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rhonda-b

Type 1, 36 years old, trying to conceive

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rhonda-b

Hi all,

This is my first post, so I'll try to make it a good one :) I've been Type 1 for 15 years, and have been in relatively good control all along (on the Deltec Cosmo pump for ~6 years), but in the last 6 months have worked really hard and gotten my A1C down to 5.9 consistently. I do have high cholesterol, but am not taking anything for it since my husband and I are trying to get pregnant. (I've never been pregnant before - was on the pill for 15 years prior to getting married.)

 

We've been trying to conceive for about a year now, and have had all the battery of tests done. He's fine (he's also a tad younger at 32), and I am now on some fertility drugs trying to help my system do what it should, and on a 3rd round of this drug treatment protocol without any luck. Haven't tried IVF yet, although that may be the next step.

 

I guess I'm just looking for some hope/reassurance that it can happen for me? I know I'm older, I know I have lower egg reserve (due to testing) and while my blood sugars and overall health is ok, I am overweight and worry so much about my weight and diabetes being the reason I'm not getting pregnant. It is so frustrating when I feel so out of control of it all, with no hope in sight. I am seriously the heaviest Type 1 diabetic I know - seems like all other Type 1s I know are rail thin or at least a healthy low weight, but I have fought with my weight my entire life, and becoming type 1 diabetic at 21, it's been an even harder battle since.

 

But I also worry, being diabetic, are birth defects really common? If so, what kinds of defects? And being older plus diabetic, am I dooming my (hopeful) child to some sort of defect or problem?

 

I guess I don't really have a question....just sort of looking for someone with a similar situation who can offer some hope/shared experiences/etc.

 

Thanks in advance,

Rhonda

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princesslinda

Hi Rhonda. I can't offer any advice about your situation, (though i'm sure some of our T1 mommies will be chiming in soon) but did want to welcome you to the forums.

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RWright

Hello Rhonda! I have made it through two pregnancies. My first daughter was 3 weeks early, weighing in at 9lbs 10oz, 21inches long. They did an A1C after the pregnancy test. It was 12.1 I was blessed that she didn't have any problems. My second daughter was born at 35 weeks. Weighing in at 5 lbs 1 oz, 18 inches long. My sugars were excellent this time. She was in NICU for 3 weeks. I was able to hold her at birth. Then I had to wait for 2 weeks to hold her again. She was one sick little baby. I was told that if she had been a he..she might not have made it. I questioned the doc as to how she had problems and my sugar was great, and my older daughter was fine and my sugar wasn't so great. They said that the older one had to be a "fighter" because she was under stress. Which caused her to develop better. The younger was "lazy" because she wasn't under stress. They actually said that it would have been better for my to let my sugar run a little high at the end of the pregnancy to help. But she was early. Any way, she is fine now. No lasting complications.

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Lyrehca

Hi Rhonda,

 

Good luck with your efforts in trying to conceive. I had my son (completely healthy, about 7 pounds, 9 ounces at birth) at age 37 after conceiving with IVF and am gearing up for my second IVF two years later (I'm now 39). We are planning to do some extra genetic testing called PGD with this round of IVF to rule out whatever genetic problems we can.

 

The most important thing is to keep your A1cs ideally under 7, and the fact that you're at 5.9 is excellent.

 

I have always been on the higher side of Body Mass Index, and mine was probably around 27 or 28 when IVF worked for me, and it's about the same now. Honestly, my doctors (both endocrinologist, high risk ob/gyn, and my reproductive endocrinologist) never said a word about my weight--has anyone said anything to you about your weight?

 

Sometimes fertility issues aren't explained, and sometimes diabetes can cause birth defects, but research shows that the rates of birth defects in babies of diabetic moms are exactly the same as babies from non-diabetic moms as long as your A1c is under 6.9 or so. (A report in Diabetes Care came out this week reporting this exactly). It's natural to worry, but with an excellent A1c, you're doing all you can with your diabetes to ensure a healthy child. And my endocrinologist told me that there;s no link between diabetes and infertility issues.

 

I blogged about my infertility and pregnancy at my blog Managing the Sweetness Within (Managing the Sweetness Within) and am currently writing a book about pregnancy and diabetes that will be out in 2010. Feel free to email me directly if you have more questions.

 

Good luck!

 

Lyrehca

Lyrehca AT gmail DOT com

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Russell A.

Welcome Rhonda!

 

I do not have any words of wisdom on getting pregnant other than keep trying! I am sure your hubby will not mind!:) LOL

 

This is a wonderful group of folks with a wealth of knowledge!

 

I am just up the road in good 'ole VA and on the Cozmo as well.

 

What r your plans when you have to replace your Cozmo and it is no longer an option?

 

Glad to meet ya!

