I am not sure how much more I can take of the side effects. I have so many of the side effects you have listed. I wouldn't say I'm depressed but maybe exhibiting mood swings that probably do resemble bi-polar symptoms. I have had all my labs done; hormone, A1C, etc...everything is normal. I have spoken to my doc about using the isophane even just temporarily but he, too, seems to defend Lantus and rates it so highly. Maybe my symptoms are purely blood sugar related, but I won't figure that out until I try getting off of the Lantus. Let me know how you are feeling and if you are still off of the Lantus. Thanks!!!:shakehand

Share this post


Link to post
Share on other sites
SueM

There is a lovely saying it's called

"Treatment refused" if you want off Lantus then tell your Dr treatment is refused and demand a switch back to the insulin you were happy with. It's your life you have to live it not some Dr sitting behind a desk.

Share this post


Link to post
Share on other sites
Cyborg

I did take part of the clinical trials for Lantus, so I know there was "some" testing. Until Feb 14th, when I start pumping, I was still taking Lantus. I was taking it for several years. And, yes, I was suffering from what I thought was diabetic depression. I was actually feeling that the depression was either gone or rapidly dissapating, but I chalked it up to the pump and tighter control. I never thought that it might be due to Lantus. Wow!

Share this post


Link to post
Share on other sites
Starlight

This is really concerning. Im not on lantus, but to think that maybe other insulin brands also have side effects that are yet not known..is scary.

 

If the company was to claim to you that the reactions were simply from a hypo..you can blatantly point out that the the depressed mood and perspiration are ongoing..everyday..now tell me... If your low, the symptoms last until you treat your self..they dont stick around,..now i dont think you'd be around today if you were experiencing hypos 24 hours a day, as they would probably proclaim. From what you've said the symptoms aren't the come and go type. They are persistant. So hmph to them. :itsme:

Share this post


Link to post
Share on other sites
lgvincent

Wonderful! I've just gotten some Lantus so I guess I had better try it to see if I can use it. Some of the NPH I have is getting close to the expiration date and I wanted to use it before it got too far past that date but now I feel I need to try the Lantus to see if I can use it.

Share this post


Link to post
Share on other sites
seacomp

I see a problem with this thread and a similar thread about possible side effects of metformin. I use Lantus, and don't notice a problem. That is not to say that there is or isn't a problem.

My concern is that there are many people who are open to suggestion in regards to things like side effects. Once someone has brought up the idea that a particular drug has a certain side effect they are certain to experience it. (Doctors in training have a similar problem, they "get" each disease, one-by-one as they work thru studing each one!)

That's one of the reasons that science tries to use a "double blind" in experiements where neither the person taking the drug or the person evaluating the result know what is the drug and what is the placebo.

Having said this, I don't know a clean solution. Clearly, there is value to discussing the side effects of drugs, which may be serious and only show up after long term use, so these threads are important and should continue. Perhaps, all that can be done is to point out the problem: warnings of side effects can be self-fulfilling prophecies.

Share this post


Link to post
Share on other sites
shybo

Hi there all, I'm new here today. I'm enjoying the posts and I noted where you say you never refridgerate your lantus? I taken lantus for a few years

and have always kept it refrigerated. It says on the container to. I've been fighting depression for many years and I'm beginning to wonder if there is any

antidepresants that really work good. I've been taking prozac, and it works sometimes and sometimes not and I've tryed several others and I haven't found one yet that I can say"oh I feel fine all the time" mood swings and all.

Wellbutrin was a bit hard on my tummy. Elivil I always thought made me feel

wierd as did a lot more, just kinda take em and stare at the wall a lot of time.

What I HATE worse about taking all those to start with is it takes so long to try them out for weeks, by the time the time is up to see if your suppose to feel better, you dont honestly know if you do or not cause ya can't remember just how ya felt that far back LOL. I came here to start with to ask about cymbalta? My legs hurt pretty bad sometimes because of nerve damage and I've see ads on tv about how it helps with puriphrial nerve damage?

