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disney4me

Daughter is very sick may have Type I

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disney4me

My 7 year old daughter has been sick for almost 2 years now. It started with her feeling very sick and vomitting pain in her stomach, we thought it was her appendix. We took her to 2 hospitals in 1 week. They did 2 CAT scans first hospital couldn't get a good reading. Second hospital got a good reading and said that she had to get her appendix out right away it was inflamed. The surgeon got to the hospital and said he just thought it was a virus and that she was dehydrated. They gave her IV and antibiotics. She still Vomits 1-2 times a month , usually at night and almost always if she has something very sugary like a slushy or swedish fish. She will get very pale very tired and vomit. Then a few hours later she will feel better. She has developed a chronic cough and Chronic sinusitis, she had to get a CT done of her sinuses. She has been on Antibiotics 8 times in the past 2 years. Over Mothers day weekend last year she got bit by a friends dog and it got infected so bad over night that she had to be admitted to the hospital. The 1st course of antibiotics didnt work so they had to go to a more aggressive one. We switched pediatric doctors and she has seen an allergist. Also an ENT. (they want to put tubes in her ears and remove her adnoids or toncilles.) But nothing explains the vomiting. This past week she woke up one morning looking very ill and pale also the side of her neck had a 4inch by 4 inch welt that looked like a hive on her glands on the side of her neck. It scared me to death. I never saw that before. It went away after a few hours. She vomited again tonight alot, (no fever) She loves to snack on foods all day and she loves sugar and sugary foods. She is skinny . She has to urinate alot but doesnt void alot. Sometimes it hurts her to go. She had a urine test 2 weeks ago. The said it was okay. Im scared for her and I don't want to miss a sign. I don't believe she has been tested for Diabetes yet. What do you guys think, should I take her to the hospital or go to the endocrinologist first.

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EeyoreButterfly

It could be, but it sounds like something else, especially the lump on the neck. I would think that it would have shown up in the urine test, but then again, I don't know that they looked for it.

 

I would not wait for an endocrinologist. Take her to the hospital or another doctor, somewhere where she can be seen right away. If she does have Type 1 her sugar will be through the roof and any doctor can test that easily.

 

The typical symptoms of high blood sugar are:

-Extreme thirst

-Frequent urination

-Fatigue

-Unexplained weight loss.

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poodlebone

If this has been going on for 2 years, it's probably not diabetes but there's no harm in asking for a BG test next time she's at the doctor's.

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disney4me

Thanks, I know it sounds like other things that why we are so puzzled. But she does have some signs of type 1 . We just want to know what we should do. If she does have type I would her sugar levels be high all the time.

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Psycho Penguin
My 7 year old daughter has been sick for almost 2 years now. It started with her feeling very sick and vomitting pain in her stomach, we thought it was her appendix. We took her to 2 hospitals in 1 week. They did 2 CAT scans first hospital couldn't get a good reading. Second hospital got a good reading and said that she had to get her appendix out right away it was inflamed. The surgeon got to the hospital and said he just thought it was a virus and that she was dehydrated. They gave her IV and antibiotics. She still Vomits 1-2 times a month , usually at night and almost always if she has something very sugary like a slushy or swedish fish. She will get very pale very tired and vomit. Then a few hours later she will feel better. She has developed a chronic cough and Chronic sinusitis, she had to get a CT done of her sinuses. She has been on Antibiotics 8 times in the past 2 years. Over Mothers day weekend last year she got bit by a friends dog and it got infected so bad over night that she had to be admitted to the hospital. The 1st course of antibiotics didnt work so they had to go to a more aggressive one. We switched pediatric doctors and she has seen an allergist. Also an ENT. (they want to put tubes in her ears and remove her adnoids or toncilles.) But nothing explains the vomiting. This past week she woke up one morning looking very ill and pale also the side of her neck had a 4inch by 4 inch welt that looked like a hive on her glands on the side of her neck. It scared me to death. I never saw that before. It went away after a few hours. She vomited again tonight alot, (no fever) She loves to snack on foods all day and she loves sugar and sugary foods. She is skinny . She has to urinate alot but doesnt void alot. Sometimes it hurts her to go. She had a urine test 2 weeks ago. The said it was okay. Im scared for her and I don't want to miss a sign. I don't believe she has been tested for Diabetes yet. What do you guys think, should I take her to the hospital or go to the endocrinologist first.

 

Definitely get a blood sugar test done, I wouldn't take her to the hospital for one, but wow, she has symptoms of SOMETHING, you definitely need to get this checked out even if it's not diabetes (which it doesn't sound like it is)

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Psycho Penguin
Thanks, I know it sounds like other things that why we are so puzzled. But she does have some signs of type 1 . We just want to know what we should do. If she does have type I would her sugar levels be high all the time.

 

She has a few signs but it sounds like there's something a lot more serious going on.

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EeyoreButterfly

You are right, her sugar would be high all the time. If she had Type 1, she probably would have entered ketoacidosis long before now (diabetic coma), however, it certainly doesn't hurt to ask for a blood sugar check. Definitely go to some kind of doctor ASAP. Hopefully they will figure it out.

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EeyoreButterfly

The symptoms I listed above. Mainly it's the excessive drinking and urinating. If this has been going on for two years, she would have had it by now. I highly doubt you need to be worried about a diabetic coma, something is going on, but diabetes does not sound like it is it.

