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lorilei

1.5..highs and lows

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lorilei

Was wondering if any of you with lada and the like, where your pancreas is still producing some, have days when you seem to run high no matter what you do or low no matter what you do...how do you resolve this? seems like sometimes the faulty pancreas kicks in and sometimes it's snoozing...

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dbc

Yes, happens here as well :eek: I've guess I've "progressed" (??) to the point where I don't hassle about it too much, I figure it's just one of the things I have to deal with - but I used to get pretty freaked out about it :o

 

Nowdays I adjust Apidra/Lantus doses a bit and make sure I test a bit more than usual. The lows (3.0 - 3.6 or so) bother me because I tend to feel washed out for a couple of hours even if I correct properly. The highs annoy me 'cos I HATE seeing levels of 9.0 or higher. . . .

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mortis505

Yes I have days like this. I up my testing regimen and just keep an eye on things.

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alicat61

:) Hi,

I have times when i think I should be going along smoothly and the numbers are always high!!

Then other times I'm having to eat higher carbs to stop the lows. Doing the same activities.:confused:

Enoys the life out of me at times.:eek: I guess the lows are a good excuse for Chocolate:D

i thought it was just me so pleased to see I'm not unique:D

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lorilei

I am so glad you all responded! I'm wondering if i should go back to 45 carbs or less total for the day...fiddle with the ratio of humalog during the day...or just give in and add the basal (although with lows...i 'm hesitant to add more insulin...unless it drops the bolus numbers, i guess)...some days i feel great and like this is on it's way to under control and the next day it's either lots of highs or lots of lows...it's making me feel crazy!

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soso

I used to be a lot like that, it still happens a bit, but has leveled out a lot in the last 6 months or so.. but I still get bouts of a couple of days which I call low days and bouts of high days.

I wouldn't add the basel yet if I were you, can't help thinking that is only going to muddy the waters further. I only added basel when my FBG was steadily over 5.8 and my afternoon fasting tests were all in the 6's.

 

I just add a unit to my bolus when the bad days start and keep a close watch after meals and minus a unit on the low days and more watchful.. another thing I do on high bouts is try to get a bit of extra exercise in, esp. if I can do 10 mins of something strenuous just before I eat.

 

Gotta roll with the punches..

 

edited to say, I do tend to cut my carbs slightly on those days, that way there is less insulin to push me low and less carbs to push me up.. But I dont do anything too radical as I have come to the conclusion I have to just try and make it all work as normally as I can.

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jillrapp

Hey Lori,

 

I know what you're talking about and I'm sick of it too. 1 cookie - I'm so high that my head hurts like my eyes will pop out, 3 cookies and I get a reactive low within 2 hours that makes me vomit and makes it almost impossible to correct for. I know I'm insulin sensative though, not resistant. I'm afraid of a bolus insulin because I know that sometimes even 1 unit will be too much - and my 4-5 lows per week are already more than I can stand.

Even a normal diet of less than 60 grams of carbs/day will give me a low about every 3rd day. I don't know the answer to this and I'm searching for an endo that can maybe be some help. Right now I'm so flippin' frustrated!!!

 

I feel your pain!

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tinablair

My dad is diabetic as well, but obviously not like me... I am thankful he does'nt have it like me. Mine makes me feel like I am going crazy sometimes. The doctors are leaning toward the pump for me. They have been for about a year or so. I have been scared to do that due to my diabeties not being the normal type... meaning it does not react the same way each time I eat the same thing or well anyway I can not figure it out... so I am nervous. I go high in the morning just waiting to eat after taking my thyroid medicine. It does usually go up by 50 points on the sugar test. That is just for standing and breathing I guess.. Then other times I drop to 40 something for no reason, sometimes at night. I have taken the glucose tabs before and it not even flinch the reading then other times the same dose will raise in ridiculously. It is crazy. My a1c level last time was 7.8 I am suppose to see the doctor on the 20th of this month for my 3 month check up and to order a pump. Are any of you that are a 1.5 diabetic on a pump? Does it help the crazy levels? What kind of pump did you chose? I am sorry there are more of us out there (for yoursakes) but it sure is nice to possibly talk to someone who knows the frustrations. No one understands on my end, my family sometimes I wonder if the doctor does.... She is nice and all. Oh, I was misdiagnosed with type 2 and took medicine first, lost my weight down from a size 16 weighing 180 down to size 7 weighing 138. Still could not get my sugar undercontrol, so was sent to a specialist and they diagnosed me as 1.5 now I am on lantus and novolog shots. Yes you guessed it my weight and size has fliped back to the original. It is so depressing. The cycle of trying to correct lows then fixing the highs after affect is crazy. Any feedback would be appreciated. I am a newbie as of today on this site. Thank you for letting me vent. My email is tinablair@comporium.net

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lorilei

Hi Tina...sorry you have a bipolar pancreas too...i do think sometimes this can be the most frustrating aspect...and sometimes wish that dx had come later, when all was said and done. i just started a new regime myself, so i'll see how things even out...I'm hopeful.

 

and this is an excellent site, for both education and support...and heck, alot of well needed laughs...please feel free to pm me, or we can meet up in chat..where i have learned so much...one day i hope to repay the favors...

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Russell A.