 

Russell

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rhonda-b

Ugh..I had heard through the grapevine that Smiths Medical was going under and the Cozmo would be gone...is that true??? I JUST got a new one last year, so I am hopefully good for the next 3-4 years, but after that, who knows? I will have to do some research for sure. Just last month I needed the cartridge cap on my pump replaced, and they sent me a new one and never said a word about the impending doom of Cozmo's going away...

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Ray4Rick

Hi Rhonda,

 

When I was pregnant with my daughter my AC1 was around 8ish. I had a great pregnancy, no morning sickness or crazy cravings, until I developped preeclapsia, which is a condition where proteins go into your kidneys and can poison you and the baby. I was 34.5 weeks when they induced me. Because she was early my daughter hadn't developed the sucking reflex and had to be tube fed. She then developed jaundice. She was in the hospital for 10 days before I could take her home. She is a health perfect 16 year old today with no signs of Diabetes.

 

Because of that condition, I did not dare to get pregnant again. But as you will read on these threads, this doesn't happen to everyone and most have healthy pregnancies.

 

 

Good luck to you

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rhonda-b

Lyrehca - thanks so much for the reply and info! No, other than saying "of course, it's always a good idea to be at a healthy weight", even the fertility specialist we are going to has never mentioned it. I do have *severe* plantar faceitis in my right foot and a little in my left, which obviously makes walking painful, but I just suck it up and deal with it most of the time, since I obviously can't take anti-inflammatories while trying to get pregnant. My podiatrist and physical therapist say that if I lost weight, it would help that a LOT, and I'm sure they are correct.

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rhonda-b

Ray4Rick - Thanks for the info! Getting some real-world stories helps a lot. 2 of my close friends have had babies in the past year and both had preeclampsia, so I am well-versed in understanding that situation, and seriously hope I don't have to go through that! SO happy to hear your daughter is 16 and healthy and perfect. It does give me hope!!! :)

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GretchO

Hi Rhonda-b...I finally got pregnant with my daughter just after I turned 42...my A1C was 10.something, got it down to mid 5s for the rest of the pregnancy. I was hospitalized for the last 6 weeks of the pregnancy because they thought I was developing pre-eclampsia and I lived 35 miles from my hosptial (never did develop it, just had high BPs controlled by the max doses of three BP meds). After ALL that, she was born perfectly healthy, no NICU, left the hospital a day later than scheduled because we were socked in by a snow storm. She's a now a happy, active, beautiful, and healthy (apple of my eye) 4 year old...

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rhonda-b

Gretchen - that is WONDERFUL! Thanks so much for sharing. My blood pressure has always been great, so I'm hoping and praying that continues once I get pregnant.

 

I see where you were diagnosed at age 30 with Type 1. I got it at 21, and my high school boyfriend also go it at ~30. Is it just me, or does it suddenly seem like more people are getting Type 1 later in life? I wonder (and suspect) that my "trigger" was having my tonsils out at 21, and then getting horribly sick with some sort of cold or virus a couple weeks later. I feel like that was when my immune system went haywire, and within 3 months of having my tonsils taken out, I was diagnosed with Type 1. Just weird.

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Stroupie

I don't really have info for you about pregnancy since I am getting ready to try for my 1st in the next couple months! I do want to share my sympathy about the weight issue. I too am slightly overweight (but healthy). Not only do I get mistaken for a Type II (by uneducated people) but my mother in law once said "you are pretty unusually for a Type I, they are usually pretty thin"!! Lets just say I counted to 10 before I responded to THAT. Most people don't understand that better control means increased chance of weight gain! Hang in there and good luck!!

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GretchO
Gretchen - that is WONDERFUL! Thanks so much for sharing. My blood pressure has always been great, so I'm hoping and praying that continues once I get pregnant.

 

I see where you were diagnosed at age 30 with Type 1. I got it at 21, and my high school boyfriend also go it at ~30. Is it just me, or does it suddenly seem like more people are getting Type 1 later in life? I wonder (and suspect) that my "trigger" was having my tonsils out at 21, and then getting horribly sick with some sort of cold or virus a couple weeks later. I feel like that was when my immune system went haywire, and within 3 months of having my tonsils taken out, I was diagnosed with Type 1. Just weird.

 

I was in complete denial about having it though I had symptoms (and knew deep down inside that I had it) for about 6 months maybe more before I was finally diagnosed. I don't know if there were any triggers around the time I started developing symptoms - I'd always been pretty healthy and active and was unaware that adults could develop Type 1 and I didn't think I had Type 2 (active, thin, ate well). BUT, autoimmune diseases run in my family on both sides - fraternal aunt had Crohn's disease, maternal aunt had rheumatoid arthritis, cousins w/ hyperthyroid problems, maternal grandmother had psoriasis, Dad has Type 2. So, it seems I was genetically predisposed and there probably was a trigger at some point. Stupid trigger.

 

Best of luck to you, and don't worry too much!!

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