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Psycho Penguin

Yeah, it took me 10 months of severe symptoms for me to go in DKA and it sounds like I was worse than your daughter is. EeyoreButterfly is right, but if you're concerned, no harm in pricking your daughter's finger so you can knock something off the list.

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Psycho Penguin

I slept all the time, I peed all the time, and I was always thirsty. I lost 80 pounds. I slept for two days straight then stopped breathing before I went into DKA, being rushed to ER and almost died in the hospital.

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Keezheekoni

Do you happen to have any of her lab reports on you? I'd like to see what her chemistries are, as well as her urinalysis.

 

I'm thinking that what might be wrong is environmental. Do you have any lead paint that's chipped or not covered up in your house? How about a popcorn ceiling that was put up pre-1978, and/or have that ceiling stripped within the last 3 years? How about black mold? It could be hiding in the walls or under her bedroom floor...

 

Those are the things that top my list. I'm almost positive the ERs that you've taken her to have done blood sugar checks, so that would have been ruled out by now.

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disney4me

Its so scary, my best friend has type 1 and she showed signs when we were in middle school. I have symptoms too. I have been pre -diabetic for years. I get the shakey hands when my sugar drops, headaches,nausia,tired all the time i've taken GTT tests a few times and I have always been borderline. I always do well when I do the atkins diet and I feel the best when I'm on it. But I'm more concerned about my daughter then myself right now.

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disney4me

Yes that has been a thought too. Lead paint was removed from her school this past summer but she had these symptoms before that over a year . We live in a new construction house. We never did her blood work up yet but the urine test they called me and said it was ok but I have to get a copy of it. We think there are 2 issues we are dealing with . The ENT issues and something else that is causing her not to get better , that also causing the vomiting and the chest illnesses that wont get better with antibiotics.

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EeyoreButterfly

It sounds like she has something that is causing her to be immunocompromised. I can't believe that if you've been taking her to doctors for two years they never once did a blood work up. That just doesn't sound right. If they were looking at appendicitis, it seems like they would do the blood work then.

 

It could be that she has irritable bowel syndrome or something similar. I am part of a campus organization for people with chornic diseases. Half the members of the group have ulcerative collitis, crohn's disease, or celiac disease. Many of them had similar stomach symptoms as your daughter.

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disney4me

They said they want to test her for Cystic fibrosis too. I swear I am so sick of getting those looks from the doctors when I list all her problems and how many times she has been on antibiotics. Im sick of them not helping me in the right way. I just want to help her. I feel like my motherly intuition is raising all kinds of red flags and no one is getting it right.

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EeyoreButterfly

It's tough. Hopefully they will get it figured out. The main thing is to keep an open mind. Make sure you consider all possiblities and do not hone in on one diagnosis.

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disney4me

Yes I know, we are not honing in one just one thing. Trust me this why this has been going on for as long as it has been, because no one can figure it out. But we are at the point now where I'm afraid when she goes to sleep at night because I don't want something to happen to her in her sleep.

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EeyoreButterfly

Just wanted to make sure since it seems like you have convinced yourself it is diabetes. Good luck, and let us know how it goes.

 

Call your doctor tomorrow and take her in ASAP. If you are afraid to sleep at night, that is not a good thing.

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pandeia

hi

 

if you havn't taken your daughter into the doctor yet that'd be a good idea. Find a doctor who knows what they're talking about; my dad went through 4 doctors before finding one who finally found out was wrong with him; my dad had cancer.

I, myself, even had to go through a few doctors before I finally ended up going into diabetic coma because it took too long for a doctor to figure out what was going on.

 

Also, the symptoms of your daughter don't really sound diabetes-related. The throwing up when she eats sugary foods a lot doesn't really make sense either?? before I went into DKA, I craved sugary foods like no other for about 4 months before I finally puked on a night where I drank 3 large shakes because of excruciating thirst and sugar-craving. After that I couldn't eat anything, even drink water, for a week. Also, I drank about 6 gallons of water daily to make me pee a lot; I carried around a gallon water jug at school I was so thirsty.

But who knows, she may have diabetes, maybe some kind of other form? It just doesn't fit, really though. Def. get her checked.

 

I wish you the best of luck! Don't give up hope!

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Brian J
Its so scary, my best friend has type 1 and she showed signs when we were in middle school. I have symptoms too. I have been pre -diabetic for years. I get the shakey hands when my sugar drops, headaches,nausia,tired all the time i've taken GTT tests a few times and I have always been borderline. I always do well when I do the atkins diet and I feel the best when I'm on it. But I'm more concerned about my daughter then myself right now.

 

Use your best friend's meter and with her help test your daughter for high blood sugar. It is quick and easy and might help find out (or rule out) what is going on.

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MODY-RN

sounds like you are doing a great job being your daughter advocate... I know it can be frustrating while all the MD's try to figure it out but know that from their standpoint, it is equally frustrating not being able to give you the answers and have a diagnosis. Get a second or third opinion... as many as it takes. Sometimes a new pair of eyes is all it takes. hang in there.

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microwave

x2 Mody

 

Are you going to a large hospital with specialists on-hand? Just what you described in your inital post would be enough for me to refuse to leave until I had an answer.

 

However thats just me.

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