I'm wondering if anyone can answer this or if anyone has tryed it. Thanks, Nice to see ya'll I'm shybo...

Share this post


Link to post
Share on other sites
psilocybin
I don't usually go in for appeals to others, but this is very important.

 

I've been talking to Joe elsewhere on the board about Lantus side-effects, and from him it's rather obvious that a lot of people have had problems. This encouraged me to talk to my diabetes specialist about Lantus problems. Her first response was that there weren't any significant problems with it. I then told her about some of the side-effects I'd been suffering.

 

Her face dropped. It was then that she confided in me some rather worrying things. Namely, Lantus is a very new insulin and has not been properly tested yet. She then went on to tell me that a significant number of her patients who she'd put on Lantus had gone on to develop depression, which disappeared almost immediately after they went back on to isophane.

 

She put me back on isophane. The transformation has been frightening. I realise now that very probably I was depressed, but I was doing the classic male thing of not considering it and believing I was just a little down rather than having a serious problem. Looking back at my other postings, especially the ones about sleeping, although I'm no doctor it appears, on reflection, that I was suffering many of the symptoms of bi-polar disorder.

 

I went back onto isophane a few days ago, and I'm just astonished by my mood. I've been in a state of perpetual euphoria for several days now, my self-confidence has skyrocketed, and for once I am actually starting to enjoy life again. I realise that this euphoria won't last, my own belief is that now I feel like 'normal' people do, and it's such a change from before that it feels like euphoria. Even so, I'm overjoyed (and slightly frightened) by the transformation.

 

Many people have attributed the side-effects associated with Lantus as purely blood sugar related, but I'm starting to think that something very different is afoot. I am now utterly convinced that there is something in Lantus that interferes with hormones. With my self-confidence has come along a massive reduction in fatigue, a general increase in strength and stamina, increased libido and aggressiveness. All these changes are similar to men with low testosterone levels who then go onto testosterone replacement therapy.

 

I've absolutely no way of proving this but I can't help but think that Lantus somehow interfers with testosterone (and possibly other hormones) levels.

 

Whatever it is, I simply haven't felt better now that I'm back on isophane.

 

Whilst I don't share Joe's suspicions about synthetic insulin as a whole, I wholeheartedly agree that there is genuinely something wrong with Lantus which can affect certain people. Therefore I appeal to every single person here on Lantus, regardless of whether you think you have suffered side-effects or not, to ask to at least go onto isophane insulin for just a month, to see if you find it makes a difference. I am simply astonished by how much better I feel with isophane after just a few days.

 

I implore you to challenge your doctors on this issue, and do not allow them to fob you off. This is your health and your life here. Please, please try all the options you can to make sure you have the very best of both.

 

Thank you.

 

wow...i just found this thread..but thats a serious issue

Share this post


Link to post
Share on other sites
AuntieDeb

I've been reading the posts about Lantus and wanted to offer my piece. I was involved in an early study of Lantus. As soon as the study ended, it was disclosed to me that I was becoming increasingly anemic and that I should contact my personal physician for follow-up care. I had never been anemic before the study and after returning to "normal", I haven't been anemic since. Another of my fellow research subjects became so anemic during the study that she had to discontinue her participation altogether.

 

I use an insulin pump (since April 2000), so I don't use Lantus, however, my younger sister uses Lantus and Humalog. I have been watching her struggle for several years with anemia and it hadn't dawned on me that it is possible that the Lantus could be causing her anemia!

 

For anyone who has never been anemic before, there is no fatigue like the fatigue of anemia. If you are on Lantus, get your blood count done.

 

I am now going to suggest to my sister that she should ask her doctor to try her on another insulin for a period of time to see if her anemic condition improves. Heck, they want to do a hysterectomy on her -- nothing is wrong with her uterus! They just don't think she can handle the blood loss.

 

Anyway...not to cause hysteria, just trust your self-awareness. It isn't normal to feel so tired. If it checks out, you will at least know that you aren't anemic.

 

Good luck!

Share this post


Link to post
Share on other sites

×

Important Information

By using this site, you agree to our Terms of Use.