Welcome Tinablair, you found a good place to learn especially coping with 1.5. I am a 1.5 and on a Cozmo pump. I have been on a pump for 6 years. I still have some ups and downs but it is much easier to control being on it. I would highly recommend it. I found myself with lots of highs and lows on meds and even on different insulins.

 

The pump is amazing in so many different respects.

 

Fire away with questions!

 

Russell

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lorilei

Russell thanks for joining in...i think Mortis has also had greater success with the pump ...these MDI's are tricky..and for what it's worth...i am now a believer in the importance of both basal and bolus and could see where a pump is useful in taming the wild pancreas....

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mortis505

Hello Tina,

 

What is your current insulin regimen? How many units of basal and what are your bolus doses? Are you injecting a bolus based on the number of carbs you eat or just set amounts? What brands/types of insulin are you using? Have you done basal testing? What is your diet like? What other meds are you taking?

 

Alot of questions I know. But there is always a way to work through it.

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Ohana

Well, I am having one of "those" days.

 

Ate a ridiculous amount of carbs (over 50) for lunch, without insulin - don't ask. NOTHING HAPPENED... I was under 120 at 2 hours post prandial, I went up to 137 at about 3 hours prandial.

 

Then tonight, I had about the same amount of carbs (rebellious day I guess) this time WITH insulin, and I spiked to 180 at 2 hours Post, and am still about 150 at 3 hours post.

 

Also, I had a couple of low days recently where I got down into the 40's and 50's before I even realized it. Go figure. I am SOOOO glad to read this post today and know I am not the only one.

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lorilei

ohana...i'm wondering if it's the kinds/mixtures of foods you are eating...i'm not completely comfortable with the glycemic load stuff myself, but if you ate slower releasing foods for lunch, that may be part of why you spiked after dinner (the gift that keeps giving which is very helful for earlier meals as long as you know what they do to you).. or if your body had to fend for lunch on it's own, then it was useless at dinner even with help...this is the kind of up and down I was seeing as well...but rarely a low as i was just eventully climbing higher...adding just the fast acting made things more dynamic b/c i could now facilitate dropping numbers, but i could just as easily spike when it wore off and the liver to pancreas ratio was fighting

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tinablair

Thank you for responding. How is your new regimin working? I am scheduled for a doctors appointment tomorrow.....

thanks again,

Tina

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tinablair

Russel,

I am sure I will have lots of questions tomorrow, so I hope you check this.... Why did you chose the cozmo instead of maybe the medtronic? Is it easy to use?

Tina

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tinablair

As of today my medicine is:

Novolog before meals with a sliding scale

morning 9 plus 1 unit per 50 for correction over 100

lunch is 7 plus

supper is 7 plus

then I take 27 units lantus before bed

My appointment tomorrow is to discuss the pump, so everything I quess will change. It want change immediately I guess since we have to order whichever one. How is insurance with this does anyone know?

 

Thanks, Tina

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tinablair

Ohana,

It is crazy isn't it! I can not figure it out! I have those days too! Alot! I was so frustrated I was going to eat the same things everday at the same time etc.... for maybe 3 days just to see And show people how crazy my sugar is. THis is hard to do since I am a mom of three full of energy boys and wife to a hubby that wants a hot meal every night.. LOL we are here and there with schedules sometimes eating on the run... life gets busy... The only thing that I have caught that my sugar for sure does is. Every morning I get up and take my thyroid medicine. Then 1 hour later I can take a shot and eat breakfast.. I have checked my sugar enough to know that it goes up 50 points in 1 hour after putting my feet on the floor. This is without food. But it does always do this.

Tina

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lorilei

tina...i know exactly what you mean...i have 3 little girls and i work...life is hectic...and then inconsistent bg can make you feel even more run down..if you were asking about my new regime...three full days b&b have gone pretty well...much flatter and the one sig spike was my own fault (threw granola in the mix just to see if i could handle it). For me, i feel quite certain that i will need to stay lower carb...carbs, even when being dealt with by added insulin still fatigue me...

 

however, I will need to find out about what the B&B routine will do to me/ for me during the hectic work week...i have had a week without hypos and I am much happier that way (of course!)...even if running high...I plan to do a basal test this next weekend to see what's what...my goal is still to use as little insulin as possible (i have weight gain phobias as well and i think insulin could be a culprit if used liberally)....

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Ohana

Tinablair,

 

First, good luck at the Dr. tomorrow. Let us know how it goes.

 

I only use Humalog for meals (is this technically a bolus?)

So I don't know much about basal testing and such.

However, I have had those days where I say, I am going to make a menu that lasts X amount of days, and follow it in a cyclical fashion "just to see" how different my readings can be :) Haven't actually done it yet - but glad someone else had the same idea!

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Rudy
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hello all. i'm new to the site so please bear with me while I ask a few questions..back in 11/06 i was diagnosed as a type 2 diabetic my acl was 12.7 and BS was 498 and I was taking 500mg of metformin 2x a day. I switched job positions at work around 2/07 and was weighing in at 204 lbs. after a year I lost 35 pounds my meds was switch to avandia 2mg once a day. In the past 2 years ive noticed that my BS were high especially if I was stressing out about something. weather it was bills getting paid on time personal or just taking the airplane to go on vacation! As soon as I started to relax the BS would come back to normal. For me normal would look like 95 before breakfast and 115-140 about 2-3 hours after lunch